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Life on Mystery LaneRaising a child with Congenital Unilateral Perisylvian Syndrome, Polymicrogyria and Epilepsy
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Raising a child with Congenital Unilateral Perisylvian Syndrome, Polymicrogyria and Epilepsy
http://lifeonmysterylane.blogspot.com/
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Life on Mystery Lane | lifeonmysterylane.blogspot.com Reviews
https://lifeonmysterylane.blogspot.com
Raising a child with Congenital Unilateral Perisylvian Syndrome, Polymicrogyria and Epilepsy
Life on Mystery Lane: October 2014
http://lifeonmysterylane.blogspot.com/2014_10_01_archive.html
Life on Mystery Lane. Raising a child with Congenital Unilateral Perisylvian Syndrome, Polymicrogyria and Epilepsy. Tuesday, October 28, 2014. Times are a Changin'. Lots of things are starting to change here at Fort Klim (as I like to call our house). Well at least ideas of change are starting to form. I’ve said before I am not much a change person, I just don’t like it. What I’m realizing lately is that while change sucks, the anticipation of change is even more sucky. Jackson has always been a big kid.
Life on Mystery Lane: January 2015
http://lifeonmysterylane.blogspot.com/2015_01_01_archive.html
Life on Mystery Lane. Raising a child with Congenital Unilateral Perisylvian Syndrome, Polymicrogyria and Epilepsy. Wednesday, January 7, 2015. The Best Christmas Present. We have returned home from our Christmas vacation to Colorado and Florida. It was as peaceful and relaxing as I was hoping it would be. We managed to escape germ infestations on the plane and came and went as healthy as can be. All in all it was a fabulous vacation and for the first time ever I was sad to see the kids go back to school.
Life on Mystery Lane: March 2015
http://lifeonmysterylane.blogspot.com/2015_03_01_archive.html
Life on Mystery Lane. Raising a child with Congenital Unilateral Perisylvian Syndrome, Polymicrogyria and Epilepsy. Wednesday, March 11, 2015. When I was in 3. Grade I came home from school one day and my Mom patted me on the head and said “Tell your Dad I left him.”. And off she went. My parents were both alcoholics and our home life was, well, grim. I remember thinking I didn’t want my Mom to leave. I also remember thinking that maybe there would finally be some peace in our house. The first thing we d...
Life on Mystery Lane: February 2015
http://lifeonmysterylane.blogspot.com/2015_02_01_archive.html
Life on Mystery Lane. Raising a child with Congenital Unilateral Perisylvian Syndrome, Polymicrogyria and Epilepsy. Thursday, February 12, 2015. The past month and a half has gone by so quickly. It is hard to wrap my head around all the changes that are happening in our home and lives right now. We have definitely started a new chapter while additional new chapters await in the sidelines. Daniel moved out of our home. It was the day I flew to Seattle for 3 days of meetings and a visit to the Capitol.
Life on Mystery Lane: Annoyed and Proud
http://lifeonmysterylane.blogspot.com/2015/04/annoyed-and-proud.html
Life on Mystery Lane. Raising a child with Congenital Unilateral Perisylvian Syndrome, Polymicrogyria and Epilepsy. Wednesday, April 22, 2015. I will obviously never forget the day we sat in the doctor’s office and got Jackson’s diagnosis. In many ways it was all a blur, in others there was so much clarity. One thing that always stuck out in my mind was when the doctor said Jackson may never walk. That little comment was one thing I held onto that day. Yup, be careful. Again, time passed. Now our once st...
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Caring for Callie: How it all went down
http://calliebloggie.blogspot.com/2011/01/how-it-all-went-down.html
A mommy's journal about her very special baby girl. Wednesday, February 2, 2011. How it all went down. I remember thinking this seemed like an over-reaction, but okay. I called Allen at work to let him know and got the kids together. Believe it or not, this was our first trip to the ER. I don't know how it is possible that we had a nearly 4 year old boy and never spent time in the ER, but I guess we were lucky (until this point). This is Callie just before she was diagnosed. When things were perfect.
Caring for Callie: March 2014
http://calliebloggie.blogspot.com/2014_03_01_archive.html
A mommy's journal about her very special baby girl. Friday, March 7, 2014. We have had quite a winter here in Northern Virginia! By the standards of my friends farther north, it has been nothing, but VA is not very good at dealing with cold weather and snow removal. We live in the more densely populated eastern part of our county and often get snow days due to the conditions of the roads in the more rural western region. The other day was our 13th snow day! Callie did great in the snow this year!
Caring for Callie: April 2014
http://calliebloggie.blogspot.com/2014_04_01_archive.html
A mommy's journal about her very special baby girl. Sunday, April 20, 2014. Subscribe to: Posts (Atom). This is a mommy's journal about her very special baby girl. Callie has a rare neurological disorder called bilateral perisylvian polymicrogyria (PMG). She has also experienced infantile spasms and has been diagnosed as failure to thrive. Callie currently battles seizures, eosinophilic esophagitis (EoE) and apraxia of speech, and has a G tube. Life on Mystery Lane. Didn't See It Coming.
Caring for Callie: Trampoline
http://calliebloggie.blogspot.com/2012/09/trampoline.html
A mommy's journal about her very special baby girl. Monday, September 24, 2012. Thank you for the trampoline, Miss Angela! It brought tears to my eyes too. So sweet to see her doing so well. On September 24, 2012 at 7:45 PM said. Such a big, strong girl! On November 8, 2012 at 1:25 PM said. I just love this! So proud of her:)! Subscribe to: Post Comments (Atom). If you would like to read from the beginning, here is how it all went down. Life on Mystery Lane. Didn't See It Coming. Pieces of the Reeses.
