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MPN Research Foundation
http://mpnrf.blogspot.com/2015/05/you-may-have-heard-that-earlier-this.html
Thursday, May 21, 2015. You may have heard that earlier this week the Federal Trade Commission filed a lawsuit against four cancer groups for defrauding donors. The four organizations collected $187 million between 2008 and 2012. Founder James Reynolds, Sr. and his friends and family members operated all the “sham” organizations. Less than 2 cents of every dollar donated went to aid for cancer patients. How do you know if your donation supports the cause that is important to you? You should also check th...
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MPN Research Foundation: MF HIKE
http://mpnrf.blogspot.com/2015/06/mf-hike.html
Tuesday, June 30, 2015. With research there is hope". WITH RESEARCH THERE IS HOPE". On August 19, 2014, Julie Libon was diagnosed with Myelofibrosis. She learned that MF is a rare blood cancer that affects approximately 16,500 to 18,000 people in the United States with no cure and no treatments to slow down the progression of this disease. If you're inspired by Julie's actions email Bill @ wcrowley@mpnresearchfoundation.org. With your idea, big or small. After her diagnosis, she and her family felt compe...
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MPN Research Foundation
http://mpnrf.blogspot.com/2015/04/pa-support-group-leader-jean-diesch.html
Wednesday, April 22, 2015. PA Support Group Leader, Jean Diesch, Rally's "MPN Warriors" to raise Awareness at the "Light the Night Walk" during BCAM. We took a few minutes to talk with Jean about her experiences as a Support Group Leader. Prepare to be inspired! Why did you become a Support Group Leader? Where did you begin your journey as a SGL? What were some of the challenges you came across? How did you overcome them? I requested the MPN Research Foundation notify their patient base to inform people ...
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MPN Research Foundation: Help fix Medicare's gap of coverage for Myelofibrosis patients seeking a stem cell transplant
http://mpnrf.blogspot.com/2015/05/help-fix-medicares-gap-of-coverage-for.html
Monday, May 4, 2015. Help fix Medicare's gap of coverage for Myelofibrosis patients seeking a stem cell transplant. I just submitted my first public comment ever to the Centers for Medicare and Medicaid Services (CMS), the body that governs what is covered by Medicare and Medicaid. By the time you finish reading this I hope you'll decide to follow suit. There is data to back this up, and also there's stories like Ron's. Medicare should be encouraged to explicitly cover transplant for myelofibrosis. We ar...
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MPN Research Foundation: February 2015
http://mpnrf.blogspot.com/2015_02_01_archive.html
Tuesday, February 24, 2015. Research Fuels Progress Against Cancer. Research Fuels Progress Against Cancer. Research continues to be our best defense against cancer. It improves survival and quality of life for millions of people by spurring the development of new and better ways to prevent, detect, diagnose, treat, and, increasingly, cure some of the more than 200 diseases we call cancer. There are 4 types or phases. Phase I studies are designed to determine the best dose of a therapy and how humans pro...
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MPN Research Foundation: MPNs made news at ASCO this year
http://mpnrf.blogspot.com/2015/06/mpns-were-all-over-asco-this-year.html
Friday, June 5, 2015. MPNs made news at ASCO this year. The American Society of Clinical Oncology has its big meeting each year in Chicago in early June. In the past solid tumor cancers have received the most attention, saving blood cancer announcements for the American Society of Hematology meeting where the focus is more narrow. This year, however, was different, with big news coming from Baxter/CTIBiopharma on their Pacritinib data. Dr Ruben Mesa presented at a press conference. Life with Essential Th...
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MPN Research Foundation: MPN Clinical Trial Highlights for Summer 2015
http://mpnrf.blogspot.com/2015/07/mpn-treatment-pipeline-for-summer-2015.html
Friday, July 17, 2015. MPN Clinical Trial Highlights for Summer 2015. If you have MF, PV or ET but don’t need medication now, you may think that clinical trials don’t matter to you. But that could change, at which point you may want to review your options. Thankfully, over the past years the interest in developing treatments for people living with these rare, chronic blood cancers has exploded. Here are some clinical trials we’re keeping our eye on:. Acquired Imetelstat from Geron and has an open study t...
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MPN Research Foundation: March 2015
http://mpnrf.blogspot.com/2015_03_01_archive.html
Tuesday, March 10, 2015. 2015 MPN Challenge Grant Program. The 2015 MPN Challenge is a grant program supported jointly by the MPN. Research Foundation and the Leukemia and Lymphoma Society. This grant program represents an important partnership between MPNRF and LLS, who share a mission to advance the scientific understanding of MPNs and bring new treatments and the hope for a cure to patients with these rare diseases. The 2015 MPN Challenge. Why this Approach is Appropriate Now. To guide us, in November...
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MPN Research Foundation: October 2013
http://mpnrf.blogspot.com/2013_10_01_archive.html
Monday, October 14, 2013. Clinical trials news for PV and ET patients. Last week two companies reported news on their clinical trials for myeloproliferative neoplasms:. AOP Orphan Pharmaceuticals announced. That Phase III trials were going well for their study on Pegasys in PV patients. This study is being conducted in Europe and is currently recruiting. Promedior has initiated a new Phase II clinical trial. For their compound, PRM-151, in people with myelofibrosis. Subscribe to: Posts (Atom).
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MPN Research Foundation: September 2013
http://mpnrf.blogspot.com/2013_09_01_archive.html
Thursday, September 5, 2013. This September we're putting patients in the driver's seat. Last September, the U.S. House of representatives declared that. September is Blood Cancer Awareness Month. In 2012 our focus was to help educate patients about the diseases and the resources available. This year is all about YOU as patients and patient-supporters, and the role you can take in combatting PV, ET, and MF. Follow along on Twitter and Facebook with the hashtag #mpnbcam throughout the month of September.
