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life as a potsie | one POsiTive thought at a time
https://learninghowtomanagemyspoons.wordpress.com/2013/12/30/life-as-a-potsie
One POsiTive thought at a time. Learning how to live with POTS one day at a time. Life as a potsie. December 30, 2013. Welcome to the life of a POTS patient! You may be wondering what is POTS. No it is not pot that people smoke. I was diagnosed recently with Postural Orthostatic Tachycardia Syndrome or POTS. Now I really have you scratching your head! Until recently… oh yes that is right I had another episode and this one was much worse! I was exhausted but so happy to have answers! I was told I had Lyme...
Florida= beaches… right? | one POsiTive thought at a time
https://learninghowtomanagemyspoons.wordpress.com/2014/01/11/florida-beaches-right
One POsiTive thought at a time. Learning how to live with POTS one day at a time. Florida= beaches… right? January 11, 2014. Sorry I have not updated recently. Had no news really and was having some rough times. It seems as though all I do is lay here and have all these symptoms come over me. Come to find out, everything I am feeling is a symptom of POTS… oh joy. Even if all I can do is lay on the beach, I mean what is wrong with that right? So there is my long awaited up date! Till next time, take care!
another year has come and gone | one POsiTive thought at a time
https://learninghowtomanagemyspoons.wordpress.com/2014/01/01/another-year-has-come-and-gone
One POsiTive thought at a time. Learning how to live with POTS one day at a time. Another year has come and gone. January 1, 2014. Wow… can’t believe another year has come and gone. I feel like this year has gone by so fast! Its been a year of ups and downs and lots of changes. After years and years of having episodes and doctors not believing me, I finally got answers. I think that was the best Christmas present! I can’t wait to see what 2014 has to offer! Can’t wait to get my health on track! Everyone ...
attacking floors | one POsiTive thought at a time
https://learninghowtomanagemyspoons.wordpress.com/2013/12/30/attacking-floors
One POsiTive thought at a time. Learning how to live with POTS one day at a time. December 30, 2013. I found this hilarious when I saw it! Just a laugh to end the day. I had another episode today and fell on my knee. But it was just me attacking that darn floor. I know others won’t find this as funny, but if you have POTS it is hilarious! Life as a potsie. Another year has come and gone →. One thought on “ attacking floors. January 1, 2014 at 1:23 am. Leave a Reply Cancel reply. Enter your comment here.
About | one POsiTive thought at a time
https://learninghowtomanagemyspoons.wordpress.com/about
One POsiTive thought at a time. Learning how to live with POTS one day at a time. Welcome to the world of a Postural Orthostatic Tachycardia Syndrome patient. Here you will find my ramblings of how it is to live with POTS from day to day. This is a REAL syndrome. you don’t believe me look it up! I was recently diagnosed with POTS in December of 2013. I don’t have all the answers and am still learning to deal with this syndrome. So if you have questions… ask! So let this journey begin! Fill in your detail...
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August 2015 – Living With Ehlers-Danlos Syndrome Type 3
https://livingwithedsuk.wordpress.com/2015/08
Living With Ehlers-Danlos Syndrome Type 3. And everything that goes with it – Raising Awareness #zebrastrong. August 31, 2015. August 27, 2015. In Ehlers Danlos Syndrome. As August draws to a close were you aware it was Gastroparesis awareness month? So with all this in mind what is Gastroparesis? It is a chronic condition in which the stomach cannot empty itself in the normally. It means food passes through the stomach more slowly than usual, leading to symptoms such as:. So what causes Gastroparesis?
Also Featured On – Living With Ehlers-Danlos Syndrome Type 3
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Living With Ehlers-Danlos Syndrome Type 3. And everything that goes with it – Raising Awareness #zebrastrong. Guest Post for @mummybarrow :. Http:/ www.mummybarrow.com/gadget-show-live-review/. Review post for @thinkcountry. Http:/ www.thinkcountry.co.uk/? Reviewer and Social Media Queen for W21 Music🙂. Proud to be linking up with Love all Blogs. Leave a Reply Cancel reply. Enter your comment here. Fill in your details below or click an icon to log in:. Address never made public). My Hospital Short Stay.
Visiting my GP – Living With Ehlers-Danlos Syndrome Type 3
https://livingwithedsuk.wordpress.com/2015/08/17/visiting-my-gp
Living With Ehlers-Danlos Syndrome Type 3. And everything that goes with it – Raising Awareness #zebrastrong. August 17, 2015. August 15, 2015. In Ehlers Danlos Syndrome. Ive said before that I hear people complain all the time about getting on the day appointments at our Drs surgery. Well thanks to Patient Access and their amazing app, I just log on and fingers crossed there are on the day, or urgent appointments available. We asked him briefly about the nomad packs for my monthly medications, with limi...
