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A Day in The Life...

A Day in The Life. Monday, February 2, 2015. Nicole saw the PA at the rheumatologist office today. It will be four years this month since she was diagnosed with benign hypermobility joint syndrome (BHJS). BHJS is a common source of joint or muscle complaints. It describes looseness of joints that may be associated with daytime pain, nighttime awakening, or discomfort after exercising. It is also characterized by double jointedness. The date is Tuesday, Feb. 2nd, 2010. Wednesday, January 21, 2015. We arri...

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A Day in The Life... | jbones1961.blogspot.com Reviews
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A Day in The Life. Monday, February 2, 2015. Nicole saw the PA at the rheumatologist office today. It will be four years this month since she was diagnosed with benign hypermobility joint syndrome (BHJS). BHJS is a common source of joint or muscle complaints. It describes looseness of joints that may be associated with daytime pain, nighttime awakening, or discomfort after exercising. It is also characterized by double jointedness. The date is Tuesday, Feb. 2nd, 2010. Wednesday, January 21, 2015. We arri...
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A Day in The Life... | jbones1961.blogspot.com Reviews

https://jbones1961.blogspot.com

A Day in The Life. Monday, February 2, 2015. Nicole saw the PA at the rheumatologist office today. It will be four years this month since she was diagnosed with benign hypermobility joint syndrome (BHJS). BHJS is a common source of joint or muscle complaints. It describes looseness of joints that may be associated with daytime pain, nighttime awakening, or discomfort after exercising. It is also characterized by double jointedness. The date is Tuesday, Feb. 2nd, 2010. Wednesday, January 21, 2015. We arri...

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1

A Day in The Life...: January 2015

http://www.jbones1961.blogspot.com/2015_01_01_archive.html

A Day in The Life. Wednesday, January 21, 2015. The date is Friday, January 22nd, 2010. We arrive at the cardiologist's office. The nurse does an EKG and then we're told she will be having an echo. The person who did the echo was awesome and put both Nicole and I at ease. I will always be grateful to her. After the echo was done the doctor comes in. He was very nice. We were told a lot of information this day and this is the day our whole life as we knew it changed. We were also told that to be "official...

2

A Day in The Life...: The date is Thursday, January 21st, 2010 .....

http://www.jbones1961.blogspot.com/2015/01/the-date-is-thursday-january-21st-2010.html

A Day in The Life. Tuesday, January 20, 2015. The date is Thursday, January 21st, 2010 . This doctor had always listened to me and I hoped he would again. I told him I was here for a specific reason. I explained Nicole's permanent purple fingernails and toenails, her lips turning blue when she was cold or over-exerted herself. I explained how she couldn't ride a bike to the entrance of our subdivision (up a slight incline) without having to rest and the shortness of breath with just walking.

3

A Day in The Life...: August 2013

http://www.jbones1961.blogspot.com/2013_08_01_archive.html

A Day in The Life. Wednesday, August 28, 2013. Today, Nicole had an appointment at the transplant center. I am always a little nervous to go to any doctor's appointment whether it is the cardiologist, PH specialist or the transplant center as they could rock our world by telling us that Nicole's disease has progressed or that she is in congestive heart failure. None of these I want to hear. Wednesday, August 21, 2013. Monday, August 19, 2013. Is There Such A Thing As Normal? Sunday, August 18, 2013.

4

A Day in The Life...: The date is Tuesday, Feb. 2nd, 2010

http://www.jbones1961.blogspot.com/2015/02/the-date-is-tuesday-feb-2nd-2010.html

A Day in The Life. Monday, February 2, 2015. The date is Tuesday, Feb. 2nd, 2010. If I recall correctly, we left our house around 3:30 am to head to Tampa which is an hour and a half to an hour and forty-five minute drive. We also have to take in account that we are not familiar with the area. I know that Nicole is extremely nervous and is crying. I can't imagine what this must have been like for her. The feelings that I had being her mom are different than what she had because it is her.

5

A Day in The Life...: July 2013

http://www.jbones1961.blogspot.com/2013_07_01_archive.html

A Day in The Life. Wednesday, July 24, 2013. I have been going through Nicole's old schoolwork as I had a huge hope chest full of all her books, papers etc. from 6th grade on. I only need to keep from 10th on in case the county comes back and questions me. I found this character sketch she did for an assignment in 10th grade English. This character sketch is of me and this is what she wrote:. Jane Northrop is an awesome person. She has shoulder-length dark brown hair that is usually in a ponytail. She is...

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Robert's Sister: May 2014

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Advocating for my disabled brother, Robert, who has intractable epilepsy, unwavering faith and a delightful ability to declare everything excellent. Robert shows me everyday the power of the Magic of Excellent. Thursday, May 29, 2014. Ending the New Medication Experiment. At least Robert is happy when he's eating! After a week, we had to give it up. He was dizzy, cranky and could barely walk straight. Oh but it was heartbreaking because the seizures had stopped! This time we went to 150 mg in the morning...

