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LAL Deficiency Registry

An international, observational registry dedicated to improving the care of patients with LAL Deficiency. Analyses of Registry data to further the understanding of the signs, symptoms, and progression of LAL Deficiency. Publication of Registry data to inform the medical community and improve patient care. 2016 Alexion Pharmaceuticals Inc. Operated and hosted by Digital Infuzion, Inc.

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301 ●●●●4872
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Digital Infuzion, Inc.

David Moyer

656 Quinc●●●●●●●●●Road #300

Gait●●●●burg , Maryland, 20878

UNITED STATES

301 ●●●●4871
301 ●●●●4872
ne●●●●●●●●●●●●@digitalinfuzion.com

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LAL Deficiency Registry | laldeficiencyregistry.com Reviews
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An international, observational registry dedicated to improving the care of patients with LAL Deficiency. Analyses of Registry data to further the understanding of the signs, symptoms, and progression of LAL Deficiency. Publication of Registry data to inform the medical community and improve patient care. 2016 Alexion Pharmaceuticals Inc. Operated and hosted by Digital Infuzion, Inc.
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LAL Deficiency Registry | laldeficiencyregistry.com Reviews

https://laldeficiencyregistry.com

An international, observational registry dedicated to improving the care of patients with LAL Deficiency. Analyses of Registry data to further the understanding of the signs, symptoms, and progression of LAL Deficiency. Publication of Registry data to inform the medical community and improve patient care. 2016 Alexion Pharmaceuticals Inc. Operated and hosted by Digital Infuzion, Inc.

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laldeficiencyregistry.com laldeficiencyregistry.com
1

LAL Deficiency Registry

https://www.laldeficiencyregistry.com/Enroll.aspx

Already have a Username and Password? Loading. Please wait. Step 1 – Tell us who you are. I am a Physician currently treating one or more Patients with LAL Deficiency. I am a Nurse, Genetic Counselor, Study Coordinator, or Data Entry person for one or more Patients with LAL Deficiency. I am a Health Care Professional – currently not treating a Patient with LAL Deficiency. I am a Patient with LAL Deficiency. Step 2 – How did you hear about the LAL Deficiency Registry? Invitation ID' must not be blank.

2

ForgotUserNamePassword

https://www.laldeficiencyregistry.com/ForgotUserNamePassword.aspx?type=username

Retrieve your account information. Please select your issue:. I forgot my password. I forgot my username. Email Id must not be blank. Please enter a valid Email Id. 2015 Synageva BioPharma Corp. Operated and hosted by Digital Infuzion, Inc.

3

LAL Deficiency Registry

https://www.laldeficiencyregistry.com/SiteMapPage.aspx

How Does The Registry work? How Does The Registry Work? How Do I participate? 2015 Synageva BioPharma Corp. Operated and hosted by Digital Infuzion, Inc.

4

LAL Deficiency Registry

https://www.laldeficiencyregistry.com/PatientLandingPage.aspx

What Is a Registry? How Does The Registry Work? How Do I Participate? What Is a Registry? The aims of registries include:. Improving the understanding of a disease;. Evaluating if long-term treatment is safe and effective; and. Monitoring quality of life. The data collected in a rare disease registry is analyzed by physicians with extensive scientific and clinical expertise in this area. Such as lysosomal acid lipase (LAL) Deficiency. Existing registries have reported information that has described c...

5

LAL Deficiency Registry

https://www.laldeficiencyregistry.com/PhysicianLandingPage.aspx

How Does The Registry Work? Disease registries are observational studies that can be used to collect information for a variety of purposes, including understanding the natural history of a disorder, assessing management practices, and establishing short- and long-term outcomes. Disease registries, unlike product registries, are open to all patients with a diagnosis of the disease irrespective of their treatment status or treatment choice. Participation of physicians and patients is critical to their succ...

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LAL Deficiency Registry

An international, observational registry dedicated to improving the care of patients with LAL Deficiency. Analyses of Registry data to further the understanding of the signs, symptoms, and progression of LAL Deficiency. Publication of Registry data to inform the medical community and improve patient care. 2016 Alexion Pharmaceuticals Inc. Operated and hosted by Digital Infuzion, Inc.

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