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Our Precious 1p36 Miracle

This site is devoted to Kaylee and her heroic battle against Monosomy 1p36 Deletion Syndrome. Will you join us in prayer for our precious girl? She's the light of our lives and the most brave person we know. We live a chaotic, often hectic existence these days, but we know that if ANYONE can beat the odds, Kaylee CAN! Thanks for caring enough to come here and read this. We treasure the support, care and prayers of hundreds of people who stand shoulder to shoulder with us in this fight.

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Our Precious 1p36 Miracle | kaylee1p36miracle.blogspot.com Reviews
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This site is devoted to Kaylee and her heroic battle against Monosomy 1p36 Deletion Syndrome. Will you join us in prayer for our precious girl? She&#39;s the light of our lives and the most brave person we know. We live a chaotic, often hectic existence these days, but we know that if ANYONE can beat the odds, Kaylee CAN! Thanks for caring enough to come here and read this. We treasure the support, care and prayers of hundreds of people who stand shoulder to shoulder with us in this fight.
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1 dear kaylee
2 updates
3 posted by
4 sherry
5 no comments
6 counting my blessings
7 mother teresa
8 christmas bliss serenity
9 i'm so blessed
10 beau
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dear kaylee,updates,posted by,sherry,no comments,counting my blessings,mother teresa,christmas bliss serenity,i'm so blessed,beau,amen,reinhold niebuh,1 comment,older posts,our water bugs,your so funny,life's a dance,snoozing,3 years ago,alayna,chloe girl
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Our Precious 1p36 Miracle | kaylee1p36miracle.blogspot.com Reviews

https://kaylee1p36miracle.blogspot.com

This site is devoted to Kaylee and her heroic battle against Monosomy 1p36 Deletion Syndrome. Will you join us in prayer for our precious girl? She&#39;s the light of our lives and the most brave person we know. We live a chaotic, often hectic existence these days, but we know that if ANYONE can beat the odds, Kaylee CAN! Thanks for caring enough to come here and read this. We treasure the support, care and prayers of hundreds of people who stand shoulder to shoulder with us in this fight.

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kaylee1p36miracle.blogspot.com kaylee1p36miracle.blogspot.com
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Our Precious 1p36 Miracle: Almost a year ago! Counting my blessings...

http://kaylee1p36miracle.blogspot.com/2010/01/almost-year-ago-counting-my-blessings.html

Our Precious 1p36 Miracle. This site is devoted to Kaylee and her heroic battle against Monosomy 1p36 Deletion Syndrome. Will you join us in prayer for our precious girl? She's the light of our lives and the most brave person we know. We live a chaotic, often hectic existence these days, but we know that if ANYONE can beat the odds, Kaylee CAN! Monday, January 11, 2010. Almost a year ago! Our lives were once dictated by guessing,"Do we go up on dosage? Do we go down on dosage? Is the dosage EVEN working?

2

Our Precious 1p36 Miracle: Happy New Years 2010!

http://kaylee1p36miracle.blogspot.com/2009/12/happy-new-years-2010.html

Our Precious 1p36 Miracle. This site is devoted to Kaylee and her heroic battle against Monosomy 1p36 Deletion Syndrome. Will you join us in prayer for our precious girl? She's the light of our lives and the most brave person we know. We live a chaotic, often hectic existence these days, but we know that if ANYONE can beat the odds, Kaylee CAN! Thursday, December 31, 2009. Happy New Years 2010! Thursday, December 31, 2009. Subscribe to: Post Comments (Atom). Who is this rat? I love my play mat. 1p36 Conf...

3

Our Precious 1p36 Miracle: October 2009

http://kaylee1p36miracle.blogspot.com/2009_10_01_archive.html

Our Precious 1p36 Miracle. This site is devoted to Kaylee and her heroic battle against Monosomy 1p36 Deletion Syndrome. Will you join us in prayer for our precious girl? She's the light of our lives and the most brave person we know. We live a chaotic, often hectic existence these days, but we know that if ANYONE can beat the odds, Kaylee CAN! Monday, October 5, 2009. Our first 1p36 fundraiser is finally over.a great success! Our very first 1p36 fundraiser is officially over! Monday, October 05, 2009.

