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Jayda's Journey

With a very uncommon medical condition called PHACE Syndrome.

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Jayda's Journey | jaydasphacejourney.blogspot.com Reviews
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With a very uncommon medical condition called PHACE Syndrome.
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1 jayda's journey
2 posted by
3 jayda dillon
4 no comments
5 charity cruise
6 jayda's 4th birthday
7 lalaloopsy cake
8 the birthday girl
9 school holiday fun
10 older posts
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jayda's journey,posted by,jayda dillon,no comments,charity cruise,jayda's 4th birthday,lalaloopsy cake,the birthday girl,school holiday fun,older posts,jayda sienna dillon,about me,my family,nanna and pop,my grandad,blog archive,october,links,sophia phace
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Jayda's Journey | jaydasphacejourney.blogspot.com Reviews

https://jaydasphacejourney.blogspot.com

With a very uncommon medical condition called PHACE Syndrome.

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1

Jayda's Journey: October 2012

http://jaydasphacejourney.blogspot.com/2012_10_01_archive.html

With a very uncommon medical condition called PHACE Syndrome. Tuesday, October 16, 2012. This is a video of a car cruise Jayda went on. We went to Dwellingup, Western Australia with the STEEL BUMPER CAR CRUIZES WA. We as a family love our cruises in our 1966 VC Valiant. This is our 66VC Valiant. Subscribe to: Posts (Atom). Gosnells, W.A, Australia. View my complete profile. Mum and big sister. Big Brother and sister. Children's Hospital of Wisconsin. National Organization of Vascular Anomalies.

2

Jayda's Journey: Jayda's 4th Birthday

http://jaydasphacejourney.blogspot.com/2013/06/jaydas-4th-birthday.html

With a very uncommon medical condition called PHACE Syndrome. Tuesday, June 18, 2013. Subscribe to: Post Comments (Atom). Gosnells, W.A, Australia. I have an older sister Amelia and a half brother Kade. My Mum and Dad made this blog to help understand the complexity of PHACE syndrome and share with friends and family the ups and downs I've endured through it all. View my complete profile. Mum and big sister. Big Brother and sister. Children's Hospital of Wisconsin. Luke 2:19.a mother's priviledge.

3

Jayda's Journey: August 2012

http://jaydasphacejourney.blogspot.com/2012_08_01_archive.html

With a very uncommon medical condition called PHACE Syndrome. Tuesday, August 7, 2012. Fun Days At The Park. Here in Perth, Western Australia it is winter and it has been very cold this year. So when we have nice sunny days we try and take the kids to a park. We love going to Kings Park as it is massive and so much to do there. We have also discovered a new park which is pirate ship themed. Second Round Of Laser. Subscribe to: Posts (Atom). Gosnells, W.A, Australia. View my complete profile.

4

Jayda's Journey: March 2012

http://jaydasphacejourney.blogspot.com/2012_03_01_archive.html

With a very uncommon medical condition called PHACE Syndrome. Monday, March 19, 2012. Subscribe to: Posts (Atom). Gosnells, W.A, Australia. I have an older sister Amelia and a half brother Kade. My Mum and Dad made this blog to help understand the complexity of PHACE syndrome and share with friends and family the ups and downs I've endured through it all. View my complete profile. Mum and big sister. Big Brother and sister. Children's Hospital of Wisconsin. National Organization of Vascular Anomalies.

5

Jayda's Journey: February 2013

http://jaydasphacejourney.blogspot.com/2013_02_01_archive.html

With a very uncommon medical condition called PHACE Syndrome. Thursday, February 7, 2013. Jayda's First Day at Kindergarden. Amelia's 6th Birthday Party. With her new scooter. Amelia and Jayda with Santa. Well another Christmas has come and gone. This year we had Christmas at our house with all the family for lunch. It was another hot day here so a lot of time was spent in the pool. The girls also went to the Christmas pageant to see all the floats lit up. Ready for the christmas pageant. The Way I View]...

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cutestlittlebabyphace.blogspot.com cutestlittlebabyphace.blogspot.com

Cutest Little Baby Phace: Update at 29 months

http://cutestlittlebabyphace.blogspot.com/2012/10/update-at-29-months.html

Cutest Little Baby Phace. Thursday, October 11, 2012. Update at 29 months. It's hard to believe that it's been 7 months since I posted last. Danielle's health issues used to take a major part of my daily brain power. Now it's not like that at all. I always post these entries hoping that our experience can benefit families that will give birth to a child and then (quickly! Discover that their much-loved-already child needs more medical attention than anyone had predicted. It's so hard at the beginning!

