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Kind of Broken: Lifestyles of the Young, Sick, and Fabulous

The struggles and triumphs of living with dysautonomia, Postural Orthostatic Tachycardia (POTS), and other flavors of chronic illness

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Kind of Broken: Lifestyles of the Young, Sick, and Fabulous | kindofbroken.blogspot.com Reviews
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The struggles and triumphs of living with dysautonomia, Postural Orthostatic Tachycardia (POTS), and other flavors of chronic illness
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2 helpful links
3 spoonie reads
4 musings
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6 stefanie shea
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Kind of Broken: Lifestyles of the Young, Sick, and Fabulous | kindofbroken.blogspot.com Reviews

https://kindofbroken.blogspot.com

The struggles and triumphs of living with dysautonomia, Postural Orthostatic Tachycardia (POTS), and other flavors of chronic illness

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1

Kind of Broken: Lifestyles of the Young, Sick, and Fabulous: The No-Win Scenarios of Illness

http://www.kindofbroken.blogspot.com/2015/05/the-no-win-scenarios-of-illness.html

Kind of Broken: Lifestyles of the Young, Sick, and Fabulous. The struggles and triumphs of living with Dysautonomia, Myasthenia Gravis, and other flavors of Chronic Illness. Thursday, May 28, 2015. The No-Win Scenarios of Illness. I’ve been thinking about no-win scenarios quite a bit over the last few years because illness is starting to feel like one. I’m starting to think that I am living in my very own Kobayashi Maru simulator. My last few appointments really solidified this for me. I have to do a CT ...

2

Kind of Broken: Lifestyles of the Young, Sick, and Fabulous: The Invisible Decline

http://www.kindofbroken.blogspot.com/2014/12/the-invisible-decline.html

Kind of Broken: Lifestyles of the Young, Sick, and Fabulous. The struggles and triumphs of living with Dysautonomia, Myasthenia Gravis, and other flavors of Chronic Illness. Tuesday, December 2, 2014. I had a wonderful, beautiful Thanksgiving with my family last week that I am immensely thankful for. That day was a real gift. At 8:30 I hit a wall really hard and my sister said, “When I got here you looked good, now you look completely different.” It. Sinking. Like I’m sinking into quicksand and...Sometim...

3

Kind of Broken: Lifestyles of the Young, Sick, and Fabulous: August 2015

http://www.kindofbroken.blogspot.com/2015_08_01_archive.html

Kind of Broken: Lifestyles of the Young, Sick, and Fabulous. The struggles and triumphs of living with Dysautonomia, Myasthenia Gravis, and other flavors of Chronic Illness. Thursday, August 20, 2015. I think I am turning that corner finally. It’s nice to be a little part of the daylight experience again. Those weeks I was bedridden, my husband was my lifeline to rest of the world. I started wondering if there were still other humans out there. Did a zombie apocalypse happen? They post stories from the i...

4

Kind of Broken: Lifestyles of the Young, Sick, and Fabulous: Spoonie Reads

http://www.kindofbroken.blogspot.com/p/spoonie-reads.html

Kind of Broken: Lifestyles of the Young, Sick, and Fabulous. The struggles and triumphs of living with Dysautonomia, Myasthenia Gravis, and other flavors of Chronic Illness. Books Pages. Words. You probably love books as much as I do. Here is a list of posts about books related to chronic illness and living a full life. If you have any suggestions for more Spoonie Reads, I'd love to hear them! Toni Bernhard's How to Be Sick: A Buddhist-Inspired Guide for the Chronically Ill and Their Caregivers. How to H...

5

Kind of Broken: Lifestyles of the Young, Sick, and Fabulous: April 2015

http://www.kindofbroken.blogspot.com/2015_04_01_archive.html

Kind of Broken: Lifestyles of the Young, Sick, and Fabulous. The struggles and triumphs of living with Dysautonomia, Myasthenia Gravis, and other flavors of Chronic Illness. Thursday, April 30, 2015. But it's time to re-focus. I start the next round of appointments next week. I see my new local neurologist in two weeks, and I have an appointment Stanford on Tuesday and will finally see my neurologist there. I spent a lot of years trying to justify and explain in appointments to get them to hear me. A...

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Snapshot 07.30.15

http://thelittlebigblog.com/2015/07/30/snapshot-07-30-15

Snapshot 07.30.15. July 30, 2015. 8211;Elias has a limited vocabulary, most of which he doesn’t use as often as we’d like, but recently he learned the word. And he’s getting a whole hell of a lot of mileage out of it. His favorite phrase thus far has been “Uh-oh! 8221; which is adorable and often used to get his way. Now when he doesn’t get it he will sob and shout NOOOOOOOOOOOOOOO! As dramatically as possible. It is heartbreaking and hilarious at the same time. You made us feel very loved. I haven&#8217...

