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Baby Nikolas

Nikolas is our third child. A joy to our lives. He was born with probable Lenz microphthalmia syndrome. Probable because he tested negative for the gene but his genetic doctor made a clinical diagnosis. This is an extremely complex and rare syndrome, involving extensive medical and physical difficulties. Nikolas is also battling cancer right now. He has Stage 5 Wilms Tumors. God gave us Nikolas for many reasons. And we learn those reasons every day.

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Baby Nikolas | ketcham22.blogspot.com Reviews
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Nikolas is our third child. A joy to our lives. He was born with probable Lenz microphthalmia syndrome. Probable because he tested negative for the gene but his genetic doctor made a clinical diagnosis. This is an extremely complex and rare syndrome, involving extensive medical and physical difficulties. Nikolas is also battling cancer right now. He has Stage 5 Wilms Tumors. God gave us Nikolas for many reasons. And we learn those reasons every day.
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Baby Nikolas | ketcham22.blogspot.com Reviews

https://ketcham22.blogspot.com

Nikolas is our third child. A joy to our lives. He was born with probable Lenz microphthalmia syndrome. Probable because he tested negative for the gene but his genetic doctor made a clinical diagnosis. This is an extremely complex and rare syndrome, involving extensive medical and physical difficulties. Nikolas is also battling cancer right now. He has Stage 5 Wilms Tumors. God gave us Nikolas for many reasons. And we learn those reasons every day.

INTERNAL PAGES

ketcham22.blogspot.com ketcham22.blogspot.com
1

Baby Nikolas: April 2012

http://ketcham22.blogspot.com/2012_04_01_archive.html

Monday, April 30, 2012. Nick is such a little fighter, he is so strong. He seems to run out of energy faster than ever before. He still plays with his toys and smiles and laughs as much as we can pull out of him but he drains pretty quickly and sometimes will sleep 18-20 hours a day. I will update as soon as we find out the results and have an answer from the surgeon. Please continue to keep Nick in your prayers. Monday, April 16, 2012. Nick is actually smiling under the mask, he thinks they are pretty f...

2

Baby Nikolas: Are we there yet!

http://ketcham22.blogspot.com/2012/09/are-we-there-yet.html

Saturday, September 8, 2012. Are we there yet! Nikolas was flown home, not by helicopter but by a small jet. A company called Pedi-Flite and two Leboneur paramedics brought Nikolas back to Kansas. Carsen and I were able to ride too! The flight was only an hour and there was a little gps like screen I could watch to see how much further we had and it showed how fast we were going! We got up to 432 mph! That's a speedy delivery! By Monday he was extubated! It was so red and he had almost blister like protr...

3

Baby Nikolas: May 2012

http://ketcham22.blogspot.com/2012_05_01_archive.html

Tuesday, May 29, 2012. Well we had another trip to the hospital. But, thankfully, we are back home now. Last friday I woke up at 7:15 am to his heart rate being elevated and setting off the oximeter alarm. I thought he might be in pain so I went and gave him pain medicine. I repositioned him and I could immediately tell he had a fever, he was burning up. I took his temperature and it was 102.0! Nick slept. He pretty much slept for the next two days. The next day he was doing fine! They came back the next...

4

Baby Nikolas: November 2012

http://ketcham22.blogspot.com/2012_11_01_archive.html

Wednesday, November 14, 2012. Just a quick update! This is going to be quick.it's been very hard to post to the blog lately. But I wanted to post a few pictures and a little update! Nicky is doing great! He is gaining weight and inches rather quickly! 2 lbs in 1 month! Yay to say the least! Also, one of my little sisters got married this past weekend and Nicky was in the wedding so I have to post the only picture I have for now, until the rest come out! And here is Nicky on Halloween! He was a dinosaur!

5

Baby Nikolas: Where has the time gone?

http://ketcham22.blogspot.com/2014/05/where-has-time-gone.html

Sunday, May 4, 2014. Where has the time gone? I have thought so many times about updating Nick's blog.it seems like so much was going on with his cancer treatment, then I started nursing school, which is a never-ending study session! So many things go on in our lives, we are always so busy, I feel like I never have enough time to do anything, especially blogging and of course, cleaning! But enough of that.Nick is doing relatively well! We also go back to St. Jude yearly, for check-ups with their team.

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Telling Stories | Sweet and Sour

http://sweetandsourblog.com/2013/11/06/telling-stories

Savoring the ups and downs of life. But thank the good Lord that He gave me a wonderful, understanding and selfless husband who surprises me from time to time with a little retreat to a coffee shop. times where i can think, write AND i don’t have to take the kids with me! Towards the end of shauna’s book, she talks about stories, your story, my story and the importance of sharing our stories with others. her words spoke deeply to me, and in many ways have given me more perspective for what i wr...8220;Th...

sweetandsourblog.com sweetandsourblog.com

little M | Sweet and Sour

http://sweetandsourblog.com/category/little-m

Savoring the ups and downs of life. Since it’s been so long in updating this blog with pictures, i thought i’d give you some recaps of our summer {warning: picture overload coming right up}. my littles, though still little, seem to be growing so fast. here are some. Read More ». A Windy Afternoon…. Read More ». Christmas recaps {2 of 2}. Read More ». Christmas recaps {1 of 2}. Read More ». Read More ». Laquo; Previous Entries. Follow Sweet and Sour. Adoption and advocacy (2). Be creative {DIY} (4).

