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Joscelyn's Journey | A Beautiful Child's Journey Through Hemimegalencephaly

A Beautiful Child's Journey Through Hemimegalencephaly

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Joscelyn's Journey | A Beautiful Child's Journey Through Hemimegalencephaly | joscelynsjourney.wordpress.com Reviews
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Joscelyn's Journey | A Beautiful Child's Journey Through Hemimegalencephaly | joscelynsjourney.wordpress.com Reviews

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A Beautiful Child's Journey Through Hemimegalencephaly

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1

October | 2013 | Joscelyn's Journey

https://joscelynsjourney.wordpress.com/2013/10

A Beautiful Child's Journey Through Hemimegalencephaly. Joss is in “Healthy Living Magazine”. Joscelyn’s story was featured in Healthy Living Magazine. You can read the story by clicking here. The story is on pages 88 and 89.). Talented photographer Fred Lopez took the photos in the article, as well as this precious photo:. Joscelyn has been doing very well since her shunt placement surgery a few weeks ago. She will undergo neuropsychological testing. I hope it inspires some of you, as well! 8220;The nat...

2

False Peaks | Joscelyn's Journey

https://joscelynsjourney.wordpress.com/2012/07/27/false-peaks

A Beautiful Child's Journey Through Hemimegalencephaly. Laquo; Don’t Be Late For Your Life. On July 27, 2012. A few weeks back, I wrote a post called “ Hinds’ Feet”. In which I likened this journey toward seizure freedom that we’re on to the one undertaken by the main character in the allegorical novel, “ Hind’s Feet in High Places. 8221; by Hannah Hurnard. This week, we reached a false peak on our journey to seizure freedom. I didn’t want to tell anyone! But I knew she was seizing again. As Dr B says, &...

3

May | 2014 | Joscelyn's Journey

https://joscelynsjourney.wordpress.com/2014/05

A Beautiful Child's Journey Through Hemimegalencephaly. One Year Seizure Free! I can’t believe how long it’s been since I last updated Joscelyn’s blog! We’ve also been blissfully free of any medical drama for some time now, which has thankfully provided me with less blog fodder. (I don’t watch “ER” or any other hospital dramas on TV, thank you. Been there, done that, got the t-shirt.)😉. So what HAVE we been doing for the last few months? I could tell you, but as our friends at 1, 000 Words Gallery.

4

September | 2013 | Joscelyn's Journey

https://joscelynsjourney.wordpress.com/2013/09

A Beautiful Child's Journey Through Hemimegalencephaly. I wrote that Joscelyn would be undergoing testing to determine the cause of her intermittent vomiting. At the hospital revealed that the ventricles of her brain were swollen with cerebrospinal fluid. Her neurosurgeon diagnosed her with progressive hydrocephalus. On Thursday, September 5, Joscelyn underwent surgery. To have a VP shunt. Inserted to help drain off the excess CSF fluid. Her brain is producing. It was her 7th surgery. I don’t know ...

5

The Roller Coaster | Joscelyn's Journey

https://joscelynsjourney.wordpress.com/2012/08/03/the-roller-coaster

A Beautiful Child's Journey Through Hemimegalencephaly. Laquo; Whose Report Will You Believe? On August 3, 2012. Having grown up in central Florida, which is home to several theme parks, I’ve had the opportunity to ride on many different kinds of roller coasters in my life; rickety wooden ones, sleek and seamless steel ones, themed ones, indoor ones, outdoor ones, dueling ones, backward ones and even upside-down ones! What makes a great coaster? 1) Suspense: Not knowing what’s going to happen next. Rolle...

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Be Who You Really Are. So having a dream is not enough. Anyone can dream. Doing is a lot harder. Nearly 10 years working for Walt Disney Parks and Resorts, founder and current Director of Entertainment for the Lady of the Lakes Renaissance Faire, Degrees in Film and Literature from the University of Miami (graduated with honorsso I’m a dreamer with brains and creativity as well! To make this work, the dreamer has to bring to the table experience in the following:. Her own qualifications are uniquely fitt...

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Joscelyn's Journey | A Beautiful Child's Journey Through Hemimegalencephaly

A Beautiful Child's Journey Through Hemimegalencephaly. I Shared Joscelyn’s Story at TEDxEustis! In January of 2018, I was privileged to have the opportunity to share Joscelyn’s story at the inaugural TEDxEustis event. I gave a talk on the topic of surgery as an underutilized tool in the treatment of epilepsy and also answered the question, “How is Joscelyn doing now, five years after hemispherectomy? You can view the talk here:. One Year Seizure Free! So what HAVE we been doing for the last few months?

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More options ▼. Subscribe to my blog. Plaisir de la photo. Created: 12/01/2012 at 6:13 AM. Updated: 11/02/2012 at 3:02 AM. Don't forget that insults, racism, etc. are forbidden by Skyrock's 'General Terms of Use' and that you can be identified by your IP address (66.160.134.2) if someone makes a complaint. Please enter the sequence of characters in the field below. Posted on Saturday, 11 February 2012 at 3:05 AM. Please enter the sequence of characters in the field below. Don't forget that insults, racis...