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Kids Get Scleroderma Too!!!

Welcome to the Juvenile Scleroderma Network, Inc. (JSDN). A support network helping children and their families with. The JSDN is a volunteer staff made up of volunteer parents, health professionals, and people interested in Juvenile Scleroderma. Founded in 1999, the JSDN is the only national voluntary organization that works exclusively for children affected by Juvenile Scleroderma, and their families. Together let's keep the milestones growing until there is a cure! Because Kids Get Scleroderma, Too!

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Welcome to the Juvenile Scleroderma Network, Inc. (JSDN). A support network helping children and their families with. The JSDN is a volunteer staff made up of volunteer parents, health professionals, and people interested in Juvenile Scleroderma. Founded in 1999, the JSDN is the only national voluntary organization that works exclusively for children affected by Juvenile Scleroderma, and their families. Together let's keep the milestones growing until there is a cure! Because Kids Get Scleroderma, Too!
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Kids Get Scleroderma Too!!! | jsdn.org Reviews

https://jsdn.org

Welcome to the Juvenile Scleroderma Network, Inc. (JSDN). A support network helping children and their families with. The JSDN is a volunteer staff made up of volunteer parents, health professionals, and people interested in Juvenile Scleroderma. Founded in 1999, the JSDN is the only national voluntary organization that works exclusively for children affected by Juvenile Scleroderma, and their families. Together let's keep the milestones growing until there is a cure! Because Kids Get Scleroderma, Too!

INTERNAL PAGES

jsdn.org jsdn.org
1

Kids Get Scleroderma Too!!!

http://www.jsdn.org/internetfriends.htm

Parents of children with juvenile scleroderma…you’re invited to connect with other parents and children world-wide with our juvenile rheumatic diseases (JRD) online community! The internet has proven to be an excellent medium for parents to communicate information, advice, and emotional support to one another as they navigate the issues of raising a child with juvenile scleroderma. What are some reasons I might want to consider joining the JRD online community? A FREE well-supervised online community.

2

Kids Get Scleroderma Too!!!

http://www.jsdn.org/walkablock.htm

Get ready to WALK A BLOCK for Juvenile Scleroderma in your neighborhood May 1 – 7! What is WALK A BLOCK for Juvenile Scleroderma? An awareness building and fundraising event that will assist the Juvenile Scleroderma Network in carrying out its mission. The WALK A BLOCK is not necessarily about a mile, a lap, or a distance, but about our cause.Juvenile Scleroderma! When you walk, be sure to bring along plenty of pamphlets or information about Juvenile Scleroderma, and pass it out as you go! 2 Linear: thic...

3

Kids Get Scleroderma Too!!!

http://www.jsdn.org/kidsspeak.htm

Equals by Cassie Manning. I'm Only Eight Years Old. Big Thanks to Dana and Kearney High School. Why I'm a Kid Volunteer. Basketball saves Allyson Stone's life. Mother and Daughter’s Journey -. Amber’s Stem Cell Transplant. She would be 4 weeks in and out of hospital before transplant, 5 weeks in hospital, and 4 weeks after as an outpatient again. So we were to leave Feb 21 and be back around May. When we get home the cancer center here will continue to care for her as an outpatient. It was a journey and ...

4

Kids Get Scleroderma Too!!!

http://www.jsdn.org/healthcareprofs.htm

The Healthcare Professionals section has been developed for pediatricians, school nurses, and other healthcare professionals who work with children, and have a significant role to children with juvenile scleroderma as well as their parents. Our goal is to connect with healthcare professionals to enhance quality care and increase access to care for children with juvenile scleroderma. Brochure. If you are not currently receiving a newsletter and/or need brochures for your clinic, please click here. Vice Pr...

5

Kids Get Scleroderma Too!!!

http://www.jsdn.org/keypals.htm

Support by Kids for Kids. For kids and teens of all ages who have juvenile scleroderma to exchange information, share feelings, form friendships, vent frustrations, talk about fears, express your anger and encourage others by becoming “keypals” email pen-pals. The JSDN will connect kids and teens by age. If there is a preference, kids and teens may be connected to other kids and teens by their type of juvenile scleroderma. The JSDN is in need of volunteer big buddies! No one over 21 please.

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sclerodermasupport.blogspot.com sclerodermasupport.blogspot.com

Scleroderma Support: Scleroderma Involvement: Skin and Hair - Elbow Pain

http://sclerodermasupport.blogspot.com/2005/09/scleroderma-involvement-sk_112778437828014128.html

This Scleroderma Blog is an independent site devoted specifically to those with scleroderma, their families and caregivers. Since 1996 the owner of this blog has remained dedicated to the mission of bringing scleroderma related medical information, current news and online support to the vast internet public. Scleroderma knows no boundaries we have friends all over the world. Monday, September 26, 2005. Scleroderma Involvement: Skin and Hair - Elbow Pain. Posted by Denise @ 9/26/2005 09:25:00 PM. NIH Esta...

sclerodermasupport.blogspot.com sclerodermasupport.blogspot.com

Scleroderma Support: Scleroderma Involvement: Skin and Hair - Calcinosis

http://sclerodermasupport.blogspot.com/2005/09/scleroderma-involvement-sk_112778325827032869.html

