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Jonah & The Whale Foundation - Home

Jonah and The Whale Foundation. HELPING FAMILIES OF DISABLED AND CHRONICALLY ILL CHILDREN. When a family is dealing with a complex disease or a perplexing disability. The stress and frustration with those involved can be overwhelming. The challenge of effectively communicating your child’s needs while maintaining clarity with physicians and educators is the juggling act that most parents encounter. Like us on Facebook! Watch us on YouTube! Read us on Blogger! Follow us on Twitter!

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CONTACTS AT JTWF.ORG

Jonah "&" The Whale Foundation

Mannie Taimuty-Loomis

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Jonah "&" The Whale Foundation

Mannie Taimuty-Loomis

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Jonah "&" The Whale Foundation

Mannie Taimuty-Loomis

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Jonah and The Whale Foundation. HELPING FAMILIES OF DISABLED AND CHRONICALLY ILL CHILDREN. When a family is dealing with a complex disease or a perplexing disability. The stress and frustration with those involved can be overwhelming. The challenge of effectively communicating your child’s needs while maintaining clarity with physicians and educators is the juggling act that most parents encounter. Like us on Facebook! Watch us on YouTube! Read us on Blogger! Follow us on Twitter!

<META> KEYWORDS

1 parent passionately

2 siblings

3 about us

4 advocate responsibly

5 parent binder

6 advocating tips

7 legal disclaimer

8 communicate effectively

9 dme needs

10 library links

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parent passionately,siblings,about us,advocate responsibly,parent binder,advocating tips,legal disclaimer,communicate effectively,dme needs,library links,donate dme,love deliberately,spouse/partner,special needs child,well children,welcome,our mission

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Jonah & The Whale Foundation - Home | jtwf.org Reviews

https://jtwf.org

Jonah and The Whale Foundation. HELPING FAMILIES OF DISABLED AND CHRONICALLY ILL CHILDREN. When a family is dealing with a complex disease or a perplexing disability. The stress and frustration with those involved can be overwhelming. The challenge of effectively communicating your child’s needs while maintaining clarity with physicians and educators is the juggling act that most parents encounter. Like us on Facebook! Watch us on YouTube! Read us on Blogger! Follow us on Twitter!

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jtwf.org

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JTWF - Advocating Tips

http://www.jtwf.org/ar_Tips.html

Jonah and The Whale Foundation. HELPING FAMILIES OF DISABLED AND CHRONICALLY ILL CHILDREN. Never go to a doctor appointment alone. Have the person going with you take notes on what is being discussed and who is in the room. Never report the events of a previous doctor appointment. Instead ask the physician at hand to contact the previous doctor for a better understanding. Never make a major medical decision about your child without the presence of your spouse, family member or even a trusted friend.

2

Moms!

http://www.jtwf.org/pp_Moms.html

Jonah and The Whale Foundation. HELPING FAMILIES OF DISABLED AND CHRONICALLY ILL CHILDREN. Moms are passionate caregivers, and often take the lead in caring for children with special needs, disabilities, or chronic illness. But what is most important for Moms to do and remember? Be a Mom FIRST. When your child is in the hospital, make sure your focus is in nurturing and caring for your child, over and above ensuring your child's medical needs are met. It is the medical staff's job to address the medi...

3

Advocate Responsibly!

http://www.jtwf.org/AdvocateResponsibly.html

Jonah and The Whale Foundation. HELPING FAMILIES OF DISABLED AND CHRONICALLY ILL CHILDREN. The J&TWF Parent Binder is the perfect tool to help you organize important medical and educational information to help you communicate and care for your child more effectively! Protect yourself and your Family! Questions, comments, need more information? Legal information, notices, and the like. Read More. JTWF Facebook Fan Page. Helps you keep all your child's information organized! At little or no cost to you!

4

Love Deliberately!

http://www.jtwf.org/LoveDeliberately.html

Jonah and The Whale Foundation. HELPING FAMILIES OF DISABLED AND CHRONICALLY ILL CHILDREN. Kids are challenging for any relationship; juggling the physical and emotional needs of special needs and of well children at the same time is an even greater challenge. Often, the last person in line to receive your love and attention is your partner. Read More. JTWF Facebook Fan Page. Helps you keep all your child's information organized! We can help find MEDICAL SUPPLIES AND EQUIPMENT. Secure Donation Via PayPal.

5

JTWF Library

http://www.jtwf.org/ResourcesLibrary.html

Jonah and The Whale Foundation. HELPING FAMILIES OF DISABLED AND CHRONICALLY ILL CHILDREN. Jonah and The Whale Foundation maintains an in-house Library and also organizes and provides links to the recommended resources as shown below. If you wish to purchase a book via Amazon. Help the Foundation, please do so by clicking on the desired book links below - a portion of the proceeds will go to the Foundation to help support in fulfilling our mission! SIBLINGS OF DISABLED CHILDREN. Secure Donation Via PayPal.

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cockaynesyndrome.org

Resources and Support | Share and Care Network

http://cockaynesyndrome.org/about-cs/resources-and-support

Board Members & Program Directors. Board Members & Program Directors. Cockayne Syndrome Resources and Support. Links and information about support organizations. Give Kids The World. Make A Wish Foundation. National Institute of Health. University of Maryland Brain & Tissue Bank. 2016 Share and Care Network. Website Developed by Wicked Design.

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Jonah & The Whale Foundation - Home

Jonah and The Whale Foundation. HELPING FAMILIES OF DISABLED AND CHRONICALLY ILL CHILDREN. When a family is dealing with a complex disease or a perplexing disability. The stress and frustration with those involved can be overwhelming. The challenge of effectively communicating your child’s needs while maintaining clarity with physicians and educators is the juggling act that most parents encounter. Like us on Facebook! Watch us on YouTube! Read us on Blogger! Follow us on Twitter!

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