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One day at a time..........

Friday, July 10, 2015. Here we are…. July 10, 2015, Anderson’s 9. Every year, it is hard to explain, but Anderson’s birthday is very very difficult for me. I usually cry for about 2 weeks before his birthday and 2 weeks after his birthday. Anderson had a pediatrician who once told me it was “ok”, having a special needs child is a grieving process that will continue the rest of my life. We will go thru the emotions of grieving over and over again. I can CLEARLY remember the month before Anderson’s 5.

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One day at a time.......... | lifewith4andchiari.blogspot.com Reviews

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Friday, July 10, 2015. Here we are…. July 10, 2015, Anderson’s 9. Every year, it is hard to explain, but Anderson’s birthday is very very difficult for me. I usually cry for about 2 weeks before his birthday and 2 weeks after his birthday. Anderson had a pediatrician who once told me it was “ok”, having a special needs child is a grieving process that will continue the rest of my life. We will go thru the emotions of grieving over and over again. I can CLEARLY remember the month before Anderson’s 5.

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One day at a time.......... | lifewith4andchiari.blogspot.com Reviews

https://lifewith4andchiari.blogspot.com

Friday, July 10, 2015. Here we are…. July 10, 2015, Anderson’s 9. Every year, it is hard to explain, but Anderson’s birthday is very very difficult for me. I usually cry for about 2 weeks before his birthday and 2 weeks after his birthday. Anderson had a pediatrician who once told me it was “ok”, having a special needs child is a grieving process that will continue the rest of my life. We will go thru the emotions of grieving over and over again. I can CLEARLY remember the month before Anderson’s 5.

INTERNAL PAGES

lifewith4andchiari.blogspot.com

1

One day at a time..........: Last Post

http://www.lifewith4andchiari.blogspot.com/2011/11/last-post.html

Monday, November 28, 2011. So, I was just realizing the last post on my blog was not a great one.in May. Whew.so much more to catch up on since that day. I am thinking I am going to try and blog a little bit to catch up on the last 6 months. Let me start with the additional diagnoses that Anderson rcvd. Since the 15 Q 13 microduplication. As I said in my 15Q post, we went to the geneticist b/c the neuro. Thought Anderson has mitochondria. The initial test for the mito. Was negative b/c most 15Q have mito.

2

One day at a time..........: Potty Break!!

http://www.lifewith4andchiari.blogspot.com/2010/06/potty-break.html

Monday, June 28, 2010. Here again with an update. After a morning session of therapy, Liz and Anderson head off to lunch.where Anderson proceeds to drag Liz into the bathroom and then goes #1 AND #2. It appears we have some real progress for 1 morning of work! I need to know about this program.seriously - it sounds amazing! And already I see progress for little A! June 28, 2010 at 12:05 PM. Subscribe to: Post Comments (Atom). To read our story from the beginning. Mylee Grace - Chiari friend.

3

One day at a time..........: Love and Listen

http://www.lifewith4andchiari.blogspot.com/2014/12/love-and-listen.html

Tuesday, December 2, 2014. I had to blog this so I would not forget the details of what has happened the past 12 days. The MANY "winks" I have received from God and his many angels. It has been very powerful and why I am sitting down to write this. Popo would say, "Depends on what day of the week you die! Popo was always the one saying something witty, funny, and sometimes inappropriate! Big Popo and Kathryn, Mima Sue and Popo Jim.Anna asleep in Big Popo's arms). It was now November 17th and Charlie was ...

4

One day at a time..........: Day One

http://www.lifewith4andchiari.blogspot.com/2009/11/day-one.html

Monday, November 16, 2009. It has been a lonely day without Chiefy around! Last night in the middle of the night I would wake up and instinctively I just listened for his breathing.as I've heard every night in the middle of the night for the past 8 years. Yet, it was silent. It saddened me. All day I kept waiting to see Chief at the front door when I opened it, or I went to the back French doors to let him in and he was not there.I was not "tripping" over him in the kitchen. The prayers were sweet. It wa...

5

One day at a time..........: Queen and King

http://www.lifewith4andchiari.blogspot.com/2010/01/queen-and-king.html

Sunday, January 31, 2010. Ryan to Kaitlyn."Kaitlyn, do you wish you were a queen and I was a king? Director of Blogger Relations. February 1, 2010 at 11:19 AM. Subscribe to: Post Comments (Atom). To read our story from the beginning. Mylee Grace - Chiari friend. Riley and Alex - Chiari friend. Blue Eyed Gang - Chiari friend. Hillman Family - Chiari friend. Baylie - Chiari friend. Using elements by Dani Mogstad. At Sweet Shoppe Designs.