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Robert's Sister: The Housing Market through a Caregiver’s Lens

http://www.robertssister.com/2015/04/the-housing-market-through-caregivers.html

Advocating for my disabled brother, Robert, who has intractable epilepsy, unwavering faith and a delightful ability to declare everything excellent. Robert shows me everyday the power of the Magic of Excellent. Sunday, April 12, 2015. The Housing Market through a Caregiver’s Lens. Searching for a one story house has proven to be fun, frustrating, disappointing, exciting, exhilarating and exhausting. It has also proved to be quite enlightening. There was one step into the living room. Three steps to g...

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Robert's Sister: May 2015

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Advocating for my disabled brother, Robert, who has intractable epilepsy, unwavering faith and a delightful ability to declare everything excellent. Robert shows me everyday the power of the Magic of Excellent. Sunday, May 24, 2015. Car rides sometime even involve ice cream! Silence, fear, tears, concern and empathy filled the car that September 11 morning. When the kids were able to drive on their own, my main thought was concern for their safety. A close second was missing my time with them. He...While...

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Robert's Sister: Photos

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Advocating for my disabled brother, Robert, who has intractable epilepsy, unwavering faith and a delightful ability to declare everything excellent. Robert shows me everyday the power of the Magic of Excellent. Rich (Other Brother), Trish and Robert. Robert with his two favorite things: 7-Up and Cards. Robert and Grandma Silva. Robert on Epilepsy Awareness Day 2012. Subscribe to: Posts (Atom). Books for the Caregiver. 365 Caregiving Tips: Practical Tips From Everyday Caregivers. 2015: 30 Epilepsy Facts.

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Robert's Sister: December 2014

http://www.robertssister.com/2014_12_01_archive.html

Advocating for my disabled brother, Robert, who has intractable epilepsy, unwavering faith and a delightful ability to declare everything excellent. Robert shows me everyday the power of the Magic of Excellent. Friday, December 19, 2014. The Calendars are Here! The Calendars are Here! After pairing the artwork of Pegi Foulkrod and the Words of Comfort by Denise M. Brown in a 2015 calendar and pushing the “purchase” button, I started to panic. The picture doesn't clearly show the words but. The calendars ...

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Robert's Sister: Articles

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Advocating for my disabled brother, Robert, who has intractable epilepsy, unwavering faith and a delightful ability to declare everything excellent. Robert shows me everyday the power of the Magic of Excellent. Making Technology Simple, Today's Caregiver Newsletter, June 30, 2011. Finding Support for Hereditary Neuropathy, Caregiver.com, CMT Channel. The Decision, Fearless Caregiver Newsletter, April 5, 2011. Subscribe to: Posts (Atom). Books for the Caregiver. Forever a Caregiver, by Trish Hughes Kreis.

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Robert's Sister: Car Rides

http://www.robertssister.com/2015/05/car-rides.html

Advocating for my disabled brother, Robert, who has intractable epilepsy, unwavering faith and a delightful ability to declare everything excellent. Robert shows me everyday the power of the Magic of Excellent. Sunday, May 24, 2015. Car rides sometime even involve ice cream! Silence, fear, tears, concern and empathy filled the car that September 11 morning. When the kids were able to drive on their own, my main thought was concern for their safety. A close second was missing my time with them. He...While...

robertssister.com robertssister.com

Robert's Sister: October 2014

http://www.robertssister.com/2014_10_01_archive.html

Advocating for my disabled brother, Robert, who has intractable epilepsy, unwavering faith and a delightful ability to declare everything excellent. Robert shows me everyday the power of the Magic of Excellent. Friday, October 31, 2014. I debated about posting a Happy Halloween message since it’s already 9:00 pm on Halloween but it is still Halloween, gosh darn it! The Vampire and the Circus Ringmaster. Our football players and cheerleader. Once we had our costumes on and pictures taken we piled into our...

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Robert's Sister: Defining Success

http://www.robertssister.com/2015/04/defining-success.html

Advocating for my disabled brother, Robert, who has intractable epilepsy, unwavering faith and a delightful ability to declare everything excellent. Robert shows me everyday the power of the Magic of Excellent. Thursday, April 9, 2015. How do you define success? I thought it was about winning – getting what I wanted. Achieving the sought-after goal! Anything less meant there was a problem: my effort wasn’t good enough. The perfect piece of art for the perfect house -. Wherever that may be. We are in the ...

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Robert's Sister: August 2014

http://www.robertssister.com/2014_08_01_archive.html

Advocating for my disabled brother, Robert, who has intractable epilepsy, unwavering faith and a delightful ability to declare everything excellent. Robert shows me everyday the power of the Magic of Excellent. Saturday, August 30, 2014. Robert is Back Home! After nearly two weeks in the hospital and 48 days in a Skilled Nursing facility, Robert is home! Packing up to leave the SNF. Robert's last day in the SNF - Excited to come home! The physical therapy team persisted. Robert got into their routine...

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A Day in The Life...

A Day in The Life. Monday, February 2, 2015. Nicole saw the PA at the rheumatologist office today. It will be four years this month since she was diagnosed with benign hypermobility joint syndrome (BHJS). BHJS is a common source of joint or muscle complaints. It describes looseness of joints that may be associated with daytime pain, nighttime awakening, or discomfort after exercising. It is also characterized by double jointedness. The date is Tuesday, Feb. 2nd, 2010. Wednesday, January 21, 2015. We arri...

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