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Kaden's HCU Journey

My personal journey of treating my son with Homocystinuria, HCU.

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Kaden's HCU Journey | khcujourney.blogspot.com Reviews
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My personal journey of treating my son with Homocystinuria, HCU.
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Kaden's HCU Journey | khcujourney.blogspot.com Reviews

https://khcujourney.blogspot.com

My personal journey of treating my son with Homocystinuria, HCU.

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1

Kaden's HCU Journey: July 2010

http://khcujourney.blogspot.com/2010_07_01_archive.html

My personal journey of treating my son with Homocystinuria, HCU. Thursday, July 29, 2010. Change in meds this month. Sorry for such a bad picture, we have a stinky camera). Friday, July 23, 2010. Kaden has been doing so well lately. He is so stinking smart and is really just a normal kid day to day. I FINALLY found a good travel scale on sale so we have been able to weigh his food while out. This has been wonderful! I no longer have to count everything he is eating or try to estimate how much of somethin...

2

Kaden's HCU Journey: Off the Roller Coaster

http://khcujourney.blogspot.com/2010/09/off-roller-coaster.html

My personal journey of treating my son with Homocystinuria, HCU. Friday, September 3, 2010. Off the Roller Coaster. Levels back for August and they were good. Homocystine. Was 22 and methionine was 312. His numbers have been very consistent. And good for the past few months. Basil (hubby) took Kaden. To his metabolic clinic last week and he gained 2 lbs! BUT, on a side note, behavior hasn't been so good. We have OFFICIALLY hit the terrible 2's and OMG. My baby is growing perfectly! Im on milk patrol!

3

Kaden's HCU Journey: January 2010

http://khcujourney.blogspot.com/2010_01_01_archive.html

My personal journey of treating my son with Homocystinuria, HCU. Friday, January 22, 2010. Higher daily protein allowance. Just got an email from the dietician about his formula change. We are taking away the similac (regular formula) all together and increasing his medical formula from 75gm to 80gms. By making this change Kaden can now have 90mg of MET! This is a big change from 70mg). Now he can have more crackers and popcorn for snacks! It's like 6 pieces! Wednesday, January 20, 2010. Protein allowanc...

4

Kaden's HCU Journey: Back on the Roller Coaster

http://khcujourney.blogspot.com/2011/02/back-on-roller-coaster.html

My personal journey of treating my son with Homocystinuria, HCU. Saturday, February 26, 2011. Back on the Roller Coaster. I feel like my posts go from great to bad, with no in between. That's HCU. Started his new formula in January, now that he is over 2, and we transitioned very slowly. He takes 90 gms. I'm lucky to get 5-8oz down him a day and he is suppose to take 16oz. Its been 3 weeks now and I can see the changes. His behavior has been horrible! Every person with HCU. Gel product that can replace f...

5

Kaden's HCU Journey: Getting Ready For Halloween With Costume Discounters!

http://khcujourney.blogspot.com/2011/08/halloween-with-costume-discounters.html

My personal journey of treating my son with Homocystinuria, HCU. Monday, August 1, 2011. Getting Ready For Halloween With Costume Discounters! Kaden is still having bad numbers. We have added another medication and are up to 5 total, 3 times a day. So we are having some fun, a review! School has started and Halloween is right around the corner. I was super excited when asked to review a costume from Costume Discounters. Kaden would love it and I had to order it! Its very well made and very comfortable fo...

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Kaden's HCU Journey

My personal journey of treating my son with Homocystinuria, HCU. Monday, August 1, 2011. Getting Ready For Halloween With Costume Discounters! Kaden is still having bad numbers. We have added another medication and are up to 5 total, 3 times a day. So we are having some fun, a review! School has started and Halloween is right around the corner. I was super excited when asked to review a costume from Costume Discounters. Kaden would love it and I had to order it! Its very well made and very comfortable fo...

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