lifewithicthyosis.blogspot.com

Life with Ichthyosis

My name is John and I have Lamellar ichthyosis, also known as ichthyosis lammellaris and nonbullous congenital ichthyosis, is a rare inherited skin disorder, affecting around 1 in 600,000 people. I am also a father, SQL Server DBA and a referee for roller derby. I do not let my skin condition define me but I thought it would be good to post some of my life experiences here to share. Monday, August 5, 2013. Friday, May 3, 2013. Knee Pain and shots. Monday, November 19, 2012. Tuesday, September 25, 2012.

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Life with Ichthyosis | lifewithicthyosis.blogspot.com Reviews

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My name is John and I have Lamellar ichthyosis, also known as ichthyosis lammellaris and nonbullous congenital ichthyosis, is a rare inherited skin disorder, affecting around 1 in 600,000 people. I am also a father, SQL Server DBA and a referee for roller derby. I do not let my skin condition define me but I thought it would be good to post some of my life experiences here to share. Monday, August 5, 2013. Friday, May 3, 2013. Knee Pain and shots. Monday, November 19, 2012. Tuesday, September 25, 2012.

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1 life with ichthyosis

2 first knee surgery

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4 john arick

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life with ichthyosis,first knee surgery,posted by,john arick,no comments,email this,blogthis,share to twitter,share to facebook,share to pinterest,1 comment,thanksgiving week,healing,3 comments,back to school,older posts,followers,about me,blog archive

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Life with Ichthyosis | lifewithicthyosis.blogspot.com Reviews

https://lifewithicthyosis.blogspot.com

My name is John and I have Lamellar ichthyosis, also known as ichthyosis lammellaris and nonbullous congenital ichthyosis, is a rare inherited skin disorder, affecting around 1 in 600,000 people. I am also a father, SQL Server DBA and a referee for roller derby. I do not let my skin condition define me but I thought it would be good to post some of my life experiences here to share. Monday, August 5, 2013. Friday, May 3, 2013. Knee Pain and shots. Monday, November 19, 2012. Tuesday, September 25, 2012.

INTERNAL PAGES

lifewithicthyosis.blogspot.com

1

Life with Ichthyosis: Thanksgiving week.

http://www.lifewithicthyosis.blogspot.com/2012/11/thanksgiving-week.html

My name is John and I have Lamellar ichthyosis, also known as ichthyosis lammellaris and nonbullous congenital ichthyosis, is a rare inherited skin disorder, affecting around 1 in 600,000 people. I am also a father, SQL Server DBA and a referee for roller derby. I do not let my skin condition define me but I thought it would be good to post some of my life experiences here to share. Monday, November 19, 2012. Subscribe to: Post Comments (Atom). View my complete profile.

2

Life with Ichthyosis: Back to School

http://www.lifewithicthyosis.blogspot.com/2012/05/back-to-school.html

My name is John and I have Lamellar ichthyosis, also known as ichthyosis lammellaris and nonbullous congenital ichthyosis, is a rare inherited skin disorder, affecting around 1 in 600,000 people. I am also a father, SQL Server DBA and a referee for roller derby. I do not let my skin condition define me but I thought it would be good to post some of my life experiences here to share. Thursday, May 31, 2012. Hello, I haven't blogged in a while but I thought I would restart things. Next month is my 25.

3

Life with Ichthyosis: May 2013

http://www.lifewithicthyosis.blogspot.com/2013_05_01_archive.html

My name is John and I have Lamellar ichthyosis, also known as ichthyosis lammellaris and nonbullous congenital ichthyosis, is a rare inherited skin disorder, affecting around 1 in 600,000 people. I am also a father, SQL Server DBA and a referee for roller derby. I do not let my skin condition define me but I thought it would be good to post some of my life experiences here to share. Friday, May 3, 2013. Knee Pain and shots. Subscribe to: Posts (Atom). View my complete profile. Knee Pain and shots.