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Cutest Little Baby Phace: Sitting here, thinking more

http://cutestlittlebabyphace.blogspot.com/2013/03/sitting-here-thinking-more.html

Cutest Little Baby Phace. Saturday, March 30, 2013. Sitting here, thinking more. Subscribe to: Post Comments (Atom). For the Love of February Birthdays, Baseball tournaments and More. (February and March). How To Get Your Photography Noticed Online. Luke 2:19.a mother's priviledge. Jayda's 1st sports carnival. It's never gonna end. Quinn's Journey With PHACE Syndrome,Hemangiomas, Autism and Stroke. Home of the Petersonclan. View my complete profile. Sitting here, thinking more.

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Cutest Little Baby Phace: October 2012

http://cutestlittlebabyphace.blogspot.com/2012_10_01_archive.html

Cutest Little Baby Phace. Thursday, October 11, 2012. Update at 29 months. It's hard to believe that it's been 7 months since I posted last. Danielle's health issues used to take a major part of my daily brain power. Now it's not like that at all. I always post these entries hoping that our experience can benefit families that will give birth to a child and then (quickly! Discover that their much-loved-already child needs more medical attention than anyone had predicted. It's so hard at the beginning!

cutestlittlebabyphace.blogspot.com cutestlittlebabyphace.blogspot.com

Cutest Little Baby Phace: July 2010

http://cutestlittlebabyphace.blogspot.com/2010_07_01_archive.html

Cutest Little Baby Phace. Friday, July 23, 2010. Mar 13, 2010: Our lovely Danielle is born, at 39 weeks. She weighs one ounce short of nine pounds. She is so beautiful! We notice that she has a sternal pit on her sternum and markings on her face. Mar 14: Danielle's breathing is rapid so she's sent to the special care nursery for monitoring. She has a heart murmur. Mar 17: Danielle is home for a full day. Mar 22 Danielle's coarctation is repaired, a subclavian artery is put in the right place. How To Get ...

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Cutest Little Baby Phace: November 2012

http://cutestlittlebabyphace.blogspot.com/2012_11_01_archive.html

Cutest Little Baby Phace. Thursday, November 22, 2012. Great news from cardiology. We went to see Danielle's cardiologist this week. Danielle had an EKG and an echocardiogram and the results were fantastic- -her heart repair looks great. Our cardiologist said we can follow up in two years. Two years! Subscribe to: Posts (Atom). For the Love of February Birthdays, Baseball tournaments and More. (February and March). How To Get Your Photography Noticed Online. Luke 2:19.a mother's priviledge.

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Cutest Little Baby Phace: March 2011

http://cutestlittlebabyphace.blogspot.com/2011_03_01_archive.html

Cutest Little Baby Phace. Sunday, March 27, 2011. But we did all the tests . . . we did all the scans . . . my other kids didn't have to do this. Why aren't I home cuddling my baby? Why is she hooked up to all those wires? No one can take better care of my baby than me- -that nurse better get over here quick and change this diaper because I can't do it. What do you mean, I can't nurse her? What do you mean, I can only hold her if someone helps me? What is going on? Come meet this kid! A year ago our craz...

cutestlittlebabyphace.blogspot.com cutestlittlebabyphace.blogspot.com

Cutest Little Baby Phace: March 2013

http://cutestlittlebabyphace.blogspot.com/2013_03_01_archive.html

Cutest Little Baby Phace. Saturday, March 30, 2013. Sitting here, thinking more. Happy Third Birthday Danielle! I took these pictures the day Danielle turned three. Current favorite skirt, so girly, so foofy. That skirt happens to be the last of her baby shower gifts- -a smart mom gave me bigger sizes. And when I got this particular skirt I remember thinking, "Three? It all comes back to the Beatles. :). Subscribe to: Posts (Atom). How To Get Your Photography Noticed Online. Jayda's 1st sports carnival.

cutestlittlebabyphace.blogspot.com cutestlittlebabyphace.blogspot.com

Cutest Little Baby Phace: September 2010

http://cutestlittlebabyphace.blogspot.com/2010_09_01_archive.html

Cutest Little Baby Phace. Friday, September 17, 2010. So Danielle has to go in for a CT angiogram in two weeks. Can someone who's had to do this with a 6 month old just tell me how bad it is really . . . that I need to brace myself . . . or chill out . . . or just get through it . . . or that it's bad but necessary. I need a pep talk. Anyone? I just hate to see her sedated. I hate the IV. I hate that they have to cut her. I hate it. I hate it. Jen and Christina,. Lovely to meet you! As I drove to the hos...

