littlefaithtobigfaith.blogspot.com

Little Faith To Big Faith

This blog was started to document our walk through jaw distraction surgery and how it is helping Faith overcome some of the serious issues she has faced including obstructive sleep apnea. After researching jaw distraction surgery, we could only find one other T-18 child to have this procedure done. We hope our story will help other families dealing with Trisomy 18 and we look forward to the day God completes the work He has begun in Faith.

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Little Faith To Big Faith | littlefaithtobigfaith.blogspot.com Reviews

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This blog was started to document our walk through jaw distraction surgery and how it is helping Faith overcome some of the serious issues she has faced including obstructive sleep apnea. After researching jaw distraction surgery, we could only find one other T-18 child to have this procedure done. We hope our story will help other families dealing with Trisomy 18 and we look forward to the day God completes the work He has begun in Faith.

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Little Faith To Big Faith | littlefaithtobigfaith.blogspot.com Reviews

https://littlefaithtobigfaith.blogspot.com

This blog was started to document our walk through jaw distraction surgery and how it is helping Faith overcome some of the serious issues she has faced including obstructive sleep apnea. After researching jaw distraction surgery, we could only find one other T-18 child to have this procedure done. We hope our story will help other families dealing with Trisomy 18 and we look forward to the day God completes the work He has begun in Faith.

INTERNAL PAGES

littlefaithtobigfaith.blogspot.com

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Little Faith To Big Faith: May 2013

http://littlefaithtobigfaith.blogspot.com/2013_05_01_archive.html

Little Faith To Big Faith. Wednesday, May 29, 2013. On The Road Again. Http:/ www.legislature.mi.gov/(S(ilqnka451wx2gy2ylx31sg55) /mileg.aspx? Medical Good Faith Act. Wednesday, May 22, 2013. Now the bill will go back to the Senate for final approval due to language changes in the House then next stop is Governor Snyder's desk. Then we want to work with parents in other states to promote the legislation. Http:/ www.legislature.mi.gov/(S(0eiof3zufdtiyk55fep5kxfo) /mileg.aspx? Medical Good Faith Act.

2

Little Faith To Big Faith: November 2013

http://littlefaithtobigfaith.blogspot.com/2013_11_01_archive.html

Little Faith To Big Faith. Wednesday, November 13, 2013. HAVE YOU EVER HAD AN AWKWARD MOMENT.yet appointed by God. Labels: Detroit Medical Center. Medical Good Faith Act. Right to Life of Michigan. Subscribe to: Posts (Atom). Faith Trisomy 18 Bleeding. Faith Trisomy 18 Disney Minnie. Faith Trisomy 18 Jaw Distraction. Faith Trisomy 18 RSV. Give Kids The World. Medical Good Faith Act. Right to Life of Michigan. HAVE YOU EVER HAD AN AWKWARD MOMENT.yet appoint. Picture Window template. Powered by Blogger.

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Little Faith To Big Faith: December 2012

http://littlefaithtobigfaith.blogspot.com/2012_12_01_archive.html

Little Faith To Big Faith. Sunday, December 23, 2012. Today is Faith's 4th birthday and we are in Ohio. It is a great day and she is happy to be here. She loves to walk in her gait trainer as you can see here. We are thrilled to see her continued progress. Location: Lima, null. Monday, December 3, 2012. Medical Good Faith Act.getting closer. Labels: Michigan State House. Subscribe to: Posts (Atom). Faith Trisomy 18 Bleeding. Faith Trisomy 18 Disney Minnie. Faith Trisomy 18 Jaw Distraction.

4

Little Faith To Big Faith: April 2014

http://littlefaithtobigfaith.blogspot.com/2014_04_01_archive.html

Little Faith To Big Faith. Saturday, April 12, 2014. AMAZING TED VIDEO about medical innovation. Check out this amazing TED video about medical innovation. Https:/ www.youtube.com/watch? Dr Glenn Green is Faith's ENT at Mott Children's Hospital. He did Faith's jaw distraction, and here is a before and after p. Labels: Dr. Glenn Green. Subscribe to: Posts (Atom). Faith Trisomy 18 Bleeding. Faith Trisomy 18 Disney Minnie. Faith Trisomy 18 Jaw Distraction. Faith Trisomy 18 RSV. Give Kids The World.

