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Uncovering the Mystery of Chiari Malformation Type

Uncovering the Mystery of Chiari Malformation Type. This blog is to chronicle my journey through the mystery of Chiari Malformation Type I. Wednesday, September 1, 2010. Kennedy's Surgery July 21, 2010. The reason I haven't posted is because I have been waiting for good news to post. True everyday is "good news" and I don't want to pretend that I don't know as such. This post will be long (warning). I will try to summarize what has taken place in the last 6 weeks of Kennedy's amazing life. Okayso we had ...

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Uncovering the Mystery of Chiari Malformation Type | kennedyschiari.blogspot.com Reviews

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Uncovering the Mystery of Chiari Malformation Type. This blog is to chronicle my journey through the mystery of Chiari Malformation Type I. Wednesday, September 1, 2010. Kennedy's Surgery July 21, 2010. The reason I haven't posted is because I have been waiting for good news to post. True everyday is good news and I don't want to pretend that I don't know as such. This post will be long (warning). I will try to summarize what has taken place in the last 6 weeks of Kennedy's amazing life. Okayso we had ...

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Uncovering the Mystery of Chiari Malformation Type | kennedyschiari.blogspot.com Reviews

https://kennedyschiari.blogspot.com

Uncovering the Mystery of Chiari Malformation Type. This blog is to chronicle my journey through the mystery of Chiari Malformation Type I. Wednesday, September 1, 2010. Kennedy's Surgery July 21, 2010. The reason I haven't posted is because I have been waiting for good news to post. True everyday is "good news" and I don't want to pretend that I don't know as such. This post will be long (warning). I will try to summarize what has taken place in the last 6 weeks of Kennedy's amazing life. Okayso we had ...

INTERNAL PAGES

kennedyschiari.blogspot.com

1

Uncovering the Mystery of Chiari Malformation Type: How I've Been Feeling

http://www.kennedyschiari.blogspot.com/2010/04/how-ive-been-feeling.html

Uncovering the Mystery of Chiari Malformation Type. This blog is to chronicle my journey through the mystery of Chiari Malformation Type I. Friday, April 16, 2010. How I've Been Feeling. Lots going on. Kennedy has been getting headaches and migraines allllllll the time. Mostly everyday. Sometimes she gets these fevers out of NOWHERE of like 103.5 or 104. It's scary. But then they go away. Either way, she is so excited and happy to go. I will post pictures tomorrow from Disney's Princesses on Ice!

2

Uncovering the Mystery of Chiari Malformation Type: April 2010

http://www.kennedyschiari.blogspot.com/2010_04_01_archive.html

Uncovering the Mystery of Chiari Malformation Type. This blog is to chronicle my journey through the mystery of Chiari Malformation Type I. Friday, April 16, 2010. How I've Been Feeling. Lots going on. Kennedy has been getting headaches and migraines allllllll the time. Mostly everyday. Sometimes she gets these fevers out of NOWHERE of like 103.5 or 104. It's scary. But then they go away. Either way, she is so excited and happy to go. I will post pictures tomorrow from Disney's Princesses on Ice! Chiari ...

3

Uncovering the Mystery of Chiari Malformation Type: The Summer of Memories

http://www.kennedyschiari.blogspot.com/2010/07/summer-of-memories.html

Uncovering the Mystery of Chiari Malformation Type. This blog is to chronicle my journey through the mystery of Chiari Malformation Type I. Monday, July 5, 2010. The Summer of Memories. I have been taking Kennedy all across the East Coast in an attempt to give her a million new memories from this Summer. There is a great chance that she'll look back on this Summer and remember her surgery, but there will be a picture montage of a fantastically, vibrant, alive time. Here are some photos! Slidell, LA 70459.

