isaacsbigadventure.blogspot.com

Isaac's Big Adventure

Tuesday, April 8, 2014. I thought I would share a little update on Isaac since its been nearly a year since my last post. Isaac is 5 years old! He got a trampoline for his birthday last year and have been so excited to use it again since we've been trapped in the house with all this crazy weather this winter! Yay for spring finally! He's on .4mg of genotropin daily. We are set to have another sleep study in May and a revision on his VEPTR in his back in the next couple of months. Sunday, June 23, 2013.

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Isaac's Big Adventure | isaacsbigadventure.blogspot.com Reviews

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Tuesday, April 8, 2014. I thought I would share a little update on Isaac since its been nearly a year since my last post. Isaac is 5 years old! He got a trampoline for his birthday last year and have been so excited to use it again since we've been trapped in the house with all this crazy weather this winter! Yay for spring finally! He's on .4mg of genotropin daily. We are set to have another sleep study in May and a revision on his VEPTR in his back in the next couple of months. Sunday, June 23, 2013.

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Isaac's Big Adventure | isaacsbigadventure.blogspot.com Reviews

https://isaacsbigadventure.blogspot.com

Tuesday, April 8, 2014. I thought I would share a little update on Isaac since its been nearly a year since my last post. Isaac is 5 years old! He got a trampoline for his birthday last year and have been so excited to use it again since we've been trapped in the house with all this crazy weather this winter! Yay for spring finally! He's on .4mg of genotropin daily. We are set to have another sleep study in May and a revision on his VEPTR in his back in the next couple of months. Sunday, June 23, 2013.

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isaacsbigadventure.blogspot.com

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Isaac's Big Adventure: October 2012

http://isaacsbigadventure.blogspot.com/2012_10_01_archive.html

Thursday, October 11, 2012. Been awhile - eye sugery went well. Quick update :) - Isaac had eye surgery September 18th and it went well - his eyes are much straighter now. Oh and guess who is in the 75th for weight. Yeah, Isaac is looking good. We had his 4 year shots and he was 42 lbs and around 41 inches. Just thought I'd post a few pictures of what we have been up to. Isaac had to read Jack's books to him that he got for his 1st birthday, as they opened them :). Enjoying the big slide. Our Life with P...

2

Isaac's Big Adventure: March 2012

http://isaacsbigadventure.blogspot.com/2012_03_01_archive.html

Tuesday, March 20, 2012. So this time he only had to have a lengthening done, next time we'll have to have to change out the top portion of the device changed out - but we are thankful this one is over for now. He did great and was moving around soon after. He had a room (suite actually) in the new portion of Nationwide Children's Hospital this time. It was very nice. We tried out the new playroom too. Overall we could ask for a better outcome. :). Monday, March 12, 2012. Some new cute kid pictures :).

3

Isaac's Big Adventure: February 2012

http://isaacsbigadventure.blogspot.com/2012_02_01_archive.html

Monday, February 6, 2012. VEPTR lengthening scheduled/FOOD stuff. We should have another endocrinology visit soon - and should find out the sleep study results. His weight is staying pretty steady around 39 lbs. His VEPTR device is kind of pulling against him height wise right now so we might not see any increase there until he's lengthened. :). Subscribe to: Posts (Atom). A little about Isaac. VEPTR lengthening scheduled/FOOD stuff. View my complete profile. Some blogs I like to follow . . .

4

Isaac's Big Adventure: April 2014

http://isaacsbigadventure.blogspot.com/2014_04_01_archive.html

Tuesday, April 8, 2014. I thought I would share a little update on Isaac since its been nearly a year since my last post. Isaac is 5 years old! He got a trampoline for his birthday last year and have been so excited to use it again since we've been trapped in the house with all this crazy weather this winter! Yay for spring finally! He's on .4mg of genotropin daily. We are set to have another sleep study in May and a revision on his VEPTR in his back in the next couple of months. A little about Isaac.

5

Isaac's Big Adventure: Almost a year?

http://isaacsbigadventure.blogspot.com/2014/04/almost-year.html

Tuesday, April 8, 2014. I thought I would share a little update on Isaac since its been nearly a year since my last post. Isaac is 5 years old! He got a trampoline for his birthday last year and have been so excited to use it again since we've been trapped in the house with all this crazy weather this winter! Yay for spring finally! He's on .4mg of genotropin daily. We are set to have another sleep study in May and a revision on his VEPTR in his back in the next couple of months. I enjoyed catching up on...

