jameskara.blogspot.com

James and Kara's Family Blog

James and Kara's Family Blog. Thursday, February 15, 2007. Here the text from a Speech that Kara is giving at a Starlight Foundation function about Amelia's illness and her wish:. Hello everyone. I am delighted to have the opportunity to share with you tonight how the Starlight Foundation has brightened our family's lives. I would like first to tell you a little about how our daughter became ill so that you can hopefully appreciate just how good the Starlight Foundation has been for us. When Amelia was 4...

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James and Kara's Family Blog. Thursday, February 15, 2007. Here the text from a Speech that Kara is giving at a Starlight Foundation function about Amelia's illness and her wish:. Hello everyone. I am delighted to have the opportunity to share with you tonight how the Starlight Foundation has brightened our family's lives. I would like first to tell you a little about how our daughter became ill so that you can hopefully appreciate just how good the Starlight Foundation has been for us. When Amelia was 4...

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1 2 comments

2 weaning off ivig

3 0 comments

4 weaned off prednisone

5 weaning

6 wikipedia update

7 ivig at westmead

8 melatonin is bad

9 ivig and colds

10 westmead

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2 comments,weaning off ivig,0 comments,weaned off prednisone,weaning,wikipedia update,ivig at westmead,melatonin is bad,ivig and colds,westmead,sandoglobulin,back to school,steady improvements,visitors from abroad,oms symptoms,steriod symptoms,1 comments

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James and Kara's Family Blog | jameskara.blogspot.com Reviews

https://jameskara.blogspot.com

James and Kara's Family Blog. Thursday, February 15, 2007. Here the text from a Speech that Kara is giving at a Starlight Foundation function about Amelia's illness and her wish:. Hello everyone. I am delighted to have the opportunity to share with you tonight how the Starlight Foundation has brightened our family's lives. I would like first to tell you a little about how our daughter became ill so that you can hopefully appreciate just how good the Starlight Foundation has been for us. When Amelia was 4...

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jameskara.blogspot.com

1

James and Kara's Family Blog: Back to school

http://jameskara.blogspot.com/2004/07/back-to-school.html

James and Kara's Family Blog. Wednesday, July 21, 2004. Yesterday was a highlight in Amelia's recovery. Amelia went back to preschool successfully for the first time since the diagnosis. We had planned this for a while and had been to the school with Amelia to meet the teachers the day before. Amelia is now up to 23.5 kg and looking more and more cushingiod. We have a good diet now, and even I am losing weight, but I think the steroids are winning the battle at the moment! Posted by James at 07:07.

2

James and Kara's Family Blog: Visitors from abroad

http://jameskara.blogspot.com/2004/07/visitors-from-abroad.html

James and Kara's Family Blog. Thursday, July 08, 2004. Amelia was a extremely withdrawn at first and quite shy and retiring for most of the visit, but the Wright children managed to draw her out enough so that Kara and I had lots of time to chat with Ellie and Jim. Both Jessie and Katarina were great with our younger two, Jessie was fantastic with Emma and Katarina loved Sophie. IVIG has very minimal side effects and we should try it as soon as we can. Posted by James at 07:01. OMSFamilies to the rescue.

3

James and Kara's Family Blog: Back home

http://jameskara.blogspot.com/2004/06/back-home.html

James and Kara's Family Blog. Monday, June 28, 2004. I don't want to talk because I don't remember the things I want to say to Daddy. I can't remember those things that I want to say. I think Amelia is becoming very aware of her condition now and she is starting to get very frustrated with the OMS symptoms, such as the slow speach. I think this awareness might be turning what used to be tantrums into frustration. Posted by James at 22:09. OMSFamilies to the rescue. Opsoclonus Myoclonus Syndrome links.

4

James and Kara's Family Blog: Westmead

http://jameskara.blogspot.com/2004/08/westmead.html

James and Kara's Family Blog. Thursday, August 05, 2004. The last week was a rollercoaster ride for the OMS. The first three days after the IVIG were amazing. Amelia was totally back to normal. No irritability, tantrums or slow speech and she was a happy, normal four year old! We got the speech pathologist's report this week and the summary was:. So the good news is that her language skills have not been affected. Check out the new Wikipedia page for OMS. Posted by James at 21:06.

5

James and Kara's Family Blog: Sandoglobulin

http://jameskara.blogspot.com/2004/07/sandoglobulin.html

James and Kara's Family Blog. Wednesday, July 28, 2004. Amelia had her first infusion of IVIG (Sandoglobulin) on Monday. We had been pushing our neurologist to get this for a few weeks now and so we were pleased to finally get it. We are watching her like a hawk now, nervously expecting a tremor or tantrum, but so far so good. So he has referred us to someone else. Our new neurologist is the head of the pediatric neurology department in a different hospital (Westmead) and she has a 'special interest'...

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James and Kara's Family Blog. Thursday, February 15, 2007. Here the text from a Speech that Kara is giving at a Starlight Foundation function about Amelia's illness and her wish:. Hello everyone. I am delighted to have the opportunity to share with you tonight how the Starlight Foundation has brightened our family's lives. I would like first to tell you a little about how our daughter became ill so that you can hopefully appreciate just how good the Starlight Foundation has been for us. When Amelia was 4...

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