4

Uncovering the Mystery of Chiari Malformation Type: June 2010

http://www.kennedyschiari.blogspot.com/2010_06_01_archive.html

Uncovering the Mystery of Chiari Malformation Type. This blog is to chronicle my journey through the mystery of Chiari Malformation Type I. Wednesday, June 23, 2010. Thought my Spine was Fine.hmmmm. Okayso we had the four hour MRI on Kennedy's spine. And NO there wasn't any tethered cord, or syromelogia.but we did find cervical stenosis. She is only 5! GeezSo we will do the spinal surgery at the same time as the brain surgery. So, she will be having a subocciptal craniectomy. And a cervical lamenictomy.

5

Uncovering the Mystery of Chiari Malformation Type: Kennedy's Surgery July 21, 2010

http://www.kennedyschiari.blogspot.com/2010/09/kennedys-surgery-july-21-2010.html

Uncovering the Mystery of Chiari Malformation Type. This blog is to chronicle my journey through the mystery of Chiari Malformation Type I. Wednesday, September 1, 2010. Kennedy's Surgery July 21, 2010. The reason I haven't posted is because I have been waiting for good news to post. True everyday is "good news" and I don't want to pretend that I don't know as such. This post will be long (warning). I will try to summarize what has taken place in the last 6 weeks of Kennedy's amazing life. You can Mail C...

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kennedycares.org

Kennedy Cares - Blog

http://www.kennedycares.org/blog

My life is amazing and I thank God everyday I'm alive. What Are Special Needs? Chiari Malformation Type 1. Winter is almost OVER! My mom and I have been out of town a lot this year! I know it is snowy and cold, but my mom loves to travel and that means I get to go too! We were sliding around the bridge one weekend trying to go out of town and a surprise ice storm came! I was so scared. But my mom made it like an adventure. CMN Radiothon Friday February 6, 2015. Did you hear the scoop? Here's How You Can ...

kennedycares.org

For Chiarians - Kennedy Cares

http://www.kennedycares.org/for-chiarians.html

My life is amazing and I thank God everyday I'm alive. What Are Special Needs? Chiari Malformation Type 1. This section will be for Chiarians who live with Type 1 the way I do. Create a free website. Create your own free website. Start your own free website. A surprisingly easy drag and drop site creator. Learn more.

kennedycares.org

What Are Special Needs? - Kennedy Cares

http://www.kennedycares.org/what-are-special-needs.html

My life is amazing and I thank God everyday I'm alive. What Are Special Needs? Chiari Malformation Type 1. Sometimes people think "special needs'" are something to be pitied., or to feel badly about. Let me tell you NEITHER IS TRUE. The only thing people living with special needs want is for you to work to understand why they are the way they are. THAT makes all the difference. Special Needs related to Autism:. Loud noises suck- -people try to keep it down sometimes. I"m not a puppy. I had a posterior fo...

kennedycares.org

Outreach For Girls - Kennedy Cares

http://www.kennedycares.org/outreach-for-girls.html

My life is amazing and I thank God everyday I'm alive. What Are Special Needs? Chiari Malformation Type 1. Kennedy Cares Self-Esteem Cross Country Mission. Starting February 1st, 2015 I will be mailing out girlie packets to other kids who have had brain surgery or who have lost their hair to cancer. Please consider donating to help this mission! What Will the Packs Include? Super cute soft headbands, organic tea, personally made poems, and some cute extras like journals/glitter/lipgloss {as money permits}.

kennedycares.org

Kennedy Cares - Blog

http://www.kennedycares.org/blog.html

My life is amazing and I thank God everyday I'm alive. What Are Special Needs? Chiari Malformation Type 1. Winter is almost OVER! My mom and I have been out of town a lot this year! I know it is snowy and cold, but my mom loves to travel and that means I get to go too! We were sliding around the bridge one weekend trying to go out of town and a surprise ice storm came! I was so scared. But my mom made it like an adventure. CMN Radiothon Friday February 6, 2015. Did you hear the scoop? Here's How You Can ...

kennedycares.org

Kennedy Cares - My Mom's Blog

http://www.kennedycares.org/my-moms-blog.html

My life is amazing and I thank God everyday I'm alive. What Are Special Needs? Chiari Malformation Type 1. The Difference a Year Makes- 1 Year Ago Today. On this day just one year ago (for those that have followed since day one) I started asking for prayers on Kennedy's Facebook Page. After a legitimate panic attack, I joined my family and prayed and prayed. Those soul wrenching prayers. Hours and hours later I got that mom gut feeling. Something is very wrong. Starting yesterday we began celebrating her...

