leafusblog.wordpress.com

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Life as an MSMS…. Rant. F is for freedom. (and fat). B is for *****. On F is for freedom. (and fa…. On B is for *****. Lesley on Knock knock? Lorraine on I feel fire. Life as an MSMS…. Rant. Multiple Sclerosis Midwifery Student. A year ago I was diagnosed with MS. A year ago I was in the middle of my first placement as a student midwife. These 2 things are not compatible. So what sort of issues are there? Surely not too many… right? No one seems to have any idea whats going on. How is it fair? You should...

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Life as an MSMS…. Rant. F is for freedom. (and fat). B is for *****. On F is for freedom. (and fa…. On B is for *****. Lesley on Knock knock? Lorraine on I feel fire. Life as an MSMS…. Rant. Multiple Sclerosis Midwifery Student. A year ago I was diagnosed with MS. A year ago I was in the middle of my first placement as a student midwife. These 2 things are not compatible. So what sort of issues are there? Surely not too many… right? No one seems to have any idea whats going on. How is it fair? You should...

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leafusblog | leafusblog.wordpress.com Reviews

https://leafusblog.wordpress.com

Life as an MSMS…. Rant. F is for freedom. (and fat). B is for *****. On F is for freedom. (and fa…. On B is for *****. Lesley on Knock knock? Lorraine on I feel fire. Life as an MSMS…. Rant. Multiple Sclerosis Midwifery Student. A year ago I was diagnosed with MS. A year ago I was in the middle of my first placement as a student midwife. These 2 things are not compatible. So what sort of issues are there? Surely not too many… right? No one seems to have any idea whats going on. How is it fair? You should...

INTERNAL PAGES

leafusblog.wordpress.com

1

Life as an MSMS…. Rant – leafusblog

https://leafusblog.wordpress.com/2016/11/28/life-as-an-msms-rant

Life as an MSMS…. Rant. F is for freedom. (and fat). B is for Bitch. On F is for freedom. (and fa…. On B is for Bitch. Lesley on Knock knock? Lorraine on I feel fire. November 28, 2016. November 28, 2016. Life as an MSMS…. Rant. Multiple Sclerosis Midwifery Student. A year ago I was diagnosed with MS. A year ago I was in the middle of my first placement as a student midwife. These 2 things are not compatible. So what sort of issues are there? Surely not too many… right? How is it fair? Every time this ha...

2

I feel fire. – leafusblog

https://leafusblog.wordpress.com/2016/04/19/i-feel-fire/comment-page-1

April 19, 2016. Life as an MSMS…. Rant. F is for freedom. (and fat). B is for Bitch. On F is for freedom. (and fa…. On B is for Bitch. Lesley on Knock knock? Lorraine on I feel fire. Today started off much more chilled. After a lovely trip to Tesco’s to buy the steroid munchies we made out way back to Victoria House. I started treatment at 8:30 today but due to none of the drugs being prescribed, I had to wait an hour. Oh you doctors! So why the fire reference? Tomorrow is another day. April 19, 2016 at ...

3

Day 1 of the Living Dead. – leafusblog

https://leafusblog.wordpress.com/2016/04/18/day-1-of-the-living-dead

Day 1 of the Living Dead. April 18, 2016. Life as an MSMS…. Rant. F is for freedom. (and fat). B is for Bitch. On F is for freedom. (and fa…. On B is for Bitch. Lesley on Knock knock? Lorraine on I feel fire. The first day has finished. This blog is only going to be short, as I’m about to collapse into bo boes. After a short stay in Costas, an orange juice and some cappuccinos later we made our way to the Infusion Centre. Then came the Lemtrada. I was cacking myself with worry after reading all the r...

4

B is for Bitch – leafusblog

https://leafusblog.wordpress.com/2016/04/21/b-is-for-bitch

B is for Bitch. April 21, 2016. Life as an MSMS…. Rant. F is for freedom. (and fat). B is for Bitch. On F is for freedom. (and fa…. On B is for Bitch. Lesley on Knock knock? Lorraine on I feel fire. As in how I felt when I got home today. I was completely fine until my body realised I had no steroids pumping round my system. Now I feel like a massive bitch. Im just angry at nothing and its not fair on anyone…. AND THIS RASH NEEDS TO MAKE ITS SODDING MIND UP. IM ITCHY, DRUGGED UP, TIRED AND EMOTIONAL.