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myleegrace2006.blogspot.com

Butterfly Kisses: January 2014

http://myleegrace2006.blogspot.com/2014_01_01_archive.html

Wednesday, January 1, 2014. Our day today, the first day of the year 2014 is now coming to a close. Dave has just finished his run for the day and he is feeling great! We are less than 3 weeks now until Arizona's PF Chang Rock N Roll Marathon. We are excited for TGen's Rare Childhood Disorders. To be an official charity this year! Team Mylee's Marathoners continues to train hard and fundraise with so much enthusiasm! We are so proud and excited for this fun event! We are so grateful for those who continu...

myleegrace2006.blogspot.com

Butterfly Kisses: September 2013

http://myleegrace2006.blogspot.com/2013_09_01_archive.html

Thursday, September 5, 2013. We continue to breath. to live without our princess. Life over the past sixteen and half months has been mostly in a fog. Moments of clarity are few and far between. However, we continue to live. Our continuous heartache is a painful reminder of the fight she so courageously fought. A piece of her baton passed on to each of us as we continue her fight against rare childhood disorders and our hope of victory against Mitochondrial disease. Never Give Up,. About Me. ♥. Kristen K...

myleegrace2006.blogspot.com

Butterfly Kisses: June 2011

http://myleegrace2006.blogspot.com/2011_06_01_archive.html

Tuesday, June 21, 2011. Finding a happy balance ♥. Realities really seem to be a struggle lately and even writing those first few words really aren't accurate because the struggles have been on going for almost a year! It must be due to her outgrowing the baby years and into a child. Why am I having such a hard time with the reality of having a child with disabilities? Is it my faith that I believe a miracle could happen? Is it the HOPE that one day she could be healed on this earth? Tuesday, June 7, 2011.

myleegrace2006.blogspot.com

Butterfly Kisses: February 2011

http://myleegrace2006.blogspot.com/2011_02_01_archive.html

Tuesday, February 15, 2011. Child's play.♥. We enjoyed the beautiful weather yesterday and took the girls to the park. it was a suggestion by Mylee's physical therapist to meet at our local city park in our neighborhood. It was amazingly beautiful outside, I think the temperture was almost 80 degrees! In fact, so well that she created angels in the sand (us desert folk make sand angels instead of snow angels! Wednesday, February 9, 2011. Bonded forever ♥. Thursday, February 3, 2011. A smile like no other.

myleegrace2006.blogspot.com

Butterfly Kisses: Who is your Hero?

http://myleegrace2006.blogspot.com/2014/02/who-is-your-hero.html

Friday, February 21, 2014. Who is your Hero? Do you remember being in school or a young child and someone asking you, "Who is your hero? This is one hero we are so thankful to also call our friend. In 58 days, Phil Maderia and his Genzyme running team. Of 30 runners will be running in the Boston Marathon for rare diseases. They are dedicated to making an impact on the lives of people fighting these incredible battles of diseases without treatment options or cures. Alone we are rare, together we are strong.

myleegrace2006.blogspot.com

Butterfly Kisses: July 2011

http://myleegrace2006.blogspot.com/2011_07_01_archive.html

Saturday, July 9, 2011. I have sat down many times in the past few weeks to update this blog and ended up having to put it away because my head was full of fog, much like it is at the moment but I decided to just start writing and I would re-read to see what I came up with before posting the written thoughts. Seizures activity and unusual episodes. New brain changes; lesions, atrophy. Subscribe to: Posts (Atom). About Me. ♥. We try to live our lives peacefully and by our family mantra to "Never Give Up"&...

myleegrace2006.blogspot.com

Butterfly Kisses: We continue to breath.... to live without our princess.

http://myleegrace2006.blogspot.com/2013/09/we-continue-to-breath-to-live-without.html

Thursday, September 5, 2013. We continue to breath. to live without our princess. Life over the past sixteen and half months has been mostly in a fog. Moments of clarity are few and far between. However, we continue to live. Our continuous heartache is a painful reminder of the fight she so courageously fought. A piece of her baton passed on to each of us as we continue her fight against rare childhood disorders and our hope of victory against Mitochondrial disease. Never Give Up,. About Me. ♥. Kristen K...

myleegrace2006.blogspot.com

Butterfly Kisses: March 2010

http://myleegrace2006.blogspot.com/2010_03_01_archive.html

Sunday, March 28, 2010. I always wonder what her little thoughts are. like I said her expression tell it all. Despite the challenges she competes for each day - she will always be our champion! We also fight each day for Mylee and continue our journey with her unknown metabolic diagnosis. It seems to be pointing towards a mitochondrial disease. We may never know for sure, but still encourage all of our friends and family to help us fight this battle! On Being a Champion. A Champion is a winner,. We have ...

myleegrace2006.blogspot.com

Butterfly Kisses: "Alone we are rare, together we are strong" - Boston Strong!!

http://myleegrace2006.blogspot.com/2014/04/alone-we-are-rare-together-we-are.html

Friday, April 11, 2014. Alone we are rare, together we are strong" - Boston Strong! In 10 days, thousands of runners from all over the world will come together in one of the most famous cities in North America to run in the Boston Marathon. This year, people from around the world have been encouraged to participate in their own home towns, because as we come together and form a unity of peace - the embrace is forever strong! Phil is the director of engineering at Genzyme. Http:/ www.razoo.com/sto...Check...

