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One Day At A Time

One Day At A Time. What Is A Chromosome Disorder. Sunday, November 27, 2016. Friday, January 8, 2016. In Which Isaac Is Doing Well And I Go To The Doctor. There are several things I've learned the past few months. Who my real friends are. I've even made new friends in the journey. How important my family, especially my husband is to me. Feeling good, thinking well and finding joy is more important than anything money can buy. It's Ok that I currently can't be or do the things I'm used to doing. This mean...

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One Day At A Time. What Is A Chromosome Disorder. Sunday, November 27, 2016. Friday, January 8, 2016. In Which Isaac Is Doing Well And I Go To The Doctor. There are several things I've learned the past few months. Who my real friends are. I've even made new friends in the journey. How important my family, especially my husband is to me. Feeling good, thinking well and finding joy is more important than anything money can buy. It's Ok that I currently can't be or do the things I'm used to doing. This mean...
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One Day At A Time | isaacegrove.blogspot.com Reviews

https://isaacegrove.blogspot.com

One Day At A Time. What Is A Chromosome Disorder. Sunday, November 27, 2016. Friday, January 8, 2016. In Which Isaac Is Doing Well And I Go To The Doctor. There are several things I've learned the past few months. Who my real friends are. I've even made new friends in the journey. How important my family, especially my husband is to me. Feeling good, thinking well and finding joy is more important than anything money can buy. It's Ok that I currently can't be or do the things I'm used to doing. This mean...

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One Day At A Time: What Is A Chromosome Disorder?

http://isaacegrove.blogspot.com/2013/02/fact-friday-what-is-chromosome-disorder.html

One Day At A Time. What Is A Chromosome Disorder. Friday, February 22, 2013. What Is A Chromosome Disorder? What does Isaac have? In other words he has what is called an unbalanced translocation of chromosomes 10 and 14 or we like to call it a chromosome scramble. Why does he have it? Did you know that? Some chromosome disorders have been linked to certain cancers, mental health disorders and Autism. Was it something I ate? What do we know about his disorder? Will he always have it? Some people thought t...

2

One Day At A Time: Information And Support

http://isaacegrove.blogspot.com/p/information-and-support.html

One Day At A Time. What Is A Chromosome Disorder. Support from blogging as well as other resources have definitely helped me along the way through this journey. Finding others who truly "get it" either in person or online makes all the difference! Some resources that have been helpful have been. Subscribe to: Posts (Atom). View my complete profile. Simple template. Template images by Goldmund.

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One Day At A Time: Birthday

http://isaacegrove.blogspot.com/2015/04/birthday.html

One Day At A Time. What Is A Chromosome Disorder. Friday, April 10, 2015. In 3 days it will be Isaac's birthday! Even though he probably thinks everyday is his birthday because we sing the "Happy Birthday" song, it is a reason to celebrate. However the date of April 13th is a memory that is hard to forget. Our life as we knew it had changed forever. Due to distress, Isaac had to be delivered prematurely via C-section. He was much smaller than we imagined at 2 1/2 pounds! April 10, 2015 at 2:21 PM.

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One Day At A Time: Update

http://isaacegrove.blogspot.com/2015/06/update.html

One Day At A Time. What Is A Chromosome Disorder. Thursday, June 18, 2015. It's been a really rough couple of months for us for many reasons, but there seems to be a glimmer in the clouds this week. Isaac was born with a condition called Hypogammaglobulinemia. You may have to google it:) Basically his body doesn't make certain antibodies to prevent infection. The Doctor gave him a shot called Prevnair 3 and will draw labs later to see how his body responds to that. It has a chair that slides into and out...

5

One Day At A Time: Birthdays and Hospital Stays

http://isaacegrove.blogspot.com/2015/05/birthdays-and-hospital-stays.html

One Day At A Time. What Is A Chromosome Disorder. Friday, May 1, 2015. Birthdays and Hospital Stays. Isaac had a fabulous birthday. I think this is the first time he had ever spent his birthday at school. Of course they sang his favorite "Happy Birthday" song for him probably 20 times. We also had a small family gathering. I still can't believe it's been 8 years. He's so tiny! We went with the Nemo theme this year. Happy birthday big guy! The hospital just sucks! Glad you are on the mend!

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Gavin's Voice: April 2011

http://gavins-voice.blogspot.com/2011_04_01_archive.html

For someone who can't even talk, Gavin has certainly taught us many valuable lessons. Tuesday, April 19, 2011. A couple of days ago a friend. Posted the following video on her FB page. She warned us to grab some tissue before we watched it. I didn't follow her advice, but I wished that I had when I had tears rolling down my face! They were mostly tears of joy, but some filled with sadness as well. Pause music on the right-hand sidebar of this blog to hear video! I long for Gavin to have such ability!

gavins-voice.blogspot.com gavins-voice.blogspot.com

Gavin's Voice: September 2011

http://gavins-voice.blogspot.com/2011_09_01_archive.html

For someone who can't even talk, Gavin has certainly taught us many valuable lessons. Monday, September 26, 2011. Step Up For Down Syndrome! It's that time of year again! Time to come out and walk with Gavin, and all of his cute friends! It's Buddy Walk time! Except this year the Down syndrome Association of West Michigan has changed the name of our walk to.Step Up For Down Syndrome! Gavin would love it if you came out to walk with our family! FirstGiving - Your fundraising. Friday, September 23, 2011.