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Little Faith To Big Faith: HORSE PILL Update

http://littlefaithtobigfaith.blogspot.com/2014/08/horse-pill-update.html

Little Faith To Big Faith. Saturday, August 9, 2014. Faith on our deck today. Subscribe to: Post Comments (Atom). Faith Trisomy 18 Bleeding. Faith Trisomy 18 Disney Minnie. Faith Trisomy 18 Jaw Distraction. Faith Trisomy 18 RSV. Give Kids The World. Medical Good Faith Act. Right to Life of Michigan. A Little BUCKEYE Victor. Picture Window template. Powered by Blogger.

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compatiblewithjoy-trisomy18.blogspot.com

Compatible With Joy-Trisomy18: Time to Throw in the Towel

http://compatiblewithjoy-trisomy18.blogspot.com/2015/05/time-to-throw-in-towel.html

What Is Trisomy 18? Inspirations and Other Thoughts. Letter of Medical Necessity. Correcting Aaron's Rocker Bottom Feet. Supports for Families Facing a Trisomy Diagnosis. Saturday, May 2, 2015. Time to Throw in the Towel. Yep, that kinda says it all. I called his ped yesterday morning and they changed his med to a different one, a hopefully better one. But by afternoon, "stuff" was just pouring out of him. Almost literally pouring out. But that's not where he is right now. Four weeks ago, he weighed 20&#...

compatiblewithjoy-trisomy18.blogspot.com

Compatible With Joy-Trisomy18: We Just Don't Know...

http://compatiblewithjoy-trisomy18.blogspot.com/2015/05/we-just-dont-know.html

What Is Trisomy 18? Inspirations and Other Thoughts. Letter of Medical Necessity. Correcting Aaron's Rocker Bottom Feet. Supports for Families Facing a Trisomy Diagnosis. Monday, May 4, 2015. We Just Don't Know. This kid is a mystery. He's not playing by the rules, which is often a good thing, but kinda perplexing. Here's what we know:. His first test was positive, his second (and third 'cause they were so surprised at the results) were negative. But this kiddo has a real sense of humor. The nasty di...

compatiblewithjoy-trisomy18.blogspot.com

Compatible With Joy-Trisomy18: Trisomy 18 Awareness Day

http://compatiblewithjoy-trisomy18.blogspot.com/2015/03/trisomy-18-awareness-day.html

What Is Trisomy 18? Inspirations and Other Thoughts. Letter of Medical Necessity. Correcting Aaron's Rocker Bottom Feet. Supports for Families Facing a Trisomy Diagnosis. Wednesday, March 18, 2015. Trisomy 18 Awareness Day. I've tried for days to come up with something "important" or "profound" to say about today, and it just hasn't happened. Words can't convey the sorrow we feel when a child passes on, even if we haven't met them in person, the grief that rips at our soul, or the niggling of guilt that ...

compatiblewithjoy-trisomy18.blogspot.com

Compatible With Joy-Trisomy18: Supports for Families Facing a Trisomy Diagnosis

http://compatiblewithjoy-trisomy18.blogspot.com/p/supports-for-families-facing-trisomy.html

What Is Trisomy 18? Inspirations and Other Thoughts. Letter of Medical Necessity. Correcting Aaron's Rocker Bottom Feet. Supports for Families Facing a Trisomy Diagnosis. Supports for Families Facing a Trisomy Diagnosis. Trisomy 18 Medical Study published in Oraphant Rare Disease Journal Oct 23, 2012. Http:/ www.ncbi.nlm.nih.gov/pmc/articles/PMC3520824/. Https:/ www.facebook.com/groups/T18Mommies/. Living with Trisomy 13 Group Page. Https:/ www.facebook.com/groups/Trisomy13/. Trisomy 4 (and 9p deletion.

