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Rasing awareness of Ehlers-Danlos Syndrome
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When did it become July?! | larabloomeds
https://larabloomeds.wordpress.com/2014/07/04/when-did-it-become-july
Rasing awareness of Ehlers-Danlos Syndrome. Back in the UK and ready for the conference! When did it become July? July 4, 2014. I just cannot believe how time has flown. This crazy road trip and tour started in March and the EDNF conference. Marking the end of the journey seemed so far away. I have been to almost every corner of the country and held stands at many different conferences raising awareness to the medical professionals. This entry was posted in Uncategorized. Leave a Reply Cancel reply.
Wow, what a week! | larabloomeds
https://larabloomeds.wordpress.com/2014/05/09/wow-what-a-week
Rasing awareness of Ehlers-Danlos Syndrome. Preparing for EDS May Awareness Month. Thank you for a fantastic EDS May Awareness Month! Wow, what a week! May 9, 2014. The Rat Pack legend Buddy Greco was incredible and The Lamours were amazing. We are already planning the next one for next year! Morning. It has been so exciting though, and so much fun seeing the journey come to life. I got the finished film at 7pm on Wednesday. Evening, just in time for Thursday. This entry was posted in Uncategorized.
Back in the UK and ready for the conference! | larabloomeds
https://larabloomeds.wordpress.com/2014/07/25/back-in-the-uk-ready-for-the-conference
Rasing awareness of Ehlers-Danlos Syndrome. When did it become July? Back in the UK and ready for the conference! July 25, 2014. Have I not even been back a week yet? It feels like a month! We are selling tickets for our residential conference. I hope you have all been enjoying the lovely weather, but keeping hydrated with salt handy at all times, this heat is no friend of POTS. Have a great weekend everyone. This entry was posted in Uncategorized. When did it become July? January 14, 2015 at 12:14 pm.
Thank you for a fantastic EDS May Awareness Month! | larabloomeds
https://larabloomeds.wordpress.com/2014/05/31/thank-you-for-a-fantastic-eds-may-awareness-month
Rasing awareness of Ehlers-Danlos Syndrome. Wow, what a week! EDS UK local support groups – the road trip continues! Thank you for a fantastic EDS May Awareness Month! May 31, 2014. Wow, where did May go? It’s been a wonderful EDS Awareness Month. And we are so grateful to you all for everything you have done to raise the profile of EDS. There have been some fantastic events nationwide, and the Superhero run turned out to be a beautiful day and over 3000 was raised! On your social networks. Leave a Reply...
EDS UK local support groups – the road trip continues! | larabloomeds
https://larabloomeds.wordpress.com/2014/06/05/eds-uk-local-support-groups-the-road-trip-continues
Rasing awareness of Ehlers-Danlos Syndrome. Thank you for a fantastic EDS May Awareness Month! EDS UK local support groups – the road trip continues! June 5, 2014. Monday 2nd June – Friday 6th June. The local meeting road trip continues. I had a day at home on Sunday. Which was nice, but not long enough! Was Sheffield and I met some familiar faces I have met before at the diagnostic clinic, and some new faces. What is interesting is at nearly every meeting the topic of chiari and cranial instability ...
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August 2015 – Living With Ehlers-Danlos Syndrome Type 3
https://livingwithedsuk.wordpress.com/2015/08
Living With Ehlers-Danlos Syndrome Type 3. And everything that goes with it – Raising Awareness #zebrastrong. August 31, 2015. August 27, 2015. In Ehlers Danlos Syndrome. As August draws to a close were you aware it was Gastroparesis awareness month? So with all this in mind what is Gastroparesis? It is a chronic condition in which the stomach cannot empty itself in the normally. It means food passes through the stomach more slowly than usual, leading to symptoms such as:. So what causes Gastroparesis?
Also Featured On – Living With Ehlers-Danlos Syndrome Type 3
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Living With Ehlers-Danlos Syndrome Type 3. And everything that goes with it – Raising Awareness #zebrastrong. Guest Post for @mummybarrow :. Http:/ www.mummybarrow.com/gadget-show-live-review/. Review post for @thinkcountry. Http:/ www.thinkcountry.co.uk/? Reviewer and Social Media Queen for W21 Music🙂. Proud to be linking up with Love all Blogs. Leave a Reply Cancel reply. Enter your comment here. Fill in your details below or click an icon to log in:. Address never made public). My Hospital Short Stay.
Visiting my GP – Living With Ehlers-Danlos Syndrome Type 3
https://livingwithedsuk.wordpress.com/2015/08/17/visiting-my-gp
Living With Ehlers-Danlos Syndrome Type 3. And everything that goes with it – Raising Awareness #zebrastrong. August 17, 2015. August 15, 2015. In Ehlers Danlos Syndrome. Ive said before that I hear people complain all the time about getting on the day appointments at our Drs surgery. Well thanks to Patient Access and their amazing app, I just log on and fingers crossed there are on the day, or urgent appointments available. We asked him briefly about the nomad packs for my monthly medications, with limi...