4

Life with Ichthyosis: August 2013

http://www.lifewithicthyosis.blogspot.com/2013_08_01_archive.html

My name is John and I have Lamellar ichthyosis, also known as ichthyosis lammellaris and nonbullous congenital ichthyosis, is a rare inherited skin disorder, affecting around 1 in 600,000 people. I am also a father, SQL Server DBA and a referee for roller derby. I do not let my skin condition define me but I thought it would be good to post some of my life experiences here to share. Monday, August 5, 2013. Subscribe to: Posts (Atom). View my complete profile.

5

Life with Ichthyosis: First Knee Surgery

http://www.lifewithicthyosis.blogspot.com/2013/08/first-knee-surgery.html

My name is John and I have Lamellar ichthyosis, also known as ichthyosis lammellaris and nonbullous congenital ichthyosis, is a rare inherited skin disorder, affecting around 1 in 600,000 people. I am also a father, SQL Server DBA and a referee for roller derby. I do not let my skin condition define me but I thought it would be good to post some of my life experiences here to share. Monday, August 5, 2013. Subscribe to: Post Comments (Atom). View my complete profile.

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fishyskin.blogspot.com

Fishy Skin: Living with Ichthyosis Vulgaris: Ichthyosis Confessions: Embrace Your Imperfections

http://fishyskin.blogspot.com/2012/02/ichthyosis-confessions-embrace-your.html

Fishy Skin: Living with Ichthyosis Vulgaris. Thursday, February 2, 2012. Ichthyosis Confessions: Embrace Your Imperfections. Chance upon this lovely girl on youtube. She talks about her struggle about Ichthyosis and how her other 7 siblings has it. Another person to add to my personal heroes. Yes, I agree with her, let's learn to embrace our imperfections. But together, sharing our experiences, we can learn more about how to deal with Ichthyosis. Subscribe to: Post Comments (Atom). Tune into Radio Carly.

fishyskin.blogspot.com

Fishy Skin: Living with Ichthyosis Vulgaris: Ichthyosis Confessions: Is It True?

http://fishyskin.blogspot.com/2012/03/ichthyosis-confessions-is-it-true.html

Fishy Skin: Living with Ichthyosis Vulgaris. Friday, March 2, 2012. Ichthyosis Confessions: Is It True? This is part of a series of blog posts I dubbed "Ichthyosis confessions" which features people on youtube talking about their experiences and concerns about Ichthyosis. A Singaporean teen video blogs about Ichthyosis, looking for possible treatments to ease the condition. Subscribe to: Post Comments (Atom). Yes, I have Ichthyosis Vulgaris. Would you like some tea? Call me your Ichthyosister! Dr Keith C...

fishyskin.blogspot.com

Fishy Skin: Living with Ichthyosis Vulgaris: November 2011

http://fishyskin.blogspot.com/2011_11_01_archive.html

Fishy Skin: Living with Ichthyosis Vulgaris. Saturday, November 19, 2011. A Video that Explains it All. I think of all the Ichthyosis skin conditions, I am afflicted with the mildest form, I consider myself still fortunate despite how aggravating the "mildest" form is. I cannot begin to fathom the severity and difficulty of living with Ichthyosis of the extreme or rare kind. If you can't see the video, watch it here. Subscribe to: Posts (Atom). Yes, I have Ichthyosis Vulgaris. Would you like some tea?

fishyskin.blogspot.com

Fishy Skin: Living with Ichthyosis Vulgaris: A Child with Granny Hands: A Case of Hyperlinear Palms

http://fishyskin.blogspot.com/2011/07/child-with-granny-hands-case-of.html

Fishy Skin: Living with Ichthyosis Vulgaris. Friday, July 29, 2011. A Child with Granny Hands: A Case of Hyperlinear Palms. I've been called many things and many names growing up. People would discuss my fishy skin right in front me as if I wasn't there. They would prod and stare at it and theorize how this came about. But thinking about all that name calling, amuses me now. It seemed to mystify people that someone like me can actually live with something like this. The act of strange food cravings by a ...

