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Liam's Journey - HLH Warrior

HLH, Children with HLH, Parents with kids that have HLH

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Woo●●●and , Washington, 98674

United States

360●●●536
Ma●●●●●●●●@aol.com

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PO ●●●913

Woo●●●and , Washington, 98674

United States

360●●●536
Ma●●●●●●●●@aol.com

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Liam's Journey - HLH Warrior | liamsjourney.com Reviews

https://liamsjourney.com

HLH, Children with HLH, Parents with kids that have HLH

INTERNAL PAGES

liamsjourney.com liamsjourney.com
1

Liam's Journey - Children with HLH

http://www.liamsjourney.com/Children%20with%20HLH.html

Click on a childs' name above to read their HLH stories. Started March 1, 2011. Up Date April 5, 2011.

2

Liam's Journey - HLH Warrior

http://www.liamsjourney.com/index.html

Started March 1, 2011. Last Up Date Sept. 2, 2011.

3

Liam's Journey - Bone Marrow Donor Info

http://www.liamsjourney.com/Bone%20Marrow%20Info.html

BONE MARROW DONOR INFO. ALL INFORMATION BELOW IS FROM THE "BE THE MATCH REGISTRY" FOR COMPLETE INFORMATION CLICK ON THE LINKS BELOW! Bone Marrow Registry Info. Http:/ www.marrow.org/. Donate Umbilical Cord Blood. Parent's Guide to Cord Blood. Http:/ www.parentsguidecordblood.org/. Http:/ www.marrow.org/JOIN/Join Now/join now.html. YOU COULD BE THE ONE TO SAVE A LIFE! Facts about Joining the Registry. Medical Guidelines for Joining the Registry. Myths and Facts about Bone Marrow Donation.

4

Liam's Journey - Fundraising for Liam

http://www.liamsjourney.com/Fundraising%20for%20Liam.html

The family and friends of our little warrior, Liam Smith are uniting to raise support in helping him and his family as they fight to overcome Liam’s rare, but life threatening disease. We hope you will join us. You can donate directly to Liam and his Family at any. Bank of America – for Liam R. Smith. Or by Mail to: Liam R. Smith – P.O. Box 913 – Woodland, WA 98674. Thank you for the care you’ve demonstrated by taking the time to read this, and thank you for helping Liam and his family.

5

Liam's Journey - Liam's HLH Blog

http://www.liamsjourney.com/Liam's%20Blog.html

For the time being, to get back to the Liam's home page, click on the back button on your browser. Subscribe to Liam's HLH Journey by Email. Enter your email address below:. Read how to Activate Your Email Subscription). Activate Your Email Subscription. You will receive a verification message once you submit this form. FeedBurner activates your. Subscription to “Liam's HLH Journey” once you respond to this verification message. You. Thank you for following Liam's Journey. Started May 28, 2011.

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LINKS TO THIS WEBSITE

miabellegillier.blogspot.com miabellegillier.blogspot.com

miabelle and noelie: 9/29/13 - 10/6/13

http://miabellegillier.blogspot.com/2013_09_29_archive.html

Friday, October 4, 2013. Day 700/700: May the yellow jersey go to all the HLH Angels and Warriors out there. Yellow Jersey is defined by my friend Wiki as, in the Tour de France (most recognized cycling event in the world), " the leader of the general classification wears the. Http:/ en.wikipedia.org/wiki/Yellow jersey. Courtesy of the Matthew and Andrew Akin Foundation. But despite these limitations at least one of us made it to the finish line. Oops! Bolt (Justin) leads the pack to the finish line.

miabellegillier.blogspot.com miabellegillier.blogspot.com

miabelle and noelie: Be a Donor

http://miabellegillier.blogspot.com/p/bone-marrow-drive.html

Help Us find Donors for another baby! Many of our friends, family, colleagues and complete strangers have reached out to us asking "What can we do? How can we help? We all feel helpless and powerless in this horrific situation and just sitting around waiting for a stroke of luck is just not an option. As with every patient with HLH: the clock is ticking! Until a cord blood donor was found, other children don't have that option! Finding an ideal bone marrow. You have the power to give that second chance!

