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Life with Essential Thrombocytosis | Living the life with ET

Living the life with ET

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Life with Essential Thrombocytosis | Living the life with ET | lifewithet.wordpress.com Reviews
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May | 2014 | Life with Essential Thrombocytosis

https://lifewithet.wordpress.com/2014/05

Life with Essential Thrombocytosis. Living the life with ET. Archive for May, 2014. May 22, 2014. I have reached a milestone of 42 months without medication or treatment and 5 years since I was first diagnosed with ET. However, I still do visit my Hematologist every 6 months to monitor my platelets as a precaution. A healthy diet, healthy lifestyle with regular exercise and stress management have been my regular mindset for the past few years now and I hope that might have helped. I Love my Beans. Follow...

2

Causes | Life with Essential Thrombocytosis

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Life with Essential Thrombocytosis. Living the life with ET. No one knows why it develops. Although it is thought to be a genetic mutation or defect possibly involving more than one gene. It is not known whether the mutation is inherited at birth or acquired during one’s lifetime. Some researchers believe it is a combination of both. There will be continuation of new research initiatives and hope to one day completely understand the exact causes of Essential Thrombocythemia. I Love my Beans. Essential Th...

3

Thrombocytosis Diagnosis – Algorithm | Life with Essential Thrombocytosis

https://lifewithet.wordpress.com/2012/03/31/diagnosis-of-thrombocytosis-algorithm

Life with Essential Thrombocytosis. Living the life with ET. Thrombocytosis Diagnosis – Algorithm. Thrombocytosis Diagnosis – Algorithm. March 31, 2012. I found this very informative online site that provides the algorithm to diagnose PV, ET and Other MPN. Http:/ bloodjournal.hematologylibrary.org/content/117/5/1472/F1.expansion.html. Diagnosis is done through Blood tests and/or Bone Marrow Biopsy. April 13, 2013 at 9:07 am. Additionally your web site lots up fast! What web host are you using? Another re...

4

Treatments | Life with Essential Thrombocytosis

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Life with Essential Thrombocytosis. Living the life with ET. Studies have shown that patients older than 60 and those who have experienced previous complications are at significant risk for recurrent problems from this disorder. Reducing the platelet count by medications has been shown to reduce complications in these patients. Individuals with essential thrombocythemia usually have a normal lifespan with proper medical treatment. Is a chemotherapy drug. It slows the growth of cancer cells. This ...Is us...

5

May 2014 Update | Life with Essential Thrombocytosis

https://lifewithet.wordpress.com/2014/05/22/may-2014-update

Life with Essential Thrombocytosis. Living the life with ET. May 22, 2014. I have reached a milestone of 42 months without medication or treatment and 5 years since I was first diagnosed with ET. However, I still do visit my Hematologist every 6 months to monitor my platelets as a precaution. A healthy diet, healthy lifestyle with regular exercise and stress management have been my regular mindset for the past few years now and I hope that might have helped. Pushing MPN Research Forward. Or facebook....

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MPN Research Foundation

http://mpnrf.blogspot.com/2015/05/you-may-have-heard-that-earlier-this.html

Thursday, May 21, 2015. You may have heard that earlier this week the Federal Trade Commission filed a lawsuit against four cancer groups for defrauding donors. The four organizations collected $187 million between 2008 and 2012. Founder James Reynolds, Sr. and his friends and family members operated all the “sham” organizations. Less than 2 cents of every dollar donated went to aid for cancer patients. How do you know if your donation supports the cause that is important to you? You should also check th...

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Our Beautiful and Messy Life: March 2015

http://ourbeautifulandmessylife.blogspot.com/2015_03_01_archive.html

Our Beautiful and Messy Life. The ramblings of a mother of five, living life with Essential Thrombocythemia. March 31, 2015. Essential Thrombocythemia Platelet Count Update. I am so sorry that I have not updated this blog in a very long time. I have had so much going on with my five kids, etc. The greatest symptoms I experience when my platelet counts are high are the following: pins and needles in my hands, feet and on the top of my head and also I become very fatigued. I am often scared when I think ab...

