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Beautiful Rainbows....Our Family's Journey With Hurler's Syndrome

A Blog About MPS 1H....And Some Other Stuff, Too

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Beautiful Rainbows....Our Family's Journey With Hurler's Syndrome | increasinglybeautifulrainbow.blogspot.com Reviews
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A Blog About MPS 1H....And Some Other Stuff, Too
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Beautiful Rainbows....Our Family's Journey With Hurler's Syndrome | increasinglybeautifulrainbow.blogspot.com Reviews

https://increasinglybeautifulrainbow.blogspot.com

A Blog About MPS 1H....And Some Other Stuff, Too

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Beautiful Rainbows....Our Family's Journey With Hurler's Syndrome: December 2011

http://increasinglybeautifulrainbow.blogspot.com/2011_12_01_archive.html

Beautiful Rainbows.Our Family's Journey With Hurler's Syndrome. A Blog About MPS 1H.And Some Other Stuff, Too. Tuesday, 6 December 2011. A Long December And There's Reason To Believe Maybe This Year Will Be Better Than The Last" T 49. There's a song called A Long December. By Counting Crows and a portion of the lyrics goes. A long December and there's reason to believe maybe this year will be better than the last". I sing this song every year, but this year it really. Our first clinic appointment was two...

2

Beautiful Rainbows....Our Family's Journey With Hurler's Syndrome: A 2nd Birthday & A Big Girl Bed For A Big Girl

http://increasinglybeautifulrainbow.blogspot.com/2012/07/a-2nd-birthday-big-girl-bed-for-big-girl.html

Beautiful Rainbows.Our Family's Journey With Hurler's Syndrome. A Blog About MPS 1H.And Some Other Stuff, Too. Sunday, 29 July 2012. A 2nd Birthday and A Big Girl Bed For A Big Girl. Miya's second birthday was celebrated on the 7th of July. Just as last year, it was a party for three (Mummy, Daddy, Miya) and Miya enjoyed herself imensely. Once I persueded her to stop playing with the balloons, she enjoyed opening her gifts and eating a slice of birthday cake. Miya's Giant Cupcake Birthday Cake. Last nigh...

3

Beautiful Rainbows....Our Family's Journey With Hurler's Syndrome: March 2012

http://increasinglybeautifulrainbow.blogspot.com/2012_03_01_archive.html

Beautiful Rainbows.Our Family's Journey With Hurler's Syndrome. A Blog About MPS 1H.And Some Other Stuff, Too. Thursday, 1 March 2012. 4 1/2 Months Post Transplant And All’s Well. Yesterday was our monthly trip to Great Ormond Street Hospital in London for Miya’s clinic appointment. Miya has started saying some new words: up, bye, yay! At April’s appointment, our termination of semi-isolation will be determined as will the removal of the Hickman line. Subscribe to: Posts (Atom). Household Manager and Dom...

4

Beautiful Rainbows....Our Family's Journey With Hurler's Syndrome: October 2011

http://increasinglybeautifulrainbow.blogspot.com/2011_10_01_archive.html

Beautiful Rainbows.Our Family's Journey With Hurler's Syndrome. A Blog About MPS 1H.And Some Other Stuff, Too. Sunday, 30 October 2011. Days run into each other in this place. I hadn't realized until last Thursday that I hadn't left the hospital in four days. Also, I now fully understand why sleep deprivation is used as a form of torture. On Friday, T 9, Miya's pain relief was increased to Morphine via her Hickman line. She now receives a small, steady dose called a "background" at all times and can ...

5

Beautiful Rainbows....Our Family's Journey With Hurler's Syndrome: Almost Christmas

http://increasinglybeautifulrainbow.blogspot.com/2013/12/almost-christmas.html

Beautiful Rainbows.Our Family's Journey With Hurler's Syndrome. A Blog About MPS 1H.And Some Other Stuff, Too. Tuesday, 10 December 2013. It always seems the time flies by now, with two little ones. Just as a quick update, Miya is FABULOUS! She can write her own name, is potty trained (except for the odd accident) and LOVES going to nursery. Scout is full of mischief and is into EVERYTHING! She started crawling a month ago (at 6 1/2 months) and now thinks she should be able to walk. 1 March 2014 at 21:10.

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Attempting the Ordinary: August 2012

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Ramblings of a somewhat choice single mother. I’m a once-single mum of two boys (4 and 8) who was ‘attempting the ordinary’ after conceiving my second son by donor. I'm now married and pregnant and its complicated - again. These are my anonymous ramblings about life, love, parenting and the rest – emptying my head of the weird, the wonderful and the mundane. Hope you enjoy. View my complete profile. Thursday, 30 August 2012. Of saying goodbye to summer. Its been a time when Ive been intellectually challe...

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Attempting the Ordinary: February 2012

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Ramblings of a somewhat choice single mother. I’m a once-single mum of two boys (4 and 8) who was ‘attempting the ordinary’ after conceiving my second son by donor. I'm now married and pregnant and its complicated - again. These are my anonymous ramblings about life, love, parenting and the rest – emptying my head of the weird, the wonderful and the mundane. Hope you enjoy. View my complete profile. Wednesday, 29 February 2012. Of Time and Thomas. It’s been a while again hasn’t it? Links to this post.

