KAYLIESCHIARI.COM
Hanging Low and InvisibleA blog about a family's journey dealing with Chiari 1 Malformation and related conditions.
http://www.kaylieschiari.com/
A blog about a family's journey dealing with Chiari 1 Malformation and related conditions.
http://www.kaylieschiari.com/
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Hanging Low and Invisible | kaylieschiari.com Reviews
https://kaylieschiari.com
A blog about a family's journey dealing with Chiari 1 Malformation and related conditions.
kaylieschiari.com
Hanging Low and Invisible: 3 Weeks
http://www.kaylieschiari.com/2015/04/3-weeks.html
Friday, April 3, 2015. Kaylie was 3 weeks post-op on Wednesday. Things are really good, slow… but good. I can't complain how well her incision is healing… it looks great! Pain wise… is good! She actually doesn't take a lot of meds, usually by the end of the day, she says her neck is tired… so i give her something… she still wears the brace a lot…. Ive been gardening a lot lately… and it is SO nice. I feel like I'm away from the outside world. Easter is this weekend… we are excited to spend it with ...
Hanging Low and Invisible: Helpful Information
http://www.kaylieschiari.com/p/support.html
Questions We Asked Our Neurosurgeon. The questions above was our personal list….As I sat waiting, and waiting for the day to come to see the neurosurgeon. my list of questions got longer and longer! When I first started this list. I first asked all my groups if there was a list somewhere, to help me out. There really wasn't! Other Great Questions to Ask. Wong-Baker Faces Scale for Pain. Beighton Score and Brighton Scale. The Chiari Institute, Great Neck, NY (Kaylie's neurosurgeon). Staten Island, NY 10312.
Hanging Low and Invisible: 2 Months Post-Op… well, a couple days ago!
http://www.kaylieschiari.com/2015/05/2-months-post-op-well-couple-days-ago.html
Wednesday, May 13, 2015. 2 Months Post-Op… well, a couple days ago! It's going by fast, which is a good thing. Each day brings something easier or just a little bit better. And… more fused! The goal here. Kaylie is doing great! School work is going well, we are actually turning in all her work and supplies soon, and the year is over for her! Their last day is the 22nd, so it will be nice to have them at home. In early June Kaylie will be seeing a Rheumatology doctor at Dallas Children's. As for the famil...
Hanging Low and Invisible: 3 Years/4 Months
http://www.kaylieschiari.com/2015/07/3-years4-months.html
Monday, July 27, 2015. Three years ago on this day we were facing Kaylie's first brain surgery. I remember those days so well. The fear, worry, crying moments, happy moments, even moments of looking at other patients thinking to myself, "I hope we never have to deal with that…" or "This is it… we are good now." Now we are 4 months out (almost 5) from her 2nd surgery. Wow, from the first time we met with Dr. Rekate, to the time we were meeting him again. Subscribe to: Post Comments (Atom). I am the owner ...
Hanging Low and Invisible: All In A Week….
http://www.kaylieschiari.com/2015/03/all-in-week.html
Sunday, March 22, 2015. All In A Week…. It amazes me how fast time flies. First, We are back home in Oklahoma now…. and Kaylie is doing good! Last Monday, she was discharged from the hospital. Dr Rekate came in that morning and was so happy with how Sunday was for her. We headed back to RMH, to rest and relax. Her friend Nic, was discharged the same day! He also has Chiari and some related conditions. We played LOTS of games…. PS I despise Uno now! 8230;and drank hot chocolate… and more games! And like l...
TOTAL PAGES IN THIS WEBSITE
17
Chiari Is A Wuss It Will Never Defeat Me: November 2013
http://chiariisawuss.blogspot.com/2013_11_01_archive.html
Chiari Is A Wuss It Will Never Defeat Me. This is my story. My personal blog about my journey with Chiari Malformation. Tuesday, November 5, 2013. I follow this girl on instagram and I had to share how she contacted the Mayor to make September Chiari Awareness month in her town. Here is the link. Subscribe to: Posts (Atom). I was diagnosed with Chiari Malformation (CM) March, 04 2013. Helpful Sites For Chiari. Mayfield Center Cincinnati OH. Spine and Joint Center. Chiari Online Support Group. Travel temp...