kennedycares.org

Autism Living - Kennedy Cares

http://www.kennedycares.org/autism-living.html

My life is amazing and I thank God everyday I'm alive. What Are Special Needs? Chiari Malformation Type 1. What is Autism from Autism Speaks. Autism- from National Institute of Neurological Disorders. All Things Autism from the Autism Society. By Medical News Today. People with autism have issues with non-verbal communication, a wide range of social interactions, and activities that include an element of play and/or banter. ASD stands for Autism Spectrum Disorder. In this text Autism and ASD mean the sam...

kennedycares.org

Chiari Malformation Type 1 - Kennedy Cares

http://www.kennedycares.org/chiari-malformation-type-1.html

My life is amazing and I thank God everyday I'm alive. What Are Special Needs? Chiari Malformation Type 1. Want to learn more (or anything) about Chiari (key-are-aa)? Chiari Info from the National Institute of Health. Chiari info from the Mayo Clinic. Chiari info from my favorite site Conquier Chiari. 1 What is a Chiari Malformation? 2 Is Arnold-Chiari different from Chiari? 3 What are the symptoms? 4 Does the size of the malformation matter? 5 How is a Chiari Malformation diagnosed? 6 What is a cine MRI?

kennedycares.org

Autism Resources - Kennedy Cares

http://www.kennedycares.org/autism-resources.html

My life is amazing and I thank God everyday I'm alive. What Are Special Needs? Chiari Malformation Type 1. Create a free website. Create your own free website. Start your own free website. A surprisingly easy drag and drop site creator. Learn more.

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Be kind. be proud. let your inner beauty SHINE. Kennedy’s Cause is a 501(c)(3) non-profit organization founded to raise awareness of Lymphatic Malformation and to raise much needed funds to support the research for a cure. Kennedy is a 17 year old girl who was born with lymphatic malformation. With the help of her family and friends she is trying to raise funds for research that will hopefully lead to better treatment options for herself and for others that have this disease. Site Design by BAC Creative.

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I AM INTERESTED IN:. Your browser does not support inline frames or is currently configured not to display inline frames. Kennedy's Cheesecakes Kuser Plaza 1062 White Horse Avenue Hamilton, NJ 08610 (609) 585-1099 www.kennedyscheesecakes.com STORE HOURS: Tuesday thru Friday - 12pm to 7pm Saturday - 11am to 7pm Sunday - 11am to 2pm Closed Monday Topped Cheesecakes Infused Cheesecakes Gluten-Free Cheesecake No Sugar Added Cheesecake Specialty Cakes Mini Desserts Tartufo Gelatos Cannoli Brownies Cru...

kennedyschiari.blogspot.com

Uncovering the Mystery of Chiari Malformation Type

Uncovering the Mystery of Chiari Malformation Type. This blog is to chronicle my journey through the mystery of Chiari Malformation Type I. Wednesday, September 1, 2010. Kennedy's Surgery July 21, 2010. The reason I haven't posted is because I have been waiting for good news to post. True everyday is "good news" and I don't want to pretend that I don't know as such. This post will be long (warning). I will try to summarize what has taken place in the last 6 weeks of Kennedy's amazing life. Okayso we had ...

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Come watch the Bulls tonight. Wednesday, February 17, 2010. Come and watch the Chicago Bulls tonight @ Kennedy's Chicago Pizza. Check us out online @ kennedyschicago.com. Posted by Kennedys Chicago. Sunday, January 17, 2010. Come try our new thin crust pizza. It's full of flavor and loaded with real cheese. Posted by Kennedys Chicago. Sunday, November 8, 2009. Starting Monday Nov 9 We are introducing our newest pizza to San Antonio. The Italian! Posted by Kennedys Chicago. Thursday, October 22, 2009.

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