trentandmary.wordpress.com
Our Story | trentmaryharryandcara
https://trentandmary.wordpress.com/our-story-trent
Video of the month. 8230;sharing Harry and Cara, remembering Ellen, and other bits and pieces…. Hi our names are Trent and Mary. When our first baby, Ellen, died of Neonatal Hemochromatosis, we had no idea what it was or what it meant. We hope that sharing our story of Ellen will help people who may have experienced a similar loss. Because these things affect us all differently we’ve both had a go at writing down our story:. In Mary’s Words. In Trent’s Words. In Mary’s Words…. It took three months for th...
trentandmary.wordpress.com
trentmaryharryandcara | …sharing Harry and Cara, remembering Ellen, and other bits and pieces… | Page 2
https://trentandmary.wordpress.com/page/2
Video of the month. 8230;sharing Harry and Cara, remembering Ellen, and other bits and pieces…. August 20, 2008. Welcome Cara Grace Jordan! Posted by trentandmary under Cara Grace. We’re thrilled to announce the arrival of Cara Grace Jordan. Born Tuesday 19 August at 10:38, weighing 3140g. She is a much loved and anticipated addition to our family. However, most of the tests that have come back are positive, so we’re hopeful she’ll be ready to come home by the end of the week. May 14, 2008. May 14, 2008.
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Photos | trentmaryharryandcara
https://trentandmary.wordpress.com/photos
Video of the month. 8230;sharing Harry and Cara, remembering Ellen, and other bits and pieces…. Our photos are stored on another website, you can access them by clicking on the recent photos, down the right hand side of the page, or by clicking on the link below:. Http:/ www.flickr.com/photos/trentandmary/. Leave a Reply Cancel reply. Enter your comment here. Fill in your details below or click an icon to log in:. Address never made public). You are commenting using your Twitter account. ( Log Out.
trentandmary.wordpress.com
Neonatal Hemochromatosis | trentmaryharryandcara
https://trentandmary.wordpress.com/experience-with-neonatal-hemochromatosis
Video of the month. 8230;sharing Harry and Cara, remembering Ellen, and other bits and pieces…. Information on our experience with Neonatal Hemochromatosis (NH) can be found at the following links on our blog site:. Describes Ellen’s life from Trent and Mary’s point of view ). Includes some comments from others who have also received the IVIg treatment). NH is a pretty rare disease and so we have also listed some links below to useful websites. Children’s Memorial Hospital. January 9, 2007 at 7:18 am.
trentandmary.wordpress.com
Video of the month | trentmaryharryandcara
https://trentandmary.wordpress.com/video-of-the-month
Video of the month. 8230;sharing Harry and Cara, remembering Ellen, and other bits and pieces…. Video of the month. This is a series of videos for us to show you all some of Harry’s progress. Gran (aka Mary Poppins) and Harry ( Click here. Phone Fun with Grandma ( Click here. 8220;Just me and my harp”… ( Click here. Mary’s still hard at work training… ( Click here. Harry displays some dribbling prowess. Harry gives a piano performance for Father’s Day. General play with Harry. Click here. This month we&#...
toughlittlecookies.wordpress.com
6 reasons why we love portage | tough little cookies
https://toughlittlecookies.wordpress.com/2013/01/30/6-reasons-why-we-love-portage
6 reasons why we love portage. This entry was posted on January 30, 2013, in additional needs. I’ve said before (on twitter) how much Portage has helped Douglas and other tough little cookies in our group. For those of you who might not have encountered Portage, it provides home-based visiting for children with special needs. Its mysterious name comes from the town Portage, in Wisconsin USA, where the idea originated. These are just some of the reasons why I love Portage:. 1 Portage comes to us. I totall...
toughlittlecookies.wordpress.com
world travel with a cookie | tough little cookies
https://toughlittlecookies.wordpress.com/2015/01/26/world-travel-with-a-cookie
World travel with a cookie. This entry was posted on January 26, 2015, in additional needs. So far we have booked our long distance flights with emirates as the stopovers are minimal (1 and a half hours instead of the usual 4 or 5 which really adds to the time when your flight time is 24 hours! Nope, nothing at all. If you want help you have to pay a private company to help you which as you can imagine doesn’t really fit into our modest budget. What if he was an adult? January 26, 2015 at 3:05 pm. Emirat...
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