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Lilly Grace Jones

Tuesday, November 8, 2011. We celebrated Lilly’s birthday 1. We thank Heavenly Father everyday that he gave us twelve beautiful weeks to be with our baby. We had begged Heavenly Father to please allow us to hold our baby alive for an instance. We had been told we may only get a small moment in time with her but Heavenly Father granted us twelve beautiful weeks. We will treasure every memory we have of that time we had with Lilly. We love you baby Lilly. You are an amazing little girl. The kids loved ever...

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Lilly Grace Jones | lillygracejones.blogspot.com Reviews
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Tuesday, November 8, 2011. We celebrated Lilly’s birthday 1. We thank Heavenly Father everyday that he gave us twelve beautiful weeks to be with our baby. We had begged Heavenly Father to please allow us to hold our baby alive for an instance. We had been told we may only get a small moment in time with her but Heavenly Father granted us twelve beautiful weeks. We will treasure every memory we have of that time we had with Lilly. We love you baby Lilly. You are an amazing little girl. The kids loved ever...
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2 lilly grace
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Lilly Grace Jones | lillygracejones.blogspot.com Reviews

https://lillygracejones.blogspot.com

Tuesday, November 8, 2011. We celebrated Lilly’s birthday 1. We thank Heavenly Father everyday that he gave us twelve beautiful weeks to be with our baby. We had begged Heavenly Father to please allow us to hold our baby alive for an instance. We had been told we may only get a small moment in time with her but Heavenly Father granted us twelve beautiful weeks. We will treasure every memory we have of that time we had with Lilly. We love you baby Lilly. You are an amazing little girl. The kids loved ever...

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1

Lilly Grace Jones: August 2010

http://lillygracejones.blogspot.com/2010_08_01_archive.html

Tuesday, August 31, 2010. We had not expected the surgery to happen till later in the week. We made it to the hospital just in time to wait. But during this waiting time I was able to hold Lilly. We snuggled again for 2 hours. They came in at 12:30pm and said it was time to go to surgery. We were able to walk with Lilly to the surgery entrance where Grandma, Grandpa, Grammy, Grampy. Our next goal is to get Lilly off of the ventilator. Posted by Kimberly Jones. Monday, August 30, 2010. I know Lilly felt i...

2

Lilly Grace Jones: October 2010

http://lillygracejones.blogspot.com/2010_10_01_archive.html

Saturday, October 23, 2010. Posted by Kimberly Jones. Monday, October 18, 2010. Lilly was in my arms for only ten minutes but it was enough to calm my nerves. We walked with Lilly to cath. Lab were it was a tearful goodbye again. I hate watching her go into these procedures. Lilly came back to her room a little after 2pm. The dr. Was able to balloon the aorta valve and the coart. Posted by Kimberly Jones. Saturday, October 16, 2010. Posted by Kimberly Jones. Sunday, October 10, 2010. We are continuing to...

3

Lilly Grace Jones: September 2010

http://lillygracejones.blogspot.com/2010_09_01_archive.html

Tuesday, September 28, 2010. Lilly unfortunately had another rough weekend. Lilly had several “spells” where she would drop her heart rate and oxygen level to a dangerous low. Every time the staff was able to “bag” her and bring her oxygen levels back up which helped her heart rate. This has been very frustrating for the doctor and us since we cannot figure out why she is doing this. Before when this would happen it was because she was mad. When it happened this past weekend she was asleep. Change this a...

4

Lilly Grace Jones: June 2010

http://lillygracejones.blogspot.com/2010_06_01_archive.html

Friday, June 25, 2010. A lot has happened since the last visit with the NEONATAL doctor. We met with our regular OB doctor where he checked Lilly’s heart rate. It seemed when he listened to her heart it was slower and he listened for a longer period of time. This of course sent bells and whistles off in my brain even though he said she sounded great. We had the opportunity to go to the Scott and Laura Eller Congenital Heart Center on Friday June 18. Lilly hated the echo cardiogram test and so did I.

5

Lilly Grace Jones: July 2010

http://lillygracejones.blogspot.com/2010_07_01_archive.html

Thursday, July 29, 2010. We are heading into the final weeks before Lilly will arrive. Not a lot has changed with her heart, brain, or kidneys over the past month. As of last week she was measuring in at a big 4lbs 12ozs. I got a glimpse of her face on the 3D monitor and she has chubby cheeks which make it look like she is storing food like a Gerbil. They say she has a lot of hair. That explains the heart burn. Lilly continues to fight her way to the end. They got to decorate her and her hospital gown.

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Lilly Grace Jones

Tuesday, November 8, 2011. We celebrated Lilly’s birthday 1. We thank Heavenly Father everyday that he gave us twelve beautiful weeks to be with our baby. We had begged Heavenly Father to please allow us to hold our baby alive for an instance. We had been told we may only get a small moment in time with her but Heavenly Father granted us twelve beautiful weeks. We will treasure every memory we have of that time we had with Lilly. We love you baby Lilly. You are an amazing little girl. The kids loved ever...

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