compatiblewithjoy-trisomy18.blogspot.com

Compatible With Joy-Trisomy18: For My Angel Mommy Friends

http://compatiblewithjoy-trisomy18.blogspot.com/2015/05/for-my-angel-mommy-friends.html

What Is Trisomy 18? Inspirations and Other Thoughts. Letter of Medical Necessity. Correcting Aaron's Rocker Bottom Feet. Supports for Families Facing a Trisomy Diagnosis. Sunday, May 3, 2015. For My Angel Mommy Friends. I have a lot of angel mommy friends. Some are obvious, some less so. You'd expect that I have a lot in the Trisomy/Heart/Trach/Vent world. It's almost like we're afraid it might be catching. So if we don't acknowledge that it happens, it can't happen to us. So today, may I offer you a gif...

compatiblewithjoy-trisomy18.blogspot.com

Compatible With Joy-Trisomy18: The "Go" Bag

http://compatiblewithjoy-trisomy18.blogspot.com/p/the-go-bag.html

What Is Trisomy 18? Inspirations and Other Thoughts. Letter of Medical Necessity. Correcting Aaron's Rocker Bottom Feet. Supports for Families Facing a Trisomy Diagnosis. Here's what we travel with for Aaron. It seems really complicated, but it's not, because we only had to organize it once. Then when we use something, we just make sure to replace it. Except there was the one time when I forgot to replace diapers and ended up without any. Arg! The one staple of EVERY baby's "go" bag. Suction catheters (B...

compatiblewithjoy-trisomy18.blogspot.com

Compatible With Joy-Trisomy18: Medical History Template

http://compatiblewithjoy-trisomy18.blogspot.com/p/medical-history-template.html

What Is Trisomy 18? Inspirations and Other Thoughts. Letter of Medical Necessity. Correcting Aaron's Rocker Bottom Feet. Supports for Families Facing a Trisomy Diagnosis. Page 1 - this is the most important page. MEDICAL ACTION (full code, dnr, no cpr, whatever). In this text box put:. Insurance Co and policy #. EGA (gestational age @ birth). Birth weight and blood type. Current weight and date last weighed. Trach size, vent settings. G-tube size, etc that would. Be needed ASAP in an. Anytown, ST 00000.

compatiblewithjoy-trisomy18.blogspot.com

Compatible With Joy-Trisomy18: What Is Trisomy 18?

http://compatiblewithjoy-trisomy18.blogspot.com/p/what-is-trisomy-18.html

What Is Trisomy 18? Inspirations and Other Thoughts. Letter of Medical Necessity. Correcting Aaron's Rocker Bottom Feet. Supports for Families Facing a Trisomy Diagnosis. What Is Trisomy 18? Trisomy 18, also known as Edwards syndrome, is a condition which is caused by a chromosomal defect. It occurs in about 1 out of every 3000 live births. The numbers increase significantly when early pregnancy losses are factored in that occur in the 2nd and 3rd trimesters of pregnancy. Subscribe to: Posts (Atom).

compatiblewithjoy-trisomy18.blogspot.com

Compatible With Joy-Trisomy18: Happy 11 Months!

http://compatiblewithjoy-trisomy18.blogspot.com/2011/05/happy-11-months.html

What Is Trisomy 18? Inspirations and Other Thoughts. Letter of Medical Necessity. Correcting Aaron's Rocker Bottom Feet. Supports for Families Facing a Trisomy Diagnosis. Friday, May 13, 2011. BUT, come Thursday, his tummy had stretched and his meds had kicked in and lowered his lung pressures. Lo and behold, we're back down low on his oxygen usage and high on the smiles! He's still taking his antibiotics, but those will be done tomorrow. The weather is also gorgeous so I'm going to try to take him t...

compatiblewithjoy-trisomy18.blogspot.com

Compatible With Joy-Trisomy18: Pertinent Medical History

http://compatiblewithjoy-trisomy18.blogspot.com/p/pertinent-medical-history.html

What Is Trisomy 18? Inspirations and Other Thoughts. Letter of Medical Necessity. Correcting Aaron's Rocker Bottom Feet. Supports for Families Facing a Trisomy Diagnosis. This is by no means exhaustive. It can be used to help others who want to know what can be done for our little ones. Aaron is a 25 month old male with full Trisomy 18 diagnosed prenatally. He was born via C-section at 37 weeks, 2 days due to persistent heart decelerations with delayed recovery. He was not breathing at birth. Intubation ...