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Cutest Little Baby Phace: Update. Now Danielle is 22 months old.

http://cutestlittlebabyphace.blogspot.com/2012/01/update-now-danielle-is-22-months-old.html

Cutest Little Baby Phace. Friday, January 6, 2012. Update. Now Danielle is 22 months old. So now we are living in THEN WHAT. With Danielle, the hemangioma grew. Then it was hard for her to breathe because it was in her airway. We had a hard winter during cold season. Then things started to get better. Then doctors said we didn't need to come back as often. Which didn't work. It was obvious. So then we waited until 18 months. Then she responded well to the taper. Are you kidding me? So today we saw derm&#...

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Cutest Little Baby Phace: Happy Third Birthday Danielle!

http://cutestlittlebabyphace.blogspot.com/2013/03/happy-third-birthday-danielle.html

Cutest Little Baby Phace. Saturday, March 30, 2013. Happy Third Birthday Danielle! I took these pictures the day Danielle turned three. Current favorite skirt, so girly, so foofy. That skirt happens to be the last of her baby shower gifts- -a smart mom gave me bigger sizes. And when I got this particular skirt I remember thinking, "Three? It all comes back to the Beatles. :). Subscribe to: Post Comments (Atom). For the Love of February Birthdays, Baseball tournaments and More. (February and March).

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Jayda's Jabbers

Sunday, June 7, 2009. And I am done with 4th grade. I will miss my teacher Miss Whitacre. But I get to move on to 5th grade and I am excited to see what my teacher is next year. When I got home I had to pack, clean, and have my shoes to go to my grandparents house for the week. It felt like it took hours to get their. [But I took a cat nap]. This is what I did this weekend. My weekend with Grandparents:. Arrived at grandparents house. Had pizza that we got on the way. Me and my brother Jacob went swimming.

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Jayda's Journey

Menahga, Minnesota, United States. I am a senior at Menahga Highschool. I plan to attend Central Lakes College in Brainerd this coming fall. I want to play softball and get my generals done then transfer out and work on becoming a Graphic Designer. View my complete profile. A special thank you. If you dont mind. Maybe it can happen. So you wanna know. Wednesday, August 24, 2005. A special thank you. This thank you goes out to none other than. And most of all. Posted by J-Duh @ 12:13 PM. If you don't mind.

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Dancing with Cinderella | My blessed life as Jayda's Mommy…

My blessed life as Jayda's Mommy…. Doing Life BIG {Jayda’s 9th Birthday}. July 13, 2014 by myrahough. I am not going to say it has been easy, but I will say, it has been worth it. I always get a reminder that even when it is tough, we are OK, we will be OK. This year you tried some new things. We did our 2nd 5K together… words cannot begin to describe how much joy I experienced in sharing this time with you. Thank you. And you even stepped way out of your “. 8221; and gave basketball a shot…. You let me ...

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Jayda's Musings

A journal for the journeys of Jayda into a new and wonderful Ds/DD relationship with her wonderful loving husband/soulmate of 20 years. Who knows where they may journey next. WARNING! This blog contains sexually explicit material that may offend the closed-minded. Not intended for those under 21. Saturday, February 24, 2007. I am back to lurking again, but just mostly lurking. Posted by Jayda @ 2:12 AM. Wednesday, February 15, 2006. OK guys. I really am back to myself again after this past year of st...

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Jayda's Journey

With a very uncommon medical condition called PHACE Syndrome. Monday, October 28, 2013. Jayda's 1st sports carnival. Jayda had her first sports carnival this year which is combined with the kindy and pre-primary kids. Jayda is in the blue house De Grey, this is the name of a West Australian river. The day was cut short by bad weather but the kids managed to through half of their events. Jayda had a great day and came third in her running race. Thursday, August 22, 2013. Tuesday, June 18, 2013. Well anoth...

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Jayda's World – I'm not typical..

I'm not typical. This is your very first post. Click the Edit link to modify or delete it, or start a new post. If you like, use this post to tell readers why you started this blog and what you plan to do with it. October 25, 2016. October 25, 2016. This is a text widget, which allows you to add text or HTML to your sidebar. You can use them to display text, links, images, HTML, or a combination of these. Edit them in the Widget section of the Customizer. Create a free website or blog at WordPress.com.

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