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The Medrano FamilyOur life with Rubinstein-Taybi Syndrome
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Our life with Rubinstein-Taybi Syndrome
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Our life with Rubinstein-Taybi Syndrome
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The Medrano Family: January 2011
http://jesusandesmeralda.blogspot.com/2011_01_01_archive.html
Wednesday, January 19, 2011. No time to blog. I Have been wanting to blog about lots of things that we have been doing but when it comes to choosing between blogging or sleeping and you are pregnant with 2 kids to tend to most of the time sleep comes first. Here are some pics of things we have been up to :). We took a road trip during Christmas vacation. They both did way better than we expected, even if it doesn't look like they are happy! We have also enjoyed some snow. We had a very fun New Years Day.
The Medrano Family: FOR DADDY
http://jesusandesmeralda.blogspot.com/2011/09/for-daddy.html
Sunday, September 11, 2011. Papi come home so you can tuck us in bed and sing us a lullaby and read us a book :). Posted by Angelica mom to JesusRTS. Awww, i wish i could be there to tuck you all in, but when i go on vacation i most deffinetly will. September 12, 2011 at 12:00 PM. Subscribe to: Post Comments (Atom). Just when i thought. This Is Our Normal. His eye is on the sparrow. Shame, Superheroes and Acceptance. New kind of normal. Farmer John Cheese and Other Joy. Hiking at Shenk's Ferry.
The Medrano Family: just when i thought
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Tuesday, September 6, 2011. Just when i thought. For almost a year now Jesus has been very healthy and has not been needing to go under anesthesia for anything and it was just all going so good that i thought wow i can relax and just enjoy my wonderful boy. well no not no more i hate to sound like I'm whining but i just need to vent i guess. Just needed to vent thank you for listening. Posted by Angelica mom to JesusRTS. I know what you mean! September 6, 2011 at 6:18 PM. September 6, 2011 at 10:07 PM.
The Medrano Family: So HAPPY!
http://jesusandesmeralda.blogspot.com/2011/11/so-happy.html
Thursday, November 17, 2011. We have had a very hard month! But today I'm just going to focus on how happy i am! My sweet boy doesn't only eat wipes :). Its not pureed he bits swallows and eats it and LOVES the cheesy taste! Posted by Angelica mom to JesusRTS. That is so wonderful! Way to go Jesus! November 17, 2011 at 9:38 PM. Isnt Mac and Cheese the best? Thank goodness those tonsils are out of the way so you can enjoy lots more foods. I cant wait to hear what you eat next! November 18, 2011 at 9:36 AM.
The Medrano Family: August 2010
http://jesusandesmeralda.blogspot.com/2010_08_01_archive.html
Tuesday, August 31, 2010. Jesus crawling (our first video). Posted by Angelica mom to JesusRTS. Links to this post. Saturday, August 28, 2010. Jesus is now doing his army crawl :). So proud to get to his sisters piano :). Then he decided to go play with his blanky instead =). He still can not go around things so if there is something in his way he will complain however he is moving around yay! Posted by Angelica mom to JesusRTS. Links to this post. Subscribe to: Posts (Atom). This Is Our Normal.
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Brooklynn's Hope: October 2011
http://brooklynnshope.blogspot.com/2011_10_01_archive.html
Thank you for visiting Brooklynn's Hope! And had some of the most wonderful nurses who took the opportunity to research this as well. We contacted our local geneticist to confirm her diagnosis and were put on the 8 month waiting list! We contacted the Special Friends Foundation who sent us so much material with lot's of resources. After letting this sink in a bit, it was on! We went full force! Click here to learn about Rubinstein-Taybi Syndrome. LilySlim Weight loss tickers. Day 2 of life she had an Ech...
Brooklynn's Hope: Anxiety issues...
http://brooklynnshope.blogspot.com/2011/10/anxiety-issues.html
Thank you for visiting Brooklynn's Hope! And had some of the most wonderful nurses who took the opportunity to research this as well. We contacted our local geneticist to confirm her diagnosis and were put on the 8 month waiting list! We contacted the Special Friends Foundation who sent us so much material with lot's of resources. After letting this sink in a bit, it was on! We went full force! Click here to learn about Rubinstein-Taybi Syndrome. LilySlim Weight loss tickers. Day 2 of life she had an Ech...
Brooklynn's Hope: It's Incredible!
http://brooklynnshope.blogspot.com/2011/08/its-incredible.html
Thank you for visiting Brooklynn's Hope! And had some of the most wonderful nurses who took the opportunity to research this as well. We contacted our local geneticist to confirm her diagnosis and were put on the 8 month waiting list! We contacted the Special Friends Foundation who sent us so much material with lot's of resources. After letting this sink in a bit, it was on! We went full force! Click here to learn about Rubinstein-Taybi Syndrome. LilySlim Weight loss tickers. Day 2 of life she had an Ech...
