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lilwedwritinghood.blogspot.com

our precious baby boy

A blog about special needs parenting after being told our son has a lethal skeletal dysplasia.

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our precious baby boy | lilwedwritinghood.blogspot.com Reviews
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A blog about special needs parenting after being told our son has a lethal skeletal dysplasia.
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posted by,lilwedwritinghood,23 comments,awareness,1 comment,labels dwarfism,family,moms,special needs,trach,tracheotomy,vent,ventilator,women,mommy's boy,signing mommy,3 comments,5 comments,love jenna,older posts,background,subscribe to campomelicfamilies
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our precious baby boy | lilwedwritinghood.blogspot.com Reviews

https://lilwedwritinghood.blogspot.com

A blog about special needs parenting after being told our son has a lethal skeletal dysplasia.

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our precious baby boy: Gtube surgery next week- PLEASE PRAY

http://lilwedwritinghood.blogspot.com/2010/11/gtube-surgery-next-week-please-pray.html

Our precious baby boy. Monday, November 29, 2010. Gtube surgery next week- PLEASE PRAY. Dec6th Nicolas is going to have his gtube surgery. He is also going to have his trach upsized as well. I am so nervous. I struggle with fearing the worst.Please pray for Nicolas to do come through all of this ok. Pray for guidance for his medical team. The procedures he is having done are simple but he is complex! December 4, 2010 at 7:41 PM. Emily in Greensboro, NC. December 18, 2010 at 9:52 PM. Love you guys so much!

2

our precious baby boy: July 2011

http://lilwedwritinghood.blogspot.com/2011_07_01_archive.html

Our precious baby boy. Tuesday, July 19, 2011. Almost TWO .cute. When I started this blog I had no idea what life had in store for us. I guess I still don't. I do know that the little boy who wasn't supposed to live longer than an hour is laying on his playmat demanding more food on his binky! For that, I am so grateful. Nicolas is the sweetest boy you can imagine. Huge smiles, tons of expressions, super eager to learn sign language. He brings so much joy! Subscribe to: Posts (Atom). Almost TWO .cute.

3

our precious baby boy: January 2010

http://lilwedwritinghood.blogspot.com/2010_01_01_archive.html

Our precious baby boy. Sunday, January 31, 2010. PICU - Day 4. Holding pnut for the first time in 4 days! Well, little sweetie is waking up so I have to go. Please keep praying for us. Prayers that Nicolas wont need surgery for his spine, for protection from infection, for strength and healing for our little guy. Thanks friends! Friday, January 29, 2010. We knew it was coming. Nick and I suctioned his trach for the first time today! Sunday, January 24, 2010. Gearing up for a long week. Powered by us....

4

our precious baby boy: November 2009

http://lilwedwritinghood.blogspot.com/2009_11_01_archive.html

Our precious baby boy. Wednesday, November 25, 2009. A trip to the ER. Nicolas gave us quite a scare on Saturday. Night It started as one of his usual scary fits that I have been talking about and progressed into a fit that wouldn't. Tube It is obvious that we need to be closer to a children's. Daily to help him with that. There is a great group of people I have met online who have children with CD like Nicolas. There are survivors, which. Sunday, November 15, 2009. Short for peanut, I think it's because...

5

our precious baby boy: Wrapping up a hot summer

http://lilwedwritinghood.blogspot.com/2012/08/wrapping-up-hot-summer.html

Our precious baby boy. Friday, August 31, 2012. Wrapping up a hot summer. It's the last day of August and when you lived in the desert that is a GOOD thing! Summer isn't too bad here really. I equate it to winter in the northwest, meaning there are a few months where outdoor activities are not a good idea. What makes it more tolerable than winter to me is the fact that it is sunny EVERY day! She snapped these pics while we were driving around looking at houses. Nicolas is doing great! I get so much.

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apronstringsandchickenwings.blogspot.com apronstringsandchickenwings.blogspot.com

Apron Strings and Chicken Wings: October 2009

http://apronstringsandchickenwings.blogspot.com/2009_10_01_archive.html

Monday, October 12, 2009. Forecast: 100% Chance Of Freezing Bunny Water. The chicken water was another thing entirely. I had recently purchased a 5 gallon galvanized waterer. When 5 gallons freezes in a few hours, you know its cold! We found the tutorial for constructing our own heated base. It was extremely easy! Ingredients: Metal Tin w/ a lid. (we used a cookie tin). Like the one shown here. We picked it up at the hardware store for $8. 40 watt bulb (the ones shaped like a candle). We Wish You a Merry...

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Apron Strings and Chicken Wings: January 2010

http://apronstringsandchickenwings.blogspot.com/2010_01_01_archive.html

Friday, January 8, 2010. My wonderful mama prepared 2 Thanksgiving Feasts as we couldn't eat with my sister and her family due to some of us having colds and baby Nicolas's fragile health. She prepared two dinners and hand delivered both, eating twice. We are so blessed with our awesome mom! The day after Thanksgiving was tree day! We found our tree's in the woods once again. This year was special as M'Kayla and Garrett now have their own apartment and got a tree of their own! Christmas was fun, we decid...

