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Calm Amongst the ChaosA family surviving and thriving with a child with CDKL5 disorder/LGS disorder, severe epilepsy
http://lilyannablu.blogspot.com/
A family surviving and thriving with a child with CDKL5 disorder/LGS disorder, severe epilepsy
http://lilyannablu.blogspot.com/
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Calm Amongst the Chaos | lilyannablu.blogspot.com Reviews
https://lilyannablu.blogspot.com
A family surviving and thriving with a child with CDKL5 disorder/LGS disorder, severe epilepsy
lilyannablu.blogspot.com
Calm Amongst the Chaos: Muddeling Through...
http://lilyannablu.blogspot.com/2010/08/muddeling-through.html
Calm Amongst the Chaos. Lily's Story (Welcome to CDKL5). Where It All Started. Tuesday, August 17, 2010. Last night was the viewing and today the memorial service. I don't even know what to say, this gal is speechless. I've been to funerals, I've even been to a child's funeral (2 in fact), but I never knew the child, or the parents like I know this family. I don't know what to say. I don't feel at liberty to go on about something that is not mine to share. Emmie Rae Check, your spirit will live on. E...
Calm Amongst the Chaos: Where It All Started
http://lilyannablu.blogspot.com/p/where-it-all-started.html
Calm Amongst the Chaos. Lily's Story (Welcome to CDKL5). Where It All Started. Where It All Started. Click on here it is :). Updates are newest to oldest so you have to scroll down to get to 2002. Yes seriously 2002-2008 is on that site. Im sure you know all this stuff on research for cannabis, but it pulled my heart and begged me to search for you. I am so proud of you as a mother and as a woman. You are strong and beautiful Kim. Take care. Stacey (Stacey.mather@yahoo.com). March 11, 2014 at 8:58 PM.
Calm Amongst the Chaos: June 2015
http://lilyannablu.blogspot.com/2015_06_01_archive.html
Calm Amongst the Chaos. Lily's Story (Welcome to CDKL5). Where It All Started. Monday, June 29, 2015. Spinal Fusion Post 3. My Facebook status post 4/7/2015 sometime late into the night:. Our nurse that night was Amy and she was in our room AROUND the clock. I don’t know if she even had another patient. Lily was top priority and because of her I was able to close my eyes and sleep. Seriously, that was a huge. For me. That first morning I had to wait for Andrew to get there (which was early) so I coul...
Calm Amongst the Chaos: April 2015
http://lilyannablu.blogspot.com/2015_04_01_archive.html
Calm Amongst the Chaos. Lily's Story (Welcome to CDKL5). Where It All Started. Saturday, April 4, 2015. Time is Ticking Away. Tick Tock. I have been at peace. Until now. My mama heart is racing. My mama tummy is in knots and my mama brain is so full it is hard to remind myself that where my focus needs to lie. It seems the only things I am finding comfort in is Starbucks and Target. I am not kidding. Thank you to those praying, supporting us via. Subscribe to: Posts (Atom). Lily was granted a Make A Wish...
Calm Amongst the Chaos: Spinal Fusion Post 3
http://lilyannablu.blogspot.com/2015/06/spinal-fusion-post-3.html
Calm Amongst the Chaos. Lily's Story (Welcome to CDKL5). Where It All Started. Monday, June 29, 2015. Spinal Fusion Post 3. My Facebook status post 4/7/2015 sometime late into the night:. Our nurse that night was Amy and she was in our room AROUND the clock. I don’t know if she even had another patient. Lily was top priority and because of her I was able to close my eyes and sleep. Seriously, that was a huge. For me. That first morning I had to wait for Andrew to get there (which was early) so I coul...
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The Robertson Family: June 2014
http://www.lifelesstypical.com/2014_06_01_archive.html
Thursday, June 19, 2014. We had every intention of being there for the welcome back portion as we had been last year. but we got a late start saturday morning and then hit traffic and then my flip flop broke and then we got there and it was over. but there were still hugs all around-some playing in the sand, visiting, chip eating and laughs were had. Colleen and jared were there with claire and chloe. they make me smile-for so many reasons. It is comfortable. it is easier. it is normal. Oops, missed May.
