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James | Our journey with Hunter Syndrome (MPS II)

Our journey with Hunter Syndrome (MPS II)

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James | Our journey with Hunter Syndrome (MPS II) | jamesmarquardt.wordpress.com Reviews
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James | Our journey with Hunter Syndrome (MPS II) | jamesmarquardt.wordpress.com Reviews

https://jamesmarquardt.wordpress.com

Our journey with Hunter Syndrome (MPS II)

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1

Life has a new normal… | James

https://jamesmarquardt.wordpress.com/2014/11/14/life-has-a-new-normal

Our journey with Hunter Syndrome (MPS II). Links about MPS II. Larr; Cochlear Implants. One year ago we got a phone call…. Life has a new normal…. November 14, 2014. Its been a long time between posts on James blog, more than a year has past. That certainly not because we haven’t had anything to share, but because life has a new normal for us. James is doing great, and now a big 7 year old who goes to school, enjoys Keas and bossing his sister around. Maggie is now 5 and at school at well. We will try to...

2

Cochlear Implants | James

https://jamesmarquardt.wordpress.com/2014/11/21/cochlear-implants

Our journey with Hunter Syndrome (MPS II). Links about MPS II. Larr; Cochlear Implant – Left Ear Surgery. Life has a new normal…. November 21, 2014. For the last few months James has been assessed as a candidate for cochlear implants. He has severe hearing loss because of his disease and currently uses hearing aides and a wifi microphone at school. We are just going to discuss with James main metabolic specialist this week if there are any pitfalls or future things to consider before proceeding. Create a...

3

Campbell Live Story – James Cochlear Turn On | James

https://jamesmarquardt.wordpress.com/2015/05/19/campbell-live-story-james-cochlear-turn-on

Our journey with Hunter Syndrome (MPS II). Links about MPS II. Larr; Three years on from James Bone Marrow Transplant. Cochlear Switch On Day. Campbell Live Story – James Cochlear Turn On. May 19, 2015. Last night the Campbell Live story of James cochlear implant turn on aired. A link the the story is below. CAMPBELL LIVE STORY – STARSHIP FOUNDATION HELP FUND LIFE CHANGING SURGERIES. Thanks to everyone for the humbling messages of support this week. Its the stuff that keeps us going. Ronald McDonald Hous...

4

Three years on from James Bone Marrow Transplant | James

https://jamesmarquardt.wordpress.com/2015/09/27/three-years-on-from-james-bone-marrow-transplant

Our journey with Hunter Syndrome (MPS II). Links about MPS II. Campbell Live Story – James Cochlear Turn On. Three years on from James Bone Marrow Transplant. September 27, 2015. It was three years ago last week that James had his Bone Marrow Transplant at Starship Hospital. We’re doing good! But for today, we have a happy 8 year old boy. We are reminded every day, to make the most of now, and that we have the strength as a family to deal with what comes next. September 28, 2015 at 12:25 am. It is so gre...

5

Cochlear Implant – Left Ear Surgery | James

https://jamesmarquardt.wordpress.com/2015/04/27/cochlear-implant-left-ear-surgery

Our journey with Hunter Syndrome (MPS II). Links about MPS II. Larr; Getting ready for Switch On! Cochlear Implant – Left Ear Surgery. April 27, 2015. This week James had the surgery for his left ear cochlear implant. He is having Medel implants, as they are easier to use should he need MRI scans in the future. Http:/ www.medel.com/int/cochlear-implants. The surgery took about 3 1/2 hours and went well. He had some bruising and swelling for a few days, and had some time off school. Enter your comment here.

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Lysosomal Diseases NZ - Family Stories

http://www.ldnz.org.nz/family_stories

On this page we provide stories written by families affected by lysosomal disorders, plus links to websites prepared by families themselves. Please contact us if you would like to add your story or a link to your site. Visit Our Care Pages. We have three families with care pages (for four children). Please visit the pages. To share in their stories. Gaucher Children's Research fund. Ndash; This site has quite a few family stories and good information about research for this disorder. Tauranga parents, Je...

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James | Our journey with Hunter Syndrome (MPS II)

Our journey with Hunter Syndrome (MPS II). Links about MPS II. Three years on from James Bone Marrow Transplant. September 27, 2015. It was three years ago last week that James had his Bone Marrow Transplant at Starship Hospital. We’re doing good! Its not without its challenges still….schooling, adjusting to a cochlear implant, ongoing toileting issues, and then the serious issues that JAmes will need two new heart valves and a C1 and C2 vertebrae replacement/fusion are in our future. May 19, 2015. CAMPB...

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