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Attempting the Ordinary: December 2011

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Ramblings of a somewhat choice single mother. I’m a once-single mum of two boys (4 and 8) who was ‘attempting the ordinary’ after conceiving my second son by donor. I'm now married and pregnant and its complicated - again. These are my anonymous ramblings about life, love, parenting and the rest – emptying my head of the weird, the wonderful and the mundane. Hope you enjoy. View my complete profile. Wednesday, 21 December 2011. Festive excretions. not to be read by the squeamish! Links to this post.

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Attempting the Ordinary: Hell(o) again

http://attemptingtheordinary.blogspot.com/2014/09/hello-again.html

Ramblings of a somewhat choice single mother. I’m a once-single mum of two boys (4 and 8) who was ‘attempting the ordinary’ after conceiving my second son by donor. I'm now married and pregnant and its complicated - again. These are my anonymous ramblings about life, love, parenting and the rest – emptying my head of the weird, the wonderful and the mundane. Hope you enjoy. View my complete profile. Thursday, 11 September 2014. I can chart the distances between those moments, after Christmas it had got t...

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Attempting the Ordinary: October 2012

http://attemptingtheordinary.blogspot.com/2012_10_01_archive.html

Ramblings of a somewhat choice single mother. I’m a once-single mum of two boys (4 and 8) who was ‘attempting the ordinary’ after conceiving my second son by donor. I'm now married and pregnant and its complicated - again. These are my anonymous ramblings about life, love, parenting and the rest – emptying my head of the weird, the wonderful and the mundane. Hope you enjoy. View my complete profile. Monday, 29 October 2012. Sex, love or self-preservation? Well its been an interesting weekend. Let me put ...

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Attempting the Ordinary: May 2012

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Ramblings of a somewhat choice single mother. I’m a once-single mum of two boys (4 and 8) who was ‘attempting the ordinary’ after conceiving my second son by donor. I'm now married and pregnant and its complicated - again. These are my anonymous ramblings about life, love, parenting and the rest – emptying my head of the weird, the wonderful and the mundane. Hope you enjoy. View my complete profile. Saturday, 26 May 2012. Of the 18 month wake up call. Links to this post. Thursday, 17 May 2012. Http:/ sex...

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Attempting the Ordinary: Irresponsiblity, sexting and public displays of affection

http://attemptingtheordinary.blogspot.com/2013/01/irresponsiblity-sexting-and-public.html

Ramblings of a somewhat choice single mother. I’m a once-single mum of two boys (4 and 8) who was ‘attempting the ordinary’ after conceiving my second son by donor. I'm now married and pregnant and its complicated - again. These are my anonymous ramblings about life, love, parenting and the rest – emptying my head of the weird, the wonderful and the mundane. Hope you enjoy. View my complete profile. Saturday, 12 January 2013. Irresponsiblity, sexting and public displays of affection. I'm aware this may w...

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Attempting the Ordinary: June 2012

http://attemptingtheordinary.blogspot.com/2012_06_01_archive.html

Ramblings of a somewhat choice single mother. I’m a once-single mum of two boys (4 and 8) who was ‘attempting the ordinary’ after conceiving my second son by donor. I'm now married and pregnant and its complicated - again. These are my anonymous ramblings about life, love, parenting and the rest – emptying my head of the weird, the wonderful and the mundane. Hope you enjoy. View my complete profile. Wednesday, 27 June 2012. Of the real life consequences of internet behaviour. Links to this post. So, alth...

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Attempting the Ordinary: January 2013

http://attemptingtheordinary.blogspot.com/2013_01_01_archive.html

Ramblings of a somewhat choice single mother. I’m a once-single mum of two boys (4 and 8) who was ‘attempting the ordinary’ after conceiving my second son by donor. I'm now married and pregnant and its complicated - again. These are my anonymous ramblings about life, love, parenting and the rest – emptying my head of the weird, the wonderful and the mundane. Hope you enjoy. View my complete profile. Saturday, 12 January 2013. Irresponsiblity, sexting and public displays of affection. Im aware this may we...

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Attempting the Ordinary: September 2012

http://attemptingtheordinary.blogspot.com/2012_09_01_archive.html

Ramblings of a somewhat choice single mother. I’m a once-single mum of two boys (4 and 8) who was ‘attempting the ordinary’ after conceiving my second son by donor. I'm now married and pregnant and its complicated - again. These are my anonymous ramblings about life, love, parenting and the rest – emptying my head of the weird, the wonderful and the mundane. Hope you enjoy. View my complete profile. Friday, 21 September 2012. Slog, Og and a belated blog. Wow, that was a long time without blogging - sorry!

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Beautiful Rainbows....Our Family's Journey With Hurler's Syndrome

Beautiful Rainbows.Our Family's Journey With Hurler's Syndrome. A Blog About MPS 1H.And Some Other Stuff, Too. Tuesday, 10 December 2013. It always seems the time flies by now, with two little ones. Just as a quick update, Miya is FABULOUS! She can write her own name, is potty trained (except for the odd accident) and LOVES going to nursery. Scout is full of mischief and is into EVERYTHING! She started crawling a month ago (at 6 1/2 months) and now thinks she should be able to walk. Friday, 30 August 2013.

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