4

Our Precious 1p36 Miracle: November 2009

http://kaylee1p36miracle.blogspot.com/2009_11_01_archive.html

Our Precious 1p36 Miracle. This site is devoted to Kaylee and her heroic battle against Monosomy 1p36 Deletion Syndrome. Will you join us in prayer for our precious girl? She's the light of our lives and the most brave person we know. We live a chaotic, often hectic existence these days, but we know that if ANYONE can beat the odds, Kaylee CAN! Thursday, November 26, 2009. 3 I am thankful for the people we have met in this process, our 1p36 family, the other fighter parents who work tirelessly to raise a...

5

Our Precious 1p36 Miracle: Happy 2nd Birthday sweet angel!

http://kaylee1p36miracle.blogspot.com/2010/07/happy-2nd-birthday-sweet-angel.html

Our Precious 1p36 Miracle. This site is devoted to Kaylee and her heroic battle against Monosomy 1p36 Deletion Syndrome. Will you join us in prayer for our precious girl? She's the light of our lives and the most brave person we know. We live a chaotic, often hectic existence these days, but we know that if ANYONE can beat the odds, Kaylee CAN! Friday, July 23, 2010. Happy 2nd Birthday sweet angel! I love watching you sleep and feeling you so close to me. I love how unbelievably forgiving you are. I love...

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justalittletrouble.blogspot.com justalittletrouble.blogspot.com

just a little trouble: It's been awhile

http://justalittletrouble.blogspot.com/2011/08/it-been-awhile.html

Just a little trouble. Friday, August 19, 2011. So, it's been awhile since I blogged last. I'll make this short. Mission Trek was awesome! My kids got to have the whole 'food' experience. They got to be the migrant worker, then sort, package, deliver, unpack, pack again, and hand out to families. And I got engaged! Those are the highlights to my year. Next adventure is getting to go to Guatemala for work. More to come! Short and to the point - LIT. Subscribe to: Post Comments (Atom).

lexislifewith1p36.blogspot.com lexislifewith1p36.blogspot.com

Lexi's Life with 1p36: October 2009

http://lexislifewith1p36.blogspot.com/2009_10_01_archive.html

Lexi's Life with 1p36. Oct 14, 2009. A lot has happened since my last post. Alexis has started school in a new classroom with a new teacher. So far so good. We have been meeting with Family and Children Services to see what resources are available to Alexis. We have had a prescription written for Alexis' overnight incontinence needs. We have yet to receive them. Alexis has a new brother. He was born on September 2. See our family blog. Subscribe to: Posts (Atom). In her element - catching flakes.

lexislifewith1p36.blogspot.com lexislifewith1p36.blogspot.com

Lexi's Life with 1p36: June 2010

http://lexislifewith1p36.blogspot.com/2010_06_01_archive.html

Lexi's Life with 1p36. Jun 24, 2010. Bathing has been made a lot easier. Eating isn't so messy. She just seems to still not want to use her arm. We will have to work on that. Jun 22, 2010. Alexis had her second outing with her worker (I don't remember the official title). She took Alexis out to the Humane Society. While there they worked on Alexis not talking to strangers and not touching other people. Alexis had a good time. She bugged me all morning until it was time for her to go. Jun 21, 2010. The su...

lexislifewith1p36.blogspot.com lexislifewith1p36.blogspot.com

Lexi's Life with 1p36: November 2009

http://lexislifewith1p36.blogspot.com/2009_11_01_archive.html

Lexi's Life with 1p36. Nov 20, 2009. Alexis loves her siblings. Here is a moment with Mikey before Halloween. Labels: Lexi and Mikey. Nov 6, 2009. Alexis loves music. Her favorite soundtrack is Disney's Cinderella. We always get the play by play on what part of the movie the music is playing. It always makes her giggle. Music brings her great joy. Most times music will bring peace into our home. I have found that when I play quiet peaceful music, Alexis becomes more calm. Subscribe to: Posts (Atom).

