kaelsstory.blogspot.com

Kael's Story

Thursday, March 8, 2012. It's hard to know how to begin this post.knowing what I'm going to talk about.just hard to put the words down on paper. So I'll just jump in.lately, it feels like Kael is disappearing. He is still before us – physically. I can still hold him, listen to him breathe as he sleeps – but it is happening. 8220; REGRESSION.LOSS OF SKILLS. So back to my original thought.he is disappearing. So how do I deal with that? He may seem to be fading before my very eyes.but he is still there&...

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Thursday, March 8, 2012. It's hard to know how to begin this post.knowing what I'm going to talk about.just hard to put the words down on paper. So I'll just jump in.lately, it feels like Kael is disappearing. He is still before us – physically. I can still hold him, listen to him breathe as he sleeps – but it is happening. 8220; REGRESSION.LOSS OF SKILLS. So back to my original thought.he is disappearing. So how do I deal with that? He may seem to be fading before my very eyes.but he is still there&...

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1 kael's story

2 just a vapor

3 posted by

4 katherine hsiao

5 6 comments

6 regression

7 sudden death

8 trust

9 kael

10 ronin our oldest son

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Kael's Story | kaelsstory.blogspot.com Reviews

https://kaelsstory.blogspot.com

Thursday, March 8, 2012. It's hard to know how to begin this post.knowing what I'm going to talk about.just hard to put the words down on paper. So I'll just jump in.lately, it feels like Kael is disappearing. He is still before us – physically. I can still hold him, listen to him breathe as he sleeps – but it is happening. 8220; REGRESSION.LOSS OF SKILLS. So back to my original thought.he is disappearing. So how do I deal with that? He may seem to be fading before my very eyes.but he is still there&...

INTERNAL PAGES

kaelsstory.blogspot.com

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Kael's Story: October 2010

http://kaelsstory.blogspot.com/2010_10_01_archive.html

Thursday, October 14, 2010. Thank you for your continued prayers and support - it means so much to us! Subscribe to: Posts (Atom). View my complete profile.

2

Kael's Story: January 2010

http://kaelsstory.blogspot.com/2010_01_01_archive.html

Saturday, January 30, 2010. Well, we had a nice little break for 11 days from seizures, but they came back, with a vengeance, on Thursday. He had a few myoclonic. Seizures on the way home from school, which made me wonder if he would have a GTC. Since he hasn't had any myo's. Since his last GTC. Are back to being a daily occurrence. The good news is that he is growing leaps and bounds developmentally. Kael. So we are thankful for that. Another great thing.he is FINALLY acknowledging his baby brother!

3

Kael's Story: March 2012

http://kaelsstory.blogspot.com/2012_03_01_archive.html

Thursday, March 8, 2012. It's hard to know how to begin this post.knowing what I'm going to talk about.just hard to put the words down on paper. So I'll just jump in.lately, it feels like Kael is disappearing. He is still before us – physically. I can still hold him, listen to him breathe as he sleeps – but it is happening. 8220; REGRESSION.LOSS OF SKILLS. So back to my original thought.he is disappearing. So how do I deal with that? He may seem to be fading before my very eyes.but he is still there&...

4

Kael's Story: Choices, Choices

http://kaelsstory.blogspot.com/2011/08/choices-choices.html

Monday, August 1, 2011. Forgive me if this post rambles a bit - I am completely fried.no sleep, stressed to the max and just sick of the whole thing. Kael. As I stated in my last post, we have been weaning Clobazam. Even at the highest dose, he was still having 15 seizures or so a month. We felt that the side effects were not worth it, since he was still having so many seizures. All of his seizures were under a minute long and self terminating. As we got lower and lower on Clobazam. Twice a day. We g...

5

Kael's Story: February 2010

http://kaelsstory.blogspot.com/2010_02_01_archive.html

Thursday, February 4, 2010. Wednesday, February 3, 2010. And so it begins, again. We are on the hunt.once again.for a med that works for our son. He has had 4 generalized tonic- clonics. In the past 6 days, as well as hundreds of myoclonic. Seizures. Every time we adjust his meds. Or try something new - we have a "honeymoon period." It usually lasts about a week and then we're right back to where we were. So we're going to raise his Stiripentol. Probably not - Ugh! I hate this disease!

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kaelsstory.blogspot.com

Kael's Story

Thursday, March 8, 2012. It's hard to know how to begin this post.knowing what I'm going to talk about.just hard to put the words down on paper. So I'll just jump in.lately, it feels like Kael is disappearing. He is still before us – physically. I can still hold him, listen to him breathe as he sleeps – but it is happening. 8220; REGRESSION.LOSS OF SKILLS. So back to my original thought.he is disappearing. So how do I deal with that? He may seem to be fading before my very eyes.but he is still there&...

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Hey there, I'm Kael! I'm a Toronto-based, front-end web developer and designer. If you're seeking a freelance developer to assist with your upcoming web project - whether it's building a new site from scratch, enhancing an already existing site, or something else completely - I'm your guy! Responsive Wordpress Web App. If you're interested in getting a quote for a project, collaborating on your next big idea, or just want to chat, please feel free to contact me via any of the channels below!

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