Useful Links – Living With Ehlers-Danlos Syndrome Type 3
https://livingwithedsuk.wordpress.com/useful-links
Living With Ehlers-Danlos Syndrome Type 3. And everything that goes with it – Raising Awareness #zebrastrong. These are websites that I have been resourcing since my PoTs diagnosis and now I suspect I have Ehlers-Danlos Syndrome. I hope they help you. Http:/ www.potsuk.org/. Http:/ www.dinet.org/. Http:/ www.stars.org.uk. Http:/ en.wikipedia.org/wiki/Postural orthostatic tachycardia syndrome. Https:/ www.ehlers-danlos.org. Leave a Reply Cancel reply. Enter your comment here. Address never made public).
March 2015 – Living With Ehlers-Danlos Syndrome Type 3
https://livingwithedsuk.wordpress.com/2015/03
Living With Ehlers-Danlos Syndrome Type 3. And everything that goes with it – Raising Awareness #zebrastrong. The Parapet Breast Clinic. March 31, 2015. March 23, 2015. In Ehlers Danlos Syndrome. Two friends in the last eighteen months have been diagnosed with breast cancer, both have dealt with it in very different ways and I’m not sure now I would feel if it were to happen to me. How often do you check your breasts? Do you know how often you should check them? Now it’s just a waiting game, I know...
Paul Carella Gig at The Borderline – Living With Ehlers-Danlos Syndrome Type 3
https://livingwithedsuk.wordpress.com/2015/08/15/paul-carella-gig-at-the-borderline
Living With Ehlers-Danlos Syndrome Type 3. And everything that goes with it – Raising Awareness #zebrastrong. Paul Carella Gig at The Borderline. August 15, 2015. August 14, 2015. It’s the home grown talent that needs our support on the UK Country Music scene, they are all amazing, talented and worth traveling to see. Paul is due to be at the Bull’s Head in Barnes, London tonight, tickets are 8 in advance or 10 on the door, do make the effort he’s well worth a look😉. Silent Sunday – 16th August. And eve...
Hard Decisions – Living With Ehlers-Danlos Syndrome Type 3
https://livingwithedsuk.wordpress.com/2015/08/14/hard-decisions
Living With Ehlers-Danlos Syndrome Type 3. And everything that goes with it – Raising Awareness #zebrastrong. August 14, 2015. August 14, 2015. In Ehlers Danlos Syndrome. My lunch arrived and it was a case of not wanting to eat in case I jeapordised any procedure they may want to do at any point that day. It had been two hours since the PALS lady had been to see me, midday was my cutoff so I gave her a call and asked what should I do? She asked had Zoe been to see me, no! I didn’t know! They felt there w...
Disclosure Policy – Living With Ehlers-Danlos Syndrome Type 3
https://livingwithedsuk.wordpress.com/disclosure-policy
Living With Ehlers-Danlos Syndrome Type 3. And everything that goes with it – Raising Awareness #zebrastrong. These are written by friends, often on a topic important to them, and have either been written because I asked them to guest post on my blog, or because they asked me if they could. Done because I love and support the blogger and am happy to promote whatever it is they are talking about. No money has changed hands, just love. Thanks to @mummybarrow for allowing me to borrow her disclosure policy.
Living With Ehlers-Danlos Syndrome Type 3 – Page 2 – and everything that goes with it – Raising Awareness #zebrastrong
https://livingwithedsuk.wordpress.com/page/2
Living With Ehlers-Danlos Syndrome Type 3. And everything that goes with it – Raising Awareness #zebrastrong. July 11, 2016. June 20, 2016. In Ehlers Danlos Syndrome. I had been plotting this weekend for some time with Katie, so poor Andrew had been completely in the dark. All he knew was he had to keep the date clear! Wembley sort it out, one rule for one on the phone and then one for the other when you arrive? What a fantastic day Fathers Day had been though. Weather Related Aches & Pains. July 9, 2016.
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Lara Bloom - Writer and Photographer. Tuesday, 15 July 2008. That girl is Dead - June 2008. Goodbye cruel world, shes dead. You know the girl I mean, the one with. All the questions in her head. I don't know how she died. I hope it worked though,. God knows she tried. All the doubt and misery . Was not part of what makes up me. All the helpless empty days. Are all gone now, I can finally meet your gaze. And stand equal by your side,. Instead of helpless with my arms open wide. Sunday, 13 July 2008. And i...
larabloomeds | Rasing awareness of Ehlers-Danlos Syndrome
Rasing awareness of Ehlers-Danlos Syndrome. Back in the UK and ready for the conference! July 25, 2014. Have I not even been back a week yet? It feels like a month! We are selling tickets for our residential conference. I hope you have all been enjoying the lovely weather, but keeping hydrated with salt handy at all times, this heat is no friend of POTS. Have a great weekend everyone. When did it become July? July 4, 2014. I leave on Saturday for the EDNF conference and will also be taking a holiday and ...
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