Levon is a fraternal twin and was born in August of 2009. Levon was diagnosed with a very rare and difficult disorder called MECP2 Duplication Syndrome in February of 2012. He is non-verbal and just recently started walking independently. His laughter is infectious and his smile lights up a room. He is our inspiration. This site is about our "project of love for our son" which is called "Levon's Light". FOLLOW US ON FACEBOOK:.
http://www.levonslight.com/
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:: Levon's Light :: | levonslight.com Reviews
https://levonslight.com
Levon is a fraternal twin and was born in August of 2009. Levon was diagnosed with a very rare and difficult disorder called MECP2 Duplication Syndrome in February of 2012. He is non-verbal and just recently started walking independently. His laughter is infectious and his smile lights up a room. He is our inspiration. This site is about our "project of love for our son" which is called "Levon's Light". FOLLOW US ON FACEBOOK:.
levonslight.com
:: Levon's Light ::
http://www.levonslight.com/about.html
But it doesn't have to be this way. Represents the donation of $401.00 from the families of 200 boys and girls, by April 1st 2012. One hundred percent of these funds will go towards a potentially life changing experiment ready to begin at the Baylor College of Medicine headed by Huda Zoghbi. With funding in place, the experiment aims to REVERSE this syndrome in a mouse model. To donate to The 401 Project please go to:. For more information about the reversal please read:. MECP2 Duplication Syndrome Fund.
:: Levon's Light ::
http://www.levonslight.com/join.html
Will be a full length feature film about the hope that comes from a tragic diagnosis like MECP2 Duplication Syndrome. MECP2 Duplication Syndrome is a rare neurological disorder that generally presents with missed milestones, inability to walk, talk, crawl, chronic repository infections and sometimes early death. By exposing Levon's daily life and our journey, we are learning how to cope, love and we've been inspired to help people living with chronic illness through our film. FOLLOW US ON FACEBOOK:.
:: Levon's Light ::
http://www.levonslight.com/theproject.html
Levon's Light A project of love for our son. A film about Levon, his journey and MECP2 Duplication Syndrome. A huge "Thank you" to everyone for your generous donations, love, and support. We couldn't have done this with out you!
:: Levon's Light ::
http://www.levonslight.com/ourson.html
Levon was born in August of 2009. He is a fraternal twin and is affected by MECP2 Duplication Syndrome. His brother, Maceo is not. Levon is pure joy, laughter and absolute light - but he struggles to do even the simplest things that his twin brother can do. Then at eight months, we got Levon into "early start "and "early intervention" and soon we had him in: twice a week physical therapy, twice a week occupational therapy, once a week with an "in-home" teacher and once a week speech therapy. It was a...
:: Levon's Light ::
http://www.levonslight.com/videos.html
MECP2 Duplication Syndrome is Reversible! In November of 2015, our community recieved some very exciting news! It was published - that researchers at the Baylor College of Medicine, led by Dr. Huda Zoghbi, have reversed MECP2 Duplication Syndrome in adult symptomatic mice using antisense oligonucleotide (ASO) gene therapy! We are very optimistic that a cure is on the horizon for MECP2 Duplication Syndrome, and it's sister syndrome, Rett Syndrome. WE WILL NOT GIVE UP! With Love,The Mendoza Family. Many of...
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Milo's Journey | About Milo | de novo ANKRD11 & KDM1A gene mutations with features of KBG & Kabuki syndrome
http://milosjourney.com/about.html
A little about Milo. Book He is a sweet, gentle, smart, curious and sociable boy who loves going to school, hanging out with his brothers and playing. What made him this way? We don't know. His genetics team at UCSF suspected that it could be attributed to changes in the ANKRD11 gene and the KDM1A gene, resulting in a condition that is a little bit like KBG Syndrome and a little like Kabuki Syndrome, but not very typical of either. An article in the American Journal of Medical Genetics. Therapies that wi...
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levons — Графический дизайн. Якутск.
