gwendolynstrongfoundation.org.oniric.us
Gwendolyn Strong Foundation : What You Can Do Page
http://gwendolynstrongfoundation.org.oniric.us/campaigns/public
What you can do. What You Can Do. Host A Fundraiser One person and one. October 07, 2011. Anything can become an opportunity to raise funds for theGSF to help support our mission to end SMA – absolutely. October 07, 2011. Handcrafted using high quality materials, these adorable crocheted hats and hair clips always give back. . Couture To Cure SMA Handmade vintage. October 07, 2011. Couture To Cure SMA. Offers one-of-a-kind vintage inspired accessories perfect for the little girl in your life. InsideSMA&#...
gettyowl.org
Getty Owl Foundation » SMA Library
http://gettyowl.org/what-is-sma/sma-library
Helping families. Fighting SMA. Consensus Statement for Standard of Care in SMA [General]. Consensus Statement for Standard of Care in SMA [Family Guide]. Introduction for SMA Families. Caring Choices for SMA. SMA MebEd Cafe Webcast. Special Considerations for Respiratory Management of SMA – Schroth. NOTE: Bipap “Span of 10” discussed at p. 5247.]. SMA Type 1: Noninvasive Respiratory Management Approach – Bach. NOTE: Bipap “Span of 10” discussed.]. SMA Intensive Care and Extubation Protocol – Bach.
walkingwayoverrated.blogspot.com
Walking, Way Overrated: Praise God, We Made It Through….
http://walkingwayoverrated.blogspot.com/2015/02/praise-god-we-made-it-through.html
Walking, Way Overrated. Monday, February 2, 2015. Praise God, We Made It Through…. This time last week, I was sharing about how I was about to try spending the night sleeping in my power tilt wheelchair. Did I make it? Well, here I am. I meant to write about it the next day, but.needless to say, my brain cells were lacking all last week. After some much needed R.E.M. sleep, I can now put words together, to share the following. I Must Be Dying…. A quick recap ( read about it here. What are we going to do?
georgialucaswpg.blogspot.com
Georgia's Journey: Calla at 9
http://georgialucaswpg.blogspot.com/2013/03/calla-at-9.html
A blog about family life and remembering our sweet Georgia, who died of SMA. Welcome to Georgia's Journey. Georgia Lily Lucas was born at home on October 6th, 2008 4:15am, in Winnipeg, Manitoba. She was diagnosed with SMA (Spinal Muscular Atrophy) on April 1, 2009. Thursday, March 14, 2013. At 9 years old you are wise beyond your years. You are calm and practical, and seem to know yourself better than a lot of 29 year olds. You are sweet and you are kind. You are an amazing big sister! You are growing up...
georgialucaswpg.blogspot.com
Georgia's Journey: 2013-09-01
http://georgialucaswpg.blogspot.com/2013_09_01_archive.html
A blog about family life and remembering our sweet Georgia, who died of SMA. Welcome to Georgia's Journey. Georgia Lily Lucas was born at home on October 6th, 2008 4:15am, in Winnipeg, Manitoba. She was diagnosed with SMA (Spinal Muscular Atrophy) on April 1, 2009. Thursday, September 5, 2013. September 2013 has been in the back of my mind for a long time. Today you would have started kindergarten! Tomorrow, when I wake up I will have survived one more milestone you missed. Today was HARD! Apr 17 - Apr 24.
georgialucaswpg.blogspot.com
Georgia's Journey: 2013-03-17
http://georgialucaswpg.blogspot.com/2013_03_17_archive.html
A blog about family life and remembering our sweet Georgia, who died of SMA. Welcome to Georgia's Journey. Georgia Lily Lucas was born at home on October 6th, 2008 4:15am, in Winnipeg, Manitoba. She was diagnosed with SMA (Spinal Muscular Atrophy) on April 1, 2009. Monday, March 18, 2013. Maya made some fantastic friends and is a little social butterfly. Love to you all,. Links to this post. Subscribe to: Posts (Atom). Georgia's Journey of Hope. Winnipeg SMA Fundraiser Event. Sign the petition to cure SMA.
georgialucaswpg.blogspot.com
Georgia's Journey: Missing You
http://georgialucaswpg.blogspot.com/2014/04/missing-you.html
A blog about family life and remembering our sweet Georgia, who died of SMA. Welcome to Georgia's Journey. Georgia Lily Lucas was born at home on October 6th, 2008 4:15am, in Winnipeg, Manitoba. She was diagnosed with SMA (Spinal Muscular Atrophy) on April 1, 2009. Monday, April 21, 2014. You taught us all so much about love but not how to let go. How do I let go of a part of myself, of my heart? Could I have fought harder for you? What do I do with all the 'missing'? I miss your smile and your giggle...