Useful Links – Living With Ehlers-Danlos Syndrome Type 3
https://livingwithedsuk.wordpress.com/useful-links
Living With Ehlers-Danlos Syndrome Type 3. And everything that goes with it – Raising Awareness #zebrastrong. These are websites that I have been resourcing since my PoTs diagnosis and now I suspect I have Ehlers-Danlos Syndrome. I hope they help you. Http:/ www.potsuk.org/. Http:/ www.dinet.org/. Http:/ www.stars.org.uk. Http:/ en.wikipedia.org/wiki/Postural orthostatic tachycardia syndrome. Https:/ www.ehlers-danlos.org. Leave a Reply Cancel reply. Enter your comment here. Address never made public).
March 2015 – Living With Ehlers-Danlos Syndrome Type 3
https://livingwithedsuk.wordpress.com/2015/03
Living With Ehlers-Danlos Syndrome Type 3. And everything that goes with it – Raising Awareness #zebrastrong. The Parapet Breast Clinic. March 31, 2015. March 23, 2015. In Ehlers Danlos Syndrome. Two friends in the last eighteen months have been diagnosed with breast cancer, both have dealt with it in very different ways and I’m not sure now I would feel if it were to happen to me. How often do you check your breasts? Do you know how often you should check them? Now it’s just a waiting game, I know...
Paul Carella Gig at The Borderline – Living With Ehlers-Danlos Syndrome Type 3
https://livingwithedsuk.wordpress.com/2015/08/15/paul-carella-gig-at-the-borderline
Living With Ehlers-Danlos Syndrome Type 3. And everything that goes with it – Raising Awareness #zebrastrong. Paul Carella Gig at The Borderline. August 15, 2015. August 14, 2015. It’s the home grown talent that needs our support on the UK Country Music scene, they are all amazing, talented and worth traveling to see. Paul is due to be at the Bull’s Head in Barnes, London tonight, tickets are 8 in advance or 10 on the door, do make the effort he’s well worth a look😉. Silent Sunday – 16th August. And eve...
Hard Decisions – Living With Ehlers-Danlos Syndrome Type 3
https://livingwithedsuk.wordpress.com/2015/08/14/hard-decisions
Living With Ehlers-Danlos Syndrome Type 3. And everything that goes with it – Raising Awareness #zebrastrong. August 14, 2015. August 14, 2015. In Ehlers Danlos Syndrome. My lunch arrived and it was a case of not wanting to eat in case I jeapordised any procedure they may want to do at any point that day. It had been two hours since the PALS lady had been to see me, midday was my cutoff so I gave her a call and asked what should I do? She asked had Zoe been to see me, no! I didn’t know! They felt there w...
Disclosure Policy – Living With Ehlers-Danlos Syndrome Type 3
https://livingwithedsuk.wordpress.com/disclosure-policy
Living With Ehlers-Danlos Syndrome Type 3. And everything that goes with it – Raising Awareness #zebrastrong. These are written by friends, often on a topic important to them, and have either been written because I asked them to guest post on my blog, or because they asked me if they could. Done because I love and support the blogger and am happy to promote whatever it is they are talking about. No money has changed hands, just love. Thanks to @mummybarrow for allowing me to borrow her disclosure policy.
Living With Ehlers-Danlos Syndrome Type 3 – Page 2 – and everything that goes with it – Raising Awareness #zebrastrong
https://livingwithedsuk.wordpress.com/page/2
Living With Ehlers-Danlos Syndrome Type 3. And everything that goes with it – Raising Awareness #zebrastrong. July 11, 2016. June 20, 2016. In Ehlers Danlos Syndrome. I had been plotting this weekend for some time with Katie, so poor Andrew had been completely in the dark. All he knew was he had to keep the date clear! Wembley sort it out, one rule for one on the phone and then one for the other when you arrive? What a fantastic day Fathers Day had been though. Weather Related Aches & Pains. July 9, 2016.
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Learning How to Live – Awakening to delightful living.
Learning How to Live. Awakening to delightful living. September 22, 2017. September 22, 2017. It’s the first day of fall, after what was quite the long summer break. I hope you all are well! I am guessing most of you are in the swing of things as far as schooling and activities and all that go, I know we are here at the Malucci home. Also: my boys are excited about football season). My daughter is very much hoping for a sister, while the boys think it would be a lot of fun to add to the boy team. We ...
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Escribir para recordar, rememorar lo vivido. Miércoles, 7 de mayo de 2014. Tengo rabia. Siento que no es justo todo esto, hasta cuando tendré que esperar por una oportunidad para mi camino, a quién mas le golpeo una puerta? Dónde encontrare o me encontrara aquella puerta abierta para mi sustento? Necesito salvar mi vida, salir de este letargo eterno, de este movimiento sin sentido, ya no se ni lo que digo. Necesitaba desahogarme aunque le gritara al sin sentido. Enviar por correo electrónico. Escuche a m...
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one POsiTive thought at a time | learning how to live with POTS one day at a time
One POsiTive thought at a time. Learning how to live with POTS one day at a time. Florida= beaches… right? January 11, 2014. Sorry I have not updated recently. Had no news really and was having some rough times. It seems as though all I do is lay here and have all these symptoms come over me. Come to find out, everything I am feeling is a symptom of POTS… oh joy. Even if all I can do is lay on the beach, I mean what is wrong with that right? So there is my long awaited up date! Till next time, take care!
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