5

F is for freedom. (and fat) – leafusblog

https://leafusblog.wordpress.com/2016/04/23/f-is-for-freedom-and-fat/comment-page-1

F is for freedom. (and fat). April 23, 2016. Life as an MSMS…. Rant. F is for freedom. (and fat). B is for Bitch. On F is for freedom. (and fa…. On B is for Bitch. Lesley on Knock knock? Lorraine on I feel fire. BECAUSE THE STEROIDS HAVE MADE ME PLUMP AND IM NOT HAPPY. I can finally relax at home now that I am free from the clutches of the NHS. (For now anyway, now comes 4 years of monthly tests). The drug was finished around 2pm. YES! But then I had to wait another hour for blood pressure checks and such.

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coffeewithkirsty.wordpress.com

Once You Pop | coffeewithkirsty

https://coffeewithkirsty.wordpress.com/2015/07/20/once-you-pop

July 20, 2015. July 20, 2015. I’ve not written much for a while because of the normal life distractions. Namely in my case (also in order of importance) Harry Potter films, my birthday and the school holidays. I can say though that I completely enjoyed them and I’m not sure why it took me so long. We’ve had a couple of hospital visits recently but nothing to out of the ordinary ( is any of it normal) Some intrathecal chemo for hubby, some blood tests and some (more) talks of possibly removing his H...

coffeewithkirsty.wordpress.com

Oh! Hello Sunshine | coffeewithkirsty

https://coffeewithkirsty.wordpress.com/2015/07/03/oh-hello-sunshine

July 3, 2015. July 3, 2015. Last night, lying in bed after another hot day, my hubby turned to me and said, “Sorry for being a pain in the arse”. He is a pain in the arse, yes, but not about the cancer. How can he be? It’s not like he asked for it. He still leaves his socks on the floor, teases me till I’m not sure if he’s joking anymore, but those are tiny insubstantial things that don’t even register most of the time. Is it hay fever? So instead of sitting here bemoaning the fact that I want to do all ...

coffeewithkirsty.wordpress.com

Always look on the bright side | coffeewithkirsty

https://coffeewithkirsty.wordpress.com/2015/07/31/always-look-on-the-bright-side

Always look on the bright side. July 31, 2015. July 31, 2015. What is the matter with me! I am fed up of worrying constantly. I feel like I’m forever asking inane question’s. Are you ok? And no matter what the response basically I am the grumpy fairy coming to sprinkle s* t all over your I’m ok parade. I should be over the moon. I mean look at this. This is the hurried post-it note from hubbys consultant. It shows that his BCR-ABL is down to almost nothing.0.09%! I’m desperate for him to eat proper...

coffeewithkirsty.wordpress.com

June | 2015 | coffeewithkirsty

https://coffeewithkirsty.wordpress.com/2015/06

June 30, 2015. June 30, 2015. So a very uneventful trip to the hospital yesterday with not much news. No actual diagnosis of GVHD in the stomach yet.I say yet, personally I think its just a matter of time. The one thing we did get to do more of though was. Wait.yep gotta love the waiting rooms in hospitals. Hubby people watches to pass the time. I take a book.( I can’t tell you how many books I’ve consumed in the last 18 months in waiting rooms). June 28, 2015. June 28, 2015. Part of being a mum or wife ...

coffeewithkirsty.wordpress.com

coffeewithkirsty | Page 2

https://coffeewithkirsty.wordpress.com/page/2

September 7, 2015. September 7, 2015. Wow, it’s been a long time since I’ve written. The summer holidays are over. The children are back at school. The exercise bike is out to combat summer indulgences! So what’s been happening since my last blog…well.not a lot really. Which I have to say is wonderful. We are still going to the hospital regulary for hubby to have his check ups. His counts continue to stay stable. His BCR-ABL is now down to 0.004%… AMAZING! I’ll also finally get round to typing up a...

