littlelilysday.blogspot.com
Little Lily's Day: Family Functionality
http://littlelilysday.blogspot.com/2011/10/family-functionality.html
Tuesday, October 11, 2011. I'm out of sorts this week, and it's my own fault. Lily had a rough start to her week last Monday (Fun and Games with Law Enforcement) but we had a good session with her therapist on Tuesday and moved into a more positive mental space. So what's the problem? So I have some mixed feelings. On the up side, Lily did an amazing job of holding it together in a highly stressful situation. I'm also really pleased that Lily and her brother bonded through this, supporting each o...Then ...
littlelilysday.blogspot.com
Little Lily's Day: January 2012
http://littlelilysday.blogspot.com/2012_01_01_archive.html
Monday, January 9, 2012. And Downs . . . Lily had a rough time last week, after a nice Christmas. I'm still fighting the desire for an instant and complete return to my idealized version of family life, even knowing how ludicrous that is! But writing it out helps me maintain some perspective, so here goes. In the end, we settled in at home and Lily returned to school this morning without any negative drama. We get a gold star for that, as it is a group effort. Yay us! Links to this post. The centerpiece ...
littlelilysday.blogspot.com
Little Lily's Day: Progress Report
http://littlelilysday.blogspot.com/2012/03/progress-report.html
Thursday, March 8, 2012. It's been a very busy couple of months since I last posted. Lily settled in to her new semester amazingly well. Really. I expected difficulty. Transition is so hard for anyone, and especially Lily. She has a new schedule, new classes, new teachers, new classmates. Just when she finally was functioning well in the old classes. And she handled it really well. I just can't say that enough. She's become a champ. And the last several weeks have been so interesting! In spite of my grat...
littlelilysday.blogspot.com
Little Lily's Day: May 2012
http://littlelilysday.blogspot.com/2012_05_01_archive.html
Friday, May 18, 2012. Wow - wow - wow! I can hardly believe we're living a completely different reality. Amazed, grateful, humbled, stunned . . . Lily is a different kid, so much more like her exhuberant self, but so much more mature. She's sweet again. Kind to her brother, even when he resists, is unkind to her. Fun and loving with me. Funny, beautiful, smart, aware. It's breathtaking. She's getting great grades and getting along with her peers. She's proud of herself. The other day he wanted to stay ho...
littlelilysday.blogspot.com
Little Lily's Day: April 2011
http://littlelilysday.blogspot.com/2011_04_01_archive.html
Monday, April 25, 2011. Another Wakeup Call; Hello, is anybody home? Hello Queen of denial here. How many ways can I spin the incoming data so that it looks how I want it to? Lily has returned to school, and I have bent myself into a super pretzel, making accommodations and demanding accommodations from the school in order to try to keep Lily stable. Some of that was perfectly reasonable. But perhaps not so realistic. I have to believe Lily can function better than she is now. That she can participat...
littlelilysday.blogspot.com
Little Lily's Day: And Downs . . .
http://littlelilysday.blogspot.com/2012/01/and-downs.html
Monday, January 9, 2012. And Downs . . . Lily had a rough time last week, after a nice Christmas. I'm still fighting the desire for an instant and complete return to my idealized version of family life, even knowing how ludicrous that is! But writing it out helps me maintain some perspective, so here goes. In the end, we settled in at home and Lily returned to school this morning without any negative drama. We get a gold star for that, as it is a group effort. Yay us! January 12, 2012 at 11:07 PM. Hopefu...
littlelilysday.blogspot.com
Little Lily's Day: August 2011
http://littlelilysday.blogspot.com/2011_08_01_archive.html
Friday, August 26, 2011. We are busily interacting with a new care team, and getting a very different perspective. The new team, consisting of a therapist as well as TBS therapists, a psychologist and soon, a new psychiatrist, are offering an amazing level of support. Our journey will be an uphill battle, but I'm holding out for greatly improved function for Lily and more balance for our family. Links to this post. Saturday, August 6, 2011. More good news is that we are scheduled to have therapeutic beha...
littlelilysday.blogspot.com
Little Lily's Day: October 2011
http://littlelilysday.blogspot.com/2011_10_01_archive.html
Tuesday, October 11, 2011. I'm out of sorts this week, and it's my own fault. Lily had a rough start to her week last Monday (Fun and Games with Law Enforcement) but we had a good session with her therapist on Tuesday and moved into a more positive mental space. So what's the problem? So I have some mixed feelings. On the up side, Lily did an amazing job of holding it together in a highly stressful situation. I'm also really pleased that Lily and her brother bonded through this, supporting each o...Then ...
littlelilysday.blogspot.com
Little Lily's Day: December 2011
http://littlelilysday.blogspot.com/2011_12_01_archive.html
Monday, December 26, 2011. Reasons to be Grateful. Our family had a lovely, peaceful Christmas, and I'm thinking about this past year and how much things have changed. The fall brought milestones that felt miraculous. Lily attended a dance party, and when I went in to pick her up, she was laughing, dancing, and holding hands with other kids. I can't even begin to express how meaningful that is. And she still will have times when she's overstimulated and needs space, or a quiet break. But she's easier...