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Kevin McDevitt - Writer. Filmmaker. Rare Disease Hunter. - Writer. Filmmaker. Rare Disease Hunter.Kevin McDevitt — Writer. Filmmaker. Rare Disease Hunter.

Writer. Filmmaker. Rare Disease Hunter.

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Kevin McDevitt - Writer. Filmmaker. Rare Disease Hunter. - Writer. Filmmaker. Rare Disease Hunter.Kevin McDevitt — Writer. Filmmaker. Rare Disease Hunter. | kevmcdev.com Reviews
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Kevin McDevitt - Writer. Filmmaker. Rare Disease Hunter. - Writer. Filmmaker. Rare Disease Hunter.Kevin McDevitt — Writer. Filmmaker. Rare Disease Hunter. | kevmcdev.com Reviews

https://kevmcdev.com

Writer. Filmmaker. Rare Disease Hunter.

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1

Day +26: Freedom! - Kevin McDevitt - Writer. Filmmaker. Rare Disease Hunter.Kevin McDevitt — Writer. Filmmaker. Rare Disease Hunter.

http://www.kevmcdev.com/2015/04/06/day-26-freedom

On April 6, 2015. May need a wall of fame in the apartment. It’s true, I’m going home first thing Monday morning. After a week that felt like a month, in which my crucial white blood count (WBC) stalled out at 0.3 for three days (and only crept up by 0.1 for the next two days)–over the past few days, it’s EXPLODED! The WBC moved from 0.5 to 1.1 Friday, then up to 2.0 Saturday, before vaulting all the way up to 5.6 (! I still have a ways to go, but this is a HUGE step. I have too many thoughts and emo...

2

A Bloody Mess: Or, Why I've Been in the Hospital for 12 Days - Kevin McDevitt - Writer. Filmmaker. Rare Disease Hunter.Kevin McDevitt — Writer. Filmmaker. Rare Disease Hunter.

http://www.kevmcdev.com/2014/10/31/a-bloody-mess-or-why-ive-been-in-the-hospital-for-12-days

A Bloody Mess: Or, Why I’ve Been in the Hospital for 12 Days. On October 31, 2014. In PNH and Aplastic Anemia. It’s not Ebola. It’s also not Leukemia. In fact, that’s how the phone call that changed my life began. October 23, 9:25AM: Phone rings in hospital room:. You have 5%.”. Dr Nassir told me he’d gather a team of rare blood disorder experts, and get me more info later in the day. The guy’s a vampire. Dr Nassir and I. As a wise, spiritual man told me recently, “Human beings can handle anything,...

3

Everything is Awesome, Even When It's Not - Kevin McDevitt - Writer. Filmmaker. Rare Disease Hunter.Kevin McDevitt — Writer. Filmmaker. Rare Disease Hunter.

http://www.kevmcdev.com/2014/11/26/everything-is-awesome-even-when-its-not

Everything is Awesome, Even When It’s Not. On November 26, 2014. PNH and Aplastic Anemia. I spent two whole days making these piles, now you have to look at them. Hey folks. I would’ve written sooner, but I was buried under a mountain of Hospital and Insurance paperwork. So, how am I doing? I’m pissed. I had already started a big essay on gratitude. Well, writing is hard, and I’m not gonna let some good news screw up a perfectly good blog post, so I’ll save the news for later. There has ALWAYS been shit.

4

June 2015 - Kevin McDevitt - Writer. Filmmaker. Rare Disease Hunter.Kevin McDevitt — Writer. Filmmaker. Rare Disease Hunter.

http://www.kevmcdev.com/2015/06

Archive for June, 2015. Keeping it 100: Celebration Day. On June 19, 2015. In PNH and Aplastic Anemia. We made it. It has now been 100 days since my bone marrow transplant. Day 100 seemed so far away, when I was mulling my transplant decision. There was a time when I was really worried these one hundred days would be my last. And I’m still here. Without any Graft-Versus-Host complications, to boot. And I’ve been feeling good. In Stillwater, NJ. I called my transplant coordinator every single day, doing w...

5

Making Plans: ATG, or Transplant? - Kevin McDevitt - Writer. Filmmaker. Rare Disease Hunter.Kevin McDevitt — Writer. Filmmaker. Rare Disease Hunter.

http://www.kevmcdev.com/2015/02/19/making-plans-atg-vs-transplant

Making Plans: ATG, or Transplant? On February 19, 2015. PNH and Aplastic Anemia. A year ago, I got up before 5 in the morning, just to make a phone call. Actually, I made about two hundred and seventy-six phone calls. When was the last time you HEARD a busy signal? I still hear one, thinking of that morning. When else can we KNOW we’ll be able to take time off, a YEAR in advance? We asked ourselves, thinking we had it all figured out. A lot can change in a year. IT’S NOT ALWAYS FUN TO HAVE OPTIONS. And B...

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Happy Transplant Birthday To Me: An Apology. On March 11, 2016. PNH and Aplastic Anemia. Wow, it’s been a whole year since your bone marrow transplant? That went by quickly, huh? Several people said this to me, this week. This year was, without a doubt, the slowest year of my life. I took it one day at a time, because A) that’s how time. Works (thank you, Hannibal Burress. From the fear, the trauma, and the stress that I’ve dealt with every day. It’s not unheard of, for chimerism to shift, and my doctor ...

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