The Robertson Family: January 2014
http://www.lifelesstypical.com/2014_01_01_archive.html
Sunday, January 26, 2014. I ran 10 miles today. definitely procrastinated getting out there but finally did. it was a gorgeous day and under 50 degrees, just like i like it. this time i drove to the gym and started there-the iron horse trail goes right by the parking lot so it is very convenient. and im so so tired of the trail from home to there-ive run it too many times to count now. Hope you're having a great run! Which made me smile. then a co worker texted me "you are pretty f*#! And that she runs p...
The Robertson Family: September 2014
http://www.lifelesstypical.com/2014_09_01_archive.html
Tuesday, September 30, 2014. What would you give? And then a fleeting thought goes to my daughter. my avery-because she isnt doing what i did when i was her age. not even close. and even if she were, she cant tell me. she cannot speak. imagine that. really think about it. So how does this not speaking thing work? We will wear a sticker that says ¨im not speaking for rett syndrome, ask me why! Wanna have your mind blown? Tuesday, September 2, 2014. Ive been known to utter the phrase ¨i hate people...
The Robertson Family: April 2014
http://www.lifelesstypical.com/2014_04_01_archive.html
Wednesday, April 23, 2014. An email in my inbox today broke it down. Congratulations on finishing the 2014 Boston Marathon! In Gender 13846/14356 (Female). In Division 6729/6979 (F18-39 Age Group). It made me laugh. I knew the 6:02:09 and I knew there werent that many runners coming in behind me-but less than 1000! In a field of nearly 32,000! Too funny. and it is so not fair that im up against 18 year olds! There are a lot of reasons for my lack of speed-. I wanted to really take it all in-again-and foc...
The Robertson Family: January 2015
http://www.lifelesstypical.com/2015_01_01_archive.html
Tuesday, January 13, 2015. It is hard to believe it has been nearly 6 weeks since I last posted here. i have thought a lot about why.no time, the crazy of the holidays, that i dont feel like i need this place as much as i once did. it is probably all of those things equally with a little bit of "things are kind of normal and good right now". I have started calling her "sweet sweet". i dont know when that started, but i know its because im seeing more of my sweet, smiley girl. there are more momen...Calm ...
The Robertson Family: thanksgiving and the blues
http://www.lifelesstypical.com/2014/11/thanksgiving-and-blues.html
Saturday, November 29, 2014. Thanksgiving and the blues. We had another fabulous thanksgiving. food for days, great wine and our fabulous family. we hosted reds grandmother (Franny), his parents, his two brothers plus their wives and two nieces. we were just missing his sister and her family, and Barb of course. Our dinner was awesome, even though i totally butchered the potatoes (turns out you have to mash them when they are piping hot! And listening to holiday music. i was full of holiday spirit. Olive...
Family pics | The Nordys
https://nordys.wordpress.com/2012/06/09/family-pics-3
Laquo; Jayde and Mase Lately. Summer…so glad you’re back. By Little Miss J. On June 9, 2012. Leave a Reply Cancel reply. Enter your comment here. Fill in your details below or click an icon to log in:. Address never made public). You are commenting using your WordPress.com account. ( Log Out. You are commenting using your Twitter account. ( Log Out. You are commenting using your Facebook account. ( Log Out. You are commenting using your Google account. ( Log Out. Notify me of new comments via email.
Heavy Heart | The Nordys
https://nordys.wordpress.com/2012/08/16/heavy-heart
By Little Miss J. On August 16, 2012. I love Pammy, but I love you mostest.” (Oh my Jayde…you know exactly what to say.) She thought some more and then blurted out “I have an idea mom, how about we go to the grocery store today! 8221; This coming from the child who would rather do. Anyway…by next week we’ll all be back in the routine and we’ll have forgotten about our sadness and I’ll look back and question why I even wrote this post. (and probably consider removing it! Well, she helped herself to some m...
The Robertson Family: July 2015
http://www.lifelesstypical.com/2015_07_01_archive.html
Tuesday, July 7, 2015. Isn't it funny that we don't count the day of our birth as our first birth day? That we wait one whole year before we really celebrate? Shouldn't the actual birth day count? I remember so well the night before-as much as the day of. i have written about it almost every year. the food I ate, the forced contractions on the couch (that we still own and is still hanging in there) and trying to sleep that night knowing my life would change forever the next day. It is so much better.
