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The Life of a Vaguely Neurotic MPN Patient – A blog for MPN Patients, Family, and Caregiveres.A blog for MPN Patients, Family, and Caregiveres.
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A blog for MPN Patients, Family, and Caregiveres.
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The Life of a Vaguely Neurotic MPN Patient – A blog for MPN Patients, Family, and Caregiveres. | linampn.com Reviews
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The Life of a Vaguely Neurotic MPN Patient – Page 2 – A blog for MPN Patients, Family, and Caregiveres.
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The Life of a Vaguely Neurotic MPN Patient. A blog for MPN Patients, Family, and Caregiveres. Coming out of the fog…. May 24, 2015. May 24, 2015. Happy Weekend, all! It’s a beautiful day, so I felt that i should take this opportunity to write a quick update. I will go for another CBC on Wednesday and we’ll see if anything has changed since last week. Not much else to add at the moment, so I’ll end this here. As always, you are your own best advocate. If you do not stand up for yourself, who will? This si...
#HAWMC Day 5 – BREAKING NEWS!!! – The Life of a Vaguely Neurotic MPN Patient
https://linampn.com/2015/04/05/hawmc-day-5-breaking-news
The Life of a Vaguely Neurotic MPN Patient. A blog for MPN Patients, Family, and Caregiveres. HAWMC Day 5 – BREAKING NEWS! April 5, 2015. Today I’m supposed to be writing about my proudest accomplishment from the last 5 years. This a tough one, because as a blogger I already share a lot about myself with you all. I’ve told you about the NORD Patient Meeting. And the OVAC event. From last summer, I told you when I got married (It will be three years on April 14th! Up next, #HAWMC Day 6 – Your Hero! You ar...
#HAWMC Day 4 – Creature of Habit – The Life of a Vaguely Neurotic MPN Patient
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The Life of a Vaguely Neurotic MPN Patient. A blog for MPN Patients, Family, and Caregiveres. HAWMC Day 4 – Creature of Habit. April 5, 2015. My binder ( about which I’ve written before. What habits do you have that have helped you out over the years? As always, you are your own best advocate. If you do not stand up for yourself, who will? Next up #HAWMC Day 5 Breaking News! Until next time,. HAWMC Day 3 – Good Samaritan. HAWMC Day 5 – BREAKING NEWS! April 17, 2015 at 3:04 pm. I have been to 4 different ...
linampn – The Life of a Vaguely Neurotic MPN Patient
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The Life of a Vaguely Neurotic MPN Patient. A blog for MPN Patients, Family, and Caregiveres. The Theory of Pain Relativity. August 4, 2016. STOP COMPARING. SITUATIONS. I’ve said this before, and I’m sure I’ll say it again. Pain is relative to the person experiencing it. Period. End of story. Endure the bad days. Enjoy the good days. After all, one could not exist, without the other. As always, you are your own best advocate. If you do not take care of yourself, who will? Until next time,. July 17, 2016.
First Dose of PegInf on board! – The Life of a Vaguely Neurotic MPN Patient
https://linampn.com/2012/02/03/first-dose-of-peginf-on-board
The Life of a Vaguely Neurotic MPN Patient. A blog for MPN Patients, Family, and Caregiveres. First Dose of PegInf on board! February 3, 2012. November 21, 2013. OK, I said I would write about my side effects etc as they happened…so here goes. First up, the process of administration…. Thru the ACT Program from Merck, a four-week supply of the medication will be sent to either your home or your doctor’s office. Here is just a little close up of the box contents. Dose One, Same day side effects:. Almost im...
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MPN Research Foundation
http://mpnrf.blogspot.com/2015/05/you-may-have-heard-that-earlier-this.html
Thursday, May 21, 2015. You may have heard that earlier this week the Federal Trade Commission filed a lawsuit against four cancer groups for defrauding donors. The four organizations collected $187 million between 2008 and 2012. Founder James Reynolds, Sr. and his friends and family members operated all the “sham” organizations. Less than 2 cents of every dollar donated went to aid for cancer patients. How do you know if your donation supports the cause that is important to you? You should also check th...
MPN Research Foundation: MF HIKE
http://mpnrf.blogspot.com/2015/06/mf-hike.html
Tuesday, June 30, 2015. With research there is hope". WITH RESEARCH THERE IS HOPE". On August 19, 2014, Julie Libon was diagnosed with Myelofibrosis. She learned that MF is a rare blood cancer that affects approximately 16,500 to 18,000 people in the United States with no cure and no treatments to slow down the progression of this disease. If you're inspired by Julie's actions email Bill @ wcrowley@mpnresearchfoundation.org. With your idea, big or small. After her diagnosis, she and her family felt compe...
MPN Research Foundation
http://mpnrf.blogspot.com/2015/04/pa-support-group-leader-jean-diesch.html
Wednesday, April 22, 2015. PA Support Group Leader, Jean Diesch, Rally's "MPN Warriors" to raise Awareness at the "Light the Night Walk" during BCAM. We took a few minutes to talk with Jean about her experiences as a Support Group Leader. Prepare to be inspired! Why did you become a Support Group Leader? Where did you begin your journey as a SGL? What were some of the challenges you came across? How did you overcome them? I requested the MPN Research Foundation notify their patient base to inform people ...
