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International Niemann-Pick Disease AllianceThe International Niemann-Pick Disease Alliance is a global network of non-profit organisations supporting those affected by Niemann-Pick Diseases.
http://www.inpda.org/
The International Niemann-Pick Disease Alliance is a global network of non-profit organisations supporting those affected by Niemann-Pick Diseases.
http://www.inpda.org/
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International Niemann-Pick Disease Alliance | inpda.org Reviews
https://inpda.org
The International Niemann-Pick Disease Alliance is a global network of non-profit organisations supporting those affected by Niemann-Pick Diseases.
inpda.org
Useful Links - INPDA
http://www.inpda.org/useful-link
International Niemann Pick Disease Alliance. Follow us on Twitter. Rare Disease Umbrella Groups. Further information on NPD. As well as our members. There are groups and organisations all over the world working in the field of NPD. We list the ones we know about here. It’s not an exhaustive list and we’ll be adding to it shortly. Rare Disease Umbrella Groups. In New Zealand: www.ldnz.org.nz. In Europe: www.eurordis.org. In North America: www.rarediseases.org. In China: www.hanjianbing.org. 2016 Internati...
About us - INPDA
http://www.inpda.org/about-us
International Niemann Pick Disease Alliance. Follow us on Twitter. The International Niemann Pick Disease Alliance (INPDA) is a global network of non-profit organisations, supporting persons affected by Niemann Pick Diseases (NPD). The alliance was formed in 2009 to provide a forum for patient groups and professionals working in the field of NPD. Associacion Niemann Pick de Argentina. Canadian Chapter of the National Niemann Pick Disease Foundation (CCNNPDF). Vaincre Les Maladies Lysosomales (VML). China...
Improving Diagnosis - INPDA
http://www.inpda.org/improving-diagnosis
International Niemann Pick Disease Alliance. Follow us on Twitter. Think Again. Think NP-C. Watch the Think Again. Think NP-C campaign showreel. Think Again. Think NP-C Infographic. Think Again. Think NP-C. NP-C is commonly undetected or misdiagnosed. This is often due to its highly variable clinical presentation characterised by a wide range of symptoms that individually are not specific to the disease. Visit the campaign website www.think-npc.com. For more information and to join the campaign! The info...
Vtesse, Inc. Expands Scientific Advisory Board - INPDA
http://www.inpda.org/vtesse-inc-expands-scientific-advisory-board
International Niemann Pick Disease Alliance. Follow us on Twitter. Vtesse, Inc. Expands Scientific Advisory Board. Vtesse, Inc. Expands Scientific Advisory Board. Filed under: Trial Updates. Vtesse, Inc. Expands Scientific Advisory Board, Fills Key Patient Advocacy Position to Prepare for Further Clinical Development of VTS-270 in Niemann-Pick Disease Type C (NPC). View the full press release on their website. Calling all patients and carers! Think Again. Think NP-C.
Get Involved! - INPDA
http://www.inpda.org/get-involved
International Niemann Pick Disease Alliance. Follow us on Twitter. How you can help. How you can help. We’d love to hear from you in you’d like to join our alliance, help promote our work, become a sponsor, learn more about NPD or make a donation. There are many individuals, organisations and institutes working across the world to improve the lives of people living with NPD, we’d love to hear about your work too! Please do contact us. And help make a difference for families worldwide suffering from NPD.
TOTAL PAGES IN THIS WEBSITE
11
Links
http://www.maelsleben.ch/index.php/en/links
NPC in the Media. Links and information about Krankheit Niemann Pick C diseas:. Swiss Niemann-Pick Association www.npsuisse.ch. NPSuisse on Facebook www.facebook.com/niemannpick. NPSuisse on Twitter twitter.com/npsuisse. German Niemann Pick association www.niemann-pick.de. English Niemann Pick association www.niemannpick.org.uk. American Niemannn Pick association www.nnpdf.org. German Chronic Rare Disease Alliance: http:/ www.achse-online.de. Niemann-Pick Children's Fund: http:/ www.npcfund.org. List of ...
Enlaces de interés. Fundación Niemann-Pick de España
http://www.fnp.es/enlaces-de-interes
Fundación Niemann-Pick de España. Por una causa… La Vida. Tipos A y B. Asociaciones de Afectados Niemann-Pick. Campaña “Think Again – Think NP-C”. INPDA Alianza Internacional para la Enfermedad de Niemann-Pick. Niemann-Pick Disease Group (Reino Unido). National Niemann-Pick Disease Foundation (EEUU). Canadian Chapter of the National Niemann-Pick Disease Foundation (Canadá). Asociación Niemann-Pick de Argentina. Vaincre Les Maladies Lysosomales (Francia). Associazione Italiana Niemann-Pick Onlus (Italia).