hlhjournal.com hlhjournal.com

Diagnosis | HLH Journal

https://hlhjournal.com/2010/03/11/diagnosis

March 11, 2010. We learned that Zoe is likely to have HLH on Wednsday March 10th. The hematologist (Dr. M) who made the diagnosis came into the room around 7pm to talk to us and presented the following information:. Zoe currently presents 4 out of 8 signs of the disease, and as Dr. M put it, “half” of two other signs; he feels given this and his analysis that we have about a 95% chance that the disease is HLH. There is a 5% chance (these are always estimates of course) that she has Neuroblastoma. This is...

hlhjournal.com hlhjournal.com

Tempus Fugit | HLH Journal

https://hlhjournal.com/2012/05/23/tempus-fugit

May 23, 2012. Summer is here, and it’s hard to believe so much time has passed since our last update. Sorry! As time passes it becomes harder and harder to revisit the memories of our experiences and write about them here. In time I’m sure that will get easier. We have had some ongoing issues with her skin, many of which have been documented here, but until recently we have had little understanding of the whys of what’s been going on. We’ve thought that it could be HLH rashes, sun sensiti...A few weeks b...

miabellegillier.blogspot.com miabellegillier.blogspot.com

miabelle and noelie: Doing Good feels Great: The highpoint of the Hope Gala of the Icla Da Silva Foundation

http://miabellegillier.blogspot.com/2013/11/doing-good-feels-great-highpoint-of.html

Thursday, November 14, 2013. Doing Good feels Great: The highpoint of the Hope Gala of the Icla Da Silva Foundation. Now that I have "recovered" from the HLH700 of the Akin Foundation (crazy! The Ronald McDonald Gala and the fun Hope Gala of the Icla Da Silva Foundation I wanted to get back to my blog which I have shamefully ignored. These past months have been amazing, not just because sitting on a saddle for 7 hours is such good feeling (try it! We even got a tax deduction, what more do you want? Http:...

miabellegillier.blogspot.com miabellegillier.blogspot.com

miabelle and noelie: History

http://miabellegillier.blogspot.com/p/medical-history.html

This was the EMERGENCY ROOM. Shouldn't it go without saying that these were emergent cases? It was at that moment that Vanessa contacted me in NY and had me book a flight home for her and Miabelle. The doctors assured us that she would be well monitored, but that unfortunately, given the latest findings, it was a necessary evil. Additional updates will be posted in the Daily Blogs. More to come. Subscribe to: Posts (Atom). A Good Feeling Must See. Get an email update when blog is updated. Day 3 120 Miles...

miabellegillier.blogspot.com miabellegillier.blogspot.com

miabelle and noelie: 8/24/14 - 8/31/14

http://miabellegillier.blogspot.com/2014_08_24_archive.html

Thursday, August 28, 2014. Say something, I'm giving up on you. And I am sorry I couldn't get to you." I am not sure what to say. it has been so long. Are you still there? Not sure where my inspiration or energy went. Did I lose my mojo? Have the good times returned? Has the despair been lifted? Just look at Miabelle's face, so content to be held by Libby. This is what we hope for: knees are growth related and you are now at 100% donor cells. This is what we want to avoid: knees are indeed an issue a...

miabellegillier.blogspot.com miabellegillier.blogspot.com

miabelle and noelie: 11/10/13 - 11/17/13

http://miabellegillier.blogspot.com/2013_11_10_archive.html

Thursday, November 14, 2013. Doing Good feels Great: The highpoint of the Hope Gala of the Icla Da Silva Foundation. Now that I have "recovered" from the HLH700 of the Akin Foundation (crazy! The Ronald McDonald Gala and the fun Hope Gala of the Icla Da Silva Foundation I wanted to get back to my blog which I have shamefully ignored. These past months have been amazing, not just because sitting on a saddle for 7 hours is such good feeling (try it! We even got a tax deduction, what more do you want? Http:...

miabellegillier.blogspot.com miabellegillier.blogspot.com

miabelle and noelie: Day 700/700: May the yellow jersey go to all the HLH Angels and Warriors out there

http://miabellegillier.blogspot.com/2013/10/day-700700-may-yellow-jersey-go-to-all.html

Friday, October 4, 2013. Day 700/700: May the yellow jersey go to all the HLH Angels and Warriors out there. Yellow Jersey is defined by my friend Wiki as, in the Tour de France (most recognized cycling event in the world), " the leader of the general classification wears the. Http:/ en.wikipedia.org/wiki/Yellow jersey. Courtesy of the Matthew and Andrew Akin Foundation. But despite these limitations at least one of us made it to the finish line. Oops! Bolt (Justin) leads the pack to the finish line.

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