This Scleroderma Blog is an independent site devoted specifically to those with scleroderma, their families and caregivers. Since 1996 the owner of this blog has remained dedicated to the mission of bringing scleroderma related medical information, current news and online support to the vast internet public. Scleroderma knows no boundaries we have friends all over the world. Monday, September 26, 2005. Scleroderma Involvement: Skin and Hair - Calcinosis. Posted by Denise @ 9/26/2005 09:05:00 PM. Site for...

sclerodermasupport.blogspot.com sclerodermasupport.blogspot.com

Scleroderma Support: What Is CREST Syndrome and Limited Scleroderma?

http://sclerodermasupport.blogspot.com/2005/09/what-is-crest-syndrome-and-limited.html

This Scleroderma Blog is an independent site devoted specifically to those with scleroderma, their families and caregivers. Since 1996 the owner of this blog has remained dedicated to the mission of bringing scleroderma related medical information, current news and online support to the vast internet public. Scleroderma knows no boundaries we have friends all over the world. Monday, September 26, 2005. What Is CREST Syndrome and Limited Scleroderma? By Dr Fredrick Wigley. You may receive a diagnosis of C...

sclerodermasupport.blogspot.com sclerodermasupport.blogspot.com

Scleroderma Support: Scleroderma Involvement: SKin and Hair - Nailfold Capillaries

http://sclerodermasupport.blogspot.com/2005/09/scleroderma-involvement-sk_112778541471776199.html

This Scleroderma Blog is an independent site devoted specifically to those with scleroderma, their families and caregivers. Since 1996 the owner of this blog has remained dedicated to the mission of bringing scleroderma related medical information, current news and online support to the vast internet public. Scleroderma knows no boundaries we have friends all over the world. Monday, September 26, 2005. Scleroderma Involvement: SKin and Hair - Nailfold Capillaries. Posted by Denise @ 9/26/2005 09:43:00 PM.

sclerodermasupport.blogspot.com sclerodermasupport.blogspot.com

Scleroderma Support: Types of Scleroderma

http://sclerodermasupport.blogspot.com/2005/09/types-of-scleroderma.html

This Scleroderma Blog is an independent site devoted specifically to those with scleroderma, their families and caregivers. Since 1996 the owner of this blog has remained dedicated to the mission of bringing scleroderma related medical information, current news and online support to the vast internet public. Scleroderma knows no boundaries we have friends all over the world. Monday, September 26, 2005. There are two main types of Scleroderma. The two types of scleroderma are. Doctors vary on the opinion ...

sclerodermasupport.blogspot.com sclerodermasupport.blogspot.com

Scleroderma Support: Scleroderma Involvement: Skin and Hair - Dry and Itchy Skin

http://sclerodermasupport.blogspot.com/2005/09/scleroderma-involvement-sk_112778420165571739.html

This Scleroderma Blog is an independent site devoted specifically to those with scleroderma, their families and caregivers. Since 1996 the owner of this blog has remained dedicated to the mission of bringing scleroderma related medical information, current news and online support to the vast internet public. Scleroderma knows no boundaries we have friends all over the world. Monday, September 26, 2005. Scleroderma Involvement: Skin and Hair - Dry and Itchy Skin. Limit bathing when the skin is dry. Pe...

drjanemunro.com.au drjanemunro.com.au

Paediatric Rheumatology information | Dr Jane Munro

https://drjanemunro.com.au/services

MBBS (Hons) FRACP MPH Paediatric Rheumatologist. Clinic locations and Appointments. General links and resources. Royal Children’s Hospital Rheumatology Unit website. Http:/ www.rch.org.au/rheumatology. Http:/ www.arthritisaustralia.com.au. Information about Rheumatology conditions. Http:/ www.rch.org.au/rheumatology/information about rheumatological conditions/JIA information for kids/. Http:/ www.rheumatology.org/Practice/Clinical/Patients/Diseases And Conditions/Arthritis in Children/. Http:/ www.a...

juvenile-systemic-sclerosis-inception-cohort.com juvenile-systemic-sclerosis-inception-cohort.com

Welcome on juvenile scleroderma

http://www.juvenile-systemic-sclerosis-inception-cohort.com/index.php

Registered users log in here. Welcome to the Inception Cohort for. What is Juvenile Systemic Sclerosis? Juvenile systemic Sclerosis is a very rare disease in childhood, with an incidence of 0.05 /100000. Around 5 to 10% of all cases of Systemic Sclerosis evolve in childhood. If you are a patient or the parent of a patient, please ask your treating physician to participate in this project and contact us for the protocol. Thank you very much for your interest. Leading Investigator of the Project. Higginsg ...

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Kids Get Scleroderma Too!!!

Welcome to the Juvenile Scleroderma Network, Inc. (JSDN). A support network helping children and their families with. The JSDN is a volunteer staff made up of volunteer parents, health professionals, and people interested in Juvenile Scleroderma. Founded in 1999, the JSDN is the only national voluntary organization that works exclusively for children affected by Juvenile Scleroderma, and their families. Together let's keep the milestones growing until there is a cure! Because Kids Get Scleroderma, Too!

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