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KyleeOur Princess with 1P36
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Our Princess with 1P36
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Kylee | kyleemcglin.blogspot.com Reviews
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Our Princess with 1P36
kyleemcglin.blogspot.com
Kylee: July 2010
http://kyleemcglin.blogspot.com/2010_07_01_archive.html
Our Princess with 1P36. Thursday, July 29, 2010. Here is a picture of Kylee at the McDonald House today. She is just hanging out having fun. For the most part she is handling the chemo and radiation pretty well. Looks like she is exercising :). Week one is almost done. Kylee. Labs looked better so we were good to go. What they think happened is that Kylee. Had really bad #2 diapers on Friday so I gave her pedialyte. Some of our friends and family are doing a benefit for Kylee. From 6:00 to 9:00 pm at Bea...
Kylee: October 2010
http://kyleemcglin.blogspot.com/2010_10_01_archive.html
Our Princess with 1P36. Saturday, October 9, 2010. The princess arriving to the benefit. This made me cry. They announced the princess Kylee was there and everyone cleared a path for her to come thru. It was so amazing. The pink castle is a card box. My good friend Matt made it for us. There is also a collage of pictures from our family photo session and then a large picture frame for people to sign. That really made a nice keepsake. Saturday, October 2, 2010. Subscribe to: Posts (Atom).
Kylee: April 2010
http://kyleemcglin.blogspot.com/2010_04_01_archive.html
Our Princess with 1P36. Friday, April 23, 2010. No More Blue Spells. Crisis. I am leaning towards the dysautonomia. Has not been formally diagnosed with it but just matches the symptoms. To a tee. She has been in this. Funk" during these blue spells. Just unhappy and crying and then all of a sudden she was out of it and was the happiest little girl you have ever seen and let me tell you I am loving it. So heart looks great.no more blue spells and my happy girl is back. I'll take it. Monday, April 12, 2010.
Kylee: June 2010
http://kyleemcglin.blogspot.com/2010_06_01_archive.html
Our Princess with 1P36. Thursday, June 24, 2010. Wednesday, June 2, 2010. CVS and Hip Dysplasia. We have been without a home computer for some time (part of my reasoning for not post) as ours decided to die. THANK YOU to my wonderful friend Ashley (Beau's mom) who is donating me one to I can stay connected with everyone. I have been lost with out it. Subscribe to: Posts (Atom). This is our story of life with our daughter who has 1P36. Nothing Beats A Quickie! A few of my favorites.
Kylee: Kylee Has Passed
http://kyleemcglin.blogspot.com/2011/03/kylee-has-passed.html
Our Princess with 1P36. Tuesday, March 22, 2011. This will be my last post. Kylee. Has passed away on Sunday morning at 5:43 am with Jason and I by her side. We had the best last two weeks with her right up to the very end. She was so happy and had alot. To say. Jason and I were with her when she passed and it was so peaceful. I can not thank the staff at Children's Hospital enough or Melissa Borth. For everything they have done for us during this time. Kylee. March 22, 2011 at 2:59 PM. I am so sorry for...
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lexislifewith1p36.blogspot.com
Lexi's Life with 1p36: October 2009
http://lexislifewith1p36.blogspot.com/2009_10_01_archive.html
Lexi's Life with 1p36. Oct 14, 2009. A lot has happened since my last post. Alexis has started school in a new classroom with a new teacher. So far so good. We have been meeting with Family and Children Services to see what resources are available to Alexis. We have had a prescription written for Alexis' overnight incontinence needs. We have yet to receive them. Alexis has a new brother. He was born on September 2. See our family blog. Subscribe to: Posts (Atom). In her element - catching flakes.
lexislifewith1p36.blogspot.com
Lexi's Life with 1p36: June 2010
http://lexislifewith1p36.blogspot.com/2010_06_01_archive.html
Lexi's Life with 1p36. Jun 24, 2010. Bathing has been made a lot easier. Eating isn't so messy. She just seems to still not want to use her arm. We will have to work on that. Jun 22, 2010. Alexis had her second outing with her worker (I don't remember the official title). She took Alexis out to the Humane Society. While there they worked on Alexis not talking to strangers and not touching other people. Alexis had a good time. She bugged me all morning until it was time for her to go. Jun 21, 2010. The su...