Меня зовут Пётр levons Поротов. Я занимаюсь и увлекаюсь графическим дизайном с 2005 года. Всегда готов помочь вам в создании визуальной оболочки для ваших идей. Мисс Республика Саха (Якутия). Этапы создания, интересные факты, фан-арты и многое другое. Разработка афиши фильма Сибэкки. Разработать логотип для магазина автозапчастей. Среди моих клиентов крупные и небольшие компании, государственные учреждения и частные лица. Лучшие хобби это те, что уводят нас дальше всего от основной работы".
Levon Séjour | Location d'appartements à Erevan – Arménie
Louer une chambre d’hôtel à Erevan? En plein coeur de la capitale arménienne. Des appartements situés en plein centre ville. Spécialisé dans la location de vacances en Arménie à Erevan. LévonSéjour vous propose de louer différents appartements de luxe d’une surface de 90m2 à Erevan. A ce prix, rien de plus facile pour profiter d’un bon séjour à Erevan. À partir de 60 /nuit. Et par appartement pour 4 personnes! Selon la durée et la saison! Logez-vous à moindre coût. La formule pour visiter l'Arménie à deux.
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:: Levon's Light ::
Levon is a fraternal twin and was born in August of 2009. Levon was diagnosed with a very rare and difficult disorder called MECP2 Duplication Syndrome in February of 2012. He is non-verbal and just recently started walking independently. His laughter is infectious and his smile lights up a room. He is our inspiration. This site is about our "project of love for our son" which is called "Levon's Light". FOLLOW US ON FACEBOOK:.
Blog de LeVoNsNoSvERreS - LeVoNs nOs vErReS A La sAnTe De cEuX QuI N'OnT RiEn bu ... aS De tREfLe - Skyrock.com
Mot de passe :. J'ai oublié mon mot de passe. LeVoNs nOs vErReS A La sAnTe De cEuX QuI N'OnT RiEn bu . aS De tREfLe. Salut à toi ô mon frère. Salut à toi peuple khmer. Salut à toi l'Algérien. Salut à toi le Tunisien. Salut à toi Bangladesh. Salut à toi peuple grec. Salut à toi petit Indien. Salut à toi punk iranien. Salut à toi rebelle afghan. Salut à toi le dissident. Salut à toi le Chilien. Salut à toi le p'tit Malien. Salut à toi le Mohican. Salut à toi peuple gitan. Salut à toi l'Ethiopien. Salut aus...
Son Profil - levonsnotverre - Skyrock.com
Mot de passe :. J'ai oublié mon mot de passe. La position des blocs a été enregistrée. Petite bretonne de 22 ans. Lundi 14 octobre 2013 07:55. Tu cherches quoi ici? Mer 16 avril 2008. Situation : En Couple. Ici pour : Me faire des potes. Signe astro : Poisson. Poster sur mon blog.
Ministère "Levons nous et bâtissons" | "Let us arise and build" ministry
Liens d'accès rapide. A propos du pasteur. GUILGAL 2014 - Séminaire dynamique and Concert de gospel du 30 mai au 01 juin 2014. Visualiser et télécharger l'invitation. Télécharger le plugin depuis le site d'Adobe. Dernier vendredi du mois. Veillée de prière 23:00. Contactez-nous afin de connaître l'adresse. A propos de nous. A propos du pasteur. 12 Rue Henri Rol Tanguy. F: 00 33 (0)951 297 122.
Levon's Obsessions | A gal whose obsessions lie within fat, sugar, carbs, caffeine, and beverages that could strengthen the heart or seal up a womb.
A gal whose obsessions lie within fat, sugar, carbs, caffeine, and beverages that could strengthen the heart or seal up a womb. Jon Bon Jovi Soul Kitchen. An NYC based initiative I just learned about recently by a good friend, both inspired and intrigued me. The $25 I donated on their site is said to have fed 15 people. See how that works? He has a few programs that fall under the umbrella. One of which is his restaurant – Jon Bon Jovi Soul Kitchen. Is a very very long way. Awesome to say the least.
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