CTI Cares
http://communityresearch.com/about-cti/cti-cares.aspx
Health Outcomes and Economics. Health Outcomes and Economics. About CTI CTI Cares. CTI Clinical Research Center Locations. In addition to the monthly employee selected spotlights, CTI Cares will respond to local, regional, national, and global needs as they arise. CTI is committed to donating back to those in need, especially in communities and areas directly related to our employees, sponsors, and partners. Support has been donated to:. 4 Paws for Ability. American Brain Tumor Association. The Leukemia ...
CTI Cares
http://www.ctifacts.com/about-cti/cti-cares.aspx
Health Outcomes and Economics. Health Outcomes and Economics. About CTI CTI Cares. CTI Clinical Research Center Locations. In addition to the monthly employee selected spotlights, CTI Cares will respond to local, regional, national, and global needs as they arise. CTI is committed to donating back to those in need, especially in communities and areas directly related to our employees, sponsors, and partners. Support has been donated to:. 4 Paws for Ability. American Brain Tumor Association. The Leukemia ...
CTI Cares
http://www.cticlinical.com/about-cti/cti-cares.aspx
Health Outcomes and Economics. Health Outcomes and Economics. About CTI CTI Cares. CTI Clinical Research Center Locations. In addition to the monthly employee selected spotlights, CTI Cares will respond to local, regional, national, and global needs as they arise. CTI is committed to donating back to those in need, especially in communities and areas directly related to our employees, sponsors, and partners. Support has been donated to:. 4 Paws for Ability. American Brain Tumor Association. The Leukemia ...
The Joy of Jacob: NNPDF Conference 2014
http://joyofjacob.blogspot.com/2014/08/nnpdf-conference-2014.html
The Joy of Jacob. Perservering Against Niemann-Pick Disease Sept. 20, 2010 - Nov. 15, 2012. We originally created this blog to keep family and friends updated about our little man Jacob, who was diagnosed in the summer of 2011 with a rare, life-limiting genetic disease called Niemann-Pick (type A/B). Jacob earned his angel wings on November 15, 2012, but remains our daily inspiration and constant reminder that we must live in the moment and fill each day with JOY, LAUGHTER and an abundance of LOVE. Frank...
The Joy of Jacob: August 2014
http://joyofjacob.blogspot.com/2014_08_01_archive.html
The Joy of Jacob. Perservering Against Niemann-Pick Disease Sept. 20, 2010 - Nov. 15, 2012. We originally created this blog to keep family and friends updated about our little man Jacob, who was diagnosed in the summer of 2011 with a rare, life-limiting genetic disease called Niemann-Pick (type A/B). Jacob earned his angel wings on November 15, 2012, but remains our daily inspiration and constant reminder that we must live in the moment and fill each day with JOY, LAUGHTER and an abundance of LOVE. Frank...
INPDA : NPC
http://www.think-npc.com/about/inpda
Think Again. Think NP-C ►. Advisory committee ►. Could it be NP-C? Improving the care of Niemann-Pick patients across the world. Who is the International Niemann-Pick Disease Alliance (INPDA)? The INPDA is an alliance of non-profit organisations supporting those affected by Niemann-Pick disease. This organisation operates as a global network to exchange information, experience and knowledge of Niemann-Pick disease. More information about the INPDA can be found at http:/ www.inpda.org/. A number of materi...
Think NP-C Campaign Materials : NPC
http://www.think-npc.com/think-np-c-campaign-materials
Think Again. Think NP-C ►. Advisory committee ►. Could it be NP-C? Think NP-C campaign materials. Think Again. Think NP-C aims to reduce the time to diagnosis by supporting healthcare professionals who are unfamiliar with NP-C to recognise the key signs and symptoms of the disease. Think NP-C campaign materials. All campaign materials are available for you to download. Please Contact us. If you need any of the materials in another language. How to use the posters. Think Again. Think NP-C logo. Add the ba...
Links
http://www.maeloetterli.ch/index.php/en/links
NPC in the Media. Links and information about Krankheit Niemann Pick C diseas:. Swiss Niemann-Pick Association www.npsuisse.ch. NPSuisse on Facebook www.facebook.com/niemannpick. NPSuisse on Twitter twitter.com/npsuisse. German Niemann Pick association www.niemann-pick.de. English Niemann Pick association www.niemannpick.org.uk. American Niemannn Pick association www.nnpdf.org. German Chronic Rare Disease Alliance: http:/ www.achse-online.de. Niemann-Pick Children's Fund: http:/ www.npcfund.org. List of ...
TOTAL LINKS TO THIS WEBSITE
45
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International Niemann-Pick Disease Alliance
International Niemann Pick Disease Alliance. Follow us on Twitter. A global network of non-profit organisations supporting those affected by Niemann-Pick Diseases. Calling all patients and carers! We've created a global registry of all NPD patients - if you're not enrolled yet, join us now. Think Again. Think NP-C. Join our international campaign to improve diagnosis of NP-C! Update #18 on the Orphazyme AIDNPC Clinical Programme. Chin Huei Wu (巫錦輝) [NPUK: My Story]. Eurordis / RDI Vienna. The information...
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