justalittletrouble.blogspot.com justalittletrouble.blogspot.com

just a little trouble: October 2008

http://justalittletrouble.blogspot.com/2008_10_01_archive.html

Just a little trouble. Sunday, October 19, 2008. I just spent my first week at world vision as a FULL TIME CONTRACT EMPLOYEE! All I have to say is, "FINALLY! Tuesday, October 7, 2008. Well, today marked my one year at world vision. Its been great so far, i look forward to the next year. Hopefully i'll be permanent by next October 7th. Subscribe to: Posts (Atom). I am a web developer/analyst by day and a musician by night. View my complete profile. There was an error in this gadget.

lexislifewith1p36.blogspot.com lexislifewith1p36.blogspot.com

Lexi's Life with 1p36: Sedated Hearing Test

http://lexislifewith1p36.blogspot.com/2011/01/sedated-hearing-test.html

Lexi's Life with 1p36. Jan 18, 2011. Subscribe to: Post Comments (Atom). In her element - catching flakes. Alexis was born on Christmas Day in 1997. She was diagnosed with the chromosome deletion 1p36 when she was six years old. It has taken a long time for her to see much success, but we are delighted in every small step she makes. I hope that you find this blog helpful. Lexis School Birthday Party. Click image to learn more. Click image to learn more. 1p36 Friend's Blog List. God Gave Us You.

lexislifewith1p36.blogspot.com lexislifewith1p36.blogspot.com

Lexi's Life with 1p36: February 2010

http://lexislifewith1p36.blogspot.com/2010_02_01_archive.html

Lexi's Life with 1p36. Feb 28, 2010. Alexis participated in the freestyle assisted with flotation and the backstroke assisted with flotation. She got third in both races. We are so proud of her. When it comes to swimming she doesn't go very fast because she doesn't want to get out of the pool. Showering after the race. She hates showers. I made her smile for me. After wards with part of her cheer team. Grandma Burton, Grandpa Burton, Daddy and Emily had left by the time we took our picture. Feb 1, 2010.

lexislifewith1p36.blogspot.com lexislifewith1p36.blogspot.com

Lexi's Life with 1p36: Always Changing, Always Challenging

http://lexislifewith1p36.blogspot.com/2010/10/always-changing-always-challenging.html

Lexi's Life with 1p36. Oct 7, 2010. Always Changing, Always Challenging. Taking care of Alexis has been very hard lately. She has been having fits worse than her two year old sister. It doesn't help that she is 110 pounds and dead weight when she goes to the floor. Maybe I wouldn't be so upset if she had always done this but she hasn't. Once upon a time I was able to have a conversation with her or was able to redirect her. For now those days are over. Who will learn how to share. Will she be disapointed...

lexislifewith1p36.blogspot.com lexislifewith1p36.blogspot.com

Lexi's Life with 1p36: July 2009

http://lexislifewith1p36.blogspot.com/2009_07_01_archive.html

Lexi's Life with 1p36. Jul 23, 2009. Alexis has had a pretty fun summer so far with trips to the zoo, library and family vacations. Here are a few photos. In Intercourse, PA. In Philadelphia, PA talking to Thomas Jefferson asking him to make the clock chime again. At a Primary Activity - my cookie monsters. The last one is of Alexis entertaining herself while in time out. Jul 22, 2009. Subscribe to: Posts (Atom). In her element - catching flakes. I hope that you find this blog helpful. God Gave Us You.

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Our Precious 1p36 Miracle

Our Precious 1p36 Miracle. This site is devoted to Kaylee and her heroic battle against Monosomy 1p36 Deletion Syndrome. Will you join us in prayer for our precious girl? She's the light of our lives and the most brave person we know. We live a chaotic, often hectic existence these days, but we know that if ANYONE can beat the odds, Kaylee CAN! Friday, July 23, 2010. Happy 2nd Birthday sweet angel! I love watching you sleep and feeling you so close to me. I love how unbelievably forgiving you are. I love...

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Tuesday, December 2, 2014. A Little Time Lyrics. I need a little time. To think it over. Just on my own. I need a little space. I need a little time. To find my freedom. I need a little. Funny how quick the milk turns sour. Isn't it, isn't it. Your face has been looking like that for hours. Hasn't it, hasn't it. Promises, promises turn to dust. Wedding bells just turn to rust. I need a little room. I need a little space. To work it out. I need a little room. I need a little. Don't you, don't you. Kaylee ...

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