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Life with 3 under 3. 3 under 3 are now 2,3 and 4 but the hilarity and crazy times continue. My blog is a form of entertainment or perhaps just a way to stay sane. Me, myself and I. Thursday, 5 February 2015. Monkey Man starts school. Today was a big day, today Monkey Man started BIG school! He's 5 and a half, more than ready and oh so excited to be a BIG school kid. Are they ever really ready though? Would he remember to not eat all his lunch at once? Would he listen to his teacher? Sigh Who knows right?

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Life with 4...

This is a little taste of what our life is like with our 4 wonderfully active children. Sunday, July 5, 2009. Last weekend the boys and i took the 6 hour drive down to LaCrosse to help my dad and uncle with a garage sale. It was a great drive with just the boys. And a busy but fun weekend. Uncle Jerry took the boys on there 1st motorcycle ride and they loved it! The boys with Papa. The boys with Great Grandma. And sweet Aubree Grace. I just love her! Wednesday, June 24, 2009. Sunday, June 14, 2009. Mrs C...

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LifeWith4

Monday, June 2, 2014. The history of political blogging might usefully be divided into the periods pre- and post-Huffington. Before the millionaire socialite Arianna Huffington decided to get in on the act, bloggers operated in a spirit of underdog solidarity. They hated the mainstream media - and the feeling was mutual. Subscribe to: Posts (Atom). View my complete profile. Awesome Inc. theme. Theme images by UteHil.

lifewith4andchiari.blogspot.com

One day at a time..........

Friday, July 10, 2015. Here we are…. July 10, 2015, Anderson’s 9. Every year, it is hard to explain, but Anderson’s birthday is very very difficult for me. I usually cry for about 2 weeks before his birthday and 2 weeks after his birthday. Anderson had a pediatrician who once told me it was “ok”, having a special needs child is a grieving process that will continue the rest of my life. We will go thru the emotions of grieving over and over again. I can CLEARLY remember the month before Anderson’s 5.

lifewith4boys.blogspot.com

Life with 4 Boys

Monday, January 21, 2013. Blue Haven Banquet Time - 2011. My nephew, Ben. This picture of my nephew, Lang, cracks me up. My nephew, Trent. Wow, my Dylan has really grown this last year and a half. He looks so young in this picture. Mark's cousin's son, Trey. Cade and his friend, Lily. Mark's cousin's son, Caleb. My niece, Ashley. My nephew, Lee. Sweet Nate. That boy cracks me up! Labels: Camp Blue Haven. Friday, October 12, 2012. Camp Banquet - 2011. Labels: Camp Blue Haven. More Swinging - 2011.

lifewith4boys.com

Life With 4 Boys

3 Gadgets That Are Teen-Friendly and Parent Approved. How to Plan Great Events for Your Kids. Help Your Teenage Son Find His Unique Sense of Style #AXEpersonalstyle. This post is sponsored by Mirum, but opinions expressed are my own. Sausage and Spinach Tortellini Cream Soup Recipe. Powered by Burptech - FB Like Box widget. Template Created By : ThemeXpose.

lifewith4cats.blogspot.com

Life with 4 cats

Wednesday, 14 August 2013. 18 Years Ago , and last week. Jenny's 18th birthday. The youngest one is officially an adult. Having cleaned and hoovered the house and garden, tidied up, bought and cooked an awful lot of food we were finally there. I think the party was a success. Jenny seemed to enjoy herself anyway. The theatre sister said 'I think you need to review your anatomy lesions, SHE'S beautiful' . . Links to this post. Sunday, 4 August 2013. Links to this post. Thursday, 1 August 2013. Yesterday ...

lifewith4cats.com

Living With Four Cats – The life of a single college student living with four cats

Living With Four Cats. The life of a single college student living with four cats. Scroll down to content. April 26, 2017. April 26, 2017. Hardships of Having 4 Cats. My cats have been a blessing to me, but that does not mean they have not cause some hardships for me too. However, no matter how many hardships I go through my four cats, they will remain with me for as long as they live. They are apart of my family and I refuse to leave them behind. April 25, 2017. April 25, 2017. April 25, 2017.

lifewith4es.blogspot.com

Life With 4 Es

Wednesday, July 15, 2009. Rough way to start a morning. Anyway, in my dream, we had found my Dad. Apparently, he was living in the town next to ours (and amazingly, after 19 years, he still looked the same! His body was positively identified by his coworker! How did he just disappear for 19 years? I don't know if this anniversary is particularly difficult because I'm so far away this year, or if it's just coincidence. Either way, please pray for me. I REALLY miss my Daddy today. Mom of 3 Es. Walgreens ha...