Chiari Is A Wuss It Will Never Defeat Me: April 2014
http://chiariisawuss.blogspot.com/2014_04_01_archive.html
Chiari Is A Wuss It Will Never Defeat Me. This is my story. My personal blog about my journey with Chiari Malformation. Thursday, April 3, 2014. I received the best news yesterday! I had an MRI last week and there was no sign. I believe in miracles! Subscribe to: Posts (Atom). I was diagnosed with Chiari Malformation (CM) March, 04 2013. Helpful Sites For Chiari. Mayfield Center Cincinnati OH. Spine and Joint Center. Chiari Online Support Group. At least i have a brain. Hanging Low and Invisible.
Chiari Is A Wuss It Will Never Defeat Me: May 2013
http://chiariisawuss.blogspot.com/2013_05_01_archive.html
Chiari Is A Wuss It Will Never Defeat Me. This is my story. My personal blog about my journey with Chiari Malformation. Wednesday, May 29, 2013. Chiari Really Is A Wuss And It Will Never Defeat Me :D. I have received so much good news recently I don't know how to act! Today I had physical therapy and although there are days I may have a neck ache I feel like my neck is 10x better than what it was when I first started going to Dr. Brower. I received good news! Good With The Bad ;). So I suffered through i...
Chiari Is A Wuss It Will Never Defeat Me: December 2014
http://chiariisawuss.blogspot.com/2014_12_01_archive.html
Chiari Is A Wuss It Will Never Defeat Me. This is my story. My personal blog about my journey with Chiari Malformation. Monday, December 22, 2014. Merry Christmas from Our Family to Yours! It's been a year, but I wouldn't change any of it! Subscribe to: Posts (Atom). I was diagnosed with Chiari Malformation (CM) March, 04 2013. Helpful Sites For Chiari. Mayfield Center Cincinnati OH. Spine and Joint Center. Chiari Online Support Group. Merry Christmas from Our Family to Yours! At least i have a brain.
Chiari Is A Wuss It Will Never Defeat Me: Chiari Awareness
http://chiariisawuss.blogspot.com/2013/11/chiari-awareness.html
Chiari Is A Wuss It Will Never Defeat Me. This is my story. My personal blog about my journey with Chiari Malformation. Tuesday, November 5, 2013. I follow this girl on instagram and I had to share how she contacted the Mayor to make September Chiari Awareness month in her town. Here is the link. Subscribe to: Post Comments (Atom). I was diagnosed with Chiari Malformation (CM) March, 04 2013. Helpful Sites For Chiari. Mayfield Center Cincinnati OH. Spine and Joint Center. Chiari Online Support Group.
Chiari Is A Wuss It Will Never Defeat Me: September 2013
http://chiariisawuss.blogspot.com/2013_09_01_archive.html
Chiari Is A Wuss It Will Never Defeat Me. This is my story. My personal blog about my journey with Chiari Malformation. Tuesday, September 3, 2013. September is Chiari Awareness Month. September is Chiari Awareness Month. When I think of Chiari Awareness I think of that first time I heard those two works. Chiari Malformation. Subscribe to: Posts (Atom). I was diagnosed with Chiari Malformation (CM) March, 04 2013. Helpful Sites For Chiari. Mayfield Center Cincinnati OH. Spine and Joint Center. I'm a smal...
Chiari Is A Wuss It Will Never Defeat Me: February 2014
http://chiariisawuss.blogspot.com/2014_02_01_archive.html
Chiari Is A Wuss It Will Never Defeat Me. This is my story. My personal blog about my journey with Chiari Malformation. Thursday, February 13, 2014. Your Brain Falls Out. I saw this picture today that made my day a little brighter. It said Be Open Minded, But Not So Much That Your Brain Falls Out. Subscribe to: Posts (Atom). I was diagnosed with Chiari Malformation (CM) March, 04 2013. Helpful Sites For Chiari. Mayfield Center Cincinnati OH. Spine and Joint Center. Chiari Online Support Group. Travel tem...