Brooklynn's Hope: October 2010
http://brooklynnshope.blogspot.com/2010_10_01_archive.html
Thank you for visiting Brooklynn's Hope! And had some of the most wonderful nurses who took the opportunity to research this as well. We contacted our local geneticist to confirm her diagnosis and were put on the 8 month waiting list! We contacted the Special Friends Foundation who sent us so much material with lot's of resources. After letting this sink in a bit, it was on! We went full force! Click here to learn about Rubinstein-Taybi Syndrome. LilySlim Weight loss tickers. Day 2 of life she had an Ech...
Brooklynn's Hope: July 2010
http://brooklynnshope.blogspot.com/2010_07_01_archive.html
Thank you for visiting Brooklynn's Hope! And had some of the most wonderful nurses who took the opportunity to research this as well. We contacted our local geneticist to confirm her diagnosis and were put on the 8 month waiting list! We contacted the Special Friends Foundation who sent us so much material with lot's of resources. After letting this sink in a bit, it was on! We went full force! Click here to learn about Rubinstein-Taybi Syndrome. LilySlim Weight loss tickers. Day 2 of life she had an Ech...
Brooklynn's Hope: Zzzzzzzzzz...........
http://brooklynnshope.blogspot.com/2010/11/zzzzzzzzzz.html
Thank you for visiting Brooklynn's Hope! And had some of the most wonderful nurses who took the opportunity to research this as well. We contacted our local geneticist to confirm her diagnosis and were put on the 8 month waiting list! We contacted the Special Friends Foundation who sent us so much material with lot's of resources. After letting this sink in a bit, it was on! We went full force! Click here to learn about Rubinstein-Taybi Syndrome. LilySlim Weight loss tickers. Day 2 of life she had an Ech...
Brooklynn's Hope: June 2011
http://brooklynnshope.blogspot.com/2011_06_01_archive.html
Thank you for visiting Brooklynn's Hope! And had some of the most wonderful nurses who took the opportunity to research this as well. We contacted our local geneticist to confirm her diagnosis and were put on the 8 month waiting list! We contacted the Special Friends Foundation who sent us so much material with lot's of resources. After letting this sink in a bit, it was on! We went full force! Click here to learn about Rubinstein-Taybi Syndrome. LilySlim Weight loss tickers. Day 2 of life she had an Ech...
Brooklynn's Hope: November 2010
http://brooklynnshope.blogspot.com/2010_11_01_archive.html
Thank you for visiting Brooklynn's Hope! And had some of the most wonderful nurses who took the opportunity to research this as well. We contacted our local geneticist to confirm her diagnosis and were put on the 8 month waiting list! We contacted the Special Friends Foundation who sent us so much material with lot's of resources. After letting this sink in a bit, it was on! We went full force! Click here to learn about Rubinstein-Taybi Syndrome. LilySlim Weight loss tickers. Day 2 of life she had an Ech...
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The Medrano Family
Thursday, November 17, 2011. We have had a very hard month! But today I'm just going to focus on how happy i am! My sweet boy doesn't only eat wipes :). Its not pureed he bits swallows and eats it and LOVES the cheesy taste! Posted by Angelica mom to JesusRTS. Links to this post. My girl is 5! Happy Birthday My Girl! You are the best daughter that any mother could ask for! And the best big sister in the world! Posted by Angelica mom to JesusRTS. Links to this post. Monday, October 31, 2011. Papi come hom...
Christ Jesus and Faith
Christ Jesus and Faith. Who is Christ Jesus and What is Christianity and Faith? A sample text widget. Etiam pulvinar consectetur dolor sed malesuada. Ut convallis euismod dolor nec. Pretium. Nunc ut tristique massa. Nam sodales mi vitae dolor. Ullamcorper et vulputate enim accumsan. Morbi orci magna, tincidunt vitae molestie nec, molestie at mi. Nulla nulla lorem. Suscipit in posuere in, interdum non magna. Who is Christ Jesus? What is Christianity and faith? GOD’S SIMPLE PLAN OF SALVATION. The few minut...
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Willkommen
Wir, das sind Anna-Lena, Anna und Johanna (Sopran), Christina, Helena, Franzi und Daniela (Alt), Stefan und Lukas (Tenor), Ludwig, Johannes und Thomas (Bass/Piano/Arrangement) und Mike (Cajon). Willkommen bei Jesus and Friends. Die Gruppe ist mehr als die Summe ihrer Mitglieder. Werde unser Freund auf Facebook. Wir freuen uns auf dich!