The "Perfect" Gift: An Update
http://abbiegrace1p36.blogspot.com/2009/03/update.html
All things created by God are perfect even if we don't see it that way. Abbie was created to be our "perfect" 1p36 gift! James 1:17 "Every good gift and perfect gift is from above.". Tuesday, March 10, 2009. Abbie has been doing well. She will be three on Monday March 16 and I will post a big update then. For now a few things. He will be another yearly Doctor. Look for the new update next week after Abbie is the BIG 3! In case I forget next week, Happy Birthday Abbie! You look great in the pictures Abbie!
lexislifewith1p36.blogspot.com
Lexi's Life with 1p36: November 2009
http://lexislifewith1p36.blogspot.com/2009_11_01_archive.html
Lexi's Life with 1p36. Nov 20, 2009. Alexis loves her siblings. Here is a moment with Mikey before Halloween. Labels: Lexi and Mikey. Nov 6, 2009. Alexis loves music. Her favorite soundtrack is Disney's Cinderella. We always get the play by play on what part of the movie the music is playing. It always makes her giggle. Music brings her great joy. Most times music will bring peace into our home. I have found that when I play quiet peaceful music, Alexis becomes more calm. Subscribe to: Posts (Atom).
The "Perfect" Gift: October 2008
http://abbiegrace1p36.blogspot.com/2008_10_01_archive.html
All things created by God are perfect even if we don't see it that way. Abbie was created to be our "perfect" 1p36 gift! James 1:17 "Every good gift and perfect gift is from above.". Wednesday, October 22, 2008. The Loss of Little Ones. Monday, October 13, 2008. FROM 30 MIN.OLD TO THE FIRST HEART SUGERY. THE FIRST TIME I GOT TO HOLD ABBIE SHE WAS RIGHT AT 24 HRS. OLD. SHE WAS SO TINY AND I DID NOT WANT TO EVER LET GO OF HER! I could not even hold her for the first 24 hrs. The cadiologist visited a few ti...
The "Perfect" Gift: March 2009
http://abbiegrace1p36.blogspot.com/2009_03_01_archive.html
All things created by God are perfect even if we don't see it that way. Abbie was created to be our "perfect" 1p36 gift! James 1:17 "Every good gift and perfect gift is from above.". Tuesday, March 10, 2009. Abbie has been doing well. She will be three on Monday March 16 and I will post a big update then. For now a few things. He will be another yearly Doctor. Look for the new update next week after Abbie is the BIG 3! Monday, March 9, 2009. Subscribe to: Posts (Atom). View my complete profile. Ato T's 5...
The "Perfect" Gift: January 2009
http://abbiegrace1p36.blogspot.com/2009_01_01_archive.html
All things created by God are perfect even if we don't see it that way. Abbie was created to be our "perfect" 1p36 gift! James 1:17 "Every good gift and perfect gift is from above.". Sunday, January 18, 2009. Just some Picture updates! Every Christmas Eve my children open one gift and it is always their Christmas P.J.'s! I try to get a great picture of them in front of the tree but with 5 it never works out so this is the best one from this year. They just thaught it was playing! View my complete profile.
lexislifewith1p36.blogspot.com
Lexi's Life with 1p36: Sedated Hearing Test
http://lexislifewith1p36.blogspot.com/2011/01/sedated-hearing-test.html
Lexi's Life with 1p36. Jan 18, 2011. Subscribe to: Post Comments (Atom). In her element - catching flakes. Alexis was born on Christmas Day in 1997. She was diagnosed with the chromosome deletion 1p36 when she was six years old. It has taken a long time for her to see much success, but we are delighted in every small step she makes. I hope that you find this blog helpful. Lexis School Birthday Party. Click image to learn more. Click image to learn more. 1p36 Friend's Blog List. God Gave Us You.
lexislifewith1p36.blogspot.com
Lexi's Life with 1p36: February 2010
http://lexislifewith1p36.blogspot.com/2010_02_01_archive.html
Lexi's Life with 1p36. Feb 28, 2010. Alexis participated in the freestyle assisted with flotation and the backstroke assisted with flotation. She got third in both races. We are so proud of her. When it comes to swimming she doesn't go very fast because she doesn't want to get out of the pool. Showering after the race. She hates showers. I made her smile for me. After wards with part of her cheer team. Grandma Burton, Grandpa Burton, Daddy and Emily had left by the time we took our picture. Feb 1, 2010.
lexislifewith1p36.blogspot.com
Lexi's Life with 1p36: Always Changing, Always Challenging
http://lexislifewith1p36.blogspot.com/2010/10/always-changing-always-challenging.html
Lexi's Life with 1p36. Oct 7, 2010. Always Changing, Always Challenging. Taking care of Alexis has been very hard lately. She has been having fits worse than her two year old sister. It doesn't help that she is 110 pounds and dead weight when she goes to the floor. Maybe I wouldn't be so upset if she had always done this but she hasn't. Once upon a time I was able to have a conversation with her or was able to redirect her. For now those days are over. Who will learn how to share. Will she be disapointed...
