williamssyndromedad.blogspot.com
Williams Syndrome: Dad's Journey into the unknown: We are waiting, we are waiting...
http://williamssyndromedad.blogspot.com/2013/09/we-are-waiting-we-are-waiting.html
Williams Syndrome: Dad's Journey into the unknown. Thursday, September 12, 2013. We are waiting, we are waiting. Mostly in to theatre nearly 3 hours ago. We do not expect to see him inside another 4. We wait. The greatest fear I have is that the last thing E will know is me restraining him, while the mask is applied for the gas. My greatest hope is that he remembers the last words said to him while awake. "I love you" from his mum and "keep fighting bubba" from me. Most recently, the support of complete ...
williamssyndromedad.blogspot.com
Williams Syndrome: Dad's Journey into the unknown: May 2012
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Williams Syndrome: Dad's Journey into the unknown. Saturday, May 26, 2012. God Only Knows What I'd be Without You - a post about E's Mum. When E's mum and I got married I wanted the first dance to be to the Beach Boys "god only knows". I settled for the last dance and as an aside wore flop flops, something I swore I would do on my wedding day! The song makes me think more of her now than then - God only knows what I'd be without you. So, E's mum, the person who makes this dad's journey into the unknown a...
williamssyndromedad.blogspot.com
Williams Syndrome: Dad's Journey into the unknown: February 2012
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Williams Syndrome: Dad's Journey into the unknown. Wednesday, February 22, 2012. What if we had known? Due warning: this is not an easy post to write and is not likely to be an easy post to read - but its what's been in my head - so its coming out - it has taken me three weeks to get to this. This was brought up in my mind by one of the things I look at and it got me to thinking. It was the decision we came to the first time - and we didn't need to use it, so decision remained the same. E's condition has...
williamssyndromedad.blogspot.com
Williams Syndrome: Dad's Journey into the unknown: October 2011
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Williams Syndrome: Dad's Journey into the unknown. Sunday, October 9, 2011. Dark Days and Sleepless Nights. Yesterday marked 3 months since we were formally notified of Ethan's diagnosis. This has made me return to my blog which has been neglected a little - and makes me think i need to return to the original purpose for setting it up - to help me - to give me a vent. Be back more frequently in future. Subscribe to: Posts (Atom). Things i look at. Working Mum's Fight for Sanity. Chubby Chicks Run Too.
williamssyndromedad.blogspot.com
Williams Syndrome: Dad's Journey into the unknown: Williams Syndrome Basics
http://williamssyndromedad.blogspot.com/p/williams-syndrome-basics.html
Williams Syndrome: Dad's Journey into the unknown. Williams Syndrome is a rare genetic disorder which comes with a complex set of physical and mental challenges. more soon. Subscribe to: Posts (Atom). Things i look at. Working Mum's Fight for Sanity. Chubby Chicks Run Too. Williams Syndrome Foundation UK. Our Story - WS. Notes from the holler. Comradeship or lonely furrow. A day of mixed feelings. The unfamiliar side of the familiar and our medica. We are waiting, we are waiting. Never tell me the odds.
princessgia.blogspot.com
GIANNA NICOLE
http://princessgia.blogspot.com/2009/08/wow-where-has-summer-gone-it-flew-by.html
Wednesday, August 26, 2009. Wow, where has the summer gone? It flew by but we all had fun:) Gianna went to camp for the very first time and loved it! In a few weeks Gianna starts kindergarten and although I am thrilled she is going to the same school her brothers go to, I am also sad because she is growing up soooo fast:( My little "Peanut" is not so little anymore! I know she will just LOVE school! Good luck my little Peanut.thanks so much for the fun summer! Happy first day of school, Gianna! Wow, wher...
unexpectedjourneys.blogspot.com
Unexpected Journeys: Back in the saddle again
http://unexpectedjourneys.blogspot.com/2009/03/back-in-saddle-again.html
Wednesday, March 25, 2009. Back in the saddle again. It's been a whirlwind since coming home from the hospital. Brady has taken off like a rocket and I am amazed at how different he is. Health-wise, Brady only lost a few ounces, which was amazing. His eating has improved. His recovery with his incision. You'll note in these pictures Brady is actually doing SOMETHING. very little laying around now. he's outta here! Sounds like he is doing great. Told you to watch out! That is so awesome to hear, Kerry!
unexpectedjourneys.blogspot.com
Unexpected Journeys: September 2008
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Wednesday, September 17, 2008. Be kinder than necessary,. For everyone you meet. Is fighting some kind of battle. Friday, September 12, 2008. Putting things in perspective. That is how I live my life. Not having oodles of extra money, but having caring friends and family. Not being model thin, but having good health nonetheless. Brady having Williams syndrome, Brady not having anything worse. My heart goes out to this boy who lost his battle and his family. Please send your prayers. Thank you. And he cra...
princessgia.blogspot.com
GIANNA NICOLE: October 2008
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Thursday, October 30, 2008. Monday, October 27, 2008. Victory For Our Baby! We just received word last Thursday that Gianna will receive TSS services:) We are so relieved. We started this process in late March and finally after going through the appeal process Gianna will get the help she needs. I am so glad we fought back and advocated for her. So if you are going through this, be persistent and be a voice for your child! I am looking forward to doing some Trick-or-Treating this Friday! Yes, my dad told...
unexpectedjourneys.blogspot.com
Unexpected Journeys: November 2008
http://unexpectedjourneys.blogspot.com/2008_11_01_archive.html
Tuesday, November 25, 2008. Ode to Love Puppy. On Valentine's Day of Two thousand eight,. I was pleasantly surprised to find my mate. It wasn't a girl, for that I am sure. It was a puppy with red and white fur. For months he hung around with the stuffed bear,. When, suddenly, my eyes opened up, excited to see him there. With red hearts blazing all over his white frame,. I smiled at him, and Love Puppy was named. My mom was excited that I loved this guy. I couldn't care less before; now, I wasn't shy!