Valentine Story… | The Nordys
https://nordys.wordpress.com/2012/02/14/valentine-story
Laquo; Birthdays, etc. 8220;Come Lord Jesus…. By Little Miss J. On February 14, 2012. Jeremy walked in the door last night with a beautiful bouquet of flowers meant for me. When I spotted them, I thought how sweet. I loved them even more that they were brought home a day early! Well, Jayda met him at the door as she always does. She gasped and dramatically exclaimed “Oh daddy, you got me. You got me these wonderful flowers! 🙂 She looked at me and said, “Mama, did you see Daddy got me flowers?
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Porcelain Doll
Lily 23. Record and tattoo collector. New Yorker in Miami. If it comes; let it. If it goes; let it. Charlotte a city I love, a city in which I have a lot of investments. On race in America, DONALD TRUMP (via inothernews. Like someone shot up a really popular black/latinx gay club and CNN is talking about the shooter’s connections to ISIS like I’m honestly trying to not vomit rn these people literally have zero respect and are using our deaths as a way to attack Islam.
Princess Lily Anna
June 15th, 2010. It's from a different clip, but here's a sneeze preview. June 15th, 2010. You are about to view content that may only be appropriate for adults. Tags: sneeze sneezing blow blowing nose. Finally, I'm blogging. June 11th, 2010. You are about to view content that may only be appropriate for adults. Tags: princess lily anna female domination hum. Finally, I'm blogging. Princess lily anna female domination hum. Sneeze sneezing blow blowing nose. Powered by LiveJournal.com.
Blog de lilyanna13 - lilyanna13's blog - Skyrock.com
Mot de passe :. J'ai oublié mon mot de passe. Mise à jour :. Fall Out BOy - Dance Dance. Abonne-toi à mon blog! La marque ki tue x3. N'oublie pas que les propos injurieux, racistes, etc. sont interdits par les conditions générales d'utilisation de Skyrock et que tu peux être identifié par ton adresse internet (67.219.144.170) si quelqu'un porte plainte. Ou poster avec :. Retape dans le champ ci-dessous la suite de chiffres et de lettres qui apparaissent dans le cadre ci-contre. Jvous présente Jucelina x3.
Updates from Lily | Watchin' the Bebe!
Watchin' the Bebe! Skip to primary content. Skip to secondary content. Holy smoke, did we see Santa! December 18, 2016. The big man was THERE. And we made a big day of itdrove to the train station,had coffee (adults only) and pastries at the patisserie, rode into the city, took the subway to Union Square,yeahhh. The we waited in line forEVER while it drizzled on and off. Hours and several fused vertebrae later, there we wereby Santa himself! And then post sugar crash:. Let’s call it a successful and fun ...
Lily Annabella
Lily's 'Home Chic' Collection. Love story wedding invite. Lily's 'Home Chic' Collection. 039;Annies' Baby Collection. 16 Hospital Road, Castlederg, Co. Tyrone, BT81 7HW, N. Ireland.
Calm Amongst the Chaos
Calm Amongst the Chaos. Lily's Story (Welcome to CDKL5). Where It All Started. Sunday, March 11, 2018. Thank you, please, please, please, please…. Please , please, please, please. In your holy precious name,. MY will be done. Oops I mean your will. Your will be done. But God, can you please, please, please match yours to mine? Living in fear in Arizona. Hi… I am Kim and as much as I love Jesus I have realized I don’t trust him very well. 15 years later my prayers have changed for her and of course our ac...
Coming Soon - Future home of something quite cool
Future home of something quite cool. If you're the site owner. To launch this site. If you are a visitor. Please check back soon.
LilyannaMalfoy (Keahna) - DeviantArt
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Lilyanna Marie, Lincoln Todd, & Lydia Rose
Lilyanna Marie, Lincoln Todd, and Lydia Rose. Sunday, July 10, 2011. A blog that I have been following is giving away a really beautiful headband. Beth the owner of the blog has been making them for herself and her girls. Check it out they are too cute! The blog address is www.dylandavid.blogspot.com. Wednesday, May 11, 2011. A little video of Lydia's naughty behavior. My mischievous little Lydia. I love you guys! Tuesday, April 26, 2011. Thursday, March 03, 2011. Happy Birthday Baby Girl. Britni took so...
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