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Apron Strings and Chicken Wings: June 2010

http://apronstringsandchickenwings.blogspot.com/2010_06_01_archive.html

Tuesday, June 22, 2010. Each season has its own delicious morning beauty, enhanced by a steaming mug of hot coffee. In the spring I am so thankful that there is no snow and I wrap in a quilt and sit on my porch just admiring the waking of the world after a long winters nap. I note the buds on the trees and the warming of the soil and the anticipation of planting my garden fills me with joyful impatience. I am thankful for mornings. All things are new. All things are possible in the morning. I...For those...

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Apron Strings and Chicken Wings: May 2010

http://apronstringsandchickenwings.blogspot.com/2010_05_01_archive.html

Thursday, May 20, 2010. My daughter holding Elsie. I have always dreamed of being a farm-girl. When I lived in the city in Florida, I would line my journals with poems and pictures of the life that tugged at my soul. The desire to connect with the land and nature in this way overwhelms me at times. I have pondered, during moments such as these, where that particular dream may have come from. The obvious answer is that I inherited it from my once upon a time Farm-Girl Mother. She is on her knees in the pe...

braydenryder.blogspot.com braydenryder.blogspot.com

Brayden Ryder Tracy: November 2011

http://braydenryder.blogspot.com/2011_11_01_archive.html

This is the story of our little guy Brayden Ryder. We found out he might be born with Campomelic dysplasia and may not survive for more than 5 minutes to a few hours. We are finishing out our last 3 months of pregnancy HOPING for a miracle but planning for brayden's passing. Saturday, November 26, 2011. And here are our last pictures from last appointment 25 weeks 5 days he looks just like his daddy already! Still no results, but here are some pictures of our beautiful baby. 65279;. My name is Kristen ...

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Brayden Ryder Tracy: Dear Brayden

http://braydenryder.blogspot.com/2012/04/dear-brayden.html

This is the story of our little guy Brayden Ryder. We found out he might be born with Campomelic dysplasia and may not survive for more than 5 minutes to a few hours. We are finishing out our last 3 months of pregnancy HOPING for a miracle but planning for brayden's passing. Wednesday, April 11, 2012. April 11, 2012 at 2:51 PM. Subscribe to: Post Comments (Atom). View my complete profile. Our precious baby boy. Simple template. Powered by Blogger.

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Um mel de Melissa!: Dezembro 2011

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Resolvi fazer esse blog para mostrar a história da minha pequena Melissa, que tanto nos ensina! E para que as pessoas possam ver que a alma é muito mais importante que o corpo! A aparência não é nada! A ESSÊNCIA É TUDO! E ESSA EM PARTICULAR É MUITO PERFUMADA! Sábado, 17 de dezembro de 2011. Lançamento do 10º livro "Frases, Dicas e Histórias Maravilhosas". Dia 19/11, marcamos presença no lançamento do 10º livro "Frases, Dicas e Histórias Maravilhosas" do vovô Orlando. Convite para o lançamento do livro.

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Um mel de Melissa!: Abril 2011

http://meldemelissa.blogspot.com/2011_04_01_archive.html

Resolvi fazer esse blog para mostrar a história da minha pequena Melissa, que tanto nos ensina! E para que as pessoas possam ver que a alma é muito mais importante que o corpo! A aparência não é nada! A ESSÊNCIA É TUDO! E ESSA EM PARTICULAR É MUITO PERFUMADA! Terça-feira, 26 de abril de 2011. Colocação do 8º gesso. Dia 19/04 colocamos o 8º gessinho! Nos últimos gessos a Melissa vem chorando com mais frequencia! Mas já tá acabando. Oooww dó da minha nenê. e a mamãe fica tirando foto! Já mais calma.rs.

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Brayden Ryder Tracy: January 2012

http://braydenryder.blogspot.com/2012_01_01_archive.html

This is the story of our little guy Brayden Ryder. We found out he might be born with Campomelic dysplasia and may not survive for more than 5 minutes to a few hours. We are finishing out our last 3 months of pregnancy HOPING for a miracle but planning for brayden's passing. Thursday, January 26, 2012. Great doctor appointment :). Hehe Hoping for a little miracle everyday, still preparing ourselves for the worst. He seems to be doing pretty good though! Thursday, January 12, 2012. Update on our little man.

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our precious baby boy

Our precious baby boy. Friday, August 31, 2012. Wrapping up a hot summer. It's the last day of August and when you lived in the desert that is a GOOD thing! Summer isn't too bad here really. I equate it to winter in the northwest, meaning there are a few months where outdoor activities are not a good idea. What makes it more tolerable than winter to me is the fact that it is sunny EVERY day! She snapped these pics while we were driving around looking at houses. Nicolas is doing great! Almost TWO .cute.

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