Chiari Is A Wuss It Will Never Defeat Me: Keeping Hope
http://chiariisawuss.blogspot.com/2013/10/keeping-hope_10.html
Chiari Is A Wuss It Will Never Defeat Me. This is my story. My personal blog about my journey with Chiari Malformation. Thursday, October 10, 2013. I wanted to share this video. Subscribe to: Post Comments (Atom). I was diagnosed with Chiari Malformation (CM) March, 04 2013. Like many I was unaware of this condition and had no idea what it was or how serious it was. This is my story. I hope that with this blog I can get awareness out about this painful serious condition. Helpful Sites For Chiari.
Chiari Is A Wuss It Will Never Defeat Me: Amazing News
http://chiariisawuss.blogspot.com/2014/04/amazing-news.html
Chiari Is A Wuss It Will Never Defeat Me. This is my story. My personal blog about my journey with Chiari Malformation. Thursday, April 3, 2014. I received the best news yesterday! I had an MRI last week and there was no sign. I believe in miracles! Subscribe to: Post Comments (Atom). I was diagnosed with Chiari Malformation (CM) March, 04 2013. Helpful Sites For Chiari. Mayfield Center Cincinnati OH. Spine and Joint Center. Chiari Online Support Group. At least i have a brain. Hanging Low and Invisible.
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Kaylie's Candlelight Vigil For Victims Of Dangerous Dogs
Saturday, October 26, 2013 - 6:30pm. Sacramento - State Capitol Building Steps. Please join Kaylie for prayer and to light a candle in Honor of the Victims of Dangerous Dogs on the steps of the Sacramento State Capitol Building at 6:30pm on October 26th. For more information, please contact Dennis Baker. Sunday, October 27, 2013. We Did It and We Rocked! See more event photos at the Facebook Event page. Labels: bakers hay man. Thursday, October 24, 2013. Event Montage Photo by DogsBite.org! A Texas-based...
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The position of the blocks have been saved. Did you like this profile? Tue, April 05, 2016. My star sign : Cancer. Post to my blog. Here you are free.
Hanging Low and Invisible
Friday, March 31, 2017. Every time around this year, I start looking for that first post of Kaylie’s dx. I never can remember the date I posted it, b/c it wasn’t the date we found out. We kept a lot of stuff that happened in March to ourselves. Many people had no idea she was even having an MRI early in March for headaches. So 2 years post-op! Things couldn’t be better! We have reached out to our “going to be new” neurosurgeon once Rekate retires. I guess let me talk about our year since I last left off!
Kaylie Schmitz
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Kaylie's Closet: Hand Crochet Fun for Little Tykes
Kaylie's Closet: Hand Crochet Fun for Little Tykes. Friday, January 18, 2013. And the Winner Is. Congratulations to Heather Carroll, the winner of the Woolzies Dryer Ball giveaway. Her blog comment stated that she would like to avoid those pesky drier sheets. I hope that she finds that these will eliminate that need! Much thanks, again, to Woolzies. For making this giveaway possible. Thank you to everyone who participated! Wednesday, January 9, 2013. Woolzies Drier Balls Giveaway. Ya, I think so. Last ye...
Kaylie's Coins & Artifacts
For the Discriminating Collector. Featured Coins and Artifacts. Welcome to Kaylie's Coins! Where treasures of the past are our specialty. From the temples of Ancient Greece to the streets of Victorian London. Each month at kayliescoins.com. We'll feature a few of our latest acquisitions, acquired from shows throughout the country. So stay tuned for new treasures! Want to meet us in person? 1632 Austria, Tyrol, Archduke Leopold, Silver Thaler. $450. 1816 Lima, Peru, Legal Document. $85. 1382-1400 VENICE, ...
Kaylie's Crafts | crafting happiness one project at a time…
Crafting happiness one project at a time…. Welcome to Kaylie’s Crafts. This page is currently under construction. Please check back soon for some amazing Crafts by Kaylie! Welcome to Kaylie’s Crafts. Create a free website or blog at WordPress.com. Create a free website or blog at WordPress.com. Follow “Kaylie's Crafts”. Get every new post delivered to your Inbox. Build a website with WordPress.com.
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