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Welcome to my blog! My name is Jenny (also know as @christiangirls. On Instagram) and I'm just an ordinary 20-year-old girl with a passion to share the love of Jesus. My purpose and hope for this website is to inspire other girls to dive into a relationship with God and grow closer to Him each and every day. I'm so glad you're here, and I hope you enjoy looking around! Check out the Little Faith Book, a journal where daily Bible study meets crafts, doodles and creativity! Subscribe to receive blog updates.

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Http:/ www.parksideedc.org/events/wednesdaynightjazzcooldown/. To play the media you will need to either update your browser to a recent version or update your Flash plugin. Winter Tour in the Works. Sold out shows at Valhalla Tahoe Festival and Jazz Cool Down! Gearing up for another tour: Bay Area, Sacramento, Tahoe. Little Faith signs with Skyrocket for new record. Longtime Whitney Houston musical director Michael Baker produced. And contributed the album’s moving title track, a song he’d w...Has calle...

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Birthday Note for The Little One. Jul 15, 2015 Uncategorized. Dear little one, You’ll be turning 2 in exactly a week’s time. Papa has been procrastinating in writing you this note as I wasn’t sure if any writing of mine would justify how I feel… and I’m not like Mama who can write so superbly well. One … Two … Peee! Jul 7, 2015 Uncategorized. The 7 Year Itch. May 29, 2015 Uncategorized. To Galvs: Hi Dear! Oh how time flies …. Find me a footing. Apr 9, 2015 Uncategorized. Mar 13, 2015 Uncategorized. 8221;...

littlefaithtobigfaith.blogspot.com

Little Faith To Big Faith

Little Faith To Big Faith. Saturday, August 9, 2014. Faith on our deck today. Friday, August 8, 2014. Faith is having a procedure done this morning. They are going to insert a capsule that will take pictures of her small intestines. We are trying to find the source of her bleeding so pray that God works through these doctors. This picture has our One Hit Wonder nurses who got Faith's IV into her in one shot. We always appreciate nurses like this. Saturday, August 2, 2014. A Little BUCKEYE Victor. Icture ...

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Once Upon A Time. My name is Cassie. I am 20 and I go to Oakland University for Elementary Education. I'm going to change the world, even if it's only in one child. Embrace my love for Disney, I feel the magic every time I see a Disney movie. Share the love. Send me a message. JUST MADE A BIRTHDAY LIST PAGE. Follow me, send me your birthdays (and how old you’re turning) and I’ll add it to the list and promote you every year on your birthday :). Send me your birthdays on my personal blog! Oh geeze, guys.

littlefaiz.blogspot.com

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Somewhere for me to show off my baby faiz, whom I am crazy about. Perhaps this will also be where I discover a bit of myself which I never knew existed. View my complete profile. Birth Announcements from WiddlyTinks.com. From JITRA with luv. 4032010- arineh ako start keje kat ttmpt bru. INSTITUT LATIHAN PERINDUSTRIAN JITRA, KEDAH. huhuhuhuh! My 1st posting in govrmnt. xtau la nak kt pe? Xde perasaan kot. seronok ke, sedih ke, geram ke. ntah? Pg2 ako dh dtg lapor dri, everything was ok in here accept cuac...

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A little vegetarian food, lifestyle and fashion blogger. January 18, 2014. I’m always wearing black, I don’t know why but It compliments my pale skin and red lips combo very well, but lately I’ve been trying to invite colour into my wardrobe which is a good start. But I went all … Continue reading →. Outfit of the day. January 18, 2014. I hope everyone has a fabulous Saturday. Its not you…It’s ACTUALLY me. January 15, 2014. Getting drunk then taking it out on everyone ISN’T the best option either. BUT, I...

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