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Our Beautiful and Messy Life: March 2013

http://ourbeautifulandmessylife.blogspot.com/2013_03_01_archive.html

Our Beautiful and Messy Life. The ramblings of a mother of five, living life with Essential Thrombocythemia. March 8, 2013. ET New Doctor - Be Your Own Advocate. It's been a while since I've had time to post on this blog. I started seeing a new Hem/Onco doctor, I like him much better than my last doctor. I don't feel dismissed when I have questions, I feel like I get more than my fifteen minutes worth so to speak. Every week is different. I am past the freaking out stage now that I am 2 years into de...

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Our Beautiful and Messy Life: Essential Thrombocythemia Update & Platelet Counts

http://ourbeautifulandmessylife.blogspot.com/2013/07/essential-thrombocythemia-update.html

Our Beautiful and Messy Life. The ramblings of a mother of five, living life with Essential Thrombocythemia. July 30, 2013. Essential Thrombocythemia Update and Platelet Counts. It's been a really long time since I updated my blog. It's been a busy time for our family. So my dose was put back to 5 pills/2,500 mg of Hydrea everyday and two baby aspirins everyday (it really helps with the pins and needles I experience from the E.T.)! We're meeting up with my husband's side of the family for a family reunio...

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Our Beautiful and Messy Life: Essential Thrombocythemia Platelet Count Update

http://ourbeautifulandmessylife.blogspot.com/2015/03/essential-thrombocythemia-platelet.html

Our Beautiful and Messy Life. The ramblings of a mother of five, living life with Essential Thrombocythemia. March 31, 2015. Essential Thrombocythemia Platelet Count Update. I am so sorry that I have not updated this blog in a very long time. I have had so much going on with my five kids, etc. The greatest symptoms I experience when my platelet counts are high are the following: pins and needles in my hands, feet and on the top of my head and also I become very fatigued. I am often scared when I think ab...

ourbeautifulandmessylife.blogspot.com ourbeautifulandmessylife.blogspot.com

Our Beautiful and Messy Life: June 2011

http://ourbeautifulandmessylife.blogspot.com/2011_06_01_archive.html

Our Beautiful and Messy Life. The ramblings of a mother of five, living life with Essential Thrombocythemia. June 17, 2011. I went to the oncologist (I still can't believe I have an oncologist in my 30's! I told the doctor that all five kids will be home with me this summer, (no summer camp here, we are just trying to keep up with the bills), and he said I don't have to come in for another two months. LOL! Hopefully, in two months time, my numbers will have come down enough to reduce my dose of HU! To qu...

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Our Beautiful and Messy Life: September 2011

http://ourbeautifulandmessylife.blogspot.com/2011_09_01_archive.html

Our Beautiful and Messy Life. The ramblings of a mother of five, living life with Essential Thrombocythemia. September 9, 2011. In Hospital - Blood Clotting, Chest Pains, Aggrenox. I was in the hospital two weeks ago for about three days. We called an ambulance. For information about signs of a heart attack, please visit this website:. Http:/ www.heart.org/HEARTORG/Conditions/Conditions UCM 305346 SubHomePage.jsp. AGGRENOX - http:/ www.ncbi.nlm.nih.gov/pubmedhealth/PMH0001061/. Take Care - Shayna. Life w...

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Our Beautiful and Messy Life: May 2011

http://ourbeautifulandmessylife.blogspot.com/2011_05_01_archive.html

Our Beautiful and Messy Life. The ramblings of a mother of five, living life with Essential Thrombocythemia. May 30, 2011. True heroism is remarkably sober, very undramatic. It is not the urge to surpass all others at whatever cost, but the urge to serve others at whatever cost. - Arthur Ashe. Thank you is not enough to say to all those who serve our country and who have served our country and paid the ultimate price. We remember you and think of you and your loved ones everyday! Monday, May 30, 2011.