coffeewithkirsty.wordpress.com

July | 2015 | coffeewithkirsty

https://coffeewithkirsty.wordpress.com/2015/07

Always look on the bright side. July 31, 2015. July 31, 2015. What is the matter with me! I am fed up of worrying constantly. I feel like I’m forever asking inane question’s. Are you ok? And no matter what the response basically I am the grumpy fairy coming to sprinkle s* t all over your I’m ok parade. I should be over the moon. I mean look at this. This is the hurried post-it note from hubbys consultant. It shows that his BCR-ABL is down to almost nothing.0.09%! I’m desperate for him to eat proper...

coffeewithkirsty.wordpress.com

Giving up work to care | coffeewithkirsty

https://coffeewithkirsty.wordpress.com/2015/07/07/giving-up-work-to-care

Giving up work to care. July 7, 2015. July 7, 2015. I never made a conscious decision to give up my job to care for my husband. It’s not something we planned and for a long time I was able to carry on with my job and look after him and my children. I felt that if I wasn’t there he wouldn’t be comfortable or settled. Cleaning, not just normal cleaning but super cleaning. With no immune system we have to have a special hoover, dusting is done with wipes, toilets and bathrooms have to be done every sing...

coffeewithkirsty.wordpress.com

Googleicious | coffeewithkirsty

https://coffeewithkirsty.wordpress.com/2015/07/15/googleicious/comment-page-1

July 15, 2015. Having an hour to spare before another last min hospital appointment I decided to get the dinner ready for tonight ( there’s no telling how long we will be there! I realised that I have learnt so much from google since this all began. It’s told me what to expect with each of the different treatments and the complications that can arise. It gave me ideas on what I could cook for someone who feels sick constantly and if they didn’t work then sickness remedies to try. You know the jobs I mean...

coffeewithkirsty.wordpress.com

The Fear | coffeewithkirsty

https://coffeewithkirsty.wordpress.com/2015/07/08/the-fear

July 8, 2015. July 8, 2015. This isn’t a long post. There isn’t a lot to say apart from I’m sick and tired of this over powering all consuming fear. I worry every single second of every single day and its tiring. It makes my brain hurt. I feel like I’m waiting for the worst when I should be looking forward and planning a new future. I worry when he’s tired. I worry when he doesn’t eat or drink enough. I worry when I’m not with him and just having a brief respite with a friend (and coffee! HUGS) ) ) ).

coffeewithkirsty.wordpress.com

Googleicious | coffeewithkirsty

https://coffeewithkirsty.wordpress.com/2015/07/15/googleicious

July 15, 2015. Having an hour to spare before another last min hospital appointment I decided to get the dinner ready for tonight ( there’s no telling how long we will be there! I realised that I have learnt so much from google since this all began. It’s told me what to expect with each of the different treatments and the complications that can arise. It gave me ideas on what I could cook for someone who feels sick constantly and if they didn’t work then sickness remedies to try. You know the jobs I mean...

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leafusblog.wordpress.com

leafusblog

Life as an MSMS…. Rant. F is for freedom. (and fat). B is for Bitch. On F is for freedom. (and fa…. On B is for Bitch. Lesley on Knock knock? Lorraine on I feel fire. Life as an MSMS…. Rant. Multiple Sclerosis Midwifery Student. A year ago I was diagnosed with MS. A year ago I was in the middle of my first placement as a student midwife. These 2 things are not compatible. So what sort of issues are there? Surely not too many… right? No one seems to have any idea whats going on. How is it fair? You should...

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Supporting the local RI alternative medical program, one patient at a time. Bringing PEACE back , through random acts of kindness for medical marijauna patients. Bringing PEACE back , through random acts of kindness for medical marijauna patients. Our support for this cause is steadfast. We believe that people should be allowed to make their own medical choices – free from any judgements and able to live in peace with the wellness path they have chosen to follow. Leave a Reply Cancel reply.

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