gavins-voice.blogspot.com gavins-voice.blogspot.com

Gavin's Voice: Bring the Rain

http://gavins-voice.blogspot.com/2012/05/bring-rain.html

For someone who can't even talk, Gavin has certainly taught us many valuable lessons. Tuesday, May 1, 2012. This morning I heard a song on the radio after dropping the boys off at school. It's a song I've heard about 100 times, but this morning it really spoke to me. I sat in the car crying my eyes out and feeling such a sense of relief! I was, again, made aware of the fact that this world is NOT about me! I have been given this 'burden' for a reason.a reason that is way bigger than me! Your blog I had f...

gavins-voice.blogspot.com gavins-voice.blogspot.com

Gavin's Voice: November 2012

http://gavins-voice.blogspot.com/2012_11_01_archive.html

For someone who can't even talk, Gavin has certainly taught us many valuable lessons. Saturday, November 24, 2012. I am so thankful for Gavin! A poem: I KNOW DIFFERENT. I have felt your tears, falling on my face. Someone else might think they are tears of sadness, because of what I can't do.I KNOW DIFFERENT. I have seen you hang your head down in shame, when we go out on adventures. Someone else might think you are ashamed of having a child like me.I KNOW DIFFERENT. I know you are thanking Him that I got...

gavins-voice.blogspot.com gavins-voice.blogspot.com

Gavin's Voice: Then.....and.....Now

http://gavins-voice.blogspot.com/2013/01/thenandnow.html

For someone who can't even talk, Gavin has certainly taught us many valuable lessons. Wednesday, January 16, 2013. A week and a half ago Gavin went in for a sedated heart echo, and to have his pacemaker read. I usually get nervous before these visits.I spend time wondering if we will get good, or not so good results. After we got home, the boys were asking me how it went, and then Nolan and Caleb started reminiscing about the days that Gavin spent a lot of time in the hospital. We were separated so often...

gavins-voice.blogspot.com gavins-voice.blogspot.com

Gavin's Voice: I am so thankful for Gavin!

http://gavins-voice.blogspot.com/2012/11/i-am-so-thankful-for-gavin.html

For someone who can't even talk, Gavin has certainly taught us many valuable lessons. Saturday, November 24, 2012. I am so thankful for Gavin! A poem: I KNOW DIFFERENT. I have felt your tears, falling on my face. Someone else might think they are tears of sadness, because of what I can't do.I KNOW DIFFERENT. I have seen you hang your head down in shame, when we go out on adventures. Someone else might think you are ashamed of having a child like me.I KNOW DIFFERENT. I know you are thanking Him that I got...

gavins-voice.blogspot.com gavins-voice.blogspot.com

Gavin's Voice: March 2012

http://gavins-voice.blogspot.com/2012_03_01_archive.html

For someone who can't even talk, Gavin has certainly taught us many valuable lessons. Sunday, March 18, 2012. It Is Well With My Soul. The following song speaks of such peace. Thank You Lord! 1 When peace, like a river, attendeth my way,. When sorrows like sea billows roll;. Whatever my lot, thou hast taught me to say,. It is well, it is well with my soul. It is well with my soul,. It is well, it is well with my soul. 2 Though Satan should buffet, though trials should come,. Tuesday, March 13, 2012.

gavins-voice.blogspot.com gavins-voice.blogspot.com

Gavin's Voice: May 2011

http://gavins-voice.blogspot.com/2011_05_01_archive.html

For someone who can't even talk, Gavin has certainly taught us many valuable lessons. Friday, May 20, 2011. I can't believe that I haven't posted anything on here for over a month! We are all alive, and actually doing well.just busy! Between school, school functions and programs, Lots of SPORTS, and just living life.I just haven't had the time to blog, or if I had the time, I just didn't feel like it or know how to put my jumbled thoughts into words! It just shouldn't be this complicated! We have been to...

gavins-voice.blogspot.com gavins-voice.blogspot.com

Gavin's Voice: Happy Gavin = Happy Momma!

http://gavins-voice.blogspot.com/2012/05/happy-gavin-happy-momma.html

For someone who can't even talk, Gavin has certainly taught us many valuable lessons. Friday, May 18, 2012. Happy Gavin = Happy Momma! Gavin has been quite sick this week. I turn into one big anxiety ball when Gavin gets sick. I hate to see him feeling miserable! Plus, once you've spent time in the E.R. or in the hospital with your child on numerous occasions for just having the common cold, you tend to think the worst and dread what may come if he continues to worsen. May 18, 2012 at 2:32 PM. Will have ...

gavins-voice.blogspot.com gavins-voice.blogspot.com

Gavin's Voice: January 2013

http://gavins-voice.blogspot.com/2013_01_01_archive.html

For someone who can't even talk, Gavin has certainly taught us many valuable lessons. Wednesday, January 16, 2013. A week and a half ago Gavin went in for a sedated heart echo, and to have his pacemaker read. I usually get nervous before these visits.I spend time wondering if we will get good, or not so good results. After we got home, the boys were asking me how it went, and then Nolan and Caleb started reminiscing about the days that Gavin spent a lot of time in the hospital. We were separated so often...

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One Day At A Time

One Day At A Time. What Is A Chromosome Disorder. Sunday, November 27, 2016. Friday, January 8, 2016. In Which Isaac Is Doing Well And I Go To The Doctor. There are several things I've learned the past few months. Who my real friends are. I've even made new friends in the journey. How important my family, especially my husband is to me. Feeling good, thinking well and finding joy is more important than anything money can buy. It's Ok that I currently can't be or do the things I'm used to doing. This mean...

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