MPN Research Foundation: Help fix Medicare's gap of coverage for Myelofibrosis patients seeking a stem cell transplant
http://mpnrf.blogspot.com/2015/05/help-fix-medicares-gap-of-coverage-for.html
Monday, May 4, 2015. Help fix Medicare's gap of coverage for Myelofibrosis patients seeking a stem cell transplant. I just submitted my first public comment ever to the Centers for Medicare and Medicaid Services (CMS), the body that governs what is covered by Medicare and Medicaid. By the time you finish reading this I hope you'll decide to follow suit. There is data to back this up, and also there's stories like Ron's. Medicare should be encouraged to explicitly cover transplant for myelofibrosis. We ar...
MPN Research Foundation: February 2015
http://mpnrf.blogspot.com/2015_02_01_archive.html
Tuesday, February 24, 2015. Research Fuels Progress Against Cancer. Research Fuels Progress Against Cancer. Research continues to be our best defense against cancer. It improves survival and quality of life for millions of people by spurring the development of new and better ways to prevent, detect, diagnose, treat, and, increasingly, cure some of the more than 200 diseases we call cancer. There are 4 types or phases. Phase I studies are designed to determine the best dose of a therapy and how humans pro...
MPN Research Foundation: MPNs made news at ASCO this year
http://mpnrf.blogspot.com/2015/06/mpns-were-all-over-asco-this-year.html
Friday, June 5, 2015. MPNs made news at ASCO this year. The American Society of Clinical Oncology has its big meeting each year in Chicago in early June. In the past solid tumor cancers have received the most attention, saving blood cancer announcements for the American Society of Hematology meeting where the focus is more narrow. This year, however, was different, with big news coming from Baxter/CTIBiopharma on their Pacritinib data. Dr Ruben Mesa presented at a press conference. Life with Essential Th...
MPN Research Foundation: MPN Clinical Trial Highlights for Summer 2015
http://mpnrf.blogspot.com/2015/07/mpn-treatment-pipeline-for-summer-2015.html
Friday, July 17, 2015. MPN Clinical Trial Highlights for Summer 2015. If you have MF, PV or ET but don’t need medication now, you may think that clinical trials don’t matter to you. But that could change, at which point you may want to review your options. Thankfully, over the past years the interest in developing treatments for people living with these rare, chronic blood cancers has exploded. Here are some clinical trials we’re keeping our eye on:. Acquired Imetelstat from Geron and has an open study t...
MPN Research Foundation: March 2015
http://mpnrf.blogspot.com/2015_03_01_archive.html
Tuesday, March 10, 2015. 2015 MPN Challenge Grant Program. The 2015 MPN Challenge is a grant program supported jointly by the MPN. Research Foundation and the Leukemia and Lymphoma Society. This grant program represents an important partnership between MPNRF and LLS, who share a mission to advance the scientific understanding of MPNs and bring new treatments and the hope for a cure to patients with these rare diseases. The 2015 MPN Challenge. Why this Approach is Appropriate Now. To guide us, in November...
MPN Research Foundation: October 2013
http://mpnrf.blogspot.com/2013_10_01_archive.html
Monday, October 14, 2013. Clinical trials news for PV and ET patients. Last week two companies reported news on their clinical trials for myeloproliferative neoplasms:. AOP Orphan Pharmaceuticals announced. That Phase III trials were going well for their study on Pegasys in PV patients. This study is being conducted in Europe and is currently recruiting. Promedior has initiated a new Phase II clinical trial. For their compound, PRM-151, in people with myelofibrosis. Subscribe to: Posts (Atom).
MPN Research Foundation: September 2013
http://mpnrf.blogspot.com/2013_09_01_archive.html
Thursday, September 5, 2013. This September we're putting patients in the driver's seat. Last September, the U.S. House of representatives declared that. September is Blood Cancer Awareness Month. In 2012 our focus was to help educate patients about the diseases and the resources available. This year is all about YOU as patients and patient-supporters, and the role you can take in combatting PV, ET, and MF. Follow along on Twitter and Facebook with the hashtag #mpnbcam throughout the month of September.
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The Life of a Vaguely Neurotic MPN Patient – A blog for MPN Patients, Family, and Caregiveres.
The Life of a Vaguely Neurotic MPN Patient. A blog for MPN Patients, Family, and Caregiveres. Back to the Blog…. February 11, 2018. February 12, 2018. Well, here we are again. Another 6 month absence from my blog. I’m not going to lie, I honestly just haven’t felt as though I have much of value to say, over the last several months. Been a little down, and uninvolved in much lately. But I’ve decided that is going to change. Let’s do a little update:. That’s about it out of me for now. I’ll...The Grant Rev...
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This site started out as a collection of our photos and Abby's diary from our trip to Australia in 2005, but I decided to keep adding photos and stories from other places and events that inspire us. Hope they inspire you too! Were trying to prove we can be . Washington Trip - July 22, 2009. Washington trip - July 21. Washington Trip - July 20. Washington Trip - July 19. Washington Trip - July 18. Washington Trip - July 17. Washington Trip - July 16. Washington trip - 7-15-09. Monday, December 15, 2014.
LENGUA CASTELLANA LINA RODRIGUEZ
LENGUA CASTELLANA LINA RODRIGUEZ. Lunes, 12 de mayo de 2014. EL IMPACTO DE LAS REDES SOCIALES. Las redes sociales en nuestra sociedad y más en las nuevas generaciones forman parte de nuestro diario vivir y en algunos casos en un miembro de nuestra familia. Conocemos como redes sociales a forma estructural de representar un grupo social de personas donde interactúan, se conocen y tienen en algunos casos una vida social basada en gustos, preferencias, etc. Con lo anteriormente mencionada se podría decir qu...
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