Caring for Callie: Apraxia Awareness Day
http://calliebloggie.blogspot.com/2013/05/apraxia-awareness-day.html
A mommy's journal about her very special baby girl. Tuesday, May 14, 2013. Today is Apraxia Awareness Day! Apraxia is among the most severe speech and communication problems in children. Affected children have difficulty planning and producing the precise, highly refined and specific series of movements of the tongue, lips, jaw, and palate that are necessary to produce clear, intelligible speech. I recently joined a Facebook Group for parents of children with apraxia which has over 10,000 members!
Caring for Callie: September 2013
http://calliebloggie.blogspot.com/2013_09_01_archive.html
A mommy's journal about her very special baby girl. Thursday, September 19, 2013. Callie started her second year of special ed preschool at our home elementary school. I really like the fact that she and Owen are in the same location and their classrooms are right down the hall from each other. This year Callie is in an afternoon class five days a week. A big yellow school bus picks her up and drops her off right in front our our home. She loves it! Can you believe how grown up she looks in this picture?
Caring for Callie: Callie at 3
http://calliebloggie.blogspot.com/2012/12/callie-at-3.html
A mommy's journal about her very special baby girl. Friday, December 7, 2012. I can't believe our baby girl turned 3 this past month. Like I did 6 months ago. I thought it would be good to recap where she is in different areas. Stats: Callie is now just over 35 inches tall (10%) and weighs 28 pounds (25%). Her BMI is 50%, which really great. Gross motor skills: As you know, Callie started walking. Although her gait remains abnormal. Her legs still hyper-extend when she does not have her AFOs. Was correct...
Caring for Callie: October 2013
http://calliebloggie.blogspot.com/2013_10_01_archive.html
A mommy's journal about her very special baby girl. Thursday, October 31, 2013. Happy Halloween from Princess Callie! Wednesday, October 9, 2013. Subscribe to: Posts (Atom). If you would like to read from the beginning, here is how it all went down. Life on Mystery Lane. Didn't See It Coming. Pieces of the Reeses. Upped the dose again. 21 Days of AAC Challenge: 2016. Fighting Monsters with Rubber Swords. There was an error in this gadget. Flower Image by Dapino.
Caring for Callie: Return of Seizures
http://calliebloggie.blogspot.com/2013/10/return-of-seizures.html
A mommy's journal about her very special baby girl. Wednesday, October 9, 2013. On October 15, 2013 at 10:51 PM said. Im so sorry to hear about the return of the seizures. I just hate them so much. Luke did really well on Keppra for quite awhile w/ no side effects. Big hugs to you and Callie. Mel. Subscribe to: Post Comments (Atom). If you would like to read from the beginning, here is how it all went down. Life on Mystery Lane. Didn't See It Coming. Pieces of the Reeses. Upped the dose again.
Caring for Callie: Bittersweet Goodbye
http://calliebloggie.blogspot.com/2013/07/bittersweet-goodbye.html
A mommy's journal about her very special baby girl. Friday, July 12, 2013. Miss Zeinab was with us on the weekends for nearly the whole two years. She taught Callie her dance moves and spoiled Callie by letting her use her phone to play games and watch cartoons. They were also known to party into the night on weekends. We often heard giggles and laughter way later than we should have. :). Her most recent growth is definitely due to the introduction of a blendarized diet (which I wrote about here. This is...
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Life On My Plate | Eating and drinking, musing and meandering, through this journey called Life.
Life On My Plate. Eating and drinking, musing and meandering, through this journey called Life. Where I’m Eating. 2014 – The Year I Took 12 Trips in 12 Months. Life On My Plate. December 31, 2014. When you want something, all the universe conspires in helping you achieve it! 8211; Paulo Coelho. 2014 is coming to a close, and while I most certainly cannot believe another year has flown by so rapidly, when I pause to reflect on these twelve months, I’m filled with nothing but pride. Continue reading →.
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Living life on a small ranch, taking care of cows and any stray animal that shows up, gardening, cooking and enjoying grandchildren and family. August 30, 2011. Even in the midst of hotness, dryness and death, you can find little bits of new life. You see small blades of green grass after watering and still see a few vegetables from the garden producing. It was almost a shock to me, however, when I noticed a new baby calf just after it was born. So, it was an eventful morning watching the new life emerge...
Blog de lifeonmyrainbow - ~~ WeLcOmE On My LitTlE rAiNbOw ~~Ne mOntre pas un arc en ciel du dOigt sinOn un ange mOurra~ - Skyrock.com
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lifeonmysterylane.blogspot.com
Life on Mystery Lane
Life on Mystery Lane. Raising a child with Congenital Unilateral Perisylvian Syndrome, Polymicrogyria and Epilepsy. Thursday, August 11, 2016. Didn't See It Coming. When I left the blog last Kevin had quit his job and we were heading into summer. Now, summer is almost over and Kevin has a new job! Oh and we are leaving Spokane! Bet you didn’t see that coming. Kevin’s hobby for years now has been the stock market and investing. He’s nothing short of obsessed. He had only been there for a year. In an effor...
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Life on My World | Where I Make the Rules, and You Live with Them.
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