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Brain Blips: An Epilepsy Journey: April 2015

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Brain Blips: An Epilepsy Journey. Learning about and Living with Epilepsy, a Mother/Daughter Blog. Thursday, April 16, 2015. Rocking Epilepsy Awareness with Annie Bean. Thank you so much, Annie Bean. For being willing to TALK publicly about having epilepsy. And for not just being willing. To TALK, but actually TALKING! For educating people to the fact all epilepsy doesn't look the same. For being a great role model to my daughter- and others with epilepsy. You Rock, Annie Bean! Friday, April 10, 2015.

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Brain Blips: An Epilepsy Journey: August 2016

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Brain Blips: An Epilepsy Journey. Learning about and Living with Epilepsy, a Mother/Daughter Blog. Wednesday, August 17, 2016. Medical Marijuana Journey, Weeks 2-5: Riding the Drug Interaction Roller-Coaster. We've all heard those miraculous stories about kids who become seizure free after a few doses of medical marijuana. By the end of her first week on CBD oil (medical marijuana). In fact, Awesome had as many big seizures in the first 5 weeks on CBD as she'd had in the previous 21 weeks! All the medica...

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Brain Blips: An Epilepsy Journey: Thoughts on Living with Epilepsy: #1

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Brain Blips: An Epilepsy Journey. Learning about and Living with Epilepsy, a Mother/Daughter Blog. Tuesday, November 15, 2016. Thoughts on Living with Epilepsy: #1. Living with epilepsy is:. Knowing that the first appropriately chosen anti-epileptic drug (AED) your child tries has about a 33-60% chance of working to eliminate seizures. Knowing that for about 66% of children,the first or second appropriately chosen AED works to control (eliminate) seizures. Knowing that if one of the dangerous medications...

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Brain Blips: An Epilepsy Journey: Medical Marijuana Journey: On Objecting to the Epileptic Child as Lab Rat

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Brain Blips: An Epilepsy Journey. Learning about and Living with Epilepsy, a Mother/Daughter Blog. Saturday, June 18, 2016. Medical Marijuana Journey: On Objecting to the Epileptic Child as Lab Rat. On its surface this argument seems reasonable and perhaps even prudent. But is it? My response includes two points:. There's something very perplexing about noting a dearth of studies about a substance which- because of it's classification as a US Federal Schedule I Drug. Think about that for a moment. The tr...

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Brain Blips: An Epilepsy Journey: June 2015

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Brain Blips: An Epilepsy Journey. Learning about and Living with Epilepsy, a Mother/Daughter Blog. Saturday, June 13, 2015. Today was not a good day. Awesome had a grand mal (literally "big bad") seizure early this afternoon. The first one in more than five weeks. We had hoped to make it to her next neurology appointment at the end of June without another seizure. It's true that we think we've found patterns and so we've made adjustments, established routines. But who's to say that we're not reading ...

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Brain Blips: An Epilepsy Journey: July 2016

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Brain Blips: An Epilepsy Journey. Learning about and Living with Epilepsy, a Mother/Daughter Blog. Wednesday, July 27, 2016. Medical Marijuana Journey: The First Week. Wed, June 1. Awesome declares, "Medical marijuana takes like rotten seaweed.". Her brother sitting nearby asks pointedly, "How do you know what rotten seaweed tastes like? She makes a face at him. Thurs, June 2. In the afternoon Awesome is very tired and nauseated. Despite the fact that she'd eaten very well at both breakfast and lunch...

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Brain Blips: An Epilepsy Journey: Medical Marijuana Journey, Weeks 6-12: Distracted

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Brain Blips: An Epilepsy Journey. Learning about and Living with Epilepsy, a Mother/Daughter Blog. Tuesday, October 4, 2016. Medical Marijuana Journey, Weeks 6-12: Distracted. This is the third blogpost about our daughter Awesome's trial of Medical Marijuana for Intractable Epilepsy. If you want to go back and read the first two blogposts, please click on these links:. First this one: Awesome's First Week on medical marijuana. And second, this one: Weeks 2-5 of Awesome's Trial of Medical Marijuana. 3) Tr...

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Brain Blips: An Epilepsy Journey: March 2015

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Brain Blips: An Epilepsy Journey. Learning about and Living with Epilepsy, a Mother/Daughter Blog. Monday, March 30, 2015. Random Thoughts on Epilepsy. What comes to mind when I hear that word? Terrible, Awful, No-good things. Hideous little creatures whose only goal is to ruin my day. I mean seriously, last time, I didn't have the brain power to read a comic that I had been wanting to read all day, and I dropped my favorite stuffed animal in the toilet. But when I hear the words Epilepsy Awareness.

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Brain Blips: An Epilepsy Journey: October 2015

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Brain Blips: An Epilepsy Journey. Learning about and Living with Epilepsy, a Mother/Daughter Blog. Tuesday, October 27, 2015. Poolside Helicopter Parent: It's Not What You Think. If you've been at our local YMCA pool during late afternoons this summer, you've seen me. I'm the "Helicopter Mom". Yes, I was THAT mom. The one that apparently didn't get the memo about how hovering over my child was both harmful.and so. Her daughter barreled down the slide and plunged into the water- as if she didn't trust tha...