fishyskin.blogspot.com

Fishy Skin: Living with Ichthyosis Vulgaris: May 2013

http://fishyskin.blogspot.com/2013_05_01_archive.html

Fishy Skin: Living with Ichthyosis Vulgaris. Friday, May 10, 2013. According to http:/ lifeasusdotcom.blogspot.com. Its Ichthyosis Awareness Month! Wow I didn't know we had a day to celebrate being in our skins. So well, I'll drink some BEERS to that! Or soothe over some strawberry scented Victoria Secret lotion on my skin which really relaxes me :). Subscribe to: Posts (Atom). Yes, I have Ichthyosis Vulgaris. Would you like some tea? Call me your Ichthyosister! Living with Ichthyosis Blogs. Dr Keith Cho...

fishyskin.blogspot.com

Fishy Skin: Living with Ichthyosis Vulgaris: January 2012

http://fishyskin.blogspot.com/2012_01_01_archive.html

Fishy Skin: Living with Ichthyosis Vulgaris. Monday, January 2, 2012. Lamellar Ichthyosis in the Philippines. Filipino Journalist Jessica Soho features two siblings Jessica Canete 11 years-old and Jay-Ar 16 years-old Canete afflicted with Lamellar Ichthyosis. The video on youtube has no english subtitles, so I'll just post the gist of the video segment on Lamellar Ichthyosis here. This video is from the TV program Kapuso Mo Jessica Soho, property of the GMA TV Network Philippines. Her mother cries and te...

fishyskin.blogspot.com

Fishy Skin: Living with Ichthyosis Vulgaris: October 2011

http://fishyskin.blogspot.com/2011_10_01_archive.html

Fishy Skin: Living with Ichthyosis Vulgaris. Thursday, October 27, 2011. No Ichthyosis Flakes on my Baby Bump. My baby is due any day now and my Ichthyosis has been acting up with a vengeance on my thighs and legs. I feel a great tightness around the skin on my legs, I feel like my legs are like sausages about to burst from their casings. Subscribe to: Posts (Atom). Yes, I have Ichthyosis Vulgaris. Would you like some tea? Call me your Ichthyosister! No Ichthyosis Flakes on my Baby Bump. As most of you k...

fishyskin.blogspot.com

Fishy Skin: Living with Ichthyosis Vulgaris: Lamellar Ichthyosis in the Philippines

http://fishyskin.blogspot.com/2012/01/lamellar-ichthyosis-in-philippines.html

Fishy Skin: Living with Ichthyosis Vulgaris. Monday, January 2, 2012. Lamellar Ichthyosis in the Philippines. Filipino Journalist Jessica Soho features two siblings Jessica Canete 11 years-old and Jay-Ar 16 years-old Canete afflicted with Lamellar Ichthyosis. The video on youtube has no english subtitles, so I'll just post the gist of the video segment on Lamellar Ichthyosis here. This video is from the TV program Kapuso Mo Jessica Soho, property of the GMA TV Network Philippines. Her mother cries and te...

fishyskin.blogspot.com

Fishy Skin: Living with Ichthyosis Vulgaris: Channel 4 TV Medical Episode Embarrassing Bodies: Ichthyosis

http://fishyskin.blogspot.com/2012/11/channel-4-tv-medical-episode.html

Fishy Skin: Living with Ichthyosis Vulgaris. Monday, November 5, 2012. Channel 4 TV Medical Episode Embarrassing Bodies: Ichthyosis. I found this video from Google. Okay I am definitely not a big fan of the show's title Channel 4's Embarrassing Bodies. A note from the show: The treatment given to this patient was a combination of Cetraben, Culmurid and Eucerin and then a cling film wrap, but it might not work for everyone so best to go to your GP and get their professional opinion. Those are my legs!

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Life with Ichthyosis

My name is John and I have Lamellar ichthyosis, also known as ichthyosis lammellaris and nonbullous congenital ichthyosis, is a rare inherited skin disorder, affecting around 1 in 600,000 people. I am also a father, SQL Server DBA and a referee for roller derby. I do not let my skin condition define me but I thought it would be good to post some of my life experiences here to share. Monday, August 5, 2013. Friday, May 3, 2013. Knee Pain and shots. Monday, November 19, 2012. Tuesday, September 25, 2012.

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