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baby E | Sweet and Sour

http://sweetandsourblog.com/category/baby-e

Savoring the ups and downs of life. Since it’s been so long in updating this blog with pictures, i thought i’d give you some recaps of our summer {warning: picture overload coming right up}. my littles, though still little, seem to be growing so fast. here are some. Read More ». Read More ». Follow Sweet and Sour. Adoption and advocacy (2). Be creative {DIY} (4). Family, Friends & Fun Others! Jenna & Calder. B in Real Life. Faith & Food. 100 days of real food.

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November | 2013 | Sweet and Sour

http://sweetandsourblog.com/2013/11

Savoring the ups and downs of life. It’s so easy to get lost in the daily’s of my life right now. to forget who i am and then, to not really be present. often, the day starts before i even mean for it to and before i. Read More ». Follow Sweet and Sour. Adoption and advocacy (2). Be creative {DIY} (4). Family, Friends & Fun Others! Jenna & Calder. B in Real Life. Faith & Food. 100 days of real food.

jeffbakersjourney.blogspot.com jeffbakersjourney.blogspot.com

Jeff's Journey: I Am The Child (Young man)

http://jeffbakersjourney.blogspot.com/2012/02/i-am-child-young-man.html

Jeff is one very special young man! He has a rare syndrome called CHARGE Syndrome. He has faced many life threatening conditions and surgeries in his life. He is such a fighter and has blessed many lives with his strong, beautiful spirit. He is deaf/blind and non-verbal and deals daily with many challenges. He is 29 yrs. old and is a very happy young man with a fun sense of humor. Thursday, February 9, 2012. I Am The Child (Young man). Mom decided it was time to update my blog.YEA! Posted by MOM for Jeff.

jeffbakersjourney.blogspot.com jeffbakersjourney.blogspot.com

Jeff's Journey: Behind Already!

http://jeffbakersjourney.blogspot.com/2014/01/behind-already.html

Jeff is one very special young man! He has a rare syndrome called CHARGE Syndrome. He has faced many life threatening conditions and surgeries in his life. He is such a fighter and has blessed many lives with his strong, beautiful spirit. He is deaf/blind and non-verbal and deals daily with many challenges. He is 29 yrs. old and is a very happy young man with a fun sense of humor. Tuesday, January 7, 2014. Yep, my Mom is behind already! Those of you that know me, know I absolutely LOVE Christmas! Mom sai...

jeffbakersjourney.blogspot.com jeffbakersjourney.blogspot.com

Jeff's Journey: February 2012

http://jeffbakersjourney.blogspot.com/2012_02_01_archive.html

Jeff is one very special young man! He has a rare syndrome called CHARGE Syndrome. He has faced many life threatening conditions and surgeries in his life. He is such a fighter and has blessed many lives with his strong, beautiful spirit. He is deaf/blind and non-verbal and deals daily with many challenges. He is 29 yrs. old and is a very happy young man with a fun sense of humor. Thursday, February 9, 2012. I Am The Child (Young man). Mom decided it was time to update my blog.YEA! Posted by MOM for Jeff.

jeffbakersjourney.blogspot.com jeffbakersjourney.blogspot.com

Jeff's Journey: November 2010

http://jeffbakersjourney.blogspot.com/2010_11_01_archive.html

Jeff is one very special young man! He has a rare syndrome called CHARGE Syndrome. He has faced many life threatening conditions and surgeries in his life. He is such a fighter and has blessed many lives with his strong, beautiful spirit. He is deaf/blind and non-verbal and deals daily with many challenges. He is 29 yrs. old and is a very happy young man with a fun sense of humor. Sunday, November 28, 2010. I'd been couped up in the house for over two weeks and I was going CRAZY! Posted by My Mom. The sn...

jeffbakersjourney.blogspot.com jeffbakersjourney.blogspot.com

Jeff's Journey: The Case Of The Missing Camera

http://jeffbakersjourney.blogspot.com/2011/11/case-of-missing-camera.html

Jeff is one very special young man! He has a rare syndrome called CHARGE Syndrome. He has faced many life threatening conditions and surgeries in his life. He is such a fighter and has blessed many lives with his strong, beautiful spirit. He is deaf/blind and non-verbal and deals daily with many challenges. He is 29 yrs. old and is a very happy young man with a fun sense of humor. Thursday, November 17, 2011. The Case Of The Missing Camera. Here's the story . . . . Okay, so guess what I was for Halloween?

jeffbakersjourney.blogspot.com jeffbakersjourney.blogspot.com

Jeff's Journey: Yea!!! Christmas Is Coming!

http://jeffbakersjourney.blogspot.com/2011/12/yea-christmas-is-coming.html

Jeff is one very special young man! He has a rare syndrome called CHARGE Syndrome. He has faced many life threatening conditions and surgeries in his life. He is such a fighter and has blessed many lives with his strong, beautiful spirit. He is deaf/blind and non-verbal and deals daily with many challenges. He is 29 yrs. old and is a very happy young man with a fun sense of humor. Tuesday, December 13, 2011. I am getting so excited! When things start looking like this, I KNOW it's Christmas time. Yes Kel...

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