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Carrie Anne

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Snapshot 08.31.16. August 31, 2016. 8212; Here’s. A video of Elias using the driveway as a ramp for his trike and then cheering for himself. Here’s. A video of Isobel making a basket with an old package of Cheetos leftover from last Halloween. Here’s. A video of Elias slam dunking a basket ball and then getting hit in the head by a package of really old Cheetos. 8211;We finally got rid of the crib. I still have no idea why. If this keeps up it’s going to be a long winter. They are small. You can own ...

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Breaking News: Cast Away

http://thelittlebigblog.com/2015/08/05/breaking-news-cast-away

Breaking News: Cast Away. August 5, 2015. Yesterday was the long-awaited day when we were told to head back down to Valley’ Children’s Hospital in Madera for our follow-up appointment. We had set up childcare for Isobel because we had no idea how long we’d be gone. It sounded like a process, especially if they decided he needed another cast. But Isobel was dead-set on coming. She wanted to support her little brother, and even decided to wear her Big Sister shirt in solidarity. Angela warned us about the ...

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Isobel & Kingston

http://thelittlebigblog.com/2014/11/16/isobel-kingston

Isobel & Kingston. November 16, 2014. X000AB; Little Big Collections: Vintage Mushrooms. Snapshot 11.19.14 ». Leave a Reply Cancel reply. Your email address will not be published. Required fields are marked *. Notify me of follow-up comments by email. Notify me of new posts by email. Subscribe to Little Big via Email. Enter your email address to subscribe to this blog and receive notifications of new posts by email. Middot; Built on the Genesis Framework. Middot; Powered by WordPress.

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Archives

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50 Thrifty Fun Things To Do. Happiness is a Warm Glue Gun. Plays Well With Others. The Little Big Shop. Thrift Store Gore: Holiday Gift Guide. Thrift Store Score: Thrift Haul 10.6.15. The Best Craft Supplies To Look For While Thrifting. Weekly Menu Planning Tips & Habits. Little Big Kitchen – Hoshigaki Persimmons. Healthy Thanksgiving Snacks & Appetitzers. Little Big Kitchen: Simple Bento Recipes. Thrifty, Practical, & Fun Ideas for Easter Baskets. My Unruly Garden: Spring 2016. Snow Day, Part One.

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Advertise on Little Big and all your non-unicorn riding dreams will come true! Little Big readers are both smart and savvy. They hail from all over the globe and are particularly interested in blogs or products that make their lives easier, better, or more beautiful. If you have any questions, please email me at alittlebigblog [@] gmail. I have very reasonable monthly rates and, if needed, will even create your ad. At this time I offer three types of sponsorships:. 2 Hip To Be Square. 3 Give It Away Now.

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Thrifty Giving: Darth Vader

http://thelittlebigblog.com/2015/05/04/thrifty-giving-darth-vader

Thrifty Giving: Darth Vader. May 4, 2015. Thrifty Giving is a reoccurring column dedicated to thrift store and second-hand shopping for gift-giving, proving that fantastic gifts don’t have to come with a high price tag or even be brand new. Today’s post is a bit of a flashback to when I was much healthier physically but not so healthy that I wasn’t behind the times in getting posts written. We’re time traveling all the way back to November for our good buddy Kingston’s. Filed Under: Thrifty Giving. Enter...

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Snapshot 08.11.15

http://thelittlebigblog.com/2015/08/12/snapshot-08-11-15

Snapshot 08.11.15. August 12, 2015. 8211;Reading Rainbow has come to Netflix (thanks for the head’s up, Sis! And it’s even better than I remember. 8211;This weekend two different kids at two different parties said to me, “Who doesn’t like bacon? 8211;I have figured out “ Balloons, Balloons Make Me Happy. 8221; on my flute. Bow down, children. 8211;Elias’ language has been really developing. It’s so exciting. He loves to carry around Camera Jr (our old point-and-shoot) and say CHEESE! Last week. This ...

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Life List

http://thelittlebigblog.com/life-list

Own a wardrobe I’m proud of. MISSION ACCOMPLISHED! Take Isobel to the beach. MISSION ACCOMPLISHED! Have another child. MISSION ACCOMPLISHED! Grow a garden of poppies. MISSION ACCOMPLISHED! Visit the aquarium with Isobel MISSION ACCOMPLISHED! Take an unconventional family portrait. Take Isobel to Yosemite. MISSION ACCOMPLISHED! Sell my thrifted finds on Etsy MISSION ACCOMPLISHED! Decorate Isobel’s big girl bedroom MISSION ACCOMPLISHED! Visit Jose and Lupe in San Jose MISSION ACCOMPLISHED! Grow vegetables ...

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