patriceandmattwilliams.blogspot.com
Before The Morning: EB Sweeties
http://patriceandmattwilliams.blogspot.com/2007/12/eb-sweeties.html
Saturday, December 8, 2007. To read more about other Sweeties living every day, fighting with all they have against EB, please click on the links below. Gone but never forgotten. Please feel free to send me an email if you have an EB Sweetie you'd like me to add. Subscribe to: Post Comments (Atom).
butterflywishesforellie.com
ANNUAL EB AWARENESS WALK
http://www.butterflywishesforellie.com/ebwalk.html
Add Ellie's link to your site. A href=http:/ butterflywishesforellie.com/ img alt=Butterfly Wishes for Ellie src=http:/ butterflywishesforellie.com/butterfly-wishes-for-ellie.jpg border=0 / /a. ANNUAL EB AWARENESS WALK. The 4th Annual EB Awareness Walk. We thank the more than 125 walkers who joined us at Chastain Park in Atlanta to promote awareness regarding the worst disease you have never heard of. Contributions to the cause will not be refused. EB Awareness Walk Down Memory Lane. Butterfly Wishes for...
butterflywishesforellie.com
The Story of a Little Girl Named Ellie
http://www.butterflywishesforellie.com/ellies-story.html
Add Ellie's link to your site. A href=http:/ butterflywishesforellie.com/ img alt=Butterfly Wishes for Ellie src=http:/ butterflywishesforellie.com/butterfly-wishes-for-ellie.jpg border=0 / /a. The Story of a Little Girl Named Ellie. Ellie’s Story and DebRA of America. In April 2006, our daughter was born without skin on her left leg and foot as well as on part of her chest. R care. When our doctor uttered five words: Your daughter has Epidermolysis Bullosa” our world changed forever. When Ellie was firs...
butterflywishesforellie.com
ABOUT
http://www.butterflywishesforellie.com/about.html
Add Ellie's link to your site. A href=http:/ butterflywishesforellie.com/ img alt=Butterfly Wishes for Ellie src=http:/ butterflywishesforellie.com/butterfly-wishes-for-ellie.jpg border=0 / /a. Did you know that 1 in every 33 babies in the United States is born with some type of birth defect and a family is changed forever? What is Epidermolysis Bullosa? According to the DebRA website. This is where DebRA entered our lives. DebRA is the only national non-profit organization who supports EB research and p...
butterflywishesforellie.com
PHOTOS
http://www.butterflywishesforellie.com/photos.html
Add Ellie's link to your site. A href=http:/ butterflywishesforellie.com/ img alt=Butterfly Wishes for Ellie src=http:/ butterflywishesforellie.com/butterfly-wishes-for-ellie.jpg border=0 / /a. Each year, a week in October is devoted to Epidermolysis Bullosa (EB) Awareness. I WOULD LIKE TO VOLUNTEER MY TIME. ELLIE WANTS YOU TO TELL A FRIEND ABOUT EB.
butterflywishesforellie.com
LATEST NEWS
http://www.butterflywishesforellie.com/news.html
Add Ellie's link to your site. A href=http:/ butterflywishesforellie.com/ img alt=Butterfly Wishes for Ellie src=http:/ butterflywishesforellie.com/butterfly-wishes-for-ellie.jpg border=0 / /a. Michael and Andrew Run For EB Again. The Tavani Family Runs the NY Marathon. Ellies father Andrew, Aunt Stephanie and Uncle Michael ran the New York City Marathon on November 6, 2011. spreading awareness about EB. See Pictures/More . Join Ellie at EB Awareness Walk. Ellie Meets Will Ferrell. Ellie on the CBS News.
butterflywishesforellie.com
Butterfly Wishes for Ellie Contributors
http://www.butterflywishesforellie.com/Recent-Contributors.html
Add Ellie's link to your site. A href=http:/ butterflywishesforellie.com/ img alt=Butterfly Wishes for Ellie src=http:/ butterflywishesforellie.com/butterfly-wishes-for-ellie.jpg border=0 / /a. Butterfly Wishes for Ellie thanks our corporate, non-profit, family and individual event sponsors and donors:. Corporate (current and past) Sponsors:. Ellie Tavani and (dad) Andrew. Molnlycke Health Care US, LLC. Web: www.molnlycke.com/us/. The Power of Personalized Biologics. Web: www.fibrocellscience.com. Paul a...
butterflywishesforellie.com
FUNDRAISER
http://www.butterflywishesforellie.com/fundraiser.html
Add Ellie's link to your site. A href=http:/ butterflywishesforellie.com/ img alt=Butterfly Wishes for Ellie src=http:/ butterflywishesforellie.com/butterfly-wishes-for-ellie.jpg border=0 / /a. BUTTERFLY WISHES FOR ELLIE BENEFIT. WEDNESDAY, MAY 25, 2016. Butterfly Wishes for Ellie. Is an annual event. In honor of Ellie Tavani, a beautiful little girl who was born in April 2006 with Epidermolysis Bullosa (EB). At The Park Tavern in Midtown Atlanta. At 500 10th St NE, Atlanta, GA. Wednesday, May 25, 2016.
butterflywishesforellie.com
DONATE to Butterfly Wishes for Ellie
http://www.butterflywishesforellie.com/rsvp.html
Add Ellie's link to your site. A href=http:/ butterflywishesforellie.com/ img alt=Butterfly Wishes for Ellie src=http:/ butterflywishesforellie.com/butterfly-wishes-for-ellie.jpg border=0 / /a. DONATE to Butterfly Wishes for Ellie. Support a Cure for EB. If youd like to make a donation to DEBRA of America and support EB Awareness, you can do so either online or you can make your check payable to Debra of America. C/o Butterfly Wishes for Ellie. 115 Interlochen Dr. NE. Atlanta, GA 30342.