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pwsgulley.blogspot.com

Amazing Adventures of Ayden Jane: September 2014

http://pwsgulley.blogspot.com/2014_09_01_archive.html

Amazing Adventures of Ayden Jane. LIFE'S NOT ABOUT WAITING FOR THE STORM TO PASS, IT'S ABOUT LEARNING TO DANCE IN THE RAIN. Tuesday, September 30, 2014. Fine Motor and Written Expression. It has been fascinating to watch Ayden Jane work on learning to express her thoughts on paper. I was amazed both by how hard this process is for her and her perseverance to stick with it until the very end. Monday, September 22, 2014. Ayden Jane loved it! I just love that Mrs. C has Ayden Jane do the written work li...

pwsgulley.blogspot.com

Amazing Adventures of Ayden Jane: May 2015

http://pwsgulley.blogspot.com/2015_05_01_archive.html

Amazing Adventures of Ayden Jane. LIFE'S NOT ABOUT WAITING FOR THE STORM TO PASS, IT'S ABOUT LEARNING TO DANCE IN THE RAIN. Sunday, May 31, 2015. PWS Awareness month - wrap up. As this years edition of PWS posts come to a close, what is most on my mind is how much less I have to say about PWS at this point. Wait. Maybe it's not less as I have tons of information packed in this head of mine that has been acquired over the past 7 years. Maybe it's just different? The waiting to see which of the long list o...

pwsgulley.blogspot.com

Amazing Adventures of Ayden Jane: February 2015

http://pwsgulley.blogspot.com/2015_02_01_archive.html

Amazing Adventures of Ayden Jane. LIFE'S NOT ABOUT WAITING FOR THE STORM TO PASS, IT'S ABOUT LEARNING TO DANCE IN THE RAIN. Saturday, February 28, 2015. Today was Saturday. It was a wonderful Saturday. It started like any other Saturday with Ayden Jane waking me up to ask if I could turn on cartoons for her to watch so she could cuddle up in bed for a bit before breakfast. (she still gets up early.) By 7:30 or 8 we were headed out to the kitchen and had a nice breakfast. While on the sideline I was talki...

pwsgulley.blogspot.com

Amazing Adventures of Ayden Jane: October 2014

http://pwsgulley.blogspot.com/2014_10_01_archive.html

Amazing Adventures of Ayden Jane. LIFE'S NOT ABOUT WAITING FOR THE STORM TO PASS, IT'S ABOUT LEARNING TO DANCE IN THE RAIN. Tuesday, October 21, 2014. Busy - Life's Theme. This fall is racing by. Ayden Jane is doing great in school and she is participating in several after school activities. She is one happy, busy little first grader. Thursday she has her other day of swim team. Instilling the idea of daily exercise has been a great benefit to Ayden Jane. Since she is a routine kid she does not feel ...

pwsgulley.blogspot.com

Amazing Adventures of Ayden Jane: July 2015

http://pwsgulley.blogspot.com/2015_07_01_archive.html

Amazing Adventures of Ayden Jane. LIFE'S NOT ABOUT WAITING FOR THE STORM TO PASS, IT'S ABOUT LEARNING TO DANCE IN THE RAIN. Thursday, July 30, 2015. Cranking up the Carnitine. So as usual, I was not satisfied with things going well. I needed to know if they could be even better! I did the math and decided I was going to go for a third dose of carnitine. It will put Ayden Jane at a total of about 46 mg/kg. Sunday, July 26, 2015. The added carntine has been just the ticket for Ayden Jane. Her energy le...

pwsgulley.blogspot.com

Amazing Adventures of Ayden Jane: Her Number

http://pwsgulley.blogspot.com/2015/07/her-number.html

Amazing Adventures of Ayden Jane. LIFE'S NOT ABOUT WAITING FOR THE STORM TO PASS, IT'S ABOUT LEARNING TO DANCE IN THE RAIN. Sunday, July 12, 2015. Dealing with and discussing weight management with a 7 year old just seems wrong. We have taken to just having a scale out and Ayden Jane jumps on it from time to time. No schedules or charts or whatever. I get a kick out of how Ayden Jane calls her weight her 'number.'. Subscribe to: Post Comments (Atom). View my complete profile. Cranking up the Carnitine.

pwsgulley.blogspot.com

Amazing Adventures of Ayden Jane: January 2015

http://pwsgulley.blogspot.com/2015_01_01_archive.html

Amazing Adventures of Ayden Jane. LIFE'S NOT ABOUT WAITING FOR THE STORM TO PASS, IT'S ABOUT LEARNING TO DANCE IN THE RAIN. Friday, January 30, 2015. A friend saw a piece that a fellow mom of a child with PWS wrote for The Mighty. The challenge was put out to answer this question: If you could go back to the day you (or a loved one) got a diagnosis, what would you tell yourself? She challenged me to answer the same question. You will be frustrated beyond words at times. You will at times feel isolate...

pwsgulley.blogspot.com

Amazing Adventures of Ayden Jane: Perspective

http://pwsgulley.blogspot.com/2015/08/perspective.html

Amazing Adventures of Ayden Jane. LIFE'S NOT ABOUT WAITING FOR THE STORM TO PASS, IT'S ABOUT LEARNING TO DANCE IN THE RAIN. Saturday, August 1, 2015. I watched Ayden Jane play at the beach today. More specifically, I watched her work crazy hard to keep up with twins one year older (who are very athletic). She rode boogie boards with them. The waves were big and the current strong but she kept at it. She was a part of the gang and she was very happy to be with them. Subscribe to: Post Comments (Atom).

