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It's Teeny Time

My life with Cystic Fibrosis, following a double lung transplant on October 30, 2010

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It's Teeny Time | justinekomin.blogspot.com Reviews
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My life with Cystic Fibrosis, following a double lung transplant on October 30, 2010
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It's Teeny Time | justinekomin.blogspot.com Reviews

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My life with Cystic Fibrosis, following a double lung transplant on October 30, 2010

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1

It's Teeny Time: some more waiting? don't mind if i do!

http://justinekomin.blogspot.com/2010/10/some-more-waiting-dont-mind-if-i-do.html

My life with Cystic Fibrosis, following a double lung transplant on October 30, 2010. Saturday, October 30, 2010. Don't mind if i do! Down in pre op. waiting for the visual go ahead on the other end. when we get that call they'll take me back. until then, we wait. maybe an hour. Thinking of you. Stay strong.you can do this! October 30, 2010 at 1:56 PM. Hope all is well! From a cf guy in sweden.i had my lungs for 11 years! November 1, 2010 at 5:55 PM. Subscribe to: Post Comments (Atom). October 30, 2010.

2

It's Teeny Time: February 2010

http://justinekomin.blogspot.com/2010_02_01_archive.html

My life with Cystic Fibrosis, following a double lung transplant on October 30, 2010. Saturday, February 27, 2010. MRI results: "it's not a tumor" I do however have blocked sinuses and probably a sinus infection. So I began doing the sinus rinses again - don't know why I ever stopped. lazy, I guess. Anyway, today the headache wasn't nearly as bad and I was able to get out and do some things. . Thursday, February 25, 2010. Had an eventful week so I thought I'd update! The past 48 hours have been really ro...

3

It's Teeny Time: October 2010

http://justinekomin.blogspot.com/2010_10_01_archive.html

My life with Cystic Fibrosis, following a double lung transplant on October 30, 2010. Saturday, October 30, 2010. Don't mind if i do! Down in pre op. waiting for the visual go ahead on the other end. when we get that call they'll take me back. until then, we wait. maybe an hour. Ate my first immunosuppresive drugs. SoluMedrol 1000mg IV - steroid. Pills down the gullet at 3:18 and IV started. My nurse said the plan is for them to come get me at 5am to take me down to preop to get me prepared. 1/2: Got the...

4

It's Teeny Time: I'm Still Here!

http://justinekomin.blogspot.com/2011/09/im-still-here.html

My life with Cystic Fibrosis, following a double lung transplant on October 30, 2010. Tuesday, September 13, 2011. If you're looking for updates, go to my CaringBridge page. I'll continue updating that until I get to leave Minnesota! Http:/ www.caringbridge.org/visit/newlungsforjustine. Thank you for keeping up with me on my journey! It's been quite a ride so far! Subscribe to: Post Comments (Atom). Pictures from the actual surgery and life post-transplant in Minneapolis. WARNING* Graphic Surgery Photos.

5

It's Teeny Time: May 2010

http://justinekomin.blogspot.com/2010_05_01_archive.html

My life with Cystic Fibrosis, following a double lung transplant on October 30, 2010. Friday, May 28, 2010. Yesterday I broke out of jail. No, not really, I would never call the hospital jail. let me start again. Yesterday I came home from my amazing and health-restoring vacation. It was a wonderful two weeks, full of educating the uneducated and, well, coughing! I coughed so much more than any other patient anyone had seen. That's how I get better! From a Respiratory Therapist, that question should be a...

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a breath of fresh air...: save lives by becoming an organ donor

http://abreathoffreshair-ekg.blogspot.com/2012/04/save-lives-by-becoming-organ-donor.html

A breath of fresh air. Reflections of a 20-something with cystic fibrosis (CF) pursuing life full speed. one breath at a time. Thursday, April 12, 2012. Save lives by becoming an organ donor. Here's the kicker though. the scenario described above is a best case scenario. the sad truth is that not everyone gets so lucky. far too many people die waiting for lungs or hearts or livers or kidneys that never end up coming for them. In fact, every single day we lose approximately 18 people who are waiting for o...

abreathoffreshair-ekg.blogspot.com abreathoffreshair-ekg.blogspot.com

a breath of fresh air...: hi, my name is.

http://abreathoffreshair-ekg.blogspot.com/2010/07/hi-my-name-is.html

A breath of fresh air. Reflections of a 20-something with cystic fibrosis (CF) pursuing life full speed. one breath at a time. Wednesday, July 7, 2010. Hi, my name is. Sweet dreams, ekg. July 8, 2010 at 9:51 PM. Subscribe to: Post Comments (Atom). Hi, i'm emily. this is my first foray in personal blogging and i have to admit, i'm a little nervous and intimidated. my hope is to have a place dedicated to my thoughts, questions, and reflections as a 26-year-old with CF. so here goes. View my complete profile.

abreathoffreshair-ekg.blogspot.com abreathoffreshair-ekg.blogspot.com

a breath of fresh air...: once upon a time: a story of childhood with CF

http://abreathoffreshair-ekg.blogspot.com/2010/10/once-upon-time-story-of-childhood-with.html

A breath of fresh air. Reflections of a 20-something with cystic fibrosis (CF) pursuing life full speed. one breath at a time. Sunday, October 3, 2010. Once upon a time: a story of childhood with CF. Once upon a time. Approximately 23 years ago. I was a small child with big brown eyes, straggly brown hair, a fondness for baby dolls,. A sassy attitude and a loving, supportive network of friends and family. Here are some photographs documenting the story of my childhood with CF. It is the story of a childh...

