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Kyran's Story - Battens Disease. Welcome to the Kyran Richmond Fundraising Website to raise awareness and funds for Juvenile Batten Disease. Kyran was born healthy on 8th June 2003, and reach all his major milestones. However, when Kyran was 6 years old he was diagnosed with Retinitis Pigmentosa which is an eye disease in which there is damage to the retina. At the time this news was devastating but we had no idea that worse news was yet to come. Thank you for visiting the website. After seeking legal ad...

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Kyran's Story - Battens Disease. Welcome to the Kyran Richmond Fundraising Website to raise awareness and funds for Juvenile Batten Disease. Kyran was born healthy on 8th June 2003, and reach all his major milestones. However, when Kyran was 6 years old he was diagnosed with Retinitis Pigmentosa which is an eye disease in which there is damage to the retina. At the time this news was devastating but we had no idea that worse news was yet to come. Thank you for visiting the website. After seeking legal ad...

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7 kyran richmond fundraising

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Home | kyranrichmondfundraising.co.uk Reviews

https://kyranrichmondfundraising.co.uk

Kyran's Story - Battens Disease. Welcome to the Kyran Richmond Fundraising Website to raise awareness and funds for Juvenile Batten Disease. Kyran was born healthy on 8th June 2003, and reach all his major milestones. However, when Kyran was 6 years old he was diagnosed with Retinitis Pigmentosa which is an eye disease in which there is damage to the retina. At the time this news was devastating but we had no idea that worse news was yet to come. Thank you for visiting the website. After seeking legal ad...

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kyranrichmondfundraising.co.uk

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Donate

http://kyranrichmondfundraising.co.uk/donate.html

Kyran's Story - Battens Disease. After seeking legal advice, could anyone who is arranging separate fundraising events or would like to make a donation please complete the Donation Declaration Form to state how you would like the money to be spent. Also could you please make sure that you state clearly on any Promotional Material, how you wish the money to be spilt (eg, BDFA/Kyran or Kyran, or Kyran's Family) - This is to ensure that no claim for misuse of funds is made against us. Sort Code - 772040.

2

News

http://kyranrichmondfundraising.co.uk/news.html

Kyran's Story - Battens Disease. 22/06/15 18:28 Filed in: events. Laurie Simpson General Manager of The Eden Arms hotel is walking 85 miles in a week through the Peak District overland,no roads and carrying all his kit including food and tents! If you would like to sponsor Laurie pop into the hotel or click on the donate button. Please see attached poster for more details. Battens Disease awareness Day. 05/06/15 18:27 Filed in: events. Manchester utd v West Brom. 02/05/15 18:26 Filed in: events.

3

Media

http://kyranrichmondfundraising.co.uk/media.html

Kyran's Story - Battens Disease. Kyran’s Story was made to raise awareness about Battens Disease and to tell people about Kyran. Filmed and Edited by. Article on Sky North East. Article in The Northern Echo. Article in the Chronicle. Article in the Berwick Advertiser. Kyran’s Story in the Autumn Edition of the BDFA Newsletter - Autumn 2012. Read it in full here! Kyran’s Story on the Front Page of the Batten Bulletin - Autumn 2012. To Read the Full Bulletin CLICK HERE. Article in The Northern Echo. Fundra...

4

Events

http://kyranrichmondfundraising.co.uk/page21

Kyran's Story - Battens Disease. After seeking legal advice, could anyone who is arranging separate fundraising events or would like to make a donation please complete the Donation Declaration Form to state how you would like the money to be spent. Also could you please make sure that you state clearly on any Promotional Material, how you wish the money to be spilt (eg, BDFA/Kyran or Kyran, or Kyran's Family) - This is to ensure that no claim for misuse of funds is made against us. Dates for your Diary.

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Battens

http://kyranrichmondfundraising.co.uk/battens.html

Kyran's Story - Battens Disease. For further information visit the. About Batten Disease Page. Batten Disease is the common name for a group of diseases called the Neuronal Ceroid Lipofuscinoses (NCLs). They are rare, genetic, progressive neurodegenerative diseases that occur in children and adults worldwide. Batten Disease is the main paediatric neuro-degenerative disorder in the UK. Age at onset and first symptoms. Symptoms usually begin at early school age. Sleep disturbance and unrest. Diagnostic inv...

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Kyran's Story - Battens Disease. Welcome to the Kyran Richmond Fundraising Website to raise awareness and funds for Juvenile Batten Disease. Kyran was born healthy on 8th June 2003, and reach all his major milestones. However, when Kyran was 6 years old he was diagnosed with Retinitis Pigmentosa which is an eye disease in which there is damage to the retina. At the time this news was devastating but we had no idea that worse news was yet to come. Thank you for visiting the website. After seeking legal ad...

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