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LittleLauren.org | Help Us Fight OMS

Little Lauren.org was created to raise awareness about opsoclonus-myoclonus syndrome (OMS), a very rare neurological autoimmune disease.

http://www.littlelauren.org/

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LittleLauren.org | Help Us Fight OMS | littlelauren.org Reviews
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Little Lauren.org was created to raise awareness about opsoclonus-myoclonus syndrome (OMS), a very rare neurological autoimmune disease.
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LittleLauren.org | Help Us Fight OMS | littlelauren.org Reviews

https://littlelauren.org

Little Lauren.org was created to raise awareness about opsoclonus-myoclonus syndrome (OMS), a very rare neurological autoimmune disease.

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littlelauren.org littlelauren.org
1

LittleLauren.org | Help Us Fight OMS

http://www.littlelauren.org/index.php

Lauren keeps busy doing crafts while in the hospital. Lauren's "Home" for several months in 2012. Lauren and her wonderful surgeon, Dr. Chris Weldon. Lauren returns to school after a 5 month hospital stay. OMS Fundraiser Mother-Son Dance. Little Lauren.org was created to raise awareness about opsoclonus-myoclonus syndrome (OMS), a very rare neurological autoimmune disease that Lauren has been ill with and fighting since January 2009. THE 2015 MOTHER SON DANCE. HOW YOU CAN HELP.

2

LittleLauren.org | About OMS

http://www.littlelauren.org/aboutoms.php

About Opsoclonus-Myoclonus Syndrome (OMS). Resource: http:/ en.wikipedia.org/wiki/Opsoclonus myoclonus syndrome. Opsoclonus myoclonus is a syndrome in which the eyes dart involuntarily (opsoclonus or dancing eyes) and muscles throughout the body jerk or twitch involuntarily (myoclonus). About half of all cases of opsoclonus myoclonus are associated with neuroblastoma and most of the others are suspected to be associated with a low-grade neuroblastoma that spontaneously regressed before detection. It ...

3

LittleLauren.org | Donate Now

http://www.littlelauren.org/donate.php

The Lauren Mantz OMS Research Fund. The Lauren Mantz OMS Research Fund was created by the parents of Lauren Mantz at Boston Children’s Hospital to address some of the many shortcomings today in the diagnosis and treatment of OMS. After our daughter Lauren was diagnosed with OMS, we were very surprised to find such little information and research existed about OMS. This has improved the last few years, but still has a long ways to go. Who is behind this research? How can I help? We are putting together a ...

4

LittleLauren.org | Lauren's OMS Journey

http://www.littlelauren.org/journey.php

Lauren spent another week in the hospital in Orlando in May 2012 for another bout of pancreatitis. She recovered and remains on a strict low-fat diet. Luckily she has done well on it until October 2014 when she had a small relapse of OMS symptoms. She had grown quite a bit since stopping the prednisolone/steroid so they increased her evening dose of Cellcept. This has proven effective so far.

5

LittleLauren.org | The 2015 Mother Son Dance

http://www.littlelauren.org/msdance.php

The 2015 Mother-Son Dance. Mothers or mother-figures and sons (ages 3-12) are invited for an evening filled with jammin’ fun to include DJ, dancing, refreshments, and cherished memories. $5 professional photo opportunity available. All donations and proceeds from this event are put towards OMS research at Boston Childrens Hospital, one of a few facilities in the US to be actively studying OMS. BUY TICKETS IN PERSON. 106 SW 17th Street, Ocala, FL 34471. Hours: Mon Sat: 10 9; Sun 12-5.

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Lauren keeps busy doing crafts while in the hospital. Lauren's "Home" for several months in 2012. Lauren and her wonderful surgeon, Dr. Chris Weldon. Lauren returns to school after a 5 month hospital stay. OMS Fundraiser Mother-Son Dance. Little Lauren.org was created to raise awareness about opsoclonus-myoclonus syndrome (OMS), a very rare neurological autoimmune disease that Lauren has been ill with and fighting since January 2009. THE 2015 MOTHER SON DANCE. HOW YOU CAN HELP.

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