abreathoffreshair-ekg.blogspot.com abreathoffreshair-ekg.blogspot.com

a breath of fresh air...: October 2011

http://abreathoffreshair-ekg.blogspot.com/2011_10_01_archive.html

A breath of fresh air. Reflections of a 20-something with cystic fibrosis (CF) pursuing life full speed. one breath at a time. Sunday, October 30, 2011. All the fright, but none of the candy. Truthfully, the hardest part for me wasn't the spewing of blood or the gurgling in my chest. those parts i could handle. what really got me was the need to alter my treatments - my key to "success" - and purposefully abstain from the very things that i believe help keep my healthy. that part was absolute...Stop my p...

abreathoffreshair-ekg.blogspot.com abreathoffreshair-ekg.blogspot.com

a breath of fresh air...: some exciting news!

http://abreathoffreshair-ekg.blogspot.com/2011/10/some-exciting-news.html

A breath of fresh air. Reflections of a 20-something with cystic fibrosis (CF) pursuing life full speed. one breath at a time. Tuesday, October 25, 2011. I'm pleased to blog about some very exciting news. today, abbott officially awarded me with the $19,000 "thriving graduate student" scholarship. To say i'm shocked, humbled, honored, thrilled, (nearly) speechless and, shocked again, still fails to adequately express how surreal and, yes, shocking it all feels. Did i have a bad sputum culture? So, for th...

abreathoffreshair-ekg.blogspot.com abreathoffreshair-ekg.blogspot.com

a breath of fresh air...: the "lung infection daze"

http://abreathoffreshair-ekg.blogspot.com/2012/03/lung-infection-daze.html

A breath of fresh air. Reflections of a 20-something with cystic fibrosis (CF) pursuing life full speed. one breath at a time. Wednesday, March 7, 2012. The "lung infection daze". It amazes me the havoc that some uncontrolled bacteria in my lungs can wreak on my whole. Just 4 days ago, i was sitting in the same seat in the same little coffee shop trying to bang out the same measly little midterm for my bioethics mediation class. I'm guessing a lot of you have experienced "lid," too. it's that awful t...

abreathoffreshair-ekg.blogspot.com abreathoffreshair-ekg.blogspot.com

a breath of fresh air...: school, scholarship and a favor

http://abreathoffreshair-ekg.blogspot.com/2011/09/school-scholarship-and-favor.html

A breath of fresh air. Reflections of a 20-something with cystic fibrosis (CF) pursuing life full speed. one breath at a time. Thursday, September 22, 2011. School, scholarship and a favor. For some reason, when i came home from school that day, i made a decision. who would have thought a 12-year-old decision would have persisted so vigorously for the past 14 years and counting? That day, over my after school snack of handi-snacks-kraft crackers'n cheese dip (those things were the best! This year, in hon...

abreathoffreshair-ekg.blogspot.com abreathoffreshair-ekg.blogspot.com

a breath of fresh air...: when patient info becomes gossip on the tennis court

http://abreathoffreshair-ekg.blogspot.com/2012/06/when-patient-info-becomes-gossip-on.html

A breath of fresh air. Reflections of a 20-something with cystic fibrosis (CF) pursuing life full speed. one breath at a time. Monday, June 18, 2012. When patient info becomes gossip on the tennis court. I need your help. It was recently brought to my attention that a CF doctor revealed to a mutual family friend that he had seen me before. what's more, he shared the negative nature of our clinical encounter. Please correct me if i'm wrong, but i'm pretty sure that acknowledging my status as a (former) pa...

abreathoffreshair-ekg.blogspot.com abreathoffreshair-ekg.blogspot.com

a breath of fresh air...: what you can't see

http://abreathoffreshair-ekg.blogspot.com/2012/04/what-you-cant-see.html

A breath of fresh air. Reflections of a 20-something with cystic fibrosis (CF) pursuing life full speed. one breath at a time. Thursday, April 19, 2012. What you can't see. I'm paddling, so hard, but i'm tired. really freaking tired. Or week of mayhem. or year of chaos. I just need more time. May 1, 2012 at 4:37 PM. I hope youre able to get more sleep! Sleep loss is a killer for me. I go downhill fast. Subscribe to: Post Comments (Atom). View my complete profile. I want to hear from you! Hi, my name is.

abreathoffreshair-ekg.blogspot.com abreathoffreshair-ekg.blogspot.com

a breath of fresh air...: March 2012

http://abreathoffreshair-ekg.blogspot.com/2012_03_01_archive.html

A breath of fresh air. Reflections of a 20-something with cystic fibrosis (CF) pursuing life full speed. one breath at a time. Thursday, March 22, 2012. And it's here. after many months of anticipation, the video for the "thriving graduate student" scholarship is finally posted! You can read more about abbott's cfcareforward scholarship program here. Http:/ www.cfcareforwardscholarship.com/gallery/2011/. Friday, March 16, 2012. Wide eyes and an open heart. While it's not a world i'd choose, it turns out ...

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It's Teeny Time

My life with Cystic Fibrosis, following a double lung transplant on October 30, 2010. Tuesday, September 13, 2011. If you're looking for updates, go to my CaringBridge page. I'll continue updating that until I get to leave Minnesota! Http:/ www.caringbridge.org/visit/newlungsforjustine. Thank you for keeping up with me on my journey! It's been quite a ride so far! Wednesday, November 3, 2010. Long day doesn't even begin to describe today! Things I did/had done today:. Got my Foley catheter out. Pills dow...

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