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KyleeMarie22 (Kylee Marie) - DeviantArt
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kyleeMatthews (Kylee) - DeviantArt
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kyleemcalmond.theworldrace.org
Kylee Morris The World Race
Do you have what it takes to be. View All Blog Posts. Meet My Squad: Jan 2014 (3). Meet My Team: Petrichor- Rain. What is The World Race? Clearwater, FL (USA). Cave City, AR. Up to the mountains. Throwing Jesus in the air! Follow me and this Journey on Facebook! Check out Threads of Hope! Wrecked for the Ordinary. Support the World Race. I've Raised: $8,959. My goal: $8,940. Go therefore and make disciples of all nations - Matt 28:19. LAUNCH DATE First Week of January 2014. Due September 27, 2013. Most p...
Fashion Fever
Wednesday, May 21, 2014. You guys go check out my friends blog to see tons of cute outfit ideas that are blossoming around BYU- Idaho campus this time of year! Its www.dresstodiva.com. She's also a mighty good photographer if I do say so myself and I'm honored to be featured in one of her posts. Have a fabulous day all! Monday, March 3, 2014. For the Love of Converse. Shirt: Infinite Chic, Jeans: Vigoss-Nordstrom, Scarf: American Eagle, Hat: Vans, Belt:Target, Shoes: Journeys. Subscribe to: Posts (Atom).
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Kylee
Our Princess with 1P36. Tuesday, March 22, 2011. This will be my last post. Kylee. Has passed away on Sunday morning at 5:43 am with Jason and I by her side. We had the best last two weeks with her right up to the very end. She was so happy and had alot. To say. Jason and I were with her when she passed and it was so peaceful. I can not thank the staff at Children's Hospital enough or Melissa Borth. For everything they have done for us during this time. Kylee. Monday, March 14, 2011. Is sleeping a lot.
Progressive Insanity | Committed to Exposing the left's hypocrisy and flat-out lies
Committed to Exposing the left's hypocrisy and flat-out lies. One Year: 9/11 Anniversary. February 25, 2015. The calendar says it’s been a year. I don’t see how that can be. Our daughter still wakes me up. Calling out for her daddy. She’s only four years old. How can she understand. She’ll never again reach out. And hold her daddy’s hand. How can she be expected. To believe what I can’t explain. That daddy wont be back. To hold her close again. I close my eyes and feel you. And tears run down my face.
Symptoms Of Metatarsalgia
The causes of lip swelling could range from trauma and contact dermatitis to allergic reactions to certain medical conditions. I am a 44 year old Pe teacher who has been experiencing Bunions Hard Skin. Since October. Vinegar has been used as a condiment for several centuries. Create your own page.
Kyle Emery's Thesis
The Stadium as Public Space: Making the private stadium as public place by using technology to transform its role. Wednesday, April 26, 2006. This is a mock-up of how the third tier stands will move over top the second tier stands. the lower tier stands will actually slide beneath the second tier stands, essentially making the profile of the stands only as wide as the width of the second tier stands when there is not a game. Posted by kne @ 12:00 PM. Monday, April 03, 2006. The stadium is much nearer to ...
Kylee's Blog
Subscribe to: Posts (Atom). View my complete profile. Ethereal theme. Theme images by merrymoonmary.
Progression | while understanding what brought us to this point
Hi, I'm Kyle. I want to learn everything, live forever, and help solve all the world's problems the worst part is that I believe I can do it. Sometimes I give talks:. TEDx: Free Intelligent Conversation. This is me talking about why we're all intelligent and why we need to talk to strangers more than ever. Kymone Hinds Ideas2Life Podcast. In this podcast episode I talk about how I took Free Intelligent Conversation from an idea to a reality. Sometimes we make videos:. Edited by Ivan and directed by myself.
