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John Kenta

Monday, March 30, 2015. John's seizures are mostly at night these days, but he had one in the evening tonight. Yoshie was able to get a good part of it on video. Friday, December 19, 2014. We haven't changed anything, but something has happened to John. He's completely out of control now. School couldn't handle him today. 3 teachers were watching him and they were getting pinched and bruised, etc. and Yoshie had to eventually go pick him up. Thursday, December 18, 2014. Wednesday, December 03, 2014.

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John Kenta | kentaarai.blogspot.com Reviews

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Monday, March 30, 2015. John's seizures are mostly at night these days, but he had one in the evening tonight. Yoshie was able to get a good part of it on video. Friday, December 19, 2014. We haven't changed anything, but something has happened to John. He's completely out of control now. School couldn't handle him today. 3 teachers were watching him and they were getting pinched and bruised, etc. and Yoshie had to eventually go pick him up. Thursday, December 18, 2014. Wednesday, December 03, 2014.

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John Kenta | kentaarai.blogspot.com Reviews

https://kentaarai.blogspot.com

Monday, March 30, 2015. John's seizures are mostly at night these days, but he had one in the evening tonight. Yoshie was able to get a good part of it on video. Friday, December 19, 2014. We haven't changed anything, but something has happened to John. He's completely out of control now. School couldn't handle him today. 3 teachers were watching him and they were getting pinched and bruised, etc. and Yoshie had to eventually go pick him up. Thursday, December 18, 2014. Wednesday, December 03, 2014.

INTERNAL PAGES

kentaarai.blogspot.com

1

John Kenta: Doctor appointment

http://kentaarai.blogspot.com/2014/06/doctor-appointment.html

Monday, June 02, 2014. John has continued to struggle with lots of seizures, especially at night. So, we went back to the doctor to see about a new drug or possibly adjusting his VNS again. This time, we decided to try a new approach with the VNS. Instead of turning the amperage up again, we decided to try a more rapid cycling. Now, it gives him a 14 second 1.75mA shock every minute or so. John had good success with a rapid cycling many years ago so we are hopeful. Subscribe to: Post Comments (Atom).

2

John Kenta: Out of control

http://kentaarai.blogspot.com/2014/12/out-of-control.html

Friday, December 19, 2014. We haven't changed anything, but something has happened to John. He's completely out of control now. School couldn't handle him today. 3 teachers were watching him and they were getting pinched and bruised, etc. and Yoshie had to eventually go pick him up. He had a big seizure after getting home which he had to sleep off. It is sad but it gave everyone a little break. I think his brain can use the break as well. Subscribe to: Post Comments (Atom).

3

John Kenta: Strattera

http://kentaarai.blogspot.com/2014/08/strattera.html

Friday, August 01, 2014. John has been really struggling with seizures at night. He has seizures every night, usually when coming in and out of deep sleep. But, for awhile there he was having seizures every 40 seconds or so for hours. It was horrible. We traded off staying with him but we were both getting exhausted. We had his VNS adjusted to a rapid cycling but it didn't help. That was a mistake. Subscribe to: Post Comments (Atom). Simple template. Powered by Blogger.

4

John Kenta: Ready to go fast!

http://kentaarai.blogspot.com/2014/09/ready-to-go-fast.html

Wednesday, September 03, 2014. Ready to go fast! Subscribe to: Post Comments (Atom). Our son, John, began having daily seizures just before his 2nd birthday. This is the diary of our ongoing battle to control his epilepsy. Ready to go fast! Simple template. Powered by Blogger.

5

John Kenta: VNS Adjustment

http://kentaarai.blogspot.com/2014/08/vns-adjustment.html

Thursday, August 07, 2014. In addition to the last VNS adjustment (to rapid cycling) we also increased his Zonisamide dosage. Neither of these things helped at all so we decided to go back to a slower cycling of the VNS just to save the battery. We have another appointment in a month where we are going to discuss bringing him in for a hospital stay to try a few other things and probably get another EEG. I have mixed feelings about that but we'd almost certainly try it if it truly becomes available.

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Monday, March 30, 2015. John's seizures are mostly at night these days, but he had one in the evening tonight. Yoshie was able to get a good part of it on video. Friday, December 19, 2014. We haven't changed anything, but something has happened to John. He's completely out of control now. School couldn't handle him today. 3 teachers were watching him and they were getting pinched and bruised, etc. and Yoshie had to eventually go pick him up. Thursday, December 18, 2014. Wednesday, December 03, 2014.

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