alfiemilne.org.uk
Tag Events - News & Events
http://www.alfiemilne.org.uk/news/tag/events
Team Alfie joins Aberdeen and Deeside Kiltwalk. November 17th, 2014 Posted in Fundraising. Alfie’s Trust is excited to be entering a team for the Aberdeen and Deeside Kiltwalk in June 2015. For more information about the event go to. Http:/ www.thekiltwalk.co.uk/events-fundraising/events/29-aberdeen-kiltwalk-2015. Registration is now open, please contact. On your marks and get set to join Team Alfie. September 29th, 2014 Posted in Fundraising. Balmoral Run 2013 Update. February 20th, 2013 Posted in Update.
alfiemilne.org.uk
Rare Disease Day 2015.... Did you know? - News & Events
http://www.alfiemilne.org.uk/news/2015/rare-disease-day-2015-did-you-know
Rare Disease Day 2015…. Did you know? February 27th, 2015 Posted in Update. The 28th of February marks Rare Disease Day 2015, which aims to increase awareness of diseases like Alfie’s. Did you know:. 1 in 17 people will be affected by a rare disease at some point in their life. This amounts to approximately 3.5 million people in the UK. 75% of rare diseases affect children and 30% of rare disease patients will die before their 5th birthday. There are over 6,000 recognised rare diseases. Alfie Milne Trust...
lymphangioma.net
リンク｜リンパ管疾患情報ステーション
http://www.lymphangioma.net/link.html
lymphangiomatosissupport.org
Contact Me
http://www.lymphangiomatosissupport.org/id3.html
Pictures of my disease. My Symptoms, Diagnosis, and Treating Physicians. Please contact me, write your story, or just chat with other Lymphangiomatosis patients here. In this area, we might include links to other web sites that have a similar theme or mission as our organization. Lymphangiomatosis and Gorham's Disease Alliance. We're interested in hearing from you! Only way to contact me at this time is email and facebook. Sorry for any inconviences. Do you have comments or questions on My organization?
msts.org
Musculoskeletal Tumor Society, MSTS
http://www.msts.org/forThePatient/index.html
The National Cancer Institute. The American Cancer Society. AAOS - Your Orthopaedic Connection. The Bone and Cancer Foundation. Association of Cancer Online Resources. Desmoid Tumor Research Foundation. Orthopaedic Research and Education Foundation. American Academy of Orthopaedic Surgeons. The Journal of Bone and Joint Surgery. National Institutes of Health. Connective Tissue Oncology Society. Hemi-Pelvectomy and Hip Disarticulation Support Page. Lymphangiomatosis and Gorham s Disease Alliance.
alfiemilne.org.uk
Alfie update.... - News & Events
http://www.alfiemilne.org.uk/news/2015/alfie-update
January 20th, 2015 Posted in Alfie. Alfie continues to do well on his current treatment regime and we are working hard to maintain his mobility which has deteriorated over the last year. To which Santa replied, ‘I love them all the same’. Priceless. Meeting with the Stars in Lapland. Having followed Alfie’s life and progress over the past 6 years with my work on the Deeside Piper, I think it’s that cheery wee smile, despite his difficulties, which keeps the rest of us going! A Night at the Oscars.
alfiemilne.org.uk
Alfie - News & Events
http://www.alfiemilne.org.uk/news/alfie
Alfie’s Trust meets LGDA in Florida. November 25th, 2015 Posted in Alfie. Look who we met in Florida? Jack Kelly, President of the LGDA US, catches up with Alfie. Trip to Great Ormond Street Hospital. November 10th, 2015 Posted in Alfie. Thank you to everyone that asks how Alfie is doing. Here’s a little update:. I made the mistake of telling him he could have anything he wanted (I may regret saying that). Look who won…76 sweeties and an orangutan. Happy 60th Birthday Stephen Thompson. Thank you so much ...
lgdaregistry.patientcrossroads.org
International LGDA Patient Registry
https://lgdaregistry.patientcrossroads.org/index.php
International LGDA Patient Registry. Join the LGDA Registry. Help researchers worldwide unlock the mysteries of lymphangiomatosis and Gorham's disease. Complete your profile and join the LGDA in reaching for a cure! The Lymphangiomatosis and Gorham's Disease Alliance (LGDA). Established in collaboration with the. National Center National Center for Advancing Translational Sciences (NCATS), National Institutes of Health as part of the. Patient Registry and Data Repository (GRDR).
alfiemilne.org.uk
Keep on running...........Brighton Marathon here we come. - News & Events
http://www.alfiemilne.org.uk/news/2015/keep-on-running-brighton-marathon-here-we-come
Keep on running……….Brighton Marathon here we come. March 11th, 2015 Posted in Fundraising. If you would like to sponsor Beata, please click on the link below to take you to her fundraising page:(http:/ uk.virginmoneygiving.com/fundraiser-web/fundraiser/showFundraiserProfilePage.action? Well done Beata. We at Alfie’s Trust really appreciate your hard work and commitment. The 2nd International Medical Conference……. Meet Hollie and her team of supporters. Marathon man to go an extra mile for Alfie.
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