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adventures in asherland: April 2013

http://www.amandagatkins.com/2013_04_01_archive.html

Tuesday, April 30, 2013. Happy birthday, boys! We had a beautiful backyard party for the boys this weekend. It was so much fun. Here are a bajillion pictures of our fun day! This little guy is perfecting his walking skills! The grill master - grandpa Neil. Wearing only a diaper for the cupcake tasting. Frosting - a big hit with this one. Wednesday, April 17, 2013. A few more of our family photo shoot. Are we done yet? Thursday, April 11, 2013. What are we doing today? I recently came across Cucumber Lime.

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Join us to celebrate the Bar Mitzvah of. June 2, 2018. Players should arrive at 7:00 PM. GAME OVER at 11:30 PM. Festive attire. Dress ready to Party! LIFE The Place To Be. Ardsley, NY 10502. Player's Name(s) *. Email Address *. Please RSVP by May May 2. Recharge overnight at the Hilton Garden Inn, across the street from LIFE. Please reserve your room by May 11th. For technical assistance, please contact Leslie and Jeremy Saland at 917.940.9080 or isyourgameon@gmail.com. Designed by Greg Skriloff.

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isaacsbigadventure.blogspot.com

Isaac's Big Adventure

Tuesday, April 8, 2014. I thought I would share a little update on Isaac since its been nearly a year since my last post. Isaac is 5 years old! He got a trampoline for his birthday last year and have been so excited to use it again since we've been trapped in the house with all this crazy weather this winter! Yay for spring finally! He's on .4mg of genotropin daily. We are set to have another sleep study in May and a revision on his VEPTR in his back in the next couple of months. Sunday, June 23, 2013.

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Isaac's Big Day!

I started this Blog in 2009 when my #1 was born. 6 years 3 states, and 7 houses later and 3 kids in, this is my escape! I hope one day my kids can look back here and see just how much Mommy loves them - despite my yelling and meltdowns! Grab some popcorn and Read on if you want to be amused at my journey into the unknown! Thursday, December 31, 2015. 2016: The Year I Stopped Vying for Mother of the Year. I do yell a lot.) Was I good wife? I did make him dinner! Did I make enough time for me? To all of my...

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Isaac's Basketball Blog - Blog

Ducks win against Florida State Seminoles 59-20. The University of Oregon Ducks came to play on New Year's Day. They shut down the Seminoles 59-20. All of this information below is from ESPN. The Oregon Ducks play the Ohio State Buckeyes on Monday the 12th of January at 8:30 PM ET. If they win against Ohio State, they win the championship. GO DUCKS! All information is from www.espn.com. Picture is from www.greenwichtime.com. Blazers go into new year with most wins in the NBA. This is Isaac's Blog! This b...

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My Blog!

Youth Olympic Torch Relay. Epic failure! We were suppose to assemble in school in PE on the 11 of August. We were suppose to cheer on the Torch Runner. Torch Runner indeed. On the 11th of August, the torch relay was to run through my school, and we were needed to 'zi high' and cheer them on. We waited for about 1 and a half hour, sitting on ants infested grass, waiting for the glorious torch runners to zoom pass us with the torch. We waited so damn long just to see this lantern? Personally, i feel that i...

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Isaac's Bobcat Den

Friday, January 28, 2011. From Belle Terre Elementary. Thursday, January 6, 2011. WHAT I GOT FOR CHRISTMAS. On Christmas I got just dance 2. My whole family loves it .All my favorite songs on it.I play it every day .I got it from Santa . I cant download anything.On Christmas I got fake Coal in my stocking. It is candy coal. Me and my sister got it. I freaked out when I saw it cause I knew I was good. Tuesday, January 4, 2011. Friday, October 15, 2010. Friday, October 8, 2010. Isaac's long i video.

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Book Reviews by Isaac

Book Reviews by Isaac. My thoughts on the books I read . Wednesday, August 12, 2009. The Road by Cormac McCarthy. Warning to those who appreciate lighthearted stories: this one is heartrending. The main characters in The Road. And yet . And yet, the man and the boy are still a father and son. The man cherishes the boy and exists to protect and guide him. When he feels like giving up, thoughts of the boy keep him carrying on. Their conversations add further texture and realism to the characters. Many,...