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Our Beautiful and Messy Life: October 2011

http://ourbeautifulandmessylife.blogspot.com/2011_10_01_archive.html

Our Beautiful and Messy Life. The ramblings of a mother of five, living life with Essential Thrombocythemia. October 9, 2011. Turning Three Years Old - Upshern. Our son, our baby, turned three years old last week! He is really growing up fast. We're having a party for him today to celebrate his birthday and we're finally going to cut his hair! Http:/ en.wikipedia.org/wiki/Upsherin. The days are long and the years fly by! We love you Y! Happy Birthday to our sweet baby boy! Sunday, October 09, 2011. Come ...

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Our Beautiful and Messy Life: Preschool Graduation

http://ourbeautifulandmessylife.blogspot.com/2011/06/preschool-graduation.html

Our Beautiful and Messy Life. The ramblings of a mother of five, living life with Essential Thrombocythemia. June 3, 2011. Our youngest daughter, graduated from preschool last night! She's the youngest of four girls (13,11, 7 and 5), she's our baby girl. To quote a song from one of my favorite movies: Sunrise, Sunset, quickly fly the years! Where is the little girl I carried? All week long, people have been asking her if she is excited to graduate and her response is: "What is there to be excited about?

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Life with Esme | the adventures of raising Esme – who trusted me with this endeavor?

The adventures of raising Esme – who trusted me with this endeavor? September 18, 2014 in Uncategorized. Throughout this adventure I’ve learned the brain is a crazy thing and we as a species are totally dependent on our ears. Did you know your balance comes from your ears? I have crappy ears. I had tons of ear infections as a child and tubes more times than I can count. Allergies, you may sneeze, but I get this horrible itch deep in my ear canal and sometimes my ear drum blows out the wrong way. And gues...

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Life with Esperanza and Esteban. Wednesday, November 12, 2008. At least for the day, I am determined that guilt shall be banished! Thursday, September 25, 2008. Mom needs time out. How overwhelmed I get sometimes! Why do I not leave time in the day for a "time out"? I have even been finding it exhausting when people ask me how I am doing. I am really tired of trying to explain why I am tired or the reasons I am sleep deprived. Sunday, September 7, 2008. Uches become so sacred? I know so many moms who hav...

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Life with Essential Thrombocytosis | Living the life with ET

Life with Essential Thrombocytosis. Living the life with ET. May 22, 2014. I have reached a milestone of 42 months without medication or treatment and 5 years since I was first diagnosed with ET. However, I still do visit my Hematologist every 6 months to monitor my platelets as a precaution. A healthy diet, healthy lifestyle with regular exercise and stress management have been my regular mindset for the past few years now and I hope that might have helped. Pushing MPN Research Forward. March 10, 2013.

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Life With My Boys. Friday, May 21, 2010. Want to see a few pictures from our fun photo shoot? Check out what Kristin captured here! 0 people love me. Tuesday, April 27, 2010. Broken Paci - Day? Can I admit something to you? I'd nearly forgotten we were getting rid of the paci. It hasn't been as rough the last few days. Lets backtrack. Last week, Edward wasn't sleeping. And we had the occasional meltdown. How did the next cut go? For the last several days, Edward has used the pacis less and less. Exce...

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Rise and shine!

Jarrold Lim is my name. Nothing that serious yet. Tuesday, March 16, 2010. A couple of weeks before school starts. wants it to happen yet not. . Treatment's slowly helping my ligaments recover but would i be too weak to do anything after recovery. I'm way to active to even allow myself to sit still. And when i force myself to sit still, this is what happens; a meaningless post just to kill boredom. ggnore. The sun rose @ 10:11 AM. Saturday, February 27, 2010. Shortie No.1(Yeo Xueli). Of the magic spell.

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Our wild and crazy boy. Tuesday June 5th, 2012. Mothers Day was wonderful. I got all of my blog postings retrieved and printed so now all the obsessing I did as a new mother over the minutiae of Evan’s life can be immortalized. I used my Mother Day trump card to force my guys to go my English country dancing. Happy Mother’s Day! Sunday May 13th, 2012. 2018 Life with Evan.

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