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That's me in the corner | A se quu i

http://asequui.blogspot.com/2014/01/thats-me-in-corner.html

A se quu i. That's me in the corner. Parenting, especially single parenting, will always bring challenges. Just today I needed to take a bathroom break but Clara wouldn't let me put her down without wailing, snotting and releasing the flood gates. As Lxkas did when he was smaller, she joined me during this most private of private times. But most recently, through my children I am finding my way back to God. That might seem like an odd statement, but let me explain. Her witness to me was unexpectedly chil...

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November 2013 | A se quu i

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A se quu i. Archive for November 2013. On the morning I was to be in court to extend the protective order I also had to be in orientation to learn what I was to do in return for receiving state assistance. Somewhere I had put the notion in my mind that the orientation was going to be quick, lasting only an hour and a half. Ms Alexandria gonna throw a fit when she see you brought that child in here," stated one of my classmates. Turns out she was over-confident. Ms. Alexandria threw that fit and m...Once ...

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December 2013 | A se quu i

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A se quu i. Archive for December 2013. I'm sitting on the side of my bed debating my next move on Words with Friends when my bedroom door gently opens and my freshly-turned (as in today) 17-year-old daughter bounces over to me with a small box in her hands. Look what I bought today with the money I got from Nana and Grandpa." She opens the gold ornate box to reveal a palette of shimmering bronze, gold and brown eye colors. Posted by Kel on child rearing. Your bad decision changed all of our lives, but I'...

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It Always Sounds Better Than It Is | A se quu i

http://asequui.blogspot.com/2013/07/it-always-sounds-better-than-it-is.html

A se quu i. It Always Sounds Better Than It Is. Sometimes it's hard to come up with titles for these updates and so I wait until I've finished before I settle on one. For this post, the first sentence I typed was the title. Do you remember two posts back when I was ecstatic about staying home with my little lovies? It was the best day on earth. Streamers were falling from the sky. I think I may have left that part out, but it happened. It was a glorious event, that realization. What do I do with myself?

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Disability and Sexual Abuse: Why I Fear Death | A se quu i

http://asequui.blogspot.com/2015/01/disability-and-sexual-abuse-why-i-fear.html

A se quu i. Disability and Sexual Abuse: Why I Fear Death. One of my biggest fears as a parent of a child with a disability is I may die early, leaving other loved ones that may or may not be up for such a task to care for my children. And while this fear is very real, I'm sure I'm not alone in that I also spend so much time worrying about my child's health that I overlook my own health. I have vowed that this year I will make time and keep up with all my needed doctor visits. I've seen my gynecologi...

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Introduction | A se quu i

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A se quu i. My daughter's diagnosis has inspired me in many ways, and one of the biggest inspirations was the courage to finally walk away from a demanding job I no longer enjoyed. While I am in career-limbo I am hoping to find time to paint and if the good Lord sees fit, maybe even make a little profit from it. The link to my art site is here. It Always Sounds Better Than It Is. 3-21 Letter to Expecting Parents. I like my life to be smooth and quiet, free of drama.  When I think of women who ne...I used...

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August 2013 | A se quu i

http://asequui.blogspot.com/2013_08_01_archive.html

A se quu i. Archive for August 2013. After hearing that she would no longer need to see the hematologist because her platelet levels were normal, and the pediatrician would just need to monitor her for the next year, I knew we were also going to get the stamp of excellence from the cardiologist. We had gotten through our morning appointment unscathed. Yes! I'm all for closing the ASD, but the thought of Clara being put under with anesthesia is haunting me. She's 13 pounds, for goodness sake! And she's&#4...

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January 2014 | A se quu i

http://asequui.blogspot.com/2014_01_01_archive.html

A se quu i. Archive for January 2014. Since I haven't participated in a blog hop in a while, and being that I am tied down to the hospital and I have some time on my hands, it seemed a good time to jump back in. This month Meriah is requesting a truth, a tip and a photo. The last 2 weeks have been good practice in patience for me. So, here we are. Still. But, having just come out of PICU, she is definitely better. Posted by Kel on blog hop. Yes, we are. Here we are, our 9th night here. Because she is...

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December 2014 | A se quu i

http://asequui.blogspot.com/2014_12_01_archive.html

A se quu i. Archive for December 2014. I am realizing that the comments of mostly acquaintances to Clara’s disability are making my skin thick, as I no longer cringe or heat up in anger. I also realize I am hearing comments that I will be hearing for the rest of our lives. Her daughter is in high school and has an intellectual disability. She shared advice with me and she shared difficulties, such as not being able to work because there is no before and after school care for her daughter. Her dau...Then ...