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Ava~ Hope for Congenital Diaphragmatic Hernia.: December 2014
http://avaslifewithcdh.blogspot.com/2014_12_01_archive.html
Thursday, December 18, 2014. I took a few quick pictures as she was getting her x rays. She is such a pro at this! I got her antibiotic (Cefdinir) and some lunch. She fell asleep shortly after eating. I'm hoping we aren't looking at pneumonia. She has such a bad and constant cough. She will be missing out on her Christmas party at school. I do the school's yearbook so I will have to go and take pictures. I'll pick up her treats so hopefully that will make her feel better. How cute is this? Ava's visitors...
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Ava~ Hope for Congenital Diaphragmatic Hernia.: Ava's Story
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Ava's Beginning and Our Fight to Keep our Daughter. Every once in a while we are handed things in our life that seem impossible. We question God, we question ourselves. “Why? It doesn’t look like anything.” “Well, she said pulling him up onto her lap, Why don’t you look at it from up here.” Wow grandma it is pretty! 8221; Sometimes only God sees the finished product. We are only seeing the underneath, the mess. For the next few days I was literally a wreck. I couldn’t eat. I couldn’t ...I had grown up kn...
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Ava~ Hope for Congenital Diaphragmatic Hernia.: A Change of Heart
http://avaslifewithcdh.blogspot.com/2014/11/a-change-of-heart.html
Friday, November 21, 2014. A Change of Heart. Then on Wednesday her heart rate dropped to 44. I went over to her and checked her pulse myself. I got 38 beats a minute and they were very shallow. I grew concerned. I woke her and the heart rate got better. I then let her go back to sleep but it continued to get lower and lower. The nurse asked if she wanted to remove all the stickers herself. Of course she did! There are 5 leads and the monitor itself is attached to her jeans. November 22, 2014 at 12:20 AM.
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Ava~ Hope for Congenital Diaphragmatic Hernia.: Hope
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Hope for Expectant Parents. YES the road is hard and sometimes very long. I encourage you to stay strong and have Faith. On the days that you feel beat down remember that God is with you. If God brings you to it, He can bring you through it! I've started a page on facebook called "Raising Healthy Congenital Diaphragmatic Hernia Children". We'd love to have you join the conversation. You will find SO much Hope there. See you soon! Terri Helmick (Ava's Mommy). Subscribe to: Posts (Atom). Want to Know More?
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Ava~ Hope for Congenital Diaphragmatic Hernia.: July 2014
http://avaslifewithcdh.blogspot.com/2014_07_01_archive.html
Tuesday, July 22, 2014. Gastroenterology Visit and Summer fun! Hello Ava friends and followers. It’s been awhile since I last posted. And you know I always say no news is good news! Ava’s been having a great Summer. We went to visit family in St. Louis a few weeks ago to celebrate the 4th of July. We always have such a wonderful time. We are blessed to have such an amazing, supportive and loving family! As you can see Ava had the most fun of all! Yesterday I took her to her GI doctor. Ava still strug...
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Ava~ Hope for Congenital Diaphragmatic Hernia.: What is CDH?
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What is Congenital Diaphragmatic Hernia? A diaphragmatic hernia is a birth defect in which there is an abnormal opening in the diaphragm, the muscle that helps you breathe. The opening allows part of the organs from the belly (stomach, spleen, liver, and intestines) to go up into the chest cavity near the lungs. Also forcing the heart to move. Congenital diaphragmatic hernia is seen in 1 out of every 2,500 live births. Subscribe to: Posts (Atom). Ava's visitors since October 2008. Want to Know More?
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Ava~ Hope for Congenital Diaphragmatic Hernia.: Appointment Day
http://avaslifewithcdh.blogspot.com/2015/07/appointment-day.html
Friday, July 17, 2015. Hello Ava followers. I feel like it's been a long time since I've updated. Hope things are well with all of you. Ava slowly got over the virus she had. Oddly she had a cough for a good month. We are happy that it finally found the door out! Yesterday we had checkups with three different doctors at the University of Iowa Hospital and Clinics. On our way. She was so happy for Ava as are we! The next thing she did was a lung function test. She was very worried about it this time f...
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Ava~ Hope for Congenital Diaphragmatic Hernia.: Ava's Walk
http://avaslifewithcdh.blogspot.com/p/avas-awareness-walk.html
My goal is to educate and provide valuable knowledge and information about Congenital Diaphragmatic Hernia. I want to let as many know of this deadly birth defect as possible and to share HOPE. Make video montages at www.OneTrueMedia.com. Listen to My Little Angels Song. Photo and video editing at www.OneTrueMedia.com. Subscribe to: Posts (Atom). Ava's visitors since October 2008. There was an error in this gadget. Want to Know More? Translate- Ava's Life with CDH. A Congenital Diaphragmatic Hernia.
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Raising Diaphragmatic Hernia Children.: Featured CDHer~ James
http://cdhkids.blogspot.com/2012/06/featured-cdher-james.html
Hospital and Doctor Reviews. Monday, June 4, 2012. He was breathing room air before long and after eight weeks was discharged and able to come home with us. He did not need any oxygen support or monitors or even a feeding tube for when he came home. All of this was new and terrifying for us because we had 2 healthy girls at home. James had feeding issues and massive reflux and needed a Nissen fundoplication when he was three